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Natural Remedies For Dh


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18 replies to this topic

#1 MacieMay

 
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Posted 31 August 2010 - 04:49 PM

Does anyone know or heard of any natural remedies for DH?

thanks!!
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#2 ravenwoodglass

 
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Posted 01 September 2010 - 06:05 AM

Yep, stay strictly gluten free and avoid iodine. Make sure you check you toiletries, makeup, shampoos etc. You can add iodine back in after you heal a bit. I found cold compresses to help with the itching, stuff like calamine lotion made things worse. Some of the topicals that help with the itching from poison ivy and bug bites might help but make sure they are gluten free.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 lovegrov

 
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Posted 02 September 2010 - 11:36 AM

I have to agree. The only natural remedy I know that REALLY works is going gluten-free.

richard
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#4 crimsonviolet

 
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Posted 08 September 2010 - 03:35 PM

To keep it away, avoid iodine and gluten like the PP said.

To relieve the itching, I've had good luck with cold compresses, and sometimes a little bit of castor oil or pure aloe vera gel is quite soothing.
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#5 up late

 
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Posted 09 September 2010 - 07:07 AM

I found a few topical treatments that help, one was from the health food shop for rashes, it had "old man goat weed" in it which I think was the ingredient that did the trick (I've tried lots and this was the only one that worked) they no longer sell it here :(

The other isn't exactly natural, a spray on treatment for sunburn from the chemist with a topical anesthetic helps relieve itching. I've tried the less dilute topical anesthetics like xylocaine jelly but they tend to sting once the skin is broken.

Cool water is a much better way to quell the itch than scratching and so far been the best treatment I've found.
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#6 Denali

 
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Posted 03 October 2010 - 06:59 PM

I use aloe vera plant and polysporin to help topically... ice packs for the itching... that's about it.


Any other suggestions are most welcome - I'm having a reaction right now and going out of my mind (my DH appears on my chin and jaw line. Yuck).



I found a few topical treatments that help, one was from the health food shop for rashes, it had "old man goat weed" in it which I think was the ingredient that did the trick (I've tried lots and this was the only one that worked) they no longer sell it here :(

The other isn't exactly natural, a spray on treatment for sunburn from the chemist with a topical anesthetic helps relieve itching. I've tried the less dilute topical anesthetics like xylocaine jelly but they tend to sting once the skin is broken.

Cool water is a much better way to quell the itch than scratching and so far been the best treatment I've found.


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#7 MtnHarmony

 
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Posted 09 October 2010 - 06:40 PM

I do not have DH but I have had bad reactions to bites, etc. in the past which have caused burning and itching and the best thing for me was Plantain leaves. It's a weed that grows easily where we live - not the bananas. I crush the leaves with my teeth, but do not get my saliva on them as I want the medicine on my body, not my mouth. I normally bandage the leaves on but I have made a salve with it and water or bentonite clay (hydrated). I am highly sensitive to many things and this and bentonite clay have been my life savers. Just thought it worth mentioning. As far as any infection that may have set in from scratching - warm thyme tea heals heal and numb pain if warm enough.
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#8 eatmeat4good

 
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Posted 06 November 2010 - 04:17 AM

Does anyone know or heard of any natural remedies for DH?

thanks!!

I have DH on my face, mostly on the chin and forehead. It is extremely painful and the sores would weep and ooze. Alot of people with DH say the sores are intensely itchy...mine were just intensely painful....like pins and needles all the time. I now know it was directly related to gluten. However there was one thing that helped a little with the pain while the sores were very active. I would use green tea bags soaked in warm or cool water (whichever felt better at the time) and would use them as compresses. It seemed to me to help the pain, though it never did help the healing until I got the diagnosis and went gluten free. And it only helped while it was applied....as soon as it was removed...the pain started again as bad as ever. Four days into gluten free...the pain started to go away.
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#9 takeiteasy

 
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Posted 07 November 2010 - 04:19 PM

Does anyone know or heard of any natural remedies for DH?

thanks!!


I find that taking a bath (water can be hot or warm according to comfort level) with baking soda really helps me. When I can't fall asleep because of the itch I take a bath with baking soda, not any specific amount, just pour in about 1/2-1 cup, soak for about 10 minutes and after this I immediately fall asleep. If I'm too tired to take a bath I just wash the area that's burning up with backing soda mixed with a little water & get the same results.The bath works well when I'm itching all over....
Hope this helps you.
As someone else mentioned rinsing the area with cold water helps significantly too.
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#10 Lauirel

 
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Posted 23 December 2010 - 12:43 AM

I am a new member here and although my story is long, I must say I am rather dissappointed by the responses to the question of whether there are natural remedies available to those suffering dermatitis herpetiformis or DH. Because there are.

I realize the original posting date of this particular question was in September, and here it is in the last days of December. Hence my addition would be considered late after the fact. But here I am reading this, and perhaps the information I have to add will benefit others in which read this at this later date.

PABA or Para-Amino Benzoic Acid taken orally by mouth and cited by varying references from 200 mgs 4 to 5 times per day and up to 9,000 to 12,000 mgs per day as an alternative treatment for dermatitis herpetiformis. May I suggest the best sources for dosages would be from the online medical journals using cross reference search terms, PABA, dermatitis herpetiformis. You can also use these search terms in your address bar for more general online information as well.

Additional information would also apply to the cross linking of collagen fibers in DH, the relation to IgA depostion and cross linking, and PABA's role in preventing the abnormal cross linking occuring in DH.

Also applicable to the occurence of Vitiligo which seems to occur quite frequently alongside Celiac and especially DH, and resulting from a lack of all B vitamins due to the malabsorption and intestinal dysbiosis associated with Celiac.

DMAE or Dimethylethanolamine can also be used topically alongside the oral dosages of PABA. This is a salt of PABA and something I have found helpful for the crazy itch associated with DH.

PABA is considered an alternative to Dapsone therapy.

Good luck.

LaurieL
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#11 mushroom

 
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Posted 23 December 2010 - 01:21 AM

There does seem to be some question as to the safety of oral PABA, especially at higher doses, and especially with regard to the liver (as well as vitiligo. )

http://www.med.nyu.e...?ChunkIID=21831

Safety Issues

PABA is probably safe when taken at a dosage up to 400 mg daily. Possible side effects at this dosage are minor, including skin rash and loss of appetite. 8

Higher doses are a different story, however. There has been one reported case of severe liver toxicity in a woman taking 12 g daily of PABA. 9 Fortunately, her liver recovered completely after she discontinued her use of this supplement. Also, a recent study suggests that 8 g daily of PABA can cause vitiligo, the patchy skin disease described previously. 10

Clearly, there are questions that need to be answered about the safety of high-dose PABA therapy. You shouldn’t take more than 400 mg daily except under medical supervision.

PABA may interfere with certain medications, including sulfa antibiotics . 11,12

Safety in young children, pregnant or nursing women, or those with serious liver or kidney disease has not been determined.
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#12 Lauirel

 
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Posted 23 December 2010 - 01:49 AM

There does seem to be some question as to the safety of oral PABA, especially at higher doses, and especially with regard to the liver (as well as vitiligo. )

http://www.med.nyu.e...?ChunkIID=21831

Safety Issues

PABA is probably safe when taken at a dosage up to 400 mg daily. Possible side effects at this dosage are minor, including skin rash and loss of appetite. 8

Higher doses are a different story, however. There has been one reported case of severe liver toxicity in a woman taking 12 g daily of PABA. 9 Fortunately, her liver recovered completely after she discontinued her use of this supplement. Also, a recent study suggests that 8 g daily of PABA can cause vitiligo, the patchy skin disease described previously. 10

Clearly, there are questions that need to be answered about the safety of high-dose PABA therapy. You shouldn't take more than 400 mg daily except under medical supervision.

PABA may interfere with certain medications, including sulfa antibiotics . 11,12

Safety in young children, pregnant or nursing women, or those with serious liver or kidney disease has not been determined.


These same safety considerations are also associated with Dapsone Therapy.

The theory behind the complications is due to the nutritional deficiencies that occur alongside the occurence of Celiac. One of the main nutritional deficiency associations is that of the B vitamins and folate metabolism. Both either made or absorbed in the affected intestines of the Celiac patient. And further correlation to methylation problems resulting from the lack of either Vtiamin B 12 or folate and with resulting methylation blocks and its associated deficiencies.

As far as safety in children, pregnant, or nursing women, or those with serious liver or kidney disease, just about anything pharmeceutical or alternative would be the appropriate caution.

Every story has multiple viewpoints, thanks for bringing more discussion to this issue. I was hoping for such.

LaurieL
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#13 Lauirel

 
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Posted 23 December 2010 - 09:19 AM

Some additional information concerning folate and PABA.

Folate, once known as vitamin B - 9, is named after the dark green leafy vegetables it was first extracted from. "Folium" is Latin for leaf.

Folic acid contains three parts: pteroic acid, glutamic acid, and para-aminobenzoic acid (PABA).

Folate is an important coenzyme in your body which helps to move carbon units about, and is necessary for the synthesis of nitrogen-containing purines and pyrimidines, which are essential for the synthesis of nucleotides... which make up your RNA and DNA. Folate is also necessary for making the heme (the iron-containing, nonprotein part of hemoglobin) for your red blood cells


Too little folate causes nutritional megoblastic anemia (that's large, immature red blood cells that can't carry oxygen well and is often found by high CO2 levels of the patient). Yet another condition associated alongside Celiac patients as well as pernicious anemia or the macrocytic anemias and with strong associations to Vitamin B 12 deficiencies as well within the methylation cycle of which is directly associated with the folate cycle and the sulfuration arm cycle.

For more information on these particular cycles, one could type in keywords folate cycle, Vitamin B12 cycle, and instead of finding these under the web tab in your upper left corner of your searches, you would click on the images tab, and have pictures of the cycles themselves.


LaurieL



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#14 Lauirel

 
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Posted 23 December 2010 - 10:17 AM

Here is some more information concerning sulfonamide antibiotics, Dapsone, and the inhibition of dihydropteroate synthetase or pteridine synthetase. It is the step of which PABA must go through in order to become tetrahydrofolic acid.

Sulfonamides, including Dapsone inhibit dihydropteroate synthetase and there for inhibit the folate synthesis pathway.

A dihydropteroate synthetase inhibitor is a drug that inhibits the action of dihydropteroate synthetase. Most are sulfonamides.

Posted Image Posted Image

Tetrahydrofolate synthesis pathway

In bacteria, antibacterial sulfonamides act as competitive inhibitors of the enzyme dihydropteroate synthetase, DHPS. DHPS catalyses the conversion of PABA (para-aminobenzoate) to dihydropteroate, a key step in folate synthesis. Folate is necessary for the cell to synthesize nucleic acids (nucleic acids are essential building blocks of DNA and RNA), and in its absence cells will be unable to divide. Hence the sulfonamide antibacterials exhibit a bacteriostatic rather than bactericidal effect.

Folate is not synthesized in mammalian cells, but is instead a dietary requirement. This explains the selective toxicity to bacterial cells of these drugs. These antibiotics are used to treat pneumocystis jiroveci pneumonia, urinary tract infections, and shigellosis as well as DH.

Two examples are dapsone and sulfamethoxazole.[1]

Another example is the antimalarial sulfadoxine.[2]

http://en.wikipedia....etase_inhibitor

As an antibacterial, dapsone inhibits bacterial synthesis of dihydrofolic acid, via competition with para-aminobenzoate for the active site of dihydropteroate synthetase.[5] Though structurally distinct from dapsone, the sulfonamide group of antibacterial drugs also work in this way.

When used for the treatment of skin conditions in which bacteria do not have a role, the mechanism or action of dapsone is not well understood.

Dapsone has anti-inflammatory and immunomodulatory effects.[6] Dapsone blocks myeloperoxidase, which has been suggested to be its mechanism of action in treating dermatitis herpetiformis.[7] Myeloperoxidase converts hydrogen peroxide (H2O2) into hypochlorous acid (HOCl) as part of the respiratory burst in neutrophils to kill bacteria. HOCl is the most toxic and potent oxidant generated by neutrophils, which can potentially cause significant tissue damage in many inflammatory diseases. The respiratory burst uses large quantities of oxygen, and a single neutrophil may produce enough HOCl in one second to destroy 150 bacteria.[8] In the absence of chloride ions or when there is excess hydrogen peroxide, the myeloperoxidase is converted to its inactive form. Dapsone reversibly inhibits myeloperoxidase activity by promoting the formation of an inactive intermediate of the enzyme, thus preventing the conversion of hydrogen peroxide to hypochlorous acid, an extremely potent neutrophil oxidant.[9][10][11][12][13] Myeloperoxidase inhibition has also been suggested as a mechanism for a neuron-sparing effect in inflammatory neurodegenerative diseases such as Alzheimer disease and stroke [14]

Alzheimers also being associated as a fiber producing disease and correlations to Celiac patients as well by the abnormal cross linking in collagen formation.


http://en.wikipedia.org/wiki/Dapsone

Of which Neutrophil concentrations are associated alongside the IgA depostion in Dermatitis Herpetiformis.


LaurieL

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#15 chelebelle

 
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Posted 27 December 2010 - 10:24 PM

There is an ointment at drug-stores, Wal-Mart's, etc, called Blue-Star Ointment. I use it, and it works really well. I have noticed that my DH gets worse when I use moisturizing soap, such as Oil of Olay w/ moisturizer. I use Dial, and it works really well. I was diagnosed at 15, and the doctor who diagnosed me had never even heard of Celiac. It was not wide-spread back then, and there was little information about the effect of eating gluten, even when you are allergic. I recently did my own research, finally, and I am happy to say that I will be starting my new gluten-free diet in a few weeks. I want to make sure I have everything I need before I start, because I don't want to start then end up having to eat gluten. I am also a diabetic, with extremely low-running blood sugars (in the 20s!), and sometimes I do not have much of a choice as to avoiding gluten. Anyhow, I am extremely excited! I live in Noblesville, Indiana, and a woman recently opened a gluten-free bakery here. I am getting a bread machine next week, to make my own gluten-free bread when I choose to. I am very excited, wish me luck! I am hoping that my life-long rashes will finally go away!
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