Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anybody Have Problems With Gelatin?
0

17 posts in this topic

Gelatin seems to be another substance that causes all kinds of side-effects and problems for me. Wondering if anybody else with gluten intolerance/celiac has problems with gelatin?

(Wonder, too, why so many vitamins & supplements have to use gelatin when it causes problems for many people? Guess it is a cheap binder...)

One evening we ate out at an expensive restaurant and the next morning I woke with the usual headache, swollen face/eyes, rapid heartbeat, vision problems, "poisoned" feeling and I KNEW I had been toxified with gelatin. I called and asked the Chef if anything in the dinner I ate the night before had GELATIN in it, and he said "ABSOLUTELY NOT!" I pushed further and said "ARE YOU SURE? Because I'm deathly allergic [a little melodrama never hurts] to gelatin and I'm feeling very poisoned today?"; and he finally admitted, "Well, I did use CHICKEN FEET in the reduction sauce!" UGH!!! I didn't know which was more sickening--consuming gelatin or the idea of eating CHICKEN FEET!??? Blecchhhh!

At any rate, that little encounter made me doubly-confident that I can TRUST my intuition and body reactions; our bodies KNOW when we've been unintentionally "poisoned" with one of our allergen-substances. (P.S. Have not gone back to that particular restaurant since!)

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have not noticed issues with gelatin....yet, lol. I've learned to never say never. I wonder if it could gave been a simple case if cross contamination with pans or something? And chicken feet??? Really??? Hard to get past THAT visual!

0

Share this post


Link to post
Share on other sites

Gelatin is a natural substance that forms when animal bones are boiled. Every time you eat a pot roast, roasted chicken or even anything made with broth, you are consuming gelatin in varying quantities.

I'm not saying there isn't something bothering you, but I wouldn't be too quick to point to gelatin.

Chicken feet, by the way, made the richest, most flavorful broth imaginable. They are tasty on their own as well, as millions of Chinese people will testify.

0

Share this post


Link to post
Share on other sites

you were at a restaurant- and was your meal gluten free??? its more likely IMHO that you either ingested gluten, dairy, MSG, or some kind of starch added to a dish... than had an issue with gelatin.

for example- i was in quite a bit of abdominal stress after a gluten free meal at Pei Wei- and i narrowed it down to the Potato Starch that they coated the chicken with. i could eat a couple of fries and be fine- but this potato starch was gelatinous and processed- it was gross. i asked if they could just sautee the chicken next time

0

Share this post


Link to post
Share on other sites

Gelatin is a natural substance that forms when animal bones are boiled. Every time you eat a pot roast, roasted chicken or even anything made with broth, you are consuming gelatin in varying quantities.

I'm not saying there isn't something bothering you, but I wouldn't be too quick to point to gelatin.

Chicken feet, by the way, made the richest, most flavorful broth imaginable. They are tasty on their own as well, as millions of Chinese people will testify.

Well, to each his or her own, but you'll never find me willingly eating CHICKEN FEET! LOL!

By the way, there are a lot of articles online about allergy or hypersensitivity to gelatin, such as:

http://www