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Gluten Intake Before Endoscopy


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6 replies to this topic

#1 Skibunny

 
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Posted 08 September 2010 - 03:21 PM

I have been following a gluten free diet since June 2010 (my son is biopsy confirmed) and will be getting a scope myself at the end of the month. Worried I scheduled it to soon...how long is it recommended that you be ingesting gluten before a scope? My doctor said 7 days I thought it was more like 21 days.
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#2 adab8ca

 
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Posted 08 September 2010 - 03:34 PM

I have been following a gluten free diet since June 2010 (my son is biopsy confirmed) and will be getting a scope myself at the end of the month. Worried I scheduled it to soon...how long is it recommended that you be ingesting gluten before a scope? My doctor said 7 days I thought it was more like 21 days.


hmmmm
my GI's office said at least a month and lots of gluten while I was at it...
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TTG >200 (normal <10)
IgA gliadin 24 (normal <11)
IgG gliadin 38 (normal <11)
Endoscopy showed damage that looked like "classic celiac", biopsy showed total villous atrophy
Started gluten-free diet Aug 31, 2010
Only real symptoms are huge weight loss and neuropathy

#3 Dixiebell

 
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Posted 08 September 2010 - 03:58 PM

I've heard anywhere from six weeks to three months, eating enough gluten to equal four slices of bread a day.
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#4 Lisa

 
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Posted 08 September 2010 - 05:02 PM

Yeah...the equivalent of 3-6 slices of bread for 3-6 weeks. From June, you might be able to catch up quickly. :huh:
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#5 cassP

 
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Posted 08 September 2010 - 05:11 PM

I have been following a gluten free diet since June 2010 (my son is biopsy confirmed) and will be getting a scope myself at the end of the month. Worried I scheduled it to soon...how long is it recommended that you be ingesting gluten before a scope? My doctor said 7 days I thought it was more like 21 days.


7 days is not long enough. my GI had me do 2 weeks. others on here suggest up to 2-3 months. if i were you, as long as you're not feeling too ill- i would push the procedure to a little later so you can get a more accurate test
and make sure they take 6 samples from different areas.

good luck :)
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#6 Skibunny

 
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Posted 08 September 2010 - 06:54 PM

Thanks for the response. I do feel like I am pushing it. My procedure is 19 days out so I sat down and gladly had a regular beer tonight! My son is biopsy positive, I am DNA positive and with the gluten free diet my reflux has really improved, energy has gotten better along with a list of other things. I was worried that a week was not enough time.
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#7 ravenwoodglass

 
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Posted 09 September 2010 - 02:54 AM

Thanks for the response. I do feel like I am pushing it. My procedure is 19 days out so I sat down and gladly had a regular beer tonight! My son is biopsy positive, I am DNA positive and with the gluten free diet my reflux has really improved, energy has gotten better along with a list of other things. I was worried that a week was not enough time.


Yea I would push the procedure back another month. Even then you may still show a false negative on the endo. If you find your symptoms come back on the challenge your body is giving you the answer but that doesn't mean the endo would come back postive at that point.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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