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Feeling Like A Fraud


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23 replies to this topic

#1 sherrylynn

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Posted 26 September 2010 - 06:20 PM

I work in a hospital, and today I was talking to one of the docs that I work with. I told him about my very low vit d and that is why I have so much leg pain, he stated ooohh yeah that makes since that you would have bone pain.

then I told him about doc carttar saying that I might have Celiac and he laughed and started to say you gotta be kidding me. He didn't day the whole statement then started telling me how hard the gluten free diet is going to be.

He made me feel like I was just wanting to be celiac and that subcontously making myself have the symptoms.

Why would I want that. Why does people want so badly for you to eat like they do.

One of my coworkers was even arguing with me that I need grains and that it was not good for me to be gluten free.

I think from now on I am going to keep my mouth shut.
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#2 mbrookes

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Posted 26 September 2010 - 06:27 PM

Sometimes you have to just do what you feel is best for you and ignore the nay-sayers. Try gluten free (it's not as hard as they would have you believe) and if it helps you, so what to them.
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#3 sherrylynn

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Posted 26 September 2010 - 06:34 PM

Sometimes you have to just do what you feel is best for you and ignore the nay-sayers. Try gluten free (it's not as hard as they would have you believe) and if it helps you, so what to them.




:) your right. I have been on the gluten free diet for 18 days now, and I have noticed some response to my tummy and bowels, but not my legs yet. and the leg cramps are not so bad but not 100% yet.

I just hate it that when the docs at work see me all they see is fat fat sherry and don't stop to think that there may be a reason why I over eat like I do. since I have been on the diet I have started loosing weight and eating right.


I even noticed that my finger nails are growing like crazy. They would never grow before being on the diet.

Just needed to vent. But I do feel better. :)
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#4 MaryJones2

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Posted 26 September 2010 - 06:35 PM

Your experience is quite common and very frustrating. Over time you'll learn to ignore them. The saddest thing about your experience is that these are medical professionals and they are obviously ignorant about a very common condition. Their lack of compassion is also very disturbing.
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#5 mamaw

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Posted 26 September 2010 - 06:49 PM

I've been gluten-free for a long time now & I must say the gluten-free world has & is becoming more& more with lots of variety & choices abound. It is a pricey lifestyle but worth every penney for renewed health.
It does require a committment & a big lifestyle change. A learning curve as well. But once you get onto the lifestyle it is simple... again take it in steps & take your time. Jumping into gluten-free all at once is overwhelming.Start out with the things you know to be already gluten-free, once you got it down go on to learning new things that are tasty & gluten-free.
You will find almost everything you ever loved in reg products- there will be a gluten-free one to match it....nothing will ever taste exactly like the wheat things but many gluten-free foods come mighty close some even better.
If your co-workers keep bugging you just say well down the road I will be the healthy one... gluten-free does lack protein & fiber so try to add those items into your foods as well.
I for one take vitamins & minerals along with enzymes & probiotics daily.
Most who are not on the gluten-free foods have no idea they just like to give out opinions. As the saying goes Opinions are like *** holes everyone has one!!!
My mantra is" I know no one who has ever died from not eating wheat"
Stick to what you know is right for your body
blessings
mamaw
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#6 sherrylynn

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Posted 26 September 2010 - 07:25 PM

Thank you, I am feeling a little better. I was just upset because I tend to talk tooo much and the doc I was talking to is one I look up too. But I have learned to just keep my mouth shut and not tell everyone about my diet. no one else's business but my own right?

any way thanks for letting me vent.

Sherry
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#7 isitglutenfree

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Posted 26 September 2010 - 07:38 PM

Next time you see that doc let him know that gluten can damage your small intestines. It happened to me. Please be an advocate and educate this doctor since he obviously didn't learn about Celiac disease in med school. This is no fad.


I work in a hospital, and today I was talking to one of the docs that I work with. I told him about my very low vit d and that is why I have so much leg pain, he stated ooohh yeah that makes since that you would have bone pain.

then I told him about doc carttar saying that I might have Celiac and he laughed and started to say you gotta be kidding me. He didn't day the whole statement then started telling me how hard the gluten free diet is going to be.

He made me feel like I was just wanting to be celiac and that subcontously making myself have the symptoms.

Why would I want that. Why does people want so badly for you to eat like they do.

One of my coworkers was even arguing with me that I need grains and that it was not good for me to be gluten free.

I think from now on I am going to keep my mouth shut.


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#8 kareng

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Posted 26 September 2010 - 07:41 PM

I feel you, Sherry. Working with doc's, you know that many always know more about most things than anyone else. ;) ( joking)

Many were taught that Celiacs are very thin. I saw something once where the researcher said that he thought all morbidly obese patients should be tested. He thought that the fact that we aren't getting the vitamin absorption needed made some people eat more and have cravings.

I know before I went gluten-free, craved different things. I don't crave them anymore.

