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Testing Other Allergies Pre Gluten Free?
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My recent blood tests said possibly for celiac, but endoscopy results yesterday said no. So, with information gathered from this forum I had decided I would immediately go 100% gluten and dairy and soy free (just eat fruit vegies potatos fish and herbal tea). I know it will be difficult, but hey I want to get out of this non-life. I was thinking of gradually re-introducing cheese and soy milk, and see how I go. However, I'm just wondering whether to just keep on my normal diet for a while so I can have other allergy/intolerance tests to see what is really a problem and what is not. And I've seen nuts, eggs, legumes, potatos also seem to present problems with others on this forum. I have found (online) that a doctor at my local practice specialises in nutrition, so I'm thinking make an appointment, get the allergy tests done and then go gluten and dairy free (I think dairy/soy is in there, as my sinuses are pretty swollen and wrecked.)

Do you think, it is worth coping with a week or two more on a normal diet in order to get a comprehensive diagnosis in order to move forward with all the information possible? And what to these tests involve? Ta

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I don't know what possible Celiac means, you either are or you aren't, but having a negative biopsy means you might be gluten intolerant/sensitive. Even still, you might test negative on bloodwork as well and STILL be intolerant/sensitive, as is the case in my daughter. She feels better eating gluten free, so she eats gluten free.

I believe they can test for other intolerances/allergies regardless of your gluten status. I am doing some testing now for dairy, fructose and Small Intestine Bacterial Overgrowth and all these tests have their own diet restrictions for that test. Your doctor should be able to let you know what you can eat before testing. Now, if you want to retest for Celiac, you have to be consuming gluten for a month or more to make it a good test.

Hope you find the answers you seek soon!

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If your blood tests were postive you are one of us despite the negative scope. You have 22 ft of small intestine and the biopsies can miss the damaged spots.

I would go ahead and get off the gluten since you are done with celiac testing. Dropping the gluten will not effect the results of any testing for other intolerances. Also do not assume you have other intolerances or allergies. Not all of us do. While you should drop dairy since the damage done by celiac can prevent us from digesting it until we heal I wouldn't drop other foods until you have been gluten free for a while. Also the gluten reaction in the body can make you show up allergic to a lot of stuff that you might not be allergic to once your body heals. This happened with me prediagnosis because, as my allergist said, my immune system was in hyperdrive so I was reacting to a lot of stuff. Once we got gluten out of my system the other allergies for the most part resolved.

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Thanks to both of you. Yes, although my blood tests were positive (right genes etc), my doc was very clear to me that the endoscopy would be the real decider. Thus I believed his 'possible' diagnosis. However, in my research (inc and esp this forum) I have learnt a lot, including that yes I am in the same club! :) I went gluten and dairy free 48 hours ago (was planning to see a dietian, but, fed-up with the med system, decided I would just listen to my body and head! :) ). So, day-1 fell (crashingly) asleep in the afternoon, woke up fuzzy, but made it to a short walk to the post-box. Fell asleep again and woke with massive headache, but drank some Red Bull, as suggested by a member of this forum, and it worked a treat! Day-2 (inc ginger tea for breakfast, another suggestion from here) I feel much better and my sinuses are clearing. Should I start taking B12 and magnesium, or wait for a bit? Any advice welcome. Ta, tarni

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    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
    • Ask the doctor's office!  But usually you can eat right after if you feel like it.  But ask them!  Some of them will try to give you crackers, so you may want to bring some gluten-free applesauce or Rice Chex
    • I'm wondering if he doesn't have an oat problem. He was only dx'd several months ago and really shouldn't use oats for a year after dx. Just thinking out loud. I too am wondering how the rice was picked out of all those other flours to be determined to be affecting him.
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