What Testing To Request?
Posted 03 September 2010 - 12:23 PM
Posted 03 September 2010 - 05:05 PM
You need to have your thyroid tested regularly, and vitamin levels followed including B12. You also need to have the bone density checked to see if you're incorporating the calcium and D. With the neurological problems you may be B6 and/or B12 deficient. You can ask for allergy tests for dairy and soy, but it may be easier to eliminate them and see if you feel better as the tests are not very accurate.
Posted 03 September 2010 - 07:07 PM
Posted 03 September 2010 - 07:40 PM
With the casein and soy, we tolerate it worse when there is villous damage. Damaged villi don't break proteins down very well so larger bits of immunogenic peptide are left. There can also be some cross-reactivity between casein and anti-gliadin IgA. As you heal up after your recent gluten exposure, digest proteins fully again, and the anti-gliadin IgA goes away, you may find that you tolerate casein or soy again. That intestinal IgA Enterolab tests for actually comes and goes as part of normal immune function much like IgG to foods can.
My story is so much like yours. They suspected celiac when I was an infant and then switched to wheat allergy. I was raised off wheat but eating some rye and barley, having stomachaches, and taking a lot of bentyl. I was put back on wheat as a teen and seemed to tolerate it but by my late teens I had "IBS" and hypothyroidism and in my early 20s I had a flu and the chronic fatigue, "gastritis", and depression set in. I self-diagnosed five years ago at 36 years old when I went on an elimination diet out of desperation. My doctor said he'd test if I wanted to gluten challenge but he said the tests aren't very good and that my response to the diet was more diagnostic. Since then, I just tell docs I'm celiac. It's much simpler.
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