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I Am New At This

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Hello I am new at trying to be gluten-free. I had never heard about celiac disease before a few months ago. For years I have been sick and doctors never could figure out what was wrong with me. I had all the main celiac disease symptoms. The past two years I started gaining weight drastically. I had always been underweight and then all of a sudden I gained almost 30 pounds! To make a long story short I heard about celiac disease went gluten-free and felt a lot better. Then I ate Glutten and got the blood test and it came back Neg. But I know that does not mean much. So I went back to being gluten-free and I have lost almost all my weight in a few short weeks. I have been reading the messages and most people seem to gain weight when they eat gluten-free. I think all my weight was water weight I was swollen everywhere. You couldn't even see my ankels! Is this a symptom for celiac disease? I have been very careful at what I eat and notice that I get puffy if I make a mistake like eating out. I have given up eating out all together. I try salads and they still make me sick. Everything except eating what I make at home.

--My question is can celiac disease cause a person to gain water weight?

I am just curious, I know I have not been diagnoised by a doctor but I think they way I feel going gluten-free speaks for itself.

thanks for your advice


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It is difficult to think about going back on to a normal (gluten-containing) diet if you feel better gluten-free.

However, the only real way to find out if you have celiac disease & not another condition is to eat a normal diet and be tested then for celiac disease.

As you had been gluten-free before you had a test before this may mean you had not had sufficient gluten to cause a reaction.

However, it may be that you do not have celiac disease & the test showed that.

For information about how much gluten is needed prior to a test for celiac disease please see:

It is a shame if you feel you cannot eat out because you are frightened of eating gluten but if you do not have celiac disease at all and your problems are due to something else which can be resolved you should be able to eat out OK.

If you do have celiac disease then a local celiac disease support group should help you find a safe place to eat gluten-free.

Some people who are overweight can be diagnosed with celiac disease.

I have not heard of a GFD causing weight loss through water loss.

For a proper diagnosis you may wish to talk to your doctor and go back on a normal diet for long enough to have a gluten reaction and be tested again for celiac disease.

If this is negative again you may want other tests to find out what is actually the cause of your problems.


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Hi KayJay:

I do not know if water weight is a symptom of celiac disease or not but given the fact that you lost the weight that is a good sign and I wouldn't be worried abou it :)

I am sure you know that because you were gluten-free before the testing is maybe the reason the test came back negative. However I was eating gluten before/during my testing (except for some foods that made me very ill, I tended to stay away from those) and my test still came back negative. My GI doc now tells me that sometimes when a person recently develops a disease it sometimes does not register at first, basically it needs time to show up in blood-work or of course damaged villi in the small intestines.

Since you are currently gluten-free and it sounds like you did not get a proper diagnosis I would recommend Enterolab. They perform stool panel tests, which are more sensitive than blood and you DO NOT have to be on gluten for them to be accurate. But in my opinion an improvement on a gluten-free diet is a test in itself, if you did not have celiac disease/gluten sensitivity the diet would not make a difference in your health!

I do hope you are feeling well and continue to do so....


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    • They didn't. The labs were run two and a half weeks ago and before I got confirmation on here that it should be done despite my drs saying otherwise. I was glutened the week prior anyway so it would've been high regardless.  It's all very frustrating. So I guess I'll wait five or six months and go back and demand it vs asking about it. 
    • Did they run a DGP IGA?  While your DGP can take over a year to come down, I still think you should be getting tested every six months until you see a downward trend.  I am not making that up.  Google it.   My DGP was off the charts when I was glutened last summer.  My symtoms were severe, yet at diagnosis, I just had anemia.  It took six months for all symptoms to completely resolve (rashes and hives took the longest and three month to regain dairy).  What I am saying is that symptoms for celiac disease can change.    
    • Long pause because I wanted my latest lab results and they took forever.  Cortisol, ACTH, estadiol, vitamin a and whatever else were all fine. They are retesting my thyroid in four weeks. I definitely bought the wrong product and glutened myself a few weeks back so I guess that has to wait which really irritates me. My gliadin iga ab was greater than 100 almost two yrs ago at diagnosis so I guess sometime next yr I'll redo that and hope it's down :-/. Trying to do all the right things and get bad information from doctors.  Thanks for all the info you've shared and helped me with. I've had lab work every month since May and will next month for the thyroid again. Sigh. 
    • Hi Carle, Congrats on your symptoms going away.  I did seem to have reactions to rice for a while after going gluten-free.  But after some years on the gluten-free diet I can eat it again.  So reactions can change over time. I was searching for an article on gluten in common store products, but didn't find it.  There was a group that did testing on some common grocery products like beans, rice, corn etc that we would normally consider to be gluten-free naturally.  But they found some level of gluten in some of them.  So it's not impossible to pick up something off the shelf that ought to be naturally gluten-free and find it is contaminated.  That may have happened with the rice you ate.  A quick rinse of water before using the rice might help.
    • Hi Doit, The reference ranges to the right of the test result show the values the result ought to be in for normal readings (no celiac disease).  Your results appear to show no higher than normal results that I can see. However, you aren't following the recommended process for celiac disease blood testing.  The blood test is supposed to preceded by 12 weeks of daily gluten eating.  That is generally enough time to cause a sufficient quantity of antibodies to build up in the blood stream to be detectable by the tests. Not having antibodies in the blood stream doesn't mean you aren't being damaged.  People with DH (dermatitis herpetiformis) sometimes test negative on the standard blood tests.  My theory is possibly because the antibodies are concentrated in the skin instead of the blood.  In gut damage, it is possible the antibodies are concentrated in the gut, instead of the blood.  After some time they show up in the blood also.  The thinking is the antibodies go where the work is.  Anyway, theories aside, it takes very little gluten to kick off an immune response.  Those antibodies are not aimless soldiers.  They start doing their work and destroying gluten and gut tissue even if you don't feel symptoms.  Did you know there are some people who have no GI symptoms of celiac disease but still have it?  They call that silent celiac.  So going by symptoms is not a good way to judge actual damage in the gut. You are wise to go in for followup testing, but the followup testing is hopefully to show compliance with the gluten-free diet, and lower antibody test results.  Have your close family members been tested for celiac disease?  It sounds like they should be.   There is a 5% higher chance of them having celiac than the general population. Welcome to the forum!
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