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Gallbladder Issues Anyone...?


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25 replies to this topic

#16 *Daniella*

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Posted 20 March 2011 - 01:33 PM

I was experiencing a lot of side pain but it was overshadowed by the undiagnosed celiac symptoms. The doc ordered a HIDA scan and told me my gallbladder was working at 11% ejection fraction. He thought for sure it would relieve my other symptoms...it did not. It wasn't for another 3 years did I finally learn I had celiac disease. I believe my gallbladder problems was due to celiac disease.
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#17 Alika Nash

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Posted 20 March 2011 - 02:01 PM

An ER doc diagnosed me with "gallbladder spasms" after they couldn't find anything on an ultrasound for my excruciating pain. I'm like, gallbladdeer spasms huh, you think so? Duh, of course the thing is in spasms! But what was causing the spasms??? To me his diagnosis was just another way of saying "we have no idea". He gave me pills and sent me on my way but I never filled them.....

I had these pains for 12 years to the point of lying on the floor for hours and just waiting it out in horrible agony. Sad but I kind of learned to just live with it. Since going gluten free 6 months ago I haven't had any episodes (knock wood!)

Good luck!

I too have been one of those sufferers, although my issues have been all over from bone, muscles, organs, neurolgical...I just learned to live with it every day like you say. Crazy how we become so tolerant to living in pain.
I know i was just recently diagnosed with celiacs and also other various organ problems, my gall bladder being one; they found i have pollups in my gall bladder. I would certainly have that looked into. Good luck to you.
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#18 jcski

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Posted 20 March 2011 - 08:42 PM

I actually just had my gall bladder taken out four days ago and when they did all the testing that's when I found out I had Celiac's. I've read several articles about gallbladder and celiac disease bieng connected especially when there are no stones, I think the medical community believes there is a connection all though they haven't proved it yet. I didn't have stones but my gallbladder was had a ejection fraction of 13% and I was nautious everytime I ate for about four months not to mention the pain in on the right side just under my ribcage. Definately have the HIDA Scan, they didn't see anything on my Ultrasound.
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#19 sandrad

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Posted 21 March 2011 - 05:18 PM

Same thing here. Just had my gallbladder out in jan. No stones but was only at 35% function...not as bad as some others but the surgeon said it was best to remove it.
I also had "gallbladder spasms" several hours after eating(usually at bedtime) id get them and i could feel it gurgling.
I was on t3's for a few months and realized after stopping them that they actually made my pain worse.
My original surgeon in regina never thought i had gallbladder issues and did an endoscopy to ceck for ulcers and other things. In the drs report it said possible celiac. Im still trying to locate the biopsy results(the surgeon moved shortly after i did).
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#20 wjallen05

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Posted 10 August 2011 - 04:34 AM

I am a 25 (will be 26 next week) year old mother of 4 (ages 7, 5, 4 & almost 3). I was self-diagnosed with Celiac Disease in Febuary 2011 and have been Gluten Free since April 2011. I have had a few accidental glutenings and it is like being poisoned. In December 2010, I went to the family doctor, desperate for an answer. I was in pain all the time. No energy, bloating, gas pains, back pain, nausia, etc. They sent me to the hospital to have a HIDA scan, showed I had gallbladder disfunction, and a few other things (sorry I cannot remember) Anyway here is my interesting story....

When I was 4, I was diagnosed with Lactose Intolerance. I could not eat any lactose at all- though when I was about 10 or so, we discovered the "dairy pills" and I was fine as long as I took that with the food. When I was about 22, I had a saliva test done (forgive me I do not remember the name for this) and she told me that I had low bile, low vitamin B5, low adrenal, and a couple other things I can not remember. I asked about my lactose intolerance and she said it did not show that. I was shocked! I slowly started eating dairy products without taking the lactose pills, and nothing happened. I thought it was a miracle! Everything was great until one day in March of 2009, I started having the worst pain of my life, it was coming in waves, and I knew it was my intestines or something of the like. I had severe diarrhea which lead to severe bloody diarreha and eventually just blood. My husband took me to the ER and they did a CT scan and it showed I had Colitis. They gave me some pain pills and sent me home. 3 hours later, I was pretty much begging for death, so we went back to the ER, a different dr looked at my CT scan results, and he was shocked that they sent me home. They admitted me, had to put me on Hydro Morphin on an automatic drip through my IV. After 5 days of being there, they discovered I had E. Coli. (side note- I sent in another saliva test after getting home from the hospital, and she concluded that the E Coli was from a hamburger. I no longer eat beef.)

I lost 11 lbs in that week. I went down to 125 and I am now at 120 lbs, when I am sick I'll weigh around 116. I was never the same after the E. Coli. I was sick all the time. I started getting Acupuncture which did help but I was still sick a lot and felt like I couldn't eat anything. In the beginning of this year, she suggested I try a Gluten Free diet. That is when I started experimenting with low gluten, to eventually NO gluten at all- and I have been gluten free ever since. I could still eat dairy just fine until about a month ago. Now even the smallest amount makes me sick.

I chose not to have my gallbladder removed. As long as I didn't eat Gluten I was ok. I didn't have the classic gallbladder "symptoms" it was more of celiac symptoms. Now, I can't eat anything. I am sick no matter what especially after eating pork (we love pork- we raise our own pig every year) and eggs (we also love eggs and have our own laying hens) and now I can't drink my beloved coffee. After just half a cup, I'll be running to the bathroom and be in terrible pain. I get bad pain in my upper back between my shoulder blades and in my shoulder. I know it's my gallbladder and I've decided it's time to have it removed. I have an appt in two weeks. I really hope it helps. I will continue to stay gluten and lactose free, but I hope I can go back to my eggs, pork and coffee.
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#21 shadowicewolf

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Posted 10 August 2011 - 06:00 PM

-raises hand-

Yep yep. I've had ultrasounds and bloodtests done on mine. It showed NOTHING. Go in to have a HIDA scan (my new doctor had a hunch due to my pain and nonstop indigestion), and lo and behold i find out my gallbladder is only working at 5% of what it should be (low normal is 30%).

I meet tommorow with the surgon who's gonna take the blasted thing out of me. Hopefully i feel better after that.
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#22 MandaSue

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Posted 24 February 2012 - 03:34 PM

So it sounds like everyone had severe symptoms before calling? I tend to "over-think" any medical suggestions so I'm just looking for feedback on the following. I realize this initial post was old, but any suggestions would be great.

I've had a friend who recently had an emergency gall-bladder surgery. So now her, and other people have been recommending that I get tested (simply because they know I've had minor "stomach" pain for year, and was diagnoses with celiac's in August 2011. I've still had some minor symptoms after going gluten free (but i've been told that this could be "normal" in the first year while healing).

I have had random mild pain on my lower back- right side (exactly where everyone above has described). one time over the summer this was consistent enough that I did call my doctor. but it was just consistent for a day or so-- no severe. My doctor told me just to take advil and call back if it got worse; it didn't. I'm generally fine other than feeling this minor pain now and then (I should also note that I feel it right now, as I'm thinking about it recently-- but haven't noticed it that much when it was not suggested to me :) I do have a lot of other family/life stress right now just in fitting in appointments so it is really not a good time to just go as a "prevantative"...but obviously, I want to take my health seriously....

ok, so my question is: what to watch for? would you call a doc now, or wait for it to get worse (i know that sounds bad)...
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#23 ktotheroll

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Posted 17 May 2012 - 04:00 AM

I definitely agree the two are connected. My doctor can't agree with me because there isn't research to back it up, but I didn't have all that many Celiac symptoms before my gallbladder was removed after 2 major attacks (a few months apart, oddly enough). Post-surgery, though I began experience any and every symptom of Celiac. I'm not sure how, but having my gallbladder taken out definitely triggered the emergence of my Celiac disease.
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#24 jeanzdyn

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Posted 17 May 2012 - 04:16 AM

I do have pain that I believe is my gall bladder. It is often below the rib cage and on my right side. My Mother had her gall bladder removed, and she talked about her symptoms --so I know from her the location and kind of pain.
It helped me to read your descriptions of what the pain feels like too.

I do not have the pain so often that I have pushed for the doctor to investigate, but after reading this thread I plan to spend more time telling my doc about this.


I do not know about having your gall bladder out causing the emergence of celiac disease. I now believe that I have had celiac disease or gluten intolerance for over 30 years, at least at some level. In 1979 I had a long period of gastro-intestinal distress, not bad enough to be hospitalized, but I was quite uncomfortable for a very long time. The doctor called it irritable bowel syndrome and advised me to drink mylanta twice a day, which I did for a couple of months --until I felt better. I have always been prone to diarhhea and have struggled with that at various times in my life. At one point, around 1991, I had chronic diarhhea but no health insurance. I did not see a doctor, I did research and learned that acidophilus was a great help to me. I also cut back on my bread consumption, which made the symptoms virtually go away for a few years. What I call gastric distress has been a constant for a long time.
In 2011 I decided to get a colonoscopy, being at an age where that is recommended. The result was the gastroenterologist saying "we think you have celiac disease". Well, that did not really surprise me, given my history and my own knowledge of gastro-intestinal disorders.
I have now been gluten free since January 1, 2012 and I do feel better.

I just don't think that celiac disease is triggered 'over night' by one event, like having your gall bladder removed. I think the celiac disease may have been present, but not at a level that was recognized as yet.
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What is food to one man may be fierce poison to others. —--Lucretius


I miss bread! But I love Kinnikinnick gluten free pizza crust.


Diagnosed celiac disease: November 2011 (biopsy and endoscopy)
other conditions: asthma, arthritis

#25 Capegin

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Posted 17 May 2012 - 11:23 AM

I'm just reading this, and I'm starting to wonder about my gallbladder surgery. Sorry if this is long, but I'll start at the beginning. Also, sorry if this post would be better on another board... it was just the gallbladder topic that got me thinking!

A few years back, when I was pregnant, I woke up with excruciating pain in my ribcage area. I went to the ER, and they found stones with an ultrasound. The pain went away, and the ER doc suggested I just hold off on pursuing it as I may never have another attack.

Fast forward about two years. I was having abdominal pain and went to my primary. The pain was totally different from my gallbladder attack, which I explained to the primary and surgeon. I had another ultrasound, and based on that the primary referred me to a surgeon to have my gallbladder removed. In talking with the surgeon, I told him the pain was different and that it seemed to be better when I cut WAY back on the fiber in my diet. His response? "Fiber? Don't you mean fat?" No. I meant fiber... I know the difference! Anyway, I had my gallbladder out.

Last summer, I was EXTREMELY iron deficient, and was sent to a hematologist. She tested (through blood test) for Celiac, and said it was negative and assured me that iron deficiency wasn't uncommon in women my age, particularly postpartum. She told me to take iron and to follow up in six months.

But reading this board, a lot of pieces are coming together. My iron deficiency has been there since I was a little kid... doctors then told my mom that I wasn't responding to supplements, but that it was probably because I had some sort of Mediterranean anemia (which the hematologist refuted). Now, my 15 month old DD is in the midst of the testing process for Celiac, and I'm wondering if maybe I had a false negative? I still have occasional abdominal pain, sometimes it feels like menstrual cramps but in the wrong areas. I would say I have a very little bit of D each day or every other, but not crisis level (sorry for the detail). Has a false positive ever happened anyone?

Thanks!
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#26 Naturalee

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Posted 18 May 2012 - 07:17 AM

I had my gallbladder removed about a year after being diagnosed with Celiac Disease. I think a lot of autoimmune diseases are connected to each other. I also have fibromyalgia, arthritis, hypo-thyroid and vitiligo.
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