Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Do You Pee A Lot?


scuzy

Recommended Posts

scuzy Rookie

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

ok, so- excuse my rambling/incoherent thoughts:

i do not know of any particular link at all. BUT-

1. i did read that D-Mannose can help to bind up gluten so u can purge it. D-Mannose also binds up sugars in the bladder and can help fight bladder infections.

2. and i worked with a girl who had Interstitial Cystitis which i believe is an autoimmune disease? many people have a few autoimmune diseases as opposed to one.

3. the last time i went back on gluten- i continuously felt like i MIGHT be getting a bladder infection.

4. and- embarrassingly, i was a horrific bed wetter- even into my teens, and always lost it when i laughed too hard.

i dont know if those are linked to gluten at all ??? but that's my 2 cents

Link to comment
Share on other sites
chasbari Apprentice

Right before my diagnosis and for the years leading up to it I pretty much had to know where the bathrooms were. I could never get enough to drink but always felt dehydrated. Once I went strict gluten-free I was amazed at the change and would actually be able to go hours ...up to six or more without having to go. I am intentionally hydrating a bit more now but still find it all far more manageable than before my DX.

Link to comment
Share on other sites
scuzy Rookie

Hmm, it's interesting to read that you now can go up to 6 hours, maybe after a few more months I can go that long. I did look into the Interstitial Cystitis that cassP mentioned, and it said that people who have it commonly have IBS ( the most common miss diagnoses for celiac). But who knows, I'm just glad that I might have something to look forward to in a few months. :) Thanks you guys, and hopefully I will get some more input to see if there are more people who have (had) this problem.

Link to comment
Share on other sites
jjb1234 Rookie

Yes, I have always had this problem. Good to see other mention intersticial cyctitis as this is what I was thinking too.

I have had IC most of my life. Some do believe this is also an autoimmune disorder.

More recently I met with a doc (a neurologist) who said some now believe IC is not it's own condition but probably part of another.

I believe this for sure!

My bladder issues often flair up with other symptoms such as sinus inflammation, rectal inflammation, joint pain, fatigue etc.

I have learned to control my bladder problems the same as I have all my other symptoms which is through diet.

Since I have been doing the gluten challenge ... I have noticed I am peeing a whole lot more .. having to get up in the middle of the night etc.

What I think is happening is I am having some bladder inflammation due to what I have been eating.

Along with my bladder symptoms I am also have left side pain which I think is coming from my colon and joint pain.

Jen

Link to comment
Share on other sites
SaraKat Contributor

Not really and I probably drink 150 oz of water a day. I never have to get up in the night probably only go 3x during the day at work. I think I have a big bladder!

Link to comment
Share on other sites
sherrylynn Contributor

I have always had a problem with urgency, but about 6 months after having my youngest daughter I ended up having incontinence during the night could not hold it and would wake up at night with the urge to go and knew that when I stood up it would fall out of me. I started having to wear udult pull ups, and now I wear them all the time. :(

It would be sooo great if I didn't have to wear them anymore.

now I can't wait to go gluten free. come on sept 8th, hurry up and get here!! :D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

I have always had a problem with urgency, but about 6 months after having my youngest daughter I ended up having incontinence during the night could not hold it and would wake up at night with the urge to go and knew that when I stood up it would fall out of me. I started having to wear udult pull ups, and now I wear them all the time. :(

It would be sooo great if I didn't have to wear them anymore.

now I can't wait to go gluten free. come on sept 8th, hurry up and get here!! :D

why do u have to wait till sept. 8 ??? do u have blood & biopsy testing scheduled?? oh God, i feel for u.. hope it comes fast for u

Link to comment
Share on other sites
sherrylynn Contributor

why do u have to wait till sept. 8 ??? do u have blood & biopsy testing scheduled?? oh God, i feel for u.. hope it comes fast for u

:( no unfortunatly I don't have a biopsy scheduled yet, but I am going to tell the doc to blood test me. I don't think I will have a problem with this doc testing me. time will tell. :)

Link to comment
Share on other sites
Travisevian Newbie

Not really and I probably drink 150 oz of water a day. I never have to get up in the night probably only go 3x during the day at work. I think I have a big bladder!

One hundred-fifty fluid ounces a day? With the possible exception of a major athlete, a person would die of water intoxication by drinking that much water.

Link to comment
Share on other sites
anabananakins Explorer

One hundred-fifty fluid ounces a day? With the possible exception of a major athlete, a person would die of water intoxication by drinking that much water.

I had to convert that to litres - its about 4.5 - and I used to drink that much each day. Not all at once but between say 6am and 9pm. I tend to drink sips of water all the time.

I'm ok if I kept it around that much at the most, but I find if I have more than that I get even thirstier and it gets out of hand and I start to feel really spacey. My doctor read me the riot act when I told him but once I knew how dangerous it was I got good at stopping well before then - say around 3 or 3.5 litres.

Link to comment
Share on other sites
Takala Enthusiast

I used to have to go a lot, lot more, and had frequent UTI's.

It was protein and calcium crystals in the bladder, irritating it, because the body will rob your bones when it's malnourished, to maintain calcium levels in the blood, only nobody knew why at the time. I got a little bit better by taking a lot of calcium citrate, don't take calcium carbonate (Tums) because that makes it even worse.

Much better now. :)

Link to comment
Share on other sites
SaraKat Contributor

One hundred-fifty fluid ounces a day? With the possible exception of a major athlete, a person would die of water intoxication by drinking that much water.

HAHA, it's really not that much! I sit at my desk all day at work and just keep refilling my water bottle (20 oz) and then I usually drink a few glasses at night! I do workout 4-5 days a week. Never once did I get sick.

Also- I don't like pop or juices so water to me tastes great.

Link to comment
Share on other sites
Travisevian Newbie

HAHA, it's really not that much!

Actually, it is, especially considering the fact that one consumes water in the form of fruits, vegetables, etc. Perhaps, you're misjudging the amount of water you're really drinking but I've studied nutrition in college and learned about the dangers of water intoxication. To consume as much water as you've claimed is very dangerous.

Link to comment
Share on other sites
SaraKat Contributor

Actually, it is, especially considering the fact that one consumes water in the form of fruits, vegetables, etc. Perhaps, you're misjudging the amount of water you're really drinking but I've studied nutrition in college and learned about the dangers of water intoxication. To consume as much water as you've claimed is very dangerous.

Well, if you studied it in college you must know that the human kidneys of a healthy adult can process up to 15 liters of water a day (507 ozs) so I am drinking far less that what is considered "very" dangerous. I am not looking to get into an argument with you, but I also know that I am not being dangerous with the amt of water I am drinking.

Also, water intoxication happens when you drink a lot of water very fast. I drink my 150 oz starting at 9am and ending at 9pm and I run 3 miles 5 days a week, so that is hardly a dangerous amount to be drinking!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...