Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Bleeding Toddler And A 2 Month Wait To See Gi?
0

19 posts in this topic

Is this the norm when you have internal bleeding? Am I thinking it's more serious and it's really not? My 2 year old son has exhibited signs of intestinal bleeding with black stool and with fresh blood mixed in with his stool 4 times in 2 weeks and nobody but his unknowledgable Ped. will see him for this sooner than 2 months? How can I get them to be more proactive with him? I worry, he's only 2!

Thanks for letting me freak out a bit, nobody else understands.

0

Share this post


Link to post
Share on other sites


Ads by Google:

This same thing happened with my daughter and my son. I noticed blood in my daughters diapers at about 5 months and I think around 6 weeks for my son.

We had the same problems with the doctors - exactly the same. My ped. thought it was a dairy and/or soy problem, but I went off of those for 8 months with no improvement (I was nursing her at the time).

It's a long story, but after researching their symptoms my self for a long time I came across the symptoms for Celiac and both of my children had almost all of the symptoms and I had at least 20 myself.

We finally saw the Gi for my daughter and I told him every thing and my thoughts about them (and myself) having Celiac. He disregarded the celiac thing and thought that my daughter was just constipated and gave us a prescription laxative. My daughter and son, would have D, but only a couple of times a week some times only once in a six day period. My natural doctor said she thought that it was constipation that caused the bleeding, but that after not being able to "go" for too long the body would cause her to have D. Once I talked with the natural doc. about my concerns of Celiac (I was just getting diagnosed with it at this time), she thought that the celiac was the cause of the constipation.

Shure enough after taking them off of gluten the blood went away and they started sleeping better and eating better (my daughter had been eating less and less as time went on until she was only eating a couple of spoonfuls of apple sauce a day).

I don't know if any of this was too confusing, but if you think it might be gluten you could just take him off of it - I know that he wouldn't get officially diagnosed, but it might not be worth the worry while you wait for those stinky :P doctors to see him.

If you have any questions, I am happy to answer them the best that I can.

I hope things work out and that you get to feel less stressed soon. It's the worst to be going through this with a child.

~Sarah

1

Share this post


Link to post
Share on other sites

2 MONTHS!!!!!!!! I would be freaking out also. I would call the office and ask to be put on the cancellation list. That way if someone calls at 9 am and says they can't make their appointment you can slide in. This of course only will work if your GI is close enough. If you should find any fresh blood in his diaper, as in not with a bowel movement or if the amount you see in a movement increase get the little guy and his diaper into an ER. If he should become listless, pale, lips get a bluish cast, he appears to be in pain or his tummy feels hard and/or he starts to run a high fever that would prompt me to visit the ER also.

I am sorry this is taking so long for the doctors to address. If he is acting fine and not in pain I would try not to worry too much.

I also agree with the previous poster. If you take him off gluten and he improves then you have your answer. The only problem would be if you decided later that you really need an 'official' diagnosis as that would require you to regluten the little guy.

You also have the option of going with Enterolab to see if he is making antibodies and if so to what. They can test for gluten, soy, yeast and casien. Most doctors don't accept the tests and they do not diagnose celiac but it can be helpful.

0

Share this post


Link to post
Share on other sites

I'm sorry it took so long, Drs can be so frustrating! I wish they'd do more listening and less verbal diarrhea of their own thoughts KWIM?

0

Share this post


Link to post
Share on other sites

Yes! 2 Months! My husband was furious! So much so, he went outside and cleaned the siding LOL I am watching his diaper but I am thinking it may simply have been the barley I trialed a bit over 2 weeks ago now. The poop was a definite positive in my book the day afterwards, the next was black and then next 3 were with fresh red blood and todays seems normal. Doesn't gluten stay in the system about 2 weeks? His ped. said it wouldn't have been the cause of his red bleeding a week and a half later, what do you think? He did order a blood test for anemia and was told it was fine.

2 MONTHS!!!!!!!! I would be freaking out also. I would call the office and ask to be put on the cancellation list. That way if someone calls at 9 am and says they can't make their appointment you can slide in. This of course only will work if your GI is close enough. If you should find any fresh blood in his diaper, as in not with a bowel movement or if the amount you see in a movement increase get the little guy and his diaper into an ER. If he should become listless, pale, lips get a bluish cast, he appears to be in pain or his tummy feels hard and/or he starts to run a high fever that would prompt me to visit the ER also.

I am sorry this is taking so long for the doctors to address. If he is acting fine and not in pain I would try not to worry too much.

I also agree with the previous poster. If you take him off gluten and he improves then you have your answer. The only problem would be if you decided later that you really need an 'official' diagnosis as that would require you to regluten the little guy.

You also have the option of going with Enterolab to see if he is making antibodies and if so to what. They can test for gluten, soy, yeast and casien. Most doctors don't accept the tests and they do not diagnose celiac but it can be helpful.

0

Share this post


Link to post
Share on other sites




Yes! 2 Months! My husband was furious! So much so, he went outside and cleaned the siding LOL I am watching his diaper but I am thinking it may simply have been the barley I trialed a bit over 2 weeks ago now. The poop was a definite positive in my book the day afterwards, the next was black and then next 3 were with fresh red blood and todays seems normal. Doesn't gluten stay in the system about 2 weeks? His ped. said it wouldn't have been the cause of his red bleeding a week and a half later, what do you think? He did order a blood test for anemia and was told it was fine.

All I can refer to is my own experience but after I went gluten free I started to have bleeding for about 3 days after my GI reaction hits if I get a good amount of gluten. It usually takes a couple of days for the GI reaction to hit me and others also can have a delay in those symptoms. I also will pee pink for a week or so. Oddly enough before I went gluten free I never had any bleeding issues. I, of course, can't say that is what happened with your little guy.

0

Share this post


Link to post
Share on other sites

All I can refer to is my own experience but after I went gluten free I started to have bleeding for about 3 days after my GI reaction hits if I get a good amount of gluten. It usually takes a couple of days for the GI reaction to hit me and others also can have a delay in those symptoms. I also will pee pink for a week or so. Oddly enough before I went gluten free I never had any bleeding issues. I, of course, can't say that is what happened with your little guy.

This is what seems to be happening here. My son would always have his reactions 18-24 hours later; this was his first time bleeding though. Gosh, the more I ask questions about celiacs and my son, the more it seems it's a sure fit diagnosis for him. I cannot wait to figure SOMETHING out about this!

0

Share this post


Link to post
Share on other sites

This is what seems to be happening here. My son would always have his reactions 18-24 hours later; this was his first time bleeding though. Gosh, the more I ask questions about celiacs and my son, the more it seems it's a sure fit diagnosis for him. I cannot wait to figure SOMETHING out about this!

Have you considered having him tested with Enterolab? I know they don't diagnose celiac but they can tell you if he is making antibodies and you could take him off gluten for up to year and the antibodies can still be found.

0

Share this post


Link to post
Share on other sites

Have you considered having him tested with Enterolab? I know they don't diagnose celiac but they can tell you if he is making antibodies and you could take him off gluten for up to year and the antibodies can still be found.

Isn't this really expensive? We cannot afford to breath right now and are anticipating a drive (fuel costs)to see a good doctor for him and that alone is going to kill us. I would LOVE to get that to get somewhere!

0

Share this post


Link to post
Share on other sites

Isn't this really expensive? We cannot afford to breath right now and are anticipating a drive (fuel costs)to see a good doctor for him and that alone is going to kill us. I would LOVE to get that to get somewhere!

Check with their website. You can order just the stool panel for gluten, I think. I had a full workup but without the gluten test, I had been diagnosed for 5 years at that point but the tests including gene panels were around $300. Just the stool test would be a lot less. I would also consider calling them and explaining your financial situation and the little guys issues and asking what they would advise you to do. I don't know if it is even possible but perhaps they might be able to discount for you. You don't know without asking.

Also if he is gluten free there isn't going to be a lot that the specialist can do celiac wise without a gluten challenge. Do keep that in mind as if his issues are gluten related nothing will show up if he is gluten free or gluten light. I'm sorry I don't remember but have you had your regular ped do a blood test while he was still on gluten? If he has been gluten free and a gluten challenge like you did with the barley, is positive ie. he reacts, IMHO you already have your answer.

0

Share this post


Link to post
Share on other sites

Check with their website. You can order just the stool panel for gluten, I think. I had a full workup but without the gluten test, I had been diagnosed for 5 years at that point but the tests including gene panels were around $300. Just the stool test would be a lot less. I would also consider calling them and explaining your financial situation and the little guys issues and asking what they would advise you to do. I don't know if it is even possible but perhaps they might be able to discount for you. You don't know without asking.

But does it diagnose celiac or the possibility of celiac? I don't quite understand this :) I'm sorry for so many questions.

