Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Constipated On gluten-free And Diarrhea After Stopping gluten-free
0

8 posts in this topic

Hello All,

I'm thankful to have found a forum that appears to be active. I was just tested for celiac via a biopsy of the small intestines. I was having some pretty severe heartburn so my Dr did an endoscopy and did a biopsy for hpylori as well as celiac.

I do have a question though.

I tried a gluten free diet about 2.5 months ago. I was going on this diet because I had some very odd symptoms that appear to be fibromyalgia. I started the diet and stayed on it only for 2-3 weeks. While on this diet, my intestinal tract got so messed up I was bloated and constipated (mind you, I have always had problems with IBS and such), but this was terrible.

I decided to go off the diet and afterwards, I have had diarrhea every morning when I awake two to three times immediately upon waking up. I have not had a "normal" bowel movement since going off the gluten free diet. This has been for about 6 weeks.

I am following up with the gastroenterologist this Thursday, but I am curious if you all know if these symptoms sounds like celiac or gluten intolerance??

I just wonder WHY is my intestinal tract so messed up since going off. And the reason I originally stopped the gluten-free was because I was soooo extremely bloated and constipated.

I'm wondering if it was possibly due to the soy products in so many gluten free foods and maybe that was why I was bloated and constipated??

Does this sound like it could be a gluten sensitivity?? Wondering if I should try the gluten-free diet again??

Thank you for your thoughts and opinions.

Susan

0

Share this post


Link to post
Share on other sites


Ads by Google:

Many people experience withdrawal symptoms during the initial stages of going gluten-free. It could have been that you went back on the gluten just as your body was starting to adapt to not being on it. If it ended up screwing with your intestinal microbes then it'll be a while before those get back in proper arrangement.

If you do decide to try gluten-free again, DO NOT EAT "GLUTEN-FREE PRODUCTS" DURING THE INITIAL PHASE. By "gluten-free products" I mean gluten replacement items like gluten-free breads/pastas/baked goods. These products have to use a lot of additional ingredients to get a finished product that anywhere remotely resembles gluten and all of these additives can cause their own health problems. Additionally, because there are normally multiple additives in each product it is hard to pinpoint exactly which one is causing problems. These sort of items are really best left until your body gets into a more stable situation a month or two into the diet when you can slowly introduce them into your diet and see how your body responds to it. It's just way too much new stuff to tax your body with right in the beginning of the change.

1

Share this post


Link to post
Share on other sites

Many people experience withdrawal symptoms during the initial stages of going gluten-free. It could have been that you went back on the gluten just as your body was starting to adapt to not being on it. If it ended up screwing with your intestinal microbes then it'll be a while before those get back in proper arrangement.

If you do decide to try gluten-free again, DO NOT EAT "GLUTEN-FREE PRODUCTS" DURING THE INITIAL PHASE. By "gluten-free products" I mean gluten replacement items like gluten-free breads/pastas/baked goods. These products have to use a lot of additional ingredients to get a finished product that anywhere remotely resembles gluten and all of these additives can cause their own health problems. Additionally, because there are normally multiple additives in each product it is hard to pinpoint exactly which one is causing problems. These sort of items are really best left until your body gets into a more stable situation a month or two into the diet when you can slowly introduce them into your diet and see how your body responds to it. It's just way too much new stuff to tax your body with right in the beginning of the change.

Thank you very much for your reply. Too bad I didn't come on this forum before I started gluten-free. Great advice and when I go back on gluten-free, I will definitely go with the recommendations you have listed. I'm wondering if that is why I was also gaining weight on the gluten-free diet (all the processed food, etc).

Thank you kindly.

Susan

0

Share this post


Link to post
Share on other sites

Could these results have anything to do with celiac?

elevated CRP (C Reactive Protein)

elevated level of CH50

elevated ACA (anticardiolipin antibodies)

ANA (positive somtimes - negative right now)

I'm still waiting on my biopsy from the endoscopy.

Thank you

Susan

0

Share this post


Link to post
Share on other sites

Elevated levels on those sorts of tests certainly point straight towards autoimmune behavior. Unfortunately, the longer celiac disease goes untreated, the more significant chance you have of developing additional autoimmune conditions. All this fun stuff ends up causing self antibodies and severe systemic inflammation. Best of luck on getting some clear results.

0

Share this post


Link to post
Share on other sites




Excellent advice from WheatChef :)

Before going gluten-free I never ever had issues with constipation, I always had my stomach working the other way, but afterward I started having issues with const. I figured it might be that my intestines are so used to d, that they need to learn how to work normally again :P

Of course, it could definitely be all the processed gluten-free stuff I was eating. Corn pasta, maize porridge, rice biscuits etc. So I'd second the advice to stay with non-processed whole foods for a while until everything calms down. Take note of what foods you were eating more of while gluten free - such as soy like you mentioned.

I also find that nowadays an accidental glutening can cause const for a few days before the d begins. So perhaps you were getting traces of gluten accidentally (cc from utensils, toaster etc)?

** I really think the fact that you're now getting D while on gluten, whereas you were "fine" before suggests gluten intolerance or celiac disease, by the way :) Lots of people become more sensitive to gluten after going gluten-free. **

Also be aware that many celiacs/gluten-intolerants are sensitive to soy and dairy as well. Once you went gluten free, your stomach might have started reacting to some other problem food, that was "masked" while you were on gluten.

0

Share this post


Link to post
Share on other sites

Thank you SO much. You all are most helpful and I really do appreciate it. I get my biopsy results back today from the gastro. I do have one more question, if you are "gluten intolerance", can that still cause serious issues and mess up the blood (abnormalities within the blood) and cause inflamation??

Thank you most kindly.

Susan

Excellent advice from WheatChef :)

Before going gluten-free I never ever had issues with constipation, I always had my stomach working the other way, but afterward I started having issues with const. I figured it might be that my intestines are so used to d, that they need to learn how to work normally again :P

Of course, it could definitely be all the processed gluten-free stuff I was eating. Corn pasta, maize porridge, rice biscuits etc. So I'd second the advice to stay with non-processed whole foods for a while until everything calms down. Take note of what foods you were eating more of while gluten free - such as soy like you mentioned.

I also find that nowadays an accidental glutening can cause const for a few days before the d begins. So perhaps you were getting traces of gluten accidentally (cc from utensils, toaster etc)?

** I really think the fact that you're now getting D while on gluten, whereas you were "fine" before suggests gluten intolerance or celiac disease, by the way :) Lots of people become more sensitive to gluten after going gluten-free. **

Also be aware that many celiacs/gluten-intolerants are sensitive to soy and dairy as well. Once you went gluten free, your stomach might have started reacting to some other problem food, that was "masked" while you were on gluten.

0

Share this post


Link to post
Share on other sites

I do have one more question, if you are "gluten intolerance", can that still cause serious issues and mess up the blood (abnormalities within the blood) and cause inflamation??

It certainly can. Technically celiac disease, which is defined by blunted microvilli in response to gluten exposure, is possibly merely a symptom of gluten intolerance (immune system response to gluten exposure). Gluten related autoimmune attacks (gluten intolerance) in places such as the brain, lungs and skin have been observed in patients even without the presence of blunted microvilli (celiac disease). This is where the problem of using the "gold standard" of diagnosis (biopsy) starts to get confusing. If the definition of celiac disease is solely isolated to the intestine, who really cares about whether you have celiac disease or not when you can have other major organs being eaten by your body regardless.

The above combined with a relatively significant false-negative rate in biopsies are reasons why a lot of people on these boards are more concerned with how your health responds in regards to gluten consumption as opposed to the tests.

Biopsies however can help show possible alternative causes to digestive issues opposed to celiac/gluten intolerance that can share many of the same symptoms but require different forms of treatment.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,883
    • Total Posts
      919,473
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      Well, if I were you, I would go see your doctor and talk to him/her about all this.  Tell your doctor about your anxiety. When I finally did, my doctor prescribed a low dose of an anti-anxiety med and it has made a world of difference in my life.   About the whole thing with the B12 and the weird symptoms . Keep taking the B12 in the meantime to see if that helps again. But talk about it anyway.  If you want a celiac test, ask for the panel to be done. Your doctor may or may not want to send you to a GI for that. Remind him your mom is being tested. You do not have to wait for her results.  Work with your doctor if possible and if not, maybe find a doctor you can work with. If all you end up needing is b12, that's a good thing. If you end up needing more help, starting with your doctor and a heart to heart Talk will have you going in the right direction.
    • gluten free, oat free, egg free breakfast ideas needed for 6 year old
      If she misses the hot cereal then try quinoa or amaranth as an alternative to oatmeal
    • I'm actually scared to go to the doctor and could use some advice
      I suspect I am dealing with vitamin deficiency, but I'm afraid that if I go to a specialist they're going to think I have MS. As a person with pretty bad health anxiety, I can't bring myself to make the appointments I know I should make. I presented to my GP about 9 months ago with fatigue and a bizarre tingly feeling in my lower left leg. I was also suffering digestive distress, but I've lived with that off and on my whole life, so that was the least of my worries. My blood tests showed that my B12 level was 280. They didn't turn up any other issues, but then again she did not order any other vitamin level tests, only thyroid and routine bloodwork. She called my B12 level "on the low end of normal" and put me on oral supplements. When we retested 6 weeks later, it was 1100 and she told me to drop it back because that was too high and too much B12 can cause health issues, too. I'm confused by that because I've read that it isn't possible to take too much. I started a new career in a new town, and simultaneously began to feel better. The fatigue went away first, followed by the tingling and other stuff. Still plagued by both extremes of digestive distress. Maybe I should also mention that I was diagnosed with GERD at age 29 and have been on PPIs for 10 years. At that time, nobody ever mentioned investigating my GERD at such a young age, just put me on the pills and said stay on them. A gastroenterologist concurred after a very brief office visit. Well, I can be bad about taking my medicines, so I got off the B12. I figured maybe my earlier issues were stress-related. Now my symptoms are back, but worse. I have tingling and some aching in the leg. I have a sensation in one spot on my upper arms like the skin is burning, but no rash or redness. I have the C extreme of digestive problem, only alleviated by taking lots of magnesium citrate capsules. Sometimes I feel easily chilled, like waves of goosebumps. I am working to get off the PPIs in case they are inhibiting my absorption of vitamins. My mom has had really bad IBS all her life, plus eczema, headaches, etc. I'm back on the B12 for about 5 days but have experienced no relief yet, however I do remember that it took about 2 months to feel better the last time. Getting ready to move, on top of being really scared about these health issues, is making me crazy. I'm only 40 years old!!! Here are my questions: 1. Do I go back to the GP and ask her to order a celiac blood test? I know NOT to go off gluten until I am tested. 2. Do I ask for a referral to a neurologist or gastroenterologist instead? 3. Do  I wait until my mom's gastro appointment next month, when she plans to ask for a celiac blood test? See if hers is positive? 4. Do I keep driving myself insane with the worry that I have a degenerative illness? Can anybody identify with any of this at all? 
    • Eeek confused! Positive biopsy, negative blood test???
      I would hope they would check for the other reasons for the endoscopy results.  A GI might not check for all of those so you may need to check with your regular doctor to start that process.
    • Depression / anxiety issues
      The second link I gave you was to a series of online video courses, you can try those for free to see if its something you think might help. There are also a lot of worksheets you can download, the first link had some I think but there are plenty of others out there if you search online.  Finally I had another look and found this: http://www.getselfhelp.co.uk/step1.htm  Which looks like a decent 7 step program Obviously its not as good as a dedicated session with a CBT counsellor, but the above may give you some tools you can use, especially when your thoughts are spiralling into a destructive circle. You could also search to see if there's any group sessions in Melbourne, that's how the NHS delivers it, they would be cheaper and there's really no need for one on one CBT, because it's more about delivering knowledge of the toolset. I approached it very sceptically but found it of some use, although at the time I was still under the gluten influence so it never tackled the root problem. The game changing aspect of discovering this is that you now know why the psychologist sessions didn't hit the mark, how could they when the root of your depression was your illness? My sessions now are far better and more enjoyable than when I was under a gluten fog.  Aside from all this the other advice holds, eat well, exercise, get sunlight every day and the longer you're on the diet the better you should get.  Oh and at least NI put up a hell of a fight in the Euros, hope you got to see that down under!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,929
    • Most Online
      1,763

    Newest Member
    Timea
    Joined