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11 replies to this topic

#1 Wing

 
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Posted 18 September 2010 - 01:23 PM

Hey all,
I'm brand new to this site and also brand new to this gluten allergy. I have suffered from horrible chronic digestive disorders for a few decades. Of course I was told I had "IBS" and that I would just have to live with it. I had seen countless doctors and specialists, had various tests and colonoscopies and tried tons of different things to eliminate my sysmptoms but they never stopped. Blood tests always tested negative for celiac so I never bothered eliminating it from my diet.
2 weeks ago I did some new tests with a Naturopath who specializes in digestive issues. She told me that from samples I had sent that I was severely inflammed in the colon and had horrible malabsorption and that I potentially had a gluten allergy (she said not all celiac blood tests are 100% accurate). Anyways, she told me to completely eliminate gluten from my diet. I said I would but I was very skeptical and uninspired that anything would change, as chronic "IBS" symptoms have been the story of my life without any improvement. Anyways, the first 3 days I didn't notice any difference, then all of a sudden on day 4 I felt like a new person. 1 solid bowel movement a day and that was it. No colon spasms or pain. Minimal bloating. Today is day 6 and I still feel really great.
My question is will this last? I don't want to get too excited as it may be placebo but I can't help but feel completely happy and excited that this may be the answer to my life long problem. Is this really it? Is gluten that bad and eliminating almost instantaneously made me feel better??
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#2 psawyer

 
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Posted 18 September 2010 - 02:15 PM

Welcome to the board from a fellow Canadian.

Yes, in many cases the symptomatic relief is very quick, and permanent.

In my own case, although I felt improvement immediately, it took some time for my symptoms to go away. I had severe atrophy of my villi, and they don't regenerate overnight.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#3 Wing

 
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Posted 18 September 2010 - 02:19 PM

Thanks for the quick reply. And thanks to everyone who participates on this forum, it is such a helpful venue. I guess Celiac or wheat intolerance in my case is a blessing as it seems to be the answer to my chronic problem. Of course it limits me in many ways and makes day to day life more challenging, however the alternative, my previous symptoms were an absolute nightmare. It has only been 3 days of relief versus 20 years of suffering but i have a good feeling about this. I hope I can finally find some relief. Who knew?
Anyone else out there suffer for years with "IBS" symptoms and tried everything with no relief only to go non-gluten and find that it changed you for the better dramatically?
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#4 Skylark

 
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Posted 18 September 2010 - 03:07 PM

Yep. I did. I had stomachaches all my life and diagnoses of "gastritis" and "IBS" along with a bunch of other health problems including borderline anemia, canker sores, and psych problems. I felt better within a week on an elimination diet and eventually narrowed the problem to gluten. My stomach functions pretty much normally now.

The diet is a pain, but it beats drugs and still feeling crummy!
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#5 Tina B

 
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Posted 18 September 2010 - 05:58 PM

Thanks for the quick reply. And thanks to everyone who participates on this forum, it is such a helpful venue. I guess Celiac or wheat intolerance in my case is a blessing as it seems to be the answer to my chronic problem. Of course it limits me in many ways and makes day to day life more challenging, however the alternative, my previous symptoms were an absolute nightmare. It has only been 3 days of relief versus 20 years of suffering but i have a good feeling about this. I hope I can finally find some relief. Who knew?
Anyone else out there suffer for years with "IBS" symptoms and tried everything with no relief only to go non-gluten and find that it changed you for the better dramatically?


yes, it's permanent. I've been doing it for 20 years and was just happy it didn't require meds. Haven' found it all that difficult and these days it is even easier with more products available in regular markets. Never had much of a problem in restaurants sticking with grilled or roasted things. No fried with breading or sauces.
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Gluten free since 1990.
Diagnosed by duodenal biopsy.

You don't stop skiing because you get old. You get old because you stop skiing :-)

#6 GFinDC

 
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Posted 18 September 2010 - 06:03 PM

Welcome to the site Wing! Lots of people actually have the symptoms for years before being diagnosed. That's actually one of the common grouches around here that the doctors are so clueless seeming and slow to suggest celiac or gluten intolerance.

In my case I felt better within a few days but also still had months of learning to do (set backs) before I really understood how to eat gluten free. Gluten hides in lots of places and it takes some serious effort to eliminate it. There is also the possibility of developing additional food intolerances over time, and that is not rare according to what I read on this board. So don't be surprised if you seem to go backwards sometimes, as it is not unusual.

Anyway, stick around and read, read, read. We all have our stories to tell and axes to grind and we can all help each other by sharing.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#7 Wing

 
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Posted 18 September 2010 - 06:22 PM

Wow thanks everyone for the positive replies. I will def keep an eye out for any new "intolerances" that may appear. I can't begin to express in words what a relief the last 72 hours have been vs the last 15 years. I'm dying for a slice of pizza and a pint of beer! but the fact that i know now it will make me sick makes staying away from it all that easier. I'll take your advice and continue to read read read as much as I can and learn from everyone here who has been at this longer than me. Wow, again, I hope this actually is permanent. I dreamed of a day like this for so long.
I think all my doctors and the last 4 gastrointestinal specialists I've seen should have a conversation with my Naturopath - they may learn something!
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#8 psawyer

 
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Posted 18 September 2010 - 08:33 PM

I'm dying for a slice of pizza and a pint of beer!

You can have both of those. Gluten-free pizza is available at some outlets, and there is gluten-free beer as well. It is late. I will post details tomorrow. :)
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#9 Wing

 
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Posted 19 September 2010 - 04:20 AM

You can have both of those. Gluten-free pizza is available at some outlets, and there is gluten-free beer as well. It is late. I will post details tomorrow. :)


Thanks psawyer - looking forward to it. I live in Toronto and am in Markham often for work, so any suggestions would be very much appreciated.
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#10 psawyer

 
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Posted 19 September 2010 - 06:13 PM

I live in Markham (Unionville), but own a business in North Toronto (Yonge/Lawrence area).

There are three gluten-free beers available in Ontario, although I have yet to find a restaurant/bar which stocks any of them. I usually drink wine when dining out.

Two are made by a microbrewery in Quebec and the other by a brewery in Wisconsin. All three are listed at the LCBO, but inventory varies by location. Use their web locater, or you can order at any store.
Messagere from Nouvelle-France The red ale is available in selected Beer Store locations.
New Grist from Lakefront Brewery

You can get gluten-free pizza from Pizza Pizza and Pizza Nova in medium size, and from Boston Pizza in personal size. Il Fornello is a chain in the Toronto area that has gluten-free pizza and pasta. In every case, the pizza crusts are made elsewhere and delivered to the pizzeria ready to bake.

We make our own pizza crusts from the Gluten Free Pantry mix and love them.

You can have beer and pizza while on the gluten-free diet.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator

#11 Rocknroll Celiac

 
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Posted 01 November 2010 - 08:39 PM

I think all my doctors and the last 4 gastrointestinal specialists I've seen should have a conversation with my Naturopath - they may learn something!
[/quote]
Wow man, I know all about the doctors and their meds, and the never getting better. Which is pretty funny, because the last time i saw a regular doctor for my chronic arthritis and perpetual sickness (which was about 2 years ago) i told them i was going to see a naturopath before i subscribed to spending my whole life on serious medication (most arthritic medication is immune suppressant, f*** that.)
To put it lightly, they were not impressed. As a matter of fact, they were downright pissed off.
It seems like there's a straight out war between doctors and naturopaths. But I love my naturopath.
At a hospital it can take up to a couple of months to get blood type results, my naturopath tested and figured out my blood type in about a minute and a half!
I take enzymes, and some vitamins. Other than that, the human body was built to fix itself, it shouldn't need pills. Just education.
Funny about that, eh?
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#12 Wing

 
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Posted 06 November 2010 - 06:22 AM

Yup..I've been up and down with the gluten elimination...but more up which is great. I know this will just take time as I have been eating gluten for 31 years so I know it will take a bit to get completely better. Patience.
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