Good luck!
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#9 sherrylynn

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Posted 26 September 2010 - 07:46 PM

I feel you, Sherry. Working with doc's, you know that many always know more about most things than anyone else. ;) ( joking)

Many were taught that Celiacs are very thin. I saw something once where the researcher said that he thought all morbidly obese patients should be tested. He thought that the fact that we aren't getting the vitamin absorption needed made some people eat more and have cravings.

I know before I went gluten-free, craved different things. I don't crave them anymore.

Good luck!




Thank you, your right some of the docs have god complex :lol: I will just not say anything and when they say, "how have you lost soo much weight?" then I might tell them.

:lol: then again maybe not :lol: I might just look at them and say I Dunno.
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#10 sandsurfgirl

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Posted 26 September 2010 - 11:34 PM

You can eat plenty of grains on a gluten free diet, just not those pesky three. That doctor is a total idiot and (insert many curse words) like him are the reason so many of us suffered needlessly for years.

SEVEN years ago my OB said I had celiac and sent me to a GI for testing. He acted the same way as that stupid (insert curse adjectives here) doctor did with you today. He talked me out of testing and assured me that I did not have celiac.

Two horrific pregnancies and really bad illness later I found out I had celiac the whole time. Do you know how much anger and bitterness I've had to process and deal with knowing that i could have been spared all those years? My son almost died during childbirth and my OB said ALL of my pregnancy problems including him being a premie were likely due to my celiac. I am so ANGRY at doctors like that. They are NOT doctors in my opinion.

That idiot is the FRAUD not you!!!! He's not a doctor if he isn't willing to look at every possibility to make someone well. Tell him to give me a call so he can get an earful.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#11 sandsurfgirl

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Posted 26 September 2010 - 11:42 PM

Not sure if you are getting testing done or if you are just doing to diet and seeing if it helps you, but regardless. Do yourself a favor and if you find you have celiac either by self diagnosis or whatever don't tell people the details. Nobody needs to know you are self diagnosed or whatever. Tell them you have celiac. If you have to, lie and say you took the blood test and it was positive. It will make your life much easier if you do.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#12 sherrylynn

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Posted 27 September 2010 - 04:31 AM

Not sure if you are getting testing done or if you are just doing to diet and seeing if it helps you, but regardless. Do yourself a favor and if you find you have celiac either by self diagnosis or whatever don't tell people the details. Nobody needs to know you are self diagnosed or whatever. Tell them you have celiac. If you have to, lie and say you took the blood test and it was positive. It will make your life much easier if you do.



Thank you sandsurfgirl,
I have had the blood test and it was neg. The doc I am seeing won't do the biopsy but told me to go on the gluten free diet at once. He said he agreed with my other doc that I have IBS but that he also thinks I have celiac and said it probably was just a false neg and said that if I only have IBS that about 40% of people with IBS do great on the diet.

I have been on it for 19 days now and counting. and it has helped with some of my bowell issues but not completly better yet. I guess I am going to have to wait and see if in a year it gets better.

My vit D level was 13.5 at testing but my A1C was 6.0 and my LDL was 109 and my HDL was 39 so my cholesterol was bad and I am pre diabetic. he is going to give me 4 months to try to correct that by diet and excercise then if I don't he will put me on meds.

I really think that now that I am on the diet I will be able to get my A1C and my cholesterol down to were it should be.

I think when I see him next I am going to ask him to test my thyroid. If I don't get to have any caffine I am extremly tired and can hardly stay awake. And I have been sleeping fairly well at night now that my leg cramps are almost gone.
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#13 elk

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Posted 27 September 2010 - 06:45 AM

I would definitely get your thyroid checked along with cortisol levels (saliva test) -- get copies of your results, because even if your numbers are in range, they could be on the low side for you. Stick with the gluten-free diet and eat whole foods -- regardless of what people are saying. I can't stand it when people claim to know something when they don't have personal experience or haven't done anything to prove it to themselves.

Also, your at about the pre-menopause age. I just started using a natural progesterone cream (the oral prescription stuff made me moody and tense and gave me a lot of acne), and it's made a big difference in energy level. Although I'm still trying to piece everything together, I think this is part of it. If you're not having hot flashes (which would indicate low estrogen), then it might be worth looking into. I highly recommend the book "What Your Doctor May Not Tell You About Pre-menopause." According to this book, most of us are estrogen dominant, including men, which causes all sorts of issues. This may or may not be part of your problem, but the point is that you should investigate every possibility and not wait for doctors to give you answers (and if they do give you an answer, question it B) ).

Ignore the ignorant comments. Besides, who's going to look like the idiot when you're feeling better, healthy, and looking great?
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#14 tarnalberry

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Posted 27 September 2010 - 06:52 AM

This is one thing I would correct a doctor on (and have). When they say "you don't want that, the diet is so hard", I say "no, it's really not, and besides, is something being hard a reason to not do it and be sick instead?" I don't think they realize how much the spector of noncompliant patients alters their thinking.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
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#15 mbrookes

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Posted 27 September 2010 - 10:51 AM

You can also remind the doctor that stopping smoking is hard. Does he reccommend that his patients keep smoking?
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