Anyone Get A Capsule Endoscopy?

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#1 jasonD2

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Posted 03 September 2010 - 05:57 AM

I just visited with a wonderful GI doc in NYC and he wants me to determine if i really do have celiac once and for all so he recommended a capsule endoscopy and may even want me to do a gluten challenge. I guess at this point i really would like a 100% confirmation. He also wants to retest my celiac genetic profile since the test does produce false positives. He also said he can tell if bacterial overgrowth is causing all my issues, which I believe it is. Anyway, would like to get some feedback on this

thanks

Jason

Endoscopy & blood panel all negative 12/09 after being strict w/ gluten free diet

As of 8/09 - Candida Overgrowth, C.difficile overgrowth, elevated fecal anti-gliadin, elevated putrefactive SCFA's

Developed severe lactose intolerance, IBS and food sensitivities in 02 after contracting Giardia from a river in Oregon

Had negative celiac blood work in 02

Elevated stool anti-gliadin Ab (21 with 10 being cutoff for normal) - 2008

Positive for DQ8- 2008

Tested high positive for egg, dairy, soy, ginger, mustard - 2008

Lactulose/Mannitol (leaky gut) test indicated slight intestinal permeability

Improved with gluten free diet but still have spastic constipation

#2 Roda

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Posted 03 September 2010 - 08:38 AM

I have not had had the capsule endoscopy, but I did just have a CT enterography exam of the bowel. They both can give good info but each has it's advantages/disadvantages.

Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease

DS2(age 7):
celiac disease(positive IgA tTG, no biopsy- 11/2010)

DS1(age 11):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.

#3 burdee

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Posted 03 September 2010 - 08:45 AM

jasonD2, on 03 September 2010 - 05:57 AM, said:

Sorry, I haven't had that test, but I'm so glad to hear you found a great GI doc in NYC. However, I'm surprised you doubt you have celiac disease or gluten intolerance. If you've been abstaining from gluten, the endoscopy will be negative. Of course, doing a lengthy gluten challenge could do enough intestinal damage to have a positive endoscopy result.

HOW can that doc tell if you have 'bacterial overgrowth'? Will he do stool tests? Can he identify and treat the specific bacteria which causes 'all your problems'? Has that doc seen all your previous stool test and treatment history?

Good luch with your new doc!

SUE

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D, thyroid supplement, arabinogalactan and DHEA to improve immunity.

#4 nora_n

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Posted 03 September 2010 - 10:19 AM

There was someone here who had a negative antibody test and a positive biopsy, and it turned out it was bacterial overgrowth instead. Gluten free did not help.

About the gene test, a lot of people have the DQ2 and 8 genes, maybe a third of the population, so a positive gene test does not diagnose anyone with celiac,obviously.
The DQ2 gene test is quite accurate, but the DQ8 gene test is a bit less accurate.
One can repeat the test with another method if it matters.

gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.
daughter officially diagnosed celiac and casein intolerant.
non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5
Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet
Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

#5 jasonD2

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Posted 03 September 2010 - 12:13 PM

Interesting- I wonder if bacterial overgrowth can cause a false positive stool anti-gliadin antibody response as well?

#6 ravenwoodglass

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Posted 03 September 2010 - 02:23 PM

jasonD2, on 03 September 2010 - 12:13 PM, said:

Interesting- I wonder if bacterial overgrowth can cause a false positive stool anti-gliadin antibody response as well?

I don't think so. It might cause similiar symptoms but the antibodies to gliadin are antibodies to gliadin. Bacteria can usually be found through stool cultures if you suspect you have a bacterial problem.

Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)

celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom

Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 jasonD2

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Posted 04 September 2010 - 02:42 PM

Can overgrowth lead to allergies such as gluten?

#8 T.H.

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Posted 06 September 2010 - 07:44 PM

I had both the capsule endoscopy and the genetic test, both. It was very useful, I think. I had a positive gene test. And my doc found inflammation in mid-gut that hadn't been detected on either colonoscopy or endoscopy. He noted all areas of inflammation, and that's been very useful in figuring out where I'm having trouble absorbing what nutrients (different things get absorbed more in certain areas of the gut. Who knew?). I've had problems since then that might have been of concern but he said that he wasn't too surprised, considering where my damage actually is, so that's been comforting, actually.

I don't know if he was looking for bacterial overgrowth. I'd be curious what the signs of that are. Obviously the doc can't see the bacteria itself - a certain type of damage or inflammation, perhaps? Might be interesting to find out what your doc says is the clue to detecting too much bacteria.

Shauna

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease.

Father, brother, and daughter: celiac positive
Son: celiac negative, but symptoms resolved on gluten free diet