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Food Pantry Issues


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26 replies to this topic

#1 sillyken

 
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Posted 03 September 2010 - 07:30 AM

Greetings,

:( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

Sillyken :)
(read a sign that said "keep smiling! Its the law!)
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#2 Dixiebell

 
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Posted 03 September 2010 - 07:49 AM

The first thing I can think of is do you have an Dr. diagnosis? If you do, get a copy of it so you can show that you have a 'special situation'. Are there counselers at the food pantry or soup kitchen? Maybe you could find a church that could help you. I think the place that said 'you should't be asking for anything special under these conditions' just does not understand problems with food and the severe problems it can cause. A lot of people I have come across say 'it's food, how can it hurt you?' I'm not sure if it is approiate to ask , where are you located? Maybe someone could help you find what you need.
  • 0
Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#3 sahm-i-am

 
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Posted 03 September 2010 - 09:21 AM

Sillyken,
Where are you located? I would gladly send you a bunch of gluten-free stuff!
I recently donated to our local Food Pantry and the volunteers there had NO IDEA
what I was giving them, nor the significance of it. I am positive all my gluten-free
goodies went to a gluten household. While important, not what I intended.
If I know of a gluten-free family in need, I would GLADLY ship out a box.
I mean it - and I'm sure others here could maybe do the same.

Support one another, people. It's a dog eat dog world, and they ain't gluten free!
:D

Take care,
Wendi

Sillyken - email me privately: wbrant@nc.rr.com
  • 0
Diagnosed with Lymphoma March 2010. After surgery doctors said "Oops!"
Diagnosed with Celiac Disease April 2010. After endoscopy doc said "Aren't you glad?"
Uhhh.....yeah!
DD #1 ('99) tested negative on bloodwork but positive on 2 genetic markers. Went gluten free in July 2010 and has been symptom-free ever since!
DD #2 ('98) tested negative and has no symptoms. Didn't fork out money for genetic testing. Will watch and test regularly.
Husband tested positive in July 2010 and has refused to go gluten free. Uh huh, that's gonna bite him in the a** one day! (Pun intended!)

#4 Skylark

 
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Posted 03 September 2010 - 09:23 AM

Ugh. What an awful situation. People don't understand malabsorption. They may as well offer you sawdust for all the good eating wheat does.

Is there any way you can get food stamps? Then you could buy some gluten-free food.

I agree with the idea of getting a doctors' note. In my city, there is a food bank where we donate canned goods. I'm sure plenty of them are naturally gluten-free - I've given things like canned veggies and Progresso soups myself. With a letter from a doctor you might be able to get them to give you naturally guten-free stuff.

Keep the faith, and good luck in what sounds like a really hard situation.
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#5 kareng

 
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Posted 03 September 2010 - 09:31 AM

Our food banks try to have canned fruits and veggies which are usually gluten-free. Also, canned chicken & tuna. Sometimes fruit and cheese. One gets hot dogs and keeps them frozen. Most hotdogs are gluten-free. Eggs too. All this assumes you can cook where you are staying. I have been giving Chex to our food bank. If you are in the Kansas City area, send me a message. I know 3 really nice food banks and a " soup kitchen" that might be able to help you.
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#6 ravenwoodglass

 
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Posted 03 September 2010 - 11:42 AM

I did volunteer work for some time at our local food bank recently. You can't expect the folks there to know what they can safely give you, they just don't usually have the knowledge. We always had rice, canned and fresh (in season) veggies. The cereals we got would vary. They also would really load folks up with loaves of bread. I would suggest you go in and tell them all you can really use is canned veggies and fruits and plain rice and beans and plain meat if they have it (We always had some pnut butter, tuna, canned ham, hot dogs, sometimes chicken, turkeys, ground beef or venison depending on the season). Tell them that you are allergic to wheat and to PLEASE not give you bread or cakes and cookies. If they give you items you can't use donate them back on your next visit and tell them why you are bringing them back.
Do check into food stamps and check out places like the Salvation Army or a Catholic Charity etc and explain your situation. Some will give food vouchers you could use at the store for gluten-free bread.
I wish you the best. It is hard for a lot of us right now.
  • 1
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 GlutenFreeManna

 
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Posted 03 September 2010 - 12:10 PM

Hi, I'm sorry you are going through a rough time right now. Have you tried contacting your local celiac support groups? Perhaps they would know of a food pantry that would be more helpful than the ones you have encountered so far. Every food pantry is different--Some only give you a set bag or box and won't change what they give you (sometimes this has to do with how they receive funding, sometimes it's just for efficiency sake), some may be willing to work with you if you explain the situation. So don't give up trying. I agree it is a good idea to either get a doctor's note to show or tell them you have a wheat allergy (that may be taken more seriously and eliminate most of the gluteny products.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#8 Looking for answers

 
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Posted 03 September 2010 - 01:35 PM

I too would be more than happy to send you food or gift certificates, gluten-free soaps, shampoos, vitamins, whatever you need to stay healthy. Do you have means to cook or prepare food? Please send me a personal message on where I can send the shipment.

I also encourage you to reach out to a local church. My church would jump at the chance to help someone in your situation.

