Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Opening Up A Can Of Worms
0

10 posts in this topic

Hello all!

Well, I got my IGG Food testing results (from Immuno Laboratories). Here are the results:

Cashew (+1)

Cheese (+1)

Cranberry (+1)

Milk, Cow's (+2)

Milk, Goat's (+1)

Sesame (+2)

Wheat (+1)

Yeast, Baker's (+1)

Yeast, Brewer's (+2)

Candida albicans: Results are positive: Weakly Positive (1:3000)

Anti-Gliadin Antibody

IGG - 8 units (< 20 is negative)

IGA - 5 units (< 20 is negative)

Trying to be thankful for things I'm not allergic to - corn, peanuts, strawberries, rice, eggs.

SO I guess my biggest question is: Do I really have Celiac or just a wheat allergy/sensitivity? My only other positive test was a weakly positive test for TTG-IGG (here is my original post about all of this:

)

I guess the answer to that question is - does it really matter? I can't eat gluten. If it were a sensitivity I could eventually try to reintroduce. If Celiac would need to stay off forever. I guess that is the difference and reason I'd like an answer eventually.

She told me not to worry about Candida right now as I'm having to deal with a lot of changes already. She said we would revisit in a month.

I have an appt with a GI doc who specializes in Celiac. I guess I should still keep my appt though I don't know what further info he would give me.

Anyone get other allergies tested and cut them out and reintroduce them? Any input on that or any of this is much appreciated! I'm saddest about cashews, cranberries, and cow's milk - I don't drink a lot of milk, but I LOVE my Haagen Dazs! I'm also sad that I can eat the really good gluten free bread I found - Udi's! I feel like I've opened a can of worms and don't want to know these things - cutting out gluten was enough stress. I guess if it helps with my stomach issues, fatigue, etc. then it is worth it. Rice cakes, anyone? Thanks for listening!

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's disappointing when we discover we have more intolerances than just gluten but in the end it's so worth it to know and cut those foods out to heal and feel better. I learned I'm allergic to oats (and rye but I don't eat rye anyways) which was mind boggling. I had to give up my fave gluten-free cookies - Lucy's.

I have a good alternative Haagen Daaz for you - Coconut Bliss icecream. Dairy, soy and gluten free. Their coffee ice cream reminds me SO much of Haagen Daaz.

For my 'milk' I like hemp milk.

I'm sure someone will come along with a good bread substitute.

0

Share this post


Link to post
Share on other sites

Food testing is not reliable. You may be better served by eliminating each of these foods from your diet one at a time and looking for changes, then reintroducing and looking for changes. There is no evidence that a + IgG response correlates to a physiological reaction.

1

Share this post


Link to post
Share on other sites

I used to be allergic to nuts - eating them would make my eyes swell the next day. I've cut them out for about a year now and began experimenting last week with success.

1

Share this post


Link to post
Share on other sites

Thanks, everyone!

I don't know if I can cut everything out at once. I've been gluten free for 2 weeks. That has been stressful enough. Cutting out milk and yeast is very overwhelming I just found out at the grocery store. I wish I could just cook all day, but I have a family and jobs and it's not feasible. Feeling really overwhelmed. Think it's OK to just focus on the gluten for a while and then start the dairy and then the yeast? Cashews and cranberries are easier definitely. I can cut those out now. I also will not drink milk, eat ice cream - the major things, but every little tiny ingredient everywhere?? Apparently I eat a lot of milk and yeast products! What do ya'll think?

Thanks!

1

Share this post


Link to post
Share on other sites




If you are eating many processed foods it is hard to avoid dairy. Lots of processed foods have casein or whey or lactose added, and may not even list is as a dairy ingredient. So life can be simpler by just not eating the processed foods. There are some processed foods that are safe for me, like Mission corn tortillas, Enjoy Life brown rice wraps, Enjoy Life breads, Larabars, some Planters nuts. Just some ideas. You can also make big batches of food on the weekends and freeze portions. If you do this every weekend you can have your own frozen food assortments for the week and not have to do much more than nuke them. I used to do this all the time when I first went gluten-free.

1

Share this post


Link to post
Share on other sites

gluten-free - that is a good idea about making big batches. I have a hard time with food in general and probably eat more processed foods than I should so it's been a struggle. That being said - I got super sick after cutting everything out of diet so I put everything but the gluten back in and feel better.

And now I've had an appt with the GI doc and he thinks it unlikely to be Celiac. . .maybe still an intolerance to gluten but he did more blood work and I have a HIDA scan and plain film xray of my abdomen on Friday. We will go from there.

Still in the waiting time to see what is going on with me. . .

Thanks for the replies!

1

Share this post


Link to post
Share on other sites

gluten-free - that is a good idea about making big batches. I have a hard time with food in general and probably eat more processed foods than I should so it's been a struggle. That being said - I got super sick after cutting everything out of diet so I put everything but the gluten back in and feel better.

And now I've had an appt with the GI doc and he thinks it unlikely to be Celiac. . .maybe still an intolerance to gluten but he did more blood work and I have a HIDA scan and plain film xray of my abdomen on Friday. We will go from there.

Still in the waiting time to see what is going on with me. . .

Thanks for the replies!

When we have celiac sometimes our immune systems will be so far in hyperdrive that we seem to react to everything. I couldn't even list everything I showed allergies to both food and nonfood stuff was 98 out of the 99 tested for. Within a relatively short time the only true allergies or intolerances I had left were soy and 3 nonfood items. Hopefully once you have been gluten free for a while your intolerances to other stuff will resolve also. The elimination diet mentioned was also a good idea. An allergist can set you up with a starting point that will ensure you have the nutrients and calories your body needs while things get figured out.

1

Share this post


Link to post
Share on other sites

Thanks, Raven!! I appreciate your input and insight!

1

Share this post


Link to post
Share on other sites

I reacted more on the IGG testing to some things (+2 and +3s on a 0-3 scale). Eliminating yeast, peanuts and dairy recently did help cut down lingering pain. I did eliminate dairy at the same time as gluten and then reintroduced with negligible differences in symptoms about 6 months ago. I've sort of accidentally reintroduced dairy (eating elsewhere and forgetting that I shouldn't be) and small amounts seem to be fine. I'll get around to peanuts at some point. yeast... probably.

It's worth trying eliminating at some point not too far away. But, it's not a terribly clear test and your reactions aren't all that high... your intestines may just need time to stop leaking.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,114
    • Most Online
      1,763

    Newest Member
    3boymommy
    Joined