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Very Bad Night Sweating...what Could It Be?
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Hey

So for as long as I can remember vie also had very bad night sweats. I dont have this problem during the day just at night. It isn't the temperature in the room that is causing the problem nor is it from wearing hot clothes.

It's getting very bad and when I wake up in the middle of the night Im soaking wet. What could it be?

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If it's getting worse (& I can see that you've been off gluten for over a year), then I would suggest talking to a doctor.

Sorry, I know that's not helpful. It's just that it could be a symptom of something serious. Or not.

Although if the M.D. doesn't find anything, I will say that a holistic health practicioner (Chinese herbalist/acupuncturist, ayurvedic doctor) would still find it to be a serious indicator that something is awry with your body.

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Have you been strict with your diet? The reason I ask is because I suffer horrible night sweats (buckets!) when glutened, and it was awful before going gluten free. It has miraculously stopped, as long as I don't get accidental gluten.

How old are you? Could it be perimenopause or menopause?

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I used to go through 6 or 7 t-shirts a night they were so wet. Had been off gluten for 3 or 4 years at that point too. The docs could not figure it out but ordered a total blood work up and found I was again without a number of hormones and vitamins. A month on supplements and it was fine. Still happens once or twice every 4 or 5 months if I get glutened.

Good luck

Hey

So for as long as I can remember vie also had very bad night sweats. I dont have this problem during the day just at night. It isn't the temperature in the room that is causing the problem nor is it from wearing hot clothes.

It's getting very bad and when I wake up in the middle of the night Im soaking wet. What could it be?

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I am not eating gluten. I prepare all my food in a gluten free kitchen. Plus when I do eat gluten I can tell within 30 minutes based on how tired I get. I've been to the doctor but there is nothing in my blood that indicates a problem. I'm only 25 so I do not think it is menopause. Plus it only happens at night.

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There are many conditions not related to gluten that can cause night sweats, one of which is TB/Tuberculosis...yes it is still very much alive and around us...not saying it is...but early infections, this included, can cause severe night sweats. Go back to your doctor. TB can often be ruled out by a simple skin test or a chest x-ray. Night sweats tell you SOMETHING is going on....

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I would try to get additional blood test for micronutrients and hormones. As a celiac the body does not get everything it needs. Also Sweats can be from other allergies you get after celiac. It was 5 years but now I'm off of all dairy too.lots of changes can happen so for me it was a matter of bugging the doc to give me as many tests as he could think of and then get the appropriate supplements.

good luck

ken

I am not eating gluten. I prepare all my food in a gluten free kitchen. Plus when I do eat gluten I can tell within 30 minutes based on how tired I get. I've been to the doctor but there is nothing in my blood that indicates a problem. I'm only 25 so I do not think it is menopause. Plus it only happens at night.

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I tend to think it could be caused by a low-level fever, possibly a food intolerance reaction. There are lots of things other than food intolerances that could cause night sweating I think, but it is a as good a place to start looking as any.

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I'm not 100% sure but I've been told Thyroid problems can cause night sweats. I get them too and day sweats (dreadful things, not looking forward to summer this year) and I have a goitre, yet thyroid function blood tests always normal for me

Maybe ask for thyroid testing?

Samantha :)

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HAve them check the parathyroids by ultrasound too. That regulates something with calcium which also affects my sweating.

good luck

I'm not 100% sure but I've been told Thyroid problems can cause night sweats. I get them too and day sweats (dreadful things, not looking forward to summer this year) and I have a goitre, yet thyroid function blood tests always normal for me

Maybe ask for thyroid testing?

Samantha :)

Undiagnosed

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Hey

So for as long as I can remember vie also had very bad night sweats. I dont have this problem during the day just at night. It isn't the temperature in the room that is causing the problem nor is it from wearing hot clothes.

It's getting very bad and when I wake up in the middle of the night Im soaking wet. What could it be?

Initially, that's what the #1 complaint that we kept going to the doctors for my DS now 15. He ended up with vomiting, ADHD, diarrhea, acne.... He's been gluten-free for almost 2 yrs and no night sweats, stomach issues gone, ADHD gone--we're just dealing with normal teenage issues. Amen!

Oh and at first we had to eliminate sulphites and milk products--his body can handle them now, though.

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I get them too, oddly more when it's cold, it's when I get shivering with them I go to the Dr.

Low grade fever could cause night sweats. Did the dr check your urine for a urinary tract infection? They can be chronic and don't always have pain with them.

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Yeah - I used to get horrible night sweats as well. That was one of the indicators originally to go to the doctor. When I originally got my bacteria overgrowth issues under control, my waist slimmed down a lot & the seat went away. Now many symptoms have crept back in, but luckily, the sweats have stayed away for the most part.

For me, it felt like more of a response, like something was going on to create the heat that being dissipated thru my sweat & it would make sense that intolerable foods & bacterias were having a party & heating things up in there.

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I would try to get additional blood test for micronutrients and hormones. As a celiac the body does not get everything it needs. Also Sweats can be from other allergies you get after celiac. It was 5 years but now I'm off of all dairy too.lots of changes can happen so for me it was a matter of bugging the doc to give me as many tests as he could think of and then get the appropriate supplements.

good luck

ken

All this I never knew, thank God I joined this forum. The stupid Doctors have no time to really go into all this. But I too have night sweats , I get soaked.

It doesn't happen often now but yes but a few times a week. I must be more careful.

What does CC mean exactly. Crappy Celiac.

I am glad to have found out why, now.

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Hi,

 

I to get very bad night sweats, Iv had it for about a year and a half and its every night! I wake up all the time drenched in sweat from head to toe and it stinks! I have been to the doctors and have had so many blood tests. I have been tested for Diabetes, HIV, Thyroid problems, and TB. They all came back negative. The doctor has also ruled out early menopause and a few other things. I have also been tested for celiac but that came back negative to and they wont do a biopsy. My little sister has been diagnosed with chronic celiacs but her blood tests came back negative as well, it wasn't until she had a biopsy that she was diagnosed. I went gluten free for about a month and the sweating halved. So im guessing that i really should go gluten free to see if the sweating stops al together?   

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My sweating comes and goes even though i've been  gluten free for almost 9 years. It is less than it was before I went gluten-free but it still happens. Now I think its tied into the supplements I take which also might cause frequent urination.  It cant hurt you to go gluten-free unless you plan to get  certain tests. I also need a endoscopic exam to confirm celiac.  good luck

Hi,

 

I to get very bad night sweats, Iv had it for about a year and a half and its every night! I wake up all the time drenched in sweat from head to toe and it stinks! I have been to the doctors and have had so many blood tests. I have been tested for Diabetes, HIV, Thyroid problems, and TB. They all came back negative. The doctor has also ruled out early menopause and a few other things. I have also been tested for celiac but that came back negative to and they wont do a biopsy. My little sister has been diagnosed with chronic celiacs but her blood tests came back negative as well, it wasn't until she had a biopsy that she was diagnosed. I went gluten free for about a month and the sweating halved. So im guessing that i really should go gluten free to see if the sweating stops al together?   

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I have  21 years diagnosed with celiac disease and am religious about eating gluten-free. I went through heavy night sweats through peri menopause and menopause then they stopped post menopause. About a year ago the sweats started again, I began to notice an extremely dry mouth (worse than ever before) and as time went on I had a constant bad taste in my mouth. Additionally I noticed my blood pressure levels became erratic. I reported all of this to my three specialists and one primary doctor, the last of which was doing a CBC every three months. In September my primary care referred me to a nephrologist due to abnormal creatinine levels in my blood, although my urine had no negative test results. Days after I met the nephrologist he put me in the hospital with a diagnosis of Stage 5 (End Stage) Renal Failure. When I left a week later they had gotten it down to Stage 4. Since then I've had a kidney biopsy. My kidneys are permanently damaged due to scarring with 50% functioning. There is no known reason for this. Tests prior to January of 2013 showed no creatinine disfunction. My nephrologist told me there is growing research showing a correlation between Chronic Kidney Disease and Celiac Disease. Given my situation, I suggest you have your creatinine levels tested and GFR calculated. Request that you be followed carefully and frequently if your creatinine is lower than 95. 11 months ago mine was 90 and my physician did not note it until it dropped to 40. I don't know if he or I had known this sooner my kidney disease perhaps would not be at Stage 4 now. This means I must go on dialysis and will need a transplant eventually.

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Thanks so much for posting this and warning us about creatinine levels. Goimg to send the info to my Kaiser doc now. Good luck!

 

I have  21 years diagnosed with celiac disease and am religious about eating gluten-free. I went through heavy night sweats through peri menopause and menopause then they stopped post menopause. About a year ago the sweats started again, I began to notice an extremely dry mouth (worse than ever before) and as time went on I had a constant bad taste in my mouth. Additionally I noticed my blood pressure levels became erratic. I reported all of this to my three specialists and one primary doctor, the last of which was doing a CBC every three months. In September my primary care referred me to a nephrologist due to abnormal creatinine levels in my blood, although my urine had no negative test results. Days after I met the nephrologist he put me in the hospital with a diagnosis of Stage 5 (End Stage) Renal Failure. When I left a week later they had gotten it down to Stage 4. Since then I've had a kidney biopsy. My kidneys are permanently damaged due to scarring with 50% functioning. There is no known reason for this. Tests prior to January of 2013 showed no creatinine disfunction. My nephrologist told me there is growing research showing a correlation between Chronic Kidney Disease and Celiac Disease. Given my situation, I suggest you have your creatinine levels tested and GFR calculated. Request that you be followed carefully and frequently if your creatinine is lower than 95. 11 months ago mine was 90 and my physician did not note it until it dropped to 40. I don't know if he or I had known this sooner my kidney disease perhaps would not be at Stage 4 now. This means I must go on dialysis and will need a transplant eventually.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
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