Take care, and know that there are people who care and want to help.
  • 1
2010- Gluten, Soy, Corn, Dairy, Eggs, Nut free. Sugar, non-gluten grains lite(Yes, still plenty to eat!)
2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life
2009 Low T3 thyroid hormone, muscle twitching and adrenal fatigue
2006- Elevated Speckled ANA. GI suggested Celiac. Started gluten-free diet, but sloppily
2005 - Thought I had wheat "allergy." Stopped eating bread, oats problem too
College years - Still vegan -sickest point in life. Every classic celiac symptom
Teenage years - Stomach pain prompted veganism -> BIG mistake!
Child - Awful gas, D, C. Chronic infections, appendix and tonsils removed

#9 T.H.

 
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Posted 03 September 2010 - 04:49 PM

I would second contacting your local celiac group or church - they will often help. I know here, for example, we have a family who was having financial trouble and worked out a barter system with people who could get them what they needed. They did yard work, etc... for these people in return, and it worked out well.

Do they have canned goods, or fresh produce, or only pre-made goods? If it's canned/boxed goods, there's a number of them that are gluten free, basically, that we could help suggest, if needed!


Greetings,

:( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

Sillyken :)
(read a sign that said "keep smiling! Its the law!)


  • 1

T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive


#10 sillyken

 
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Posted 07 September 2010 - 10:09 AM

Thank you for all you comments. To answer your questions:
1) I went to the salvation army the other day and was spoken to quite rudely by the people there who said "They were not a medical facility". IE take what you are given.
2) I was only given a few weeks of food stamps due to a recent emloyer who said I would be working full time by the 3rd. Unfortunatley, I won't start until the 21st of this month.
3) I am in the Winchester, VA area.

any other advice would be greatly appreciated.

Hungry Ken
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#11 i-geek

 
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Posted 07 September 2010 - 12:18 PM

Go to or contact a local Catholic church's office and ask to speak to or leave a message for the Society of St. Vincent de Paul representative. This is an organization that exists to help people in need with emergency situations, no strings attached, no requirement that you are Catholic. Usually the only requirement is that you live within the parish boundaries (prevents unscrupulous people from gaming the system by hitting up several parishes at once). If the church you contact is not the one nearest you, either you will be redirected or they will contact that parish on your behalf.

I tell you to go there because in the past I have served the community through this group (although in a different location) and we would not have hesitated to provide grocery store vouchers so that people could shop for food that they knew they could eat safely. It's just cruel to expect people to eat food that will make them sick. SVDP is usually a one-time service (they don't provide continuing care so that they can help the largest number of people, but they will give referrals to longer-term services whenever possible). Since you need something to bridge the gap until your income starts up again, SVDP might be a really good fit to help you through the rough patch.
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#12 K-Dawg

 
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Posted 07 September 2010 - 01:10 PM

I'm sorry to hear you are going through such a hard time and encountered such difficulty at the food-bank. When I was a social service worker, I used to run a food bank and when individuals came in with special dietary issues, I would issue a certificate for the local grocery store so that the person could buy groceries in-line with his/her particular needs. I am hopeful that you happened across a one-off food pantry and that if you explain your situation, perhaps bringing a medical note, you will be treated with the dignity you deserve.

I also think that the folks on here have given sage advice -- find a church, one with an outreach program, and approach that church for assistance. Can you get special funding or emergency funding via social assistance as a result of your celiac diagnosis? What state are you in?

Greetings,

:( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

Sillyken :)
(read a sign that said "keep smiling! Its the law!)


  • 1
Many autoimmune disorders: Graves Disease in 1998, Psoriasis on or about 2000, Hashimoto's in 2008.

Severely anemic in 2007 (undetectable iron levels)

Elevated liver enzymes (ALT and AST) as of October 2008.

Negative blood test for celiac disease in February 2009, followed by diagnosis of celiac disease in April 2009 after positive biopsy.

#13 ravenwoodglass

 
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Posted 07 September 2010 - 02:21 PM

Thank you for all you comments. To answer your questions:
1) I went to the salvation army the other day and was spoken to quite rudely by the people there who said "They were not a medical facility". IE take what you are given.
2) I was only given a few weeks of food stamps due to a recent emloyer who said I would be working full time by the 3rd. Unfortunatley, I won't start until the 21st of this month.
3) I am in the Winchester, VA area.

any other advice would be greatly appreciated.

Hungry Ken


Get a letter from the employer stating that your work start has been delayed. Then go back to the food stamp office. They should be able to give you stamps to cover that gap that they were not aware of.
Also do contact the Catholic Charity that was mentioned. As stated they do not require you to be a Catholic to access their services.
  • 1
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#14 GFinDC

 
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Posted 07 September 2010 - 03:01 PM

I don't know if this group would work out for you or not. There are several threads about Angel Food Ministries on this site.

Angel Food Ministries Allergen Free Box follow up report

Angel Food ministries site

My understanding is they get their allergen foods from this site:

http://allergyfreefo.../2010/index.asp
  • 1
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#15 sb2178

 
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Posted 07 September 2010 - 03:08 PM

Also, call the largest food bank in your state directly and ask to speak to the nutritionist on staff. Not all food banks have nutritionists/RDs but more do than they used to. S/he may be able to assist you directly or be a liason with a local source.

Any place that sends full meals (like to AIDS or cancer patients) may also be a better resource and understanding of health issues.

I'm actually going to throw a post up on a listserv I'm on to investigate a little further. Excellent question, and something the food security community should be thinking about.
  • 1

2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?




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