Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

Testing Other Allergies Pre Gluten Free?


  • Please log in to reply

3 replies to this topic

#1 tarni

 
tarni

    Community Member

  • Advanced Members
  • PipPipPip
  • 25 posts
 

Posted 24 September 2010 - 07:46 PM

My recent blood tests said possibly for celiac, but endoscopy results yesterday said no. So, with information gathered from this forum I had decided I would immediately go 100% gluten and dairy and soy free (just eat fruit vegies potatos fish and herbal tea). I know it will be difficult, but hey I want to get out of this non-life. I was thinking of gradually re-introducing cheese and soy milk, and see how I go. However, I'm just wondering whether to just keep on my normal diet for a while so I can have other allergy/intolerance tests to see what is really a problem and what is not. And I've seen nuts, eggs, legumes, potatos also seem to present problems with others on this forum. I have found (online) that a doctor at my local practice specialises in nutrition, so I'm thinking make an appointment, get the allergy tests done and then go gluten and dairy free (I think dairy/soy is in there, as my sinuses are pretty swollen and wrecked.)
Do you think, it is worth coping with a week or two more on a normal diet in order to get a comprehensive diagnosis in order to move forward with all the information possible? And what to these tests involve? Ta
  • 0
Nov 2010: Fructose Malabsorption - low FODMAP diet
Oct 2010: Lactose Intolerance
Sept 2010: Gluten Intolerance

Symptoms: gastrointestinal, neurological, psychological, hormonal

Father: Dermatomyositis (autoimmune disease)
Sister: Non-verbal Autism
Cousins: Gluten Intolerance, Crohns, Hiatus Hernia

Celiac.com Sponsor:

#2 sahm-i-am

 
sahm-i-am

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 171 posts
 

Posted 27 September 2010 - 04:42 AM

I don't know what possible Celiac means, you either are or you aren't, but having a negative biopsy means you might be gluten intolerant/sensitive. Even still, you might test negative on bloodwork as well and STILL be intolerant/sensitive, as is the case in my daughter. She feels better eating gluten free, so she eats gluten free.

I believe they can test for other intolerances/allergies regardless of your gluten status. I am doing some testing now for dairy, fructose and Small Intestine Bacterial Overgrowth and all these tests have their own diet restrictions for that test. Your doctor should be able to let you know what you can eat before testing. Now, if you want to retest for Celiac, you have to be consuming gluten for a month or more to make it a good test.

Hope you find the answers you seek soon!
  • 0
Diagnosed with Lymphoma March 2010. After surgery doctors said "Oops!"
Diagnosed with Celiac Disease April 2010. After endoscopy doc said "Aren't you glad?"
Uhhh.....yeah!
DD #1 ('99) tested negative on bloodwork but positive on 2 genetic markers. Went gluten free in July 2010 and has been symptom-free ever since!
DD #2 ('98) tested negative and has no symptoms. Didn't fork out money for genetic testing. Will watch and test regularly.
Husband tested positive in July 2010 and has refused to go gluten free. Uh huh, that's gonna bite him in the a** one day! (Pun intended!)

#3 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,793 posts
 

Posted 27 September 2010 - 05:59 AM

If your blood tests were postive you are one of us despite the negative scope. You have 22 ft of small intestine and the biopsies can miss the damaged spots.
I would go ahead and get off the gluten since you are done with celiac testing. Dropping the gluten will not effect the results of any testing for other intolerances. Also do not assume you have other intolerances or allergies. Not all of us do. While you should drop dairy since the damage done by celiac can prevent us from digesting it until we heal I wouldn't drop other foods until you have been gluten free for a while. Also the gluten reaction in the body can make you show up allergic to a lot of stuff that you might not be allergic to once your body heals. This happened with me prediagnosis because, as my allergist said, my immune system was in hyperdrive so I was reacting to a lot of stuff. Once we got gluten out of my system the other allergies for the most part resolved.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 tarni

 
tarni

    Community Member

  • Advanced Members
  • PipPipPip
  • 25 posts
 

Posted 27 September 2010 - 07:48 PM

Thanks to both of you. Yes, although my blood tests were positive (right genes etc), my doc was very clear to me that the endoscopy would be the real decider. Thus I believed his 'possible' diagnosis. However, in my research (inc and esp this forum) I have learnt a lot, including that yes I am in the same club! :) I went gluten and dairy free 48 hours ago (was planning to see a dietian, but, fed-up with the med system, decided I would just listen to my body and head! :) ). So, day-1 fell (crashingly) asleep in the afternoon, woke up fuzzy, but made it to a short walk to the post-box. Fell asleep again and woke with massive headache, but drank some Red Bull, as suggested by a member of this forum, and it worked a treat! Day-2 (inc ginger tea for breakfast, another suggestion from here) I feel much better and my sinuses are clearing. Should I start taking B12 and magnesium, or wait for a bit? Any advice welcome. Ta, tarni
  • 0
Nov 2010: Fructose Malabsorption - low FODMAP diet
Oct 2010: Lactose Intolerance
Sept 2010: Gluten Intolerance

Symptoms: gastrointestinal, neurological, psychological, hormonal

Father: Dermatomyositis (autoimmune disease)
Sister: Non-verbal Autism
Cousins: Gluten Intolerance, Crohns, Hiatus Hernia




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: