I Need Help

I Need Help My daughter has celiac Rate Topic:

#16 tarnalberry

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Posted 10 September 2010 - 10:29 AM

cassP, on 07 September 2010 - 07:05 AM, said:

i thought that they could not deny you anymore for pre-conditions??? im no expert on the Pseudo HCR bill that passed- but i thought that was ONE of the few things in it ???? and idk- if the situation in your family is pretty severe- you may just want to get all the testing done, and get on a payment plan?? sometimes it's just worth it you know?

That particular portion of the health reform bill doesn't go into effect for a few years.

Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#17 Bigbread

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Posted 12 November 2010 - 05:54 AM

This is a bit of a late response but my best advice would be contact your local/ countries celiac disease centre/ organization and ask for a list of doctors that treat this. A lot of times they keep information from patients on doctors that was good at treating their illness.

Next stop contact universities/ see if one in your area has a celiac centre/ I noticed some in the US have. Maybe they can advice on who to see or be able to treat your daughter sometimes they have training clinics with specialist doctors teaching.

#18 lsmly9

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Posted 18 November 2010 - 10:49 AM

JulieMM, on 02 September 2010 - 04:56 PM, said:

Hi, my daughter is 21 and was diagnosed with celiac, she follows a very strict diet, and we are all aware of cross contamination at home, but it's been a year, or even longer and she's not getting better,the only thing that went away is the diarrea but she can barely eat, because she feels bloated and have a lot of discomfort and nausea after she eats breakfast and has lost a lot of weight, she weights 72 pounds. I've taken her to see different doctors (she has medical) and unfortunately I cannot afford a better health insurance at this time. Her primary health psysician told me today that she can no longer see my daughter anymore, because she can't do anything for her. I am frustraded and very sad and don't know what to do anymore..

Well that is purely frustrating! Has her primary given her a referral to a gastroenterologist? If not, I would specifically request one ASAP. I'm so sorry to hear this, I wish you and your daughter the best of luck.