Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Green Bay Wi
0

18 posts in this topic

I am newly diagnosed. I just learned a co-worker of mine is as well, and she is really struggling. Any groups in this area?

0

Share this post


Link to post
Share on other sites


If there isn't a group we should start one because I'm in Green Bay too and newly diagnosed.

0

Share this post


Link to post
Share on other sites

I'm down here in Berlin (West of Oshkosh). But wanted to add to the Wisconsin presence here. :lol:

0

Share this post


Link to post
Share on other sites

Yay Wisconsin!! Oshkosh isn't so far!! We could meet in Appleton! Oh wait it snows there too... lol we could meet in Appleton in the summer :lol:

0

Share this post


Link to post
Share on other sites

Yes, maybe by then I won't be as sensitive to CC and will have healed enough to be able to eat out again, then I could meet at a restaurant. :)

Unfortunately this is a far off dream for me at the moment. :(

Still good to know there are two of you not so far away! :D

0

Share this post


Link to post
Share on other sites

Finding out today that I have the DQ2 gene hit me like a ton of bricks. I don't know if before it didn't seem real but today talking to the doctor and realizing that this was for life made me hit the wall. I'm scared I think because even though it sounds easy to someone that doesn't have this it's not easy to stay gluten free and give up everything that you like to eat. Well not everything but it seems like it from this newbie perspective. I'll be fine just have to come to terms with it and realize that I'm not feeling as sick after just a week being gluten free and remembering that I think will help me to get over this emotional roller coaster I'm on right now... WOW knocked the wind out of my sails today.. never saw it coming either..

:huh:

0

Share this post


Link to post
Share on other sites

If it helps I think you are not alone. Not by a looooong shot.

I've been doing a ton of research and been on lots of forums over the past 5 months and I see a bigger picture. All the things gluten causes in us are also problems for the general populace.

IBS

Hypothyroid

Migraines

MS

Lupus

DH

Eczema

Bloating

Abdominal Pain

Excess Gas

Vomiting/Upset Stomach

Depression

Schizophrenia

Brain Fog

Tiredness

C/D

Feeling like you want to jump out of your skin

Irritability

Mood Swings

Cold feet/hands

Menstrual Cramps/PMS

Infertility

Poor balance

Anxiety/Panic Attacks

Diabetes

Gallbladder problems

Hysterectomies

Calcium Malabsorption

Allergies

Adrenal Fatigue

Heartburn

Indigestion

Night Sweats

Insomnia

Night Terrors

Restless Leg Syndrome

Thin/Losing Hair

Heart Disease

Crohn's Disease

Neuropathy

Ulceritive Colitis

Diverticulitis/osis

Alzheimer's Disease

Rheumatoid Arthritis

Osteoporosis

Poor Teeth Enamel

Appendicitis

Paranoia

And those are literally just off the top of my head, I'm sure I'm missing some. Unless I got glutened and am just being paranoid. :P

In short, no one can handle this stuff. DQ2 or DQ8 or DQBlizzard There is something wrong or faulty with their gene testing. I'm not sure what they think they are finding or how they got confused but there is a big picture here that the Medical profession at large is missing.

What we call Celiac is one small manifestation of a larger Gluten Intolerance.

So be happy that you figured it out in time to stave off a colon bag, or Alzheimer's or before you can no longer walk from RA, or had your thyroid/gallbladder/uterus/appendix yanked. :)

The glass is overflowing Judy3. :)

I am so very glad that you uncovered what was making you sick and that you are feeling better. :D

0

Share this post


Link to post
Share on other sites

If it helps I think you are not alone. Not by a looooong shot.

I've been doing a ton of research and been on lots of forums over the past 5 months and I see a bigger picture. All the things gluten causes in us are also problems for the general populace.

IBS

Hypothyroid

Migraines

MS

Lupus

DH

Eczema

Bloating

Abdominal Pain

Excess Gas

Vomiting/Upset Stomach

Depression

Schizophrenia

Brain Fog

Tiredness

C/D

Feeling like you want to jump out of your skin

Irritability

Mood Swings

Cold feet/hands

Menstrual Cramps/PMS

Infertility

Poor balance

Anxiety/Panic Attacks

Diabetes

Gallbladder problems

Hysterectomies

Calcium Malabsorption

Allergies

Adrenal Fatigue

Heartburn

Indigestion

Night Sweats

Insomnia

Night Terrors

Restless Leg Syndrome

Thin/Losing Hair

Heart Disease

Crohn's Disease

Neuropathy

Ulceritive Colitis

Diverticulitis/osis

Alzheimer's Disease

Rheumatoid Arthritis

Osteoporosis

Poor Teeth Enamel

Appendicitis

Paranoia

And those are literally just off the top of my head, I'm sure I'm missing some. Unless I got glutened and am just being paranoid. :P

In short, no one can handle this stuff. DQ2 or DQ8 or DQBlizzard There is something wrong or faulty with their gene testing. I'm not sure what they think they are finding or how they got confused but there is a big picture here that the Medical profession at large is missing.

What we call Celiac is one small manifestation of a larger Gluten Intolerance.

So be happy that you figured it out in time to stave off a colon bag, or Alzheimer's or before you can no longer walk from RA, or had your thyroid/gallbladder/uterus/appendix yanked. :)

The glass is overflowing Judy3. :)

I am so very glad that you uncovered what was making you sick and that you are feeling better. :D

Thanks for your support. I read through that list of yours and I think I've been diagnosed with about half of those things if not more over the years but no one every put it all together.. But you're right. Now I know and I can move on gluten free! Look out world this DQ2 woman is coming and it ain't gonna be pretty!!! :D (picturing myself as a super woman with a DQ2 embroidered on my chest and carrying a DQBlizzard!! no cookie dough in it though!)

0

Share this post


Link to post
Share on other sites

I am also a Celiac living in Green Bay. My insurance wouldn't cover a nutritionist (celiac disease is not a covered diagnosis) and I don't have the money to pay for it so I have been looking for some support group, and it was my understanding that there was one at St. Mary's but there has been nothing on their calendar about it. There is one that meets at Appleton Medical Center in Appleton as well, although I'm not sure when.

0

Share this post


Link to post
Share on other sites

Thanks for the info Cutter! It looks like the 3 of you GBers could start a group if there isn't one. :)

0

Share this post


Link to post
Share on other sites

I'll do some checking around town and see if there are any already in flight. My insurance won't pay for the dietician unless it's diabetes or eating disorder related but fortunately (for this once) I have diabetes as well so I'm going to tell them to bill it under diabetes training so it gets paid. It really is because I have to learn how to eat all over again... rice and my blood sugar don't get along too well.

I'll be in touch!!

*Judy

0

Share this post


Link to post
Share on other sites

Hi all,

I live in Green Bay too and was diagnosed about 6 months ago. I did make it to one of the support group meetings at St. Mary's and it was extremely unhelpful. I think that the group is now defunct. I would love to meet up for an informal "support" group from time to time. There is now a gluten-free restaurant open in Ledgeview called Caffe Naturally which would be a great place.

Let me know if you're interested!

Jess

0

Share this post


Link to post
Share on other sites

Thanks for the heads up on Caffe Naturally! It is nice to see that there are restaurants starting to open up in the area. :) A trip to Green Bay may be in order one of these days. :P

Also wanted to let folks know about this FB group:

East Central Wisconsin Gluten Free Group

Worth liking if you are an FB user. ;)

0

Share this post


Link to post
Share on other sites

I am also a Celiac living in Green Bay. My insurance wouldn't cover a nutritionist (celiac disease is not a covered diagnosis) and I don't have the money to pay for it so I have been looking for some support group, and it was my understanding that there was one at St. Mary's but there has been nothing on their calendar about it. There is one that meets at Appleton Medical Center in Appleton as well, although I'm not sure when.

There is a Celiac Group that meets at St. Mary's in Green Bay. The next meeting is Dec 9th, (this coming Thursday). They meet on the even numbered months. I'm going and this will be my first meeting. They are having a potluck at 7pm so I asked if I could come a little later as I don't really want to eat at the potluck with all my food allergies and the lady said that's fine.. It's $10 a year to be a member not sure if you have to pay that the first night or if you can try it out once and see. Anyway, there is another larger group in Appleton called FVC Fox Valley Celiacs - they meet on the odd numbered months in Appleton at the Technical college.

I'll be there Thursday if you'd like to join me!! :)

0

Share this post


Link to post
Share on other sites

Hi all,

I live in Green Bay too and was diagnosed about 6 months ago. I did make it to one of the support group meetings at St. Mary's and it was extremely unhelpful. I think that the group is now defunct. I would love to meet up for an informal "support" group from time to time. There is now a gluten-free restaurant open in Ledgeview called Caffe Naturally which would be a great place.

Let me know if you're interested!

Jess

Cafe Naturally has a dedicated gluten free kitchen. They are open from 8:00am-3:00pm only so if we get together it would have to be on a Saturday for me because I work during the week. If you all want to get together let me know. I'm thinking the St Mary's gig might be a 'whine bag' show or so I've heard. I'll go once and see this week.. (Thursday 12/9) :P

0

Share this post


Link to post
Share on other sites

Hi Judy,

Please report back on your experience at the meeting on 12/9. I went once (8/10) and it was a strange experience. The people seemed very disgruntled overall. The vice president came in with a big Subway bag and ate a 6 inch sub and Cool Ranch Doritoes in front of all of us (I later found out she does not have celiac disease). There was not a speaker, but a woman from Wildfire foods who tried to get us to buy products (but a lot of the ones she had on display were not gluten free). I hope you have a better experience than I did. I have heard that the support group in Appleton is a ton better but have been unable to make it to any of their meetings due to work conflicts.

