Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Opening Up A Can Of Worms


  • Please log in to reply
9 replies to this topic

#1 Momto2Boys

Momto2Boys

    New Community Member

  • Advanced Members
  • Pip
  • 21 posts

Posted 21 September 2010 - 09:39 AM

Hello all!

Well, I got my IGG Food testing results (from Immuno Laboratories). Here are the results:

Cashew (+1)
Cheese (+1)
Cranberry (+1)
Milk, Cow's (+2)
Milk, Goat's (+1)
Sesame (+2)
Wheat (+1)
Yeast, Baker's (+1)
Yeast, Brewer's (+2)

Candida albicans: Results are positive: Weakly Positive (1:3000)

Anti-Gliadin Antibody
IGG - 8 units (< 20 is negative)
IGA - 5 units (< 20 is negative)

Trying to be thankful for things I'm not allergic to - corn, peanuts, strawberries, rice, eggs.

SO I guess my biggest question is: Do I really have Celiac or just a wheat allergy/sensitivity? My only other positive test was a weakly positive test for TTG-IGG (here is my original post about all of this:

http://www.celiac.co...ns-please-help/ )

I guess the answer to that question is - does it really matter? I can't eat gluten. If it were a sensitivity I could eventually try to reintroduce. If Celiac would need to stay off forever. I guess that is the difference and reason I'd like an answer eventually.

She told me not to worry about Candida right now as I'm having to deal with a lot of changes already. She said we would revisit in a month.

I have an appt with a GI doc who specializes in Celiac. I guess I should still keep my appt though I don't know what further info he would give me.

Anyone get other allergies tested and cut them out and reintroduce them? Any input on that or any of this is much appreciated! I'm saddest about cashews, cranberries, and cow's milk - I don't drink a lot of milk, but I LOVE my Haagen Dazs! I'm also sad that I can eat the really good gluten free bread I found - Udi's! I feel like I've opened a can of worms and don't want to know these things - cutting out gluten was enough stress. I guess if it helps with my stomach issues, fatigue, etc. then it is worth it. Rice cakes, anyone? Thanks for listening!
  • 0
Jan 10 - GI symptoms - mainly in gallbladder area start monthly. 2 ultrasounds - one abdominal and one abdominal and pelvic - are negative.

Sept 10 -"Diagnosed" with Celiac by my PCP based on one positive lab result ttg-igg; everything else negative
Immuno labs - allergies to wheat, milk - cow's and goat's, cheese, cranberries, cashews, sesame, yeast - brewer's and baker's (currently eating until I get my second opinion); weakly positive candida test

Oct 10 - getting second opinion by GI doc who is Celiac specialist

Celiac.com Sponsor:

#2 kayo

kayo

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 324 posts

Posted 21 September 2010 - 10:36 AM

It's disappointing when we discover we have more intolerances than just gluten but in the end it's so worth it to know and cut those foods out to heal and feel better. I learned I'm allergic to oats (and rye but I don't eat rye anyways) which was mind boggling. I had to give up my fave gluten-free cookies - Lucy's.

I have a good alternative Haagen Daaz for you - Coconut Bliss icecream. Dairy, soy and gluten free. Their coffee ice cream reminds me SO much of Haagen Daaz.

For my 'milk' I like hemp milk.

I'm sure someone will come along with a good bread substitute.
  • 0
40 year old former foodie on a quest to feel better!

-IgE to oats and rye
-Diagnosed with Colitis via endoscopy/colonoscopy Oct '10
-Following FODMAP diet since June '10, Positve SIBO test, July '10
-Diagnosed non-celiac gluten intolerant June '10 (celiac in March '10, endocsocopy in Oct '10 shows no signs of celiac)
-Osteopenia June '10
-Gluten free since July '09 & Soy free since December '09
-Dairy free since '06
-IBS & Sjogren's diagnosed '05
-RA diagnosed as a toddler


#3 Jestgar

Jestgar

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,755 posts

Posted 21 September 2010 - 10:45 AM

Food testing is not reliable. You may be better served by eliminating each of these foods from your diet one at a time and looking for changes, then reintroducing and looking for changes. There is no evidence that a + IgG response correlates to a physiological reaction.
  • 1
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#4 Looking for answers

Looking for answers

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 561 posts

Posted 21 September 2010 - 11:12 AM

I used to be allergic to nuts - eating them would make my eyes swell the next day. I've cut them out for about a year now and began experimenting last week with success.
  • 1
2010- Gluten, Soy, Corn, Dairy, Eggs, Nut free. Sugar, non-gluten grains lite(Yes, still plenty to eat!)
2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life
2009 Low T3 thyroid hormone, muscle twitching and adrenal fatigue
2006- Elevated Speckled ANA. GI suggested Celiac. Started gluten-free diet, but sloppily
2005 - Thought I had wheat "allergy." Stopped eating bread, oats problem too
College years - Still vegan -sickest point in life. Every classic celiac symptom
Teenage years - Stomach pain prompted veganism -> BIG mistake!
Child - Awful gas, D, C. Chronic infections, appendix and tonsils removed

#5 Momto2Boys

Momto2Boys

    New Community Member

  • Advanced Members
  • Pip
  • 21 posts

Posted 21 September 2010 - 01:18 PM

Thanks, everyone!

I don't know if I can cut everything out at once. I've been gluten free for 2 weeks. That has been stressful enough. Cutting out milk and yeast is very overwhelming I just found out at the grocery store. I wish I could just cook all day, but I have a family and jobs and it's not feasible. Feeling really overwhelmed. Think it's OK to just focus on the gluten for a while and then start the dairy and then the yeast? Cashews and cranberries are easier definitely. I can cut those out now. I also will not drink milk, eat ice cream - the major things, but every little tiny ingredient everywhere?? Apparently I eat a lot of milk and yeast products! What do ya'll think?

Thanks!
  • 1
Jan 10 - GI symptoms - mainly in gallbladder area start monthly. 2 ultrasounds - one abdominal and one abdominal and pelvic - are negative.

Sept 10 -"Diagnosed" with Celiac by my PCP based on one positive lab result ttg-igg; everything else negative
Immuno labs - allergies to wheat, milk - cow's and goat's, cheese, cranberries, cashews, sesame, yeast - brewer's and baker's (currently eating until I get my second opinion); weakly positive candida test

Oct 10 - getting second opinion by GI doc who is Celiac specialist

#6 GFinDC

GFinDC

    A little farting never hurt anybody... :-).

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,113 posts

Posted 06 October 2010 - 01:55 PM

If you are eating many processed foods it is hard to avoid dairy. Lots of processed foods have casein or whey or lactose added, and may not even list is as a dairy ingredient. So life can be simpler by just not eating the processed foods. There are some processed foods that are safe for me, like Mission corn tortillas, Enjoy Life brown rice wraps, Enjoy Life breads, Larabars, some Planters nuts. Just some ideas. You can also make big batches of food on the weekends and freeze portions. If you do this every weekend you can have your own frozen food assortments for the week and not have to do much more than nuke them. I used to do this all the time when I first went gluten-free.
  • 1
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#7 Momto2Boys

Momto2Boys

    New Community Member

  • Advanced Members
  • Pip
  • 21 posts

Posted 06 October 2010 - 03:07 PM

gluten-free - that is a good idea about making big batches. I have a hard time with food in general and probably eat more processed foods than I should so it's been a struggle. That being said - I got super sick after cutting everything out of diet so I put everything but the gluten back in and feel better.

And now I've had an appt with the GI doc and he thinks it unlikely to be Celiac. . .maybe still an intolerance to gluten but he did more blood work and I have a HIDA scan and plain film xray of my abdomen on Friday. We will go from there.

Still in the waiting time to see what is going on with me. . .

Thanks for the replies!
  • 1
Jan 10 - GI symptoms - mainly in gallbladder area start monthly. 2 ultrasounds - one abdominal and one abdominal and pelvic - are negative.

Sept 10 -"Diagnosed" with Celiac by my PCP based on one positive lab result ttg-igg; everything else negative
Immuno labs - allergies to wheat, milk - cow's and goat's, cheese, cranberries, cashews, sesame, yeast - brewer's and baker's (currently eating until I get my second opinion); weakly positive candida test

Oct 10 - getting second opinion by GI doc who is Celiac specialist

#8 ravenwoodglass

ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,698 posts

Posted 06 October 2010 - 03:38 PM

gluten-free - that is a good idea about making big batches. I have a hard time with food in general and probably eat more processed foods than I should so it's been a struggle. That being said - I got super sick after cutting everything out of diet so I put everything but the gluten back in and feel better.

And now I've had an appt with the GI doc and he thinks it unlikely to be Celiac. . .maybe still an intolerance to gluten but he did more blood work and I have a HIDA scan and plain film xray of my abdomen on Friday. We will go from there.

Still in the waiting time to see what is going on with me. . .

Thanks for the replies!


When we have celiac sometimes our immune systems will be so far in hyperdrive that we seem to react to everything. I couldn't even list everything I showed allergies to both food and nonfood stuff was 98 out of the 99 tested for. Within a relatively short time the only true allergies or intolerances I had left were soy and 3 nonfood items. Hopefully once you have been gluten free for a while your intolerances to other stuff will resolve also. The elimination diet mentioned was also a good idea. An allergist can set you up with a starting point that will ensure you have the nutrients and calories your body needs while things get figured out.
  • 1
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#9 Momto2Boys

Momto2Boys

    New Community Member

  • Advanced Members
  • Pip
  • 21 posts

Posted 06 October 2010 - 05:19 PM

Thanks, Raven!! I appreciate your input and insight!
  • 1
Jan 10 - GI symptoms - mainly in gallbladder area start monthly. 2 ultrasounds - one abdominal and one abdominal and pelvic - are negative.

Sept 10 -"Diagnosed" with Celiac by my PCP based on one positive lab result ttg-igg; everything else negative
Immuno labs - allergies to wheat, milk - cow's and goat's, cheese, cranberries, cashews, sesame, yeast - brewer's and baker's (currently eating until I get my second opinion); weakly positive candida test

Oct 10 - getting second opinion by GI doc who is Celiac specialist

#10 sb2178

sb2178

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 793 posts

Posted 07 October 2010 - 01:34 PM

I reacted more on the IGG testing to some things (+2 and +3s on a 0-3 scale). Eliminating yeast, peanuts and dairy recently did help cut down lingering pain. I did eliminate dairy at the same time as gluten and then reintroduced with negligible differences in symptoms about 6 months ago. I've sort of accidentally reintroduced dairy (eating elsewhere and forgetting that I shouldn't be) and small amounts seem to be fine. I'll get around to peanuts at some point. yeast... probably.

It's worth trying eliminating at some point not too far away. But, it's not a terribly clear test and your reactions aren't all that high... your intestines may just need time to stop leaking.
  • 0

2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: