Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Osteoporosis
0

16 posts in this topic

Hi All,

I got some good news today, and thought I would share! I was diagnosed with Osteoporosis and Osteopenia long before I was diagnosed with Celiac. For about 8 years, I have had annual bone scans and annual Reclast injections, only to learn it was getting worse.

I have been gluten free for a bit over a year. I've been taking my calcium, Vitamin D and exercising. I had my annual bone scan two weeks ago. The doctor called today and said "Your bone scan shows DRAMATIC improvement in all bones."

YAY!

So, the diet does work, and the damage can be undone! I've been feeling really great for about 5 months now. Even my doctor was somewhat shocked with what an amazing recovery I have had. I look and feel like a whole new person!

Just sharing my joy :D

Janie

0

Share this post


Link to post
Share on other sites


Ads by Google:

Thanks for posting that! It's very encouraging news.

0

Share this post


Link to post
Share on other sites

that is EXTREMELY encouraging news! so happy for you!!! :) what calcium supplement do you take?

0

Share this post


Link to post
Share on other sites

That is encouraging news. I am hoping for the same thing. I am new to the diet but my bone scans weren't getting any better in spite of taking calcum and Boniva. My GI doctor who found my Celiac said that my back pain will probably go away too. I hope many of us Celiac's can look at the positive side of things.

0

Share this post


Link to post
Share on other sites

Caltrate + D twice a day, and 4000 IU daily of vitamin D :)

0

Share this post


Link to post
Share on other sites




Hi All,

I got some good news today, and thought I would share! I was diagnosed with Osteoporosis and Osteopenia long before I was diagnosed with Celiac. For about 8 years, I have had annual bone scans and annual Reclast injections, only to learn it was getting worse.

I have been gluten free for a bit over a year. I've been taking my calcium, Vitamin D and exercising. I had my annual bone scan two weeks ago. The doctor called today and said "Your bone scan shows DRAMATIC improvement in all bones."

YAY!

So, the diet does work, and the damage can be undone! I've been feeling really great for about 5 months now. Even my doctor was somewhat shocked with what an amazing recovery I have had. I look and feel like a whole new person!

Just sharing my joy :D

Janie

May I ask whether or not you are post-menopausal? I also have osteoporosis in my spine and osteopenia in my hips. I have never taken any bone meds because I chose not to after doing some research on them.....interesting that you were given injections of Reclast yet still your bone density did not improve. That bypasses the gut so it goes to show how poorly these meds work.

I am so encouraged and thrilled you have had these results! I started doing very serious weight training with a personal trainer in June and if this doesn't work for me, I am out of options. I am praying that I have the same experience that you have had. I was just taking calcium, magnesium and lots of Vit.D but that wasn't enough. I do hike and walk a lot so that prevented my hips from getting to full blown osteoporosis but the spine was another matter. I am 5 1/2 years post gluten free and everything has gotten better except the bones....I am also post-menopausal so I hope all is not lost for me!

Good work and I'm glad you've had such fantastic results. :D

0

Share this post


Link to post
Share on other sites

Congrats!!!

0

Share this post


Link to post
Share on other sites

I am 44, and not menopausal. I took reclast for many years, but I was so very sick from the celiac, I don't think it would have worked even though it bypasses the GI tract. I was a skeleton trying to get through every day prior to diagnosis.

I did chat with my doctor about it. He's a DO, and is "drug resistant" :D However, he is very comfortable with Reclast because of the few side effects and its ability to actually rebuild bone. It's painless, too, it just takes a while because it is administered by IV.

0

Share this post


Link to post
Share on other sites

Yay! From what I've read, gluten-free diet generally means young celiac patients regain a good bit of lost bone density. Not much to read on older patients...

Anyway, i'm also hoping to have a scan next year and discover that the weirdly elevated rate of loss is now either zero or positive.

0

Share this post


Link to post
Share on other sites

Yay! From what I've read, gluten-free diet generally means young celiac patients regain a good bit of lost bone density. Not much to read on older patients...

Anyway, i'm also hoping to have a scan next year and discover that the weirdly elevated rate of loss is now either zero or positive.

I truly know you meant nothing by your statement about "older" patients......it's just that at 51, I went through early menopause at 45, which is common for Celiac's. I feel so much better than I did at thirty that I literally cringe when I hear people refer to me as older! :lol::P I guess I am but I am actually now in better shape than most of the younger gals at work so have that

"Who? Me?" thing going when it comes to aging. Maybe someday I'll get used to it! :blink:

0

Share this post


Link to post
Share on other sites

I am 44, and not menopausal. I took reclast for many years, but I was so very sick from the celiac, I don't think it would have worked even though it bypasses the GI tract. I was a skeleton trying to get through every day prior to diagnosis.

I did chat with my doctor about it. He's a DO, and is "drug resistant" :D However, he is very comfortable with Reclast because of the few side effects and its ability to actually rebuild bone. It's painless, too, it just takes a while because it is administered by IV.