I think it would be great to meet up time to time so that we can all navigate the community better and get tips on stores, restaurants, nutritionists, etc. Most Saturdays work for me, I work one Saturday a month.

Jess

0

Share this post


Link to post
Share on other sites

Hi Judy,

Please report back on your experience at the meeting on 12/9. I went once (8/10) and it was a strange experience. The people seemed very disgruntled overall. The vice president came in with a big Subway bag and ate a 6 inch sub and Cool Ranch Doritoes in front of all of us (I later found out she does not have celiac disease). There was not a speaker, but a woman from Wildfire foods who tried to get us to buy products (but a lot of the ones she had on display were not gluten free). I hope you have a better experience than I did. I have heard that the support group in Appleton is a ton better but have been unable to make it to any of their meetings due to work conflicts.

I think it would be great to meet up time to time so that we can all navigate the community better and get tips on stores, restaurants, nutritionists, etc. Most Saturdays work for me, I work one Saturday a month.

Jess

I have heard some pretty strange things about this Green Bay group at St. Mary's but eating subway at the meeting now that takes the cake. If something like that happens Thursday I'll be out of there before the first crumb hits the table. How can someone be the vice president of a club if they aren't Celiac? Probably her hubby is or something so she feels entitled. Anyway, I'm going to go once. I got a call from a friend of a friend as he has Celiac too and he wasn't too 'up' on the Green Bay group at all. That's where I heard it was a whine session. We'll see I'll give anything one chance!!! I'll let you know. :D

0

Share this post


Link to post
Share on other sites

Hi

My name is Kathy and I live in Green Bay. I was diagnosed a year ago, and my recent trip to my doctor was a disaster. He knows nothing about celiac! Looking for a GP that is celiac freindly any recommendations would be appreciated.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,674
    • Total Posts
      914,381
  • Topics

  • Posts

    • Itchy skin
      Cool compresses may help a bit. Hot baths or showers used to really aggravate my itchy skin so go with warm or cool ones to see if it helps. Keep well hydrated both inside and out. Be sure to check and make sure any lotions you use are gluten free. Shea butter, olive or coconut oil may help. Since you say this is not DH, no blisters etc. I would not advise Dapsone. It is quite a toxic med but if you do talk to your doctor about it make sure that they do blood work before prescribing and frequently during the time you are on it.  Some celiacs have liver impact and Dapsone can be damaging to the liver. I also had both DH and the all over itchies. Being strictly gluten free and avoiding obvious sources of iodine like iodized salt or iodine in supplements will help you heal. I hope you get some relief soon.
    • Where do I start??
      I will be going for my endoscopy on Februry 19. The other day in reading about Celiacs, I read about the strange rashes often associated with celieacs and gluten intolerrance. About six months ago, a rash exactly as you describe showed up on the backs of my knees. The doctor didn't know what it was, hought maybe it was ringworm, and gave me some topical medicine, and the spots did go away with time. However, I've had the same type of spots show up in other places occassionally. I know for a fact they were not ringworm.
    • Advice on reintroducing dairy.
      I can!   Start with hard cheeses, then yogurt/butter, soft cheeses and finally milk/cream.  Start slowly and build.  Give yourself time to get your body to release the enzymes necessary to digest lactose.  Certified gluten-free enzymes for lactose can help the transition.  Lactose free milk and ice cream are helpful too.  Remember, that genetically some of us are predisposed to being lactose intolerant no matter what (e.g. aging, race).   I wish you success!      
    • Gluten free diet, positive celiac screen...what should I eat now?
      Here is a link that explains why you should get tested (completely) for celiac disease: https://celiac.org/celiac-disease/diagnosing-celiac-disease/diagnosis/ As far as the link to the functional doctor....why?  If you get a celiac diagnosis, chances are you will heal on a gluten free diet.  As you have probably seen on this forum, most of us encourage newly diagnosed members to eat a whole-foods, easy-to-digest (a.k.a "cooked to death")  gluten-free diet to speed healing.  Going Paleo might not be the best right now, if you have celiac disease.  Eating lots of nuts, raw fruits and veggies can be tough on a damaged gut.  You can try that diet later!   Everyone is different due to various degrees of damage, so some may have temporary intolerances  (e.g. lactose).  You just have to experiment.   Save your money and spend it on good wholesome food.  I heartily support getting away from the SAD (Standard American Diet).   Celiac disease is the one autoimmune disorder that is healed by avoiding a food -- gluten!  
    • Itchy skin
      I have DH and itchy skin is a symptom.     Your Dermatologist could write a script for Dapsone, provided you're not allergic to Sulphur.     Expect blood labs to go with using Dapsone.      You need to study everything that goes in your mouth for possible gluten content, including all meds.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,700
    • Most Online
      1,763

    Newest Member
    Valou
    Joined