0

Share this post


Link to post
Share on other sites

Is this the norm when you have internal bleeding? Am I thinking it's more serious and it's really not? My 2 year old son has exhibited signs of intestinal bleeding with black stool and with fresh blood mixed in with his stool 4 times in 2 weeks and nobody but his unknowledgable Ped. will see him for this sooner than 2 months? How can I get them to be more proactive with him? I worry, he's only 2!

Thanks for letting me freak out a bit, nobody else understands.

I would try to give K1. If your kid is vitamin K deficient, which happens to celiacs and infants, you will see some improvements with internal bleeding within 3-5 days. I don't know about the children dosage though - I was taking 1000 mcg/day and found improvements with bruising and rectal bleeding in 3-4 days. Vitamins K1 shouldn't hurt, as I know. B)

You can ask your doctor's advice, just to be on the safe side.

0

Share this post


Link to post
Share on other sites

Yes! 2 Months! My husband was furious! So much so, he went outside and cleaned the siding LOL I am watching his diaper but I am thinking it may simply have been the barley I trialed a bit over 2 weeks ago now. The poop was a definite positive in my book the day afterwards, the next was black and then next 3 were with fresh red blood and todays seems normal. Doesn't gluten stay in the system about 2 weeks? His ped. said it wouldn't have been the cause of his red bleeding a week and a half later, what do you think? He did order a blood test for anemia and was told it was fine.

When I read this just now it jogged my memory. A couple of months ago I noticed my son was eating something and I hadn't given him anything to eat. I went to see what it was and... AHHH! GLUTEN! He had somehow found a multi grain pretzel (a kind that we had eaten before going gluten free). I have no idea what happened, but we think that although we cleaned out and vacuumed our couches after taking gluten out of our lives that it had gotten stuck up in the couch some where and some how had gotten dislodged.

Anyway, he found it and had had at least a bite before I got it away from him.

Within a couple of days (I don't remember exactly the number... 1-3 maybe?) He again had blood in his stool, and it lasted for a couple of weeks. - Sorry I can't remember the time lines perfectly - my brain isn't working right still. But, it sound just like what you have had happen with your son. I really think that could be what's going on with him too.

Does you son have any other symptoms? Is he acting like he doesn't feel well?

I really think if he hadn't been on gluten and you just tried the barley, you probably won't get anywhere with the GI - at least if his symptoms clear up.

Then again, hopefully you get to see one that is a lot better than the one we saw - he just treated me like I was making everything up and didn't think there was a possibility of my kids having Celiac.

I am so sorry you are going through this! It really sucks!!!

0

Share this post


Link to post
Share on other sites

Don't you just LOVE when your little ones find treasures in the couch? LOL

His symptoms are all intestinal and he doesn't ever seem like he's in pain although the times he's eaten something he shouldn't have, he wakes up several times during the night and cries; I don't know if that is related or it's his age? When he has a poop after having gluten it's normally yellow, "fluffy", sometimes looks like it's filled with sand, sometimes gray like modeling clay, smells somewhere between vomit and mothballs, undigested foods, sometimes floating, burns his skin, and always an enormous amount! When I trialed the barley the only other symptom he's had was dark, sunken eyes along with the nasty poop followed by the blood in his poop.

When I read this just now it jogged my memory. A couple of months ago I noticed my son was eating something and I hadn't given him anything to eat. I went to see what it was and... AHHH! GLUTEN! He had somehow found a multi grain pretzel (a kind that we had eaten before going gluten free). I have no idea what happened, but we think that although we cleaned out and vacuumed our couches after taking gluten out of our lives that it had gotten stuck up in the couch some where and some how had gotten dislodged.

Anyway, he found it and had had at least a bite before I got it away from him.

Within a couple of days (I don't remember exactly the number... 1-3 maybe?) He again had blood in his stool, and it lasted for a couple of weeks. - Sorry I can't remember the time lines perfectly - my brain isn't working right still. But, it sound just like what you have had happen with your son. I really think that could be what's going on with him too.

Does you son have any other symptoms? Is he acting like he doesn't feel well?

I really think if he hadn't been on gluten and you just tried the barley, you probably won't get anywhere with the GI - at least if his symptoms clear up.

Then again, hopefully you get to see one that is a lot better than the one we saw - he just treated me like I was making everything up and didn't think there was a possibility of my kids having Celiac.

I am so sorry you are going through this! It really sucks!!!

0

Share this post


Link to post
Share on other sites

But does it diagnose celiac or the possibility of celiac? I don't quite understand this :) I'm sorry for so many questions.

Enterolab does not technically diagnose celiac. But they can tell you if he is producing antibodies to gluten. We don't produce antibodies to stuff our body want to have in it.

0

Share this post


Link to post
Share on other sites

Don't you just LOVE when your little ones find treasures in the couch? LOL

His symptoms are all intestinal and he doesn't ever seem like he's in pain although the times he's eaten something he shouldn't have, he wakes up several times during the night and cries; I don't know if that is related or it's his age? When he has a poop after having gluten it's normally yellow, "fluffy", sometimes looks like it's filled with sand, sometimes gray like modeling clay, smells somewhere between vomit and mothballs, undigested foods, sometimes floating, burns his skin, and always an enormous amount! When I trialed the barley the only other symptom he's had was dark, sunken eyes along with the nasty poop followed by the blood in his poop.

My daughter always gets the dark sunken eyes when she has gluten.

And I just wanted to mention that my kids don't always have the exact same reaction when they get gluten. Sometimes it's a little different than the last. I don't know if it has to do with how much or if the body just responds differently the more we get exposed. Plus, it always seems hard to figure stuff out with kids. :)

0

Share this post


Link to post
Share on other sites

My daughter always gets the dark sunken eyes when she has gluten.

And I just wanted to mention that my kids don't always have the exact same reaction when they get gluten. Sometimes it's a little different than the last. I don't know if it has to do with how much or if the body just responds differently the more we get exposed. Plus, it always seems hard to figure stuff out with kids. :)

Boy,this sounds like what happens when my corn allergic son (older than the toddler in question) eats corn. He's had many small reactions, one rather drastic and one anaphylactic. Weird!

0

Share this post


Link to post
Share on other sites

In the metro Detroit area, it usually is a 3 month wait for an appointment with a ped. gastro. (The quickest we have been bumped up has been 3 weeks and my daughter has been a patient since she was about 10 months old.)

That was still about the wait time after my daughter was released from the hospital after vomitting fresh blood.

(She was later diagnosed with eosinophilic esophagitus, after her probable celiac diagnoses about 4 years gluten free.)

Call the office and get on the cancellation list. Like I said , the average appointment is made 3 months in advance, people have to cancell some appointments. Ask questions about any tests that can be done before the appointment.

I would be looking up information on the doctor too.

0

Share this post


Link to post
Share on other sites

FYI, vitamin K:

daily

0-6 mo 2.0 mcg

6-12 mo 2.5 mcg

1-3 yrs 30 mcg

(adults: 90-120 mcg)

Bleeding gums is a major sign (do you brush teeth?) too. Toxicity can occur with synthetic doses and leads to liver failure. It is a fat-soluble vitamin, so toxicity is potentially possible at much lower doses than with water soluble vitamins.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,588
    • Total Posts
      918,276
  • Topics

  • Posts

    • Last posted 2013 - Improving health
      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      Not to mention my hips and knees are killing me and I have really bad calf pains and horrible bloating after just 3 days of glutening. I don't think I could live like this for a whole week.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I saw my gi today and he said to not worry about eating gluten. I have abdominal pain in the small intestine area and referred pain in my back, indicating pretty bad damage. So I'll just go without the gluten and do the genetic testing if needed.
    • Vagus Nerve Attack
      Hello All: I came across this series of posts from as Google search on "Wheat Vagus Nerve". I find all of your replies very interesting and would like to add mine for those searching for information but with differing symptoms. I have struggled with the vagus nerve impact to breathing as Maria mentioned in the original post, but only an impact to breathing and nothing else.  But my symptoms were brought on not only by wheat, but also by other ingredients such as dark chocolate, probiotics, caprylic acid, mustard, fluoride in toothpaste/mouthwash just to name a few.  I found when I sat down my breathing would return to normal, but as soon I got up, the impact would return. The impact to breathing would come 4-6 hours after ingestion and last for about the same amount of time.  At times I could not even take ten steps without having to stop, not being able to breath even moderately.  The symptoms now are decreasing in severity but not in duration. My doctor checked my blood for celiac and results were negative. A number of chest x-rays to rule out COPD.  I am waiting on an appoint with an allergy specialist in a few weeks to see what they have to say.  Needless to say, it is difficult to maintain a healthy weight. Thanks for your posts, and I hope my contribution is of benefit to others also.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,683
    • Most Online
      1,763

    Newest Member
    Rainbow60
    Joined