17 replies to this topic

[jebby]

Hi Judy,
Please report back on your experience at the meeting on 12/9. I went once (8/10) and it was a strange experience. The people seemed very disgruntled overall. The vice president came in with a big Subway bag and ate a 6 inch sub and Cool Ranch Doritoes in front of all of us (I later found out she does not have celiac disease). There was not a speaker, but a woman from Wildfire foods who tried to get us to buy products (but a lot of the ones she had on display were not gluten free). I hope you have a better experience than I did. I have heard that the support group in Appleton is a ton better but have been unable to make it to any of their meetings due to work conflicts.
I think it would be great to meet up time to time so that we can all navigate the community better and get tips on stores, restaurants, nutritionists, etc. Most Saturdays work for me, I work one Saturday a month.
Jess

[Judy3]

Hi Judy,
Please report back on your experience at the meeting on 12/9. I went once (8/10) and it was a strange experience. The people seemed very disgruntled overall. The vice president came in with a big Subway bag and ate a 6 inch sub and Cool Ranch Doritoes in front of all of us (I later found out she does not have celiac disease). There was not a speaker, but a woman from Wildfire foods who tried to get us to buy products (but a lot of the ones she had on display were not gluten free). I hope you have a better experience than I did. I have heard that the support group in Appleton is a ton better but have been unable to make it to any of their meetings due to work conflicts.
I think it would be great to meet up time to time so that we can all navigate the community better and get tips on stores, restaurants, nutritionists, etc. Most Saturdays work for me, I work one Saturday a month.
Jess

I have heard some pretty strange things about this Green Bay group at St. Mary's but eating subway at the meeting now that takes the cake. If something like that happens Thursday I'll be out of there before the first crumb hits the table. How can someone be the vice president of a club if they aren't Celiac? Probably her hubby is or something so she feels entitled. Anyway, I'm going to go once. I got a call from a friend of a friend as he has Celiac too and he wasn't too 'up' on the Green Bay group at all. That's where I heard it was a whine session. We'll see I'll give anything one chance!!! I'll let you know.

[Kathy-Green Bay]

Hi
My name is Kathy and I live in Green Bay. I was diagnosed a year ago, and my recent trip to my doctor was a disaster. He knows nothing about celiac! Looking for a GP that is celiac freindly any recommendations would be appreciated.