Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Source Of Dh Other Than Gluten?


  • Please log in to reply

11 replies to this topic

#1 VegasCeliacBuckeye

 
VegasCeliacBuckeye

    Advanced Community Member

  • Members
  • PipPipPipPipPipPip
  • 1,236 posts
 

Posted 15 June 2005 - 06:05 PM

Does anyone know what else can cause DH besides gluten?

I have been on a gluten-free diet for 7-8 years. I take Dapsone daily. As long as I take Dapsone, I am generally fine. If I miss taking it for a few days, I get DH around my joints, eyes, clothing pressure areas.

Has anybody gone through this?

Thoughts????
  • 0

Celiac.com Sponsor:

#2 lovegrov

 
lovegrov

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,537 posts
 

Posted 15 June 2005 - 06:37 PM

Iodone can trigger attacks but I thought that stopped after you had been gluten-free for a while. You can try cutting out iodine.

richard
  • 0

#3 VegasCeliacBuckeye

 
VegasCeliacBuckeye

    Advanced Community Member

  • Members
  • PipPipPipPipPipPip
  • 1,236 posts
 

Posted 16 June 2005 - 04:16 PM

Iodine.....I haven't been eating any shrimp lately.

What else has iodine??
  • 0

#4 frenchiemama

 
frenchiemama

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 734 posts
 

Posted 18 June 2005 - 05:09 AM

Do you use iodized salt? That is a biggie. Do your vitamins contain iodine?

Also something that I read recently is that sun exposure can trigger an outbreak. I wouldn't have believed it except that I have been having problems lately and it all started with being out in the sun more. I normally work the night shift (11p-7:30a) but one of my co-irkers was ill so I was coming in 4a-4(or 5)p to cover both shifts. I work outside a majority of the day as well. Before the shift change, my DH was doing great it was really going away. The night after my first day shift it started to get worse, and it has been just awful this whole week. The only thing that changed was my sun exposure. I know this is anecdotal at best, but you may want to experiment and see what happens.
  • 0

Carolyn


"When the going gets weird, the weird turn pro. "
- Hunter S. Thompson

#5 Pegster

 
Pegster

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 145 posts
 

Posted 19 June 2005 - 11:04 AM

Although I have been gluten-free for over a year, I sometimes get DH outbreaks after using anti-inflamatories (ibuprofen, aleve). I also get the breakouts when it is warm, especially where elastic contacts my body. Try sea salt intead of iodized salt. Also look at processed foods you are eating, like potato chips which may be salty. Good Luck
  • 0
PEGGY
Positive DH biopsy 4/19/04

#6 celiac3270

 
celiac3270

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,263 posts
 

Posted 19 June 2005 - 07:10 PM

I was at the GIG conference in Chicago this weekend and there was a talk on DH...here are some of the basics:

- How long you had the rash prior to diagnosis will affect how long it takes you to recover...if you had it only for a few weeks, then it might take only a few days to clear up, but if you had it for years, it might takes months or years to fully clear up.

- You will not get dh unless you're getting gluten in some amount. It may not be enough to cause intestinal damage, but it will still give you the rash.

- Like Richard said, iodine can be problematic. Small amounts, such as that in salt, shouldn't be enough to produce a reaction, but multivitamins in particular could be problematic.
  • 0

#7 iwantabeer

 
iwantabeer

    New Community Member

  • Members
  • Pip
  • 6 posts
 

Posted 22 June 2005 - 04:23 PM

I just met with a Gastro doc and he said that the biopsied rash and the bloodwork showing antibodies prove with 99% accuracy that I have dh - indicative of celiac disease. According to the dermatologist, GI and dietician, gluten is the only thing that I could be allergic to. I've done a lot of reading and have never seen iodine mentioned. But then again, I'm new at this!
  • 0

#8 Pegster

 
Pegster

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 145 posts
 

Posted 23 June 2005 - 09:44 AM

Check out Clan Thompson's Celiac Site http://www.clanthompson.com for good info about DH. Your doctors are right. The "allergy" (actually more of an intolerance than an allergy) is to Gluten. BUt people on this board with DH are speaking from experience. Iodine is a TRIGGER for DH and you may find that it can trigger yours. If you are gluten free, your DH should go away.
  • 0
PEGGY
Positive DH biopsy 4/19/04

#9 VegasCeliacBuckeye

 
VegasCeliacBuckeye

    Advanced Community Member

  • Members
  • PipPipPipPipPipPip
  • 1,236 posts
 

Posted 26 June 2005 - 12:40 PM

hmmmmmmmmmm, I take a gluten-free multi-vitamin every morning..... I would hate to give that up...
  • 0

#10 frenchiemama

 
frenchiemama

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 734 posts
 

Posted 26 June 2005 - 01:42 PM

GNC makes a gluten-free multi with no iodine, that's what I take.
  • 0

Carolyn


"When the going gets weird, the weird turn pro. "
- Hunter S. Thompson

#11 mommida

 
mommida

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,945 posts
 

Posted 27 June 2005 - 06:03 AM

When I was reading about the DH testing, it said that an iodine patch could be used to create the rash if the patient was unwilling to ingest gluten. Then the biopsy would be taken. Is this another medical mistake?
Laura
  • 0
Michigan

#12 frenchiemama

 
frenchiemama

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 734 posts
 

Posted 27 June 2005 - 01:18 PM

I have read about the iodine patch test too, I think that it works sometimes but it's not totally reliable because it doesn't work for everyone (at least that's what I've gathered from my reading). I was tempted to experiment on myself, but do I really want to itch in the name of science?
  • 0

Carolyn


"When the going gets weird, the weird turn pro. "
- Hunter S. Thompson




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: