Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Constipated On gluten-free And Diarrhea After Stopping gluten-free
0

8 posts in this topic

Hello All,

I'm thankful to have found a forum that appears to be active. I was just tested for celiac via a biopsy of the small intestines. I was having some pretty severe heartburn so my Dr did an endoscopy and did a biopsy for hpylori as well as celiac.

I do have a question though.

I tried a gluten free diet about 2.5 months ago. I was going on this diet because I had some very odd symptoms that appear to be fibromyalgia. I started the diet and stayed on it only for 2-3 weeks. While on this diet, my intestinal tract got so messed up I was bloated and constipated (mind you, I have always had problems with IBS and such), but this was terrible.

I decided to go off the diet and afterwards, I have had diarrhea every morning when I awake two to three times immediately upon waking up. I have not had a "normal" bowel movement since going off the gluten free diet. This has been for about 6 weeks.

I am following up with the gastroenterologist this Thursday, but I am curious if you all know if these symptoms sounds like celiac or gluten intolerance??

I just wonder WHY is my intestinal tract so messed up since going off. And the reason I originally stopped the gluten-free was because I was soooo extremely bloated and constipated.

I'm wondering if it was possibly due to the soy products in so many gluten free foods and maybe that was why I was bloated and constipated??

Does this sound like it could be a gluten sensitivity?? Wondering if I should try the gluten-free diet again??

Thank you for your thoughts and opinions.

Susan

0

Share this post


Link to post
Share on other sites


Ads by Google:

Many people experience withdrawal symptoms during the initial stages of going gluten-free. It could have been that you went back on the gluten just as your body was starting to adapt to not being on it. If it ended up screwing with your intestinal microbes then it'll be a while before those get back in proper arrangement.

If you do decide to try gluten-free again, DO NOT EAT "GLUTEN-FREE PRODUCTS" DURING THE INITIAL PHASE. By "gluten-free products" I mean gluten replacement items like gluten-free breads/pastas/baked goods. These products have to use a lot of additional ingredients to get a finished product that anywhere remotely resembles gluten and all of these additives can cause their own health problems. Additionally, because there are normally multiple additives in each product it is hard to pinpoint exactly which one is causing problems. These sort of items are really best left until your body gets into a more stable situation a month or two into the diet when you can slowly introduce them into your diet and see how your body responds to it. It's just way too much new stuff to tax your body with right in the beginning of the change.

1

Share this post


Link to post
Share on other sites

Many people experience withdrawal symptoms during the initial stages of going gluten-free. It could have been that you went back on the gluten just as your body was starting to adapt to not being on it. If it ended up screwing with your intestinal microbes then it'll be a while before those get back in proper arrangement.

If you do decide to try gluten-free again, DO NOT EAT "GLUTEN-FREE PRODUCTS" DURING THE INITIAL PHASE. By "gluten-free products" I mean gluten replacement items like gluten-free breads/pastas/baked goods. These products have to use a lot of additional ingredients to get a finished product that anywhere remotely resembles gluten and all of these additives can cause their own health problems. Additionally, because there are normally multiple additives in each product it is hard to pinpoint exactly which one is causing problems. These sort of items are really best left until your body gets into a more stable situation a month or two into the diet when you can slowly introduce them into your diet and see how your body responds to it. It's just way too much new stuff to tax your body with right in the beginning of the change.

Thank you very much for your reply. Too bad I didn't come on this forum before I started gluten-free. Great advice and when I go back on gluten-free, I will definitely go with the recommendations you have listed. I'm wondering if that is why I was also gaining weight on the gluten-free diet (all the processed food, etc).

Thank you kindly.

Susan

0

Share this post


Link to post
Share on other sites

Could these results have anything to do with celiac?

elevated CRP (C Reactive Protein)

elevated level of CH50

elevated ACA (anticardiolipin antibodies)

ANA (positive somtimes - negative right now)

I'm still waiting on my biopsy from the endoscopy.

Thank you

Susan

0

Share this post


Link to post
Share on other sites

Elevated levels on those sorts of tests certainly point straight towards autoimmune behavior. Unfortunately, the longer celiac disease goes untreated, the more significant chance you have of developing additional autoimmune conditions. All this fun stuff ends up causing self antibodies and severe systemic inflammation. Best of luck on getting some clear results.

0

Share this post


Link to post
Share on other sites




Excellent advice from WheatChef :)

Before going gluten-free I never ever had issues with constipation, I always had my stomach working the other way, but afterward I started having issues with const. I figured it might be that my intestines are so used to d, that they need to learn how to work normally again :P

Of course, it could definitely be all the processed gluten-free stuff I was eating. Corn pasta, maize porridge, rice biscuits etc. So I'd second the advice to stay with non-processed whole foods for a while until everything calms down. Take note of what foods you were eating more of while gluten free - such as soy like you mentioned.

I also find that nowadays an accidental glutening can cause const for a few days before the d begins. So perhaps you were getting traces of gluten accidentally (cc from utensils, toaster etc)?

** I really think the fact that you're now getting D while on gluten, whereas you were "fine" before suggests gluten intolerance or celiac disease, by the way :) Lots of people become more sensitive to gluten after going gluten-free. **

Also be aware that many celiacs/gluten-intolerants are sensitive to soy and dairy as well. Once you went gluten free, your stomach might have started reacting to some other problem food, that was "masked" while you were on gluten.

0

Share this post


Link to post
Share on other sites

Thank you SO much. You all are most helpful and I really do appreciate it. I get my biopsy results back today from the gastro. I do have one more question, if you are "gluten intolerance", can that still cause serious issues and mess up the blood (abnormalities within the blood) and cause inflamation??

Thank you most kindly.

Susan

Excellent advice from WheatChef :)

Before going gluten-free I never ever had issues with constipation, I always had my stomach working the other way, but afterward I started having issues with const. I figured it might be that my intestines are so used to d, that they need to learn how to work normally again :P

Of course, it could definitely be all the processed gluten-free stuff I was eating. Corn pasta, maize porridge, rice biscuits etc. So I'd second the advice to stay with non-processed whole foods for a while until everything calms down. Take note of what foods you were eating more of while gluten free - such as soy like you mentioned.

I also find that nowadays an accidental glutening can cause const for a few days before the d begins. So perhaps you were getting traces of gluten accidentally (cc from utensils, toaster etc)?

** I really think the fact that you're now getting D while on gluten, whereas you were "fine" before suggests gluten intolerance or celiac disease, by the way :) Lots of people become more sensitive to gluten after going gluten-free. **

Also be aware that many celiacs/gluten-intolerants are sensitive to soy and dairy as well. Once you went gluten free, your stomach might have started reacting to some other problem food, that was "masked" while you were on gluten.

0

Share this post


Link to post
Share on other sites

I do have one more question, if you are "gluten intolerance", can that still cause serious issues and mess up the blood (abnormalities within the blood) and cause inflamation??

It certainly can. Technically celiac disease, which is defined by blunted microvilli in response to gluten exposure, is possibly merely a symptom of gluten intolerance (immune system response to gluten exposure). Gluten related autoimmune attacks (gluten intolerance) in places such as the brain, lungs and skin have been observed in patients even without the presence of blunted microvilli (celiac disease). This is where the problem of using the "gold standard" of diagnosis (biopsy) starts to get confusing. If the definition of celiac disease is solely isolated to the intestine, who really cares about whether you have celiac disease or not when you can have other major organs being eaten by your body regardless.

The above combined with a relatively significant false-negative rate in biopsies are reasons why a lot of people on these boards are more concerned with how your health responds in regards to gluten consumption as opposed to the tests.

Biopsies however can help show possible alternative causes to digestive issues opposed to celiac/gluten intolerance that can share many of the same symptoms but require different forms of treatment.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,374
    • Total Posts
      920,569
  • Topics

  • Posts

    • Today was the big day when I went to the GI and this is the first time I have felt heard about and well taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a celiac disease to me with the records, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten due to what being He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • I'm new to the forum, so this topic may already have been covered....please forgive me, if that's the case.  I am in the beginning stages of guiding the development of a 504 plan to file for my 6th-grade daughter who was diagnosed with Celiac Disease 2 weeks ago. The diagnosis was made with a biopsy. My first question...A 504 is what's necessary....not just the IHCP, correct or no? I have the Physician's Statement & the Medical Evaluation report from our GI specialist. What else do I need to have at the ready? The team has requested we go ahead and write the IHCP & then include it with the 504.  And my second question...What accommodations have others found relevant to include on the IHCP  & 504? I just watched a 504-Plan webinar I found on this forum & it recommends the following: -access to gluten-free food in classroom & cafeteria - excused absence from activities that use gluten-containing foods or materials -  prevent cross-contamination in school food service - use of microwave to heat personal meals -  bathroom priveleges Is there anything I need to consider adding? My daughter does prefer eating school meals rather than packing a lunch from home & I am concerned about special events, overnight field trips etc. My learning curve is steep. What am I missing? Teach me, please & thanks so much! This forum has already helped me tremendously these past few weeks.
    • SIBO, microscopic colitis, probably celiac here (celiac's a self diagnosis, was gluten-free before getting tested). Now my doctor is suspecting hashimoto's due to low heart rate, so getting tested for that probably tomorrow. Anyway, I feel your pain... Low FODMAPs on top of gluten-free is tough. One thing that has helped me a lot is betaine HCl with meals. I can actually eat some onions, garlic, and fruit again with much less trouble. Make sure you get a safely gluten-free brand. Country Life is certified gfco, so is tested to less than 5ppm and is what I take. Good luck!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,450
    • Most Online
      1,763

    Newest Member
    Chellygirl
    Joined