I think the reason many older women don't have much to go on when it comes to bone density is that many don't put as much effort into it as I am right now. They are steered into meds and have a hard time with the exercise that's required. This weight training stuff is great in how it makes you feel but it is literally the hardest work-out I have ever done in my entire life. I am starting lower than many of the women as I am trying to build muscle and bone. My muscles were atrophied at diagnosis and had no tone, plus the bone thing...... :o I am getting stronger but it is taking me longer than many in the class. They didn't start out as malnourished.

I am hesitant to use any bone meds as I have a lot of dental work to be done and that will be an on going project. I am having an implant done in October and I am just too afraid about the jaw problems that could occur with using Reclast and the like.

With my luck, I'll develop a problem and it cannot be fixed. This is why I am killing myself in the gym right now and it had better work! I am extremely curious as to see whether or not we older ladies can build bone like the youngun's! :lol: I am told by doctors that we can, it just takes more effort. Well...I'm doing that so I am hoping for bones by Christmas....at least some improvement!

0

Share this post


Link to post
Share on other sites

Hi All,

I got some good news today, and thought I would share! I was diagnosed with Osteoporosis and Osteopenia long before I was diagnosed with Celiac. For about 8 years, I have had annual bone scans and annual Reclast injections, only to learn it was getting worse.

I have been gluten free for a bit over a year. I've been taking my calcium, Vitamin D and exercising. I had my annual bone scan two weeks ago. The doctor called today and said "Your bone scan shows DRAMATIC improvement in all bones."

YAY!

So, the diet does work, and the damage can be undone! I've been feeling really great for about 5 months now. Even my doctor was somewhat shocked with what an amazing recovery I have had. I look and feel like a whole new person!

Just sharing my joy :D

Janie

Tha is great news!

I was told that my osteopenia would reverse after having surgery for hyperparathyroidism. I haven't had a scan since my surgery 16 months ago. Guess I'll have to see if my DO will order a scan.

I'm still taking close to 2000 mg. of calcium citrate, 4000 IU Vitamin D3 daily along with magnesium glycinate. I'd love to be able to cut down on the calcium. I do better with calcium citrate than with calcium carbonate.

0

Share this post


Link to post
Share on other sites

Great news! It's always so nice to hear about the benefits of having to follow a strict diet.

0

Share this post


Link to post
Share on other sites

I truly know you meant nothing by your statement about "older" patients......it's just that at 51, I went through early menopause at 45, which is common for Celiac's. I feel so much better than I did at thirty that I literally cringe when I hear people refer to me as older! :lol::P I guess I am but I am actually now in better shape than most of the younger gals at work so have that

"Who? Me?" thing going when it comes to aging. Maybe someday I'll get used to it! :blink:

Gemini, I am with you. Although I am 44, I felt 100 for years. I honestly feel better and younger than I did at 20, thanks to the diet. Well, er, except for my right hip that is :P

0

Share this post


Link to post
Share on other sites

I think the reason many older women don't have much to go on when it comes to bone density is that many don't put as much effort into it as I am right now. They are steered into meds and have a hard time with the exercise that's required. This weight training stuff is great in how it makes you feel but it is literally the hardest work-out I have ever done in my entire life. I am starting lower than many of the women as I am trying to build muscle and bone. My muscles were atrophied at diagnosis and had no tone, plus the bone thing...... :o I am getting stronger but it is taking me longer than many in the class. They didn't start out as malnourished.

I am hesitant to use any bone meds as I have a lot of dental work to be done and that will be an on going project. I am having an implant done in October and I am just too afraid about the jaw problems that could occur with using Reclast and the like.

With my luck, I'll develop a problem and it cannot be fixed. This is why I am killing myself in the gym right now and it had better work! I am extremely curious as to see whether or not we older ladies can build bone like the youngun's! :lol: I am told by doctors that we can, it just takes more effort. Well...I'm doing that so I am hoping for bones by Christmas....at least some improvement!

I am going to give a big shout out to Curves. I've been working out there daily. Their routine is resistance machines, that you can make more difficult based on your effort each time. Yeah, starting out malnourished like we all were means a lower bar at the beginning, but you'll get there! I went for my one year checkup with my DO a few weeks ago and he was "thrilled, astonished, ecstatic" about the progress I have made and what a great "rule follower" I have become. Who woulda thought? :)

0

Share this post


Link to post
Share on other sites

Caltrate + D twice a day, and 4000 IU daily of vitamin D :)

thanks ... i'll check it out. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,521
  • Topics

  • Posts

    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
    • I have confirmed that Member's Mark Ibuprofen are gluten free in three ways: the list of ingredients matches the list of gluten-free excepients from the Gluten Intolerance Group's list, I called the customer service number on the bottle (they confirmed it is gluten-free), and I found another website in which a dr claims it is gluten-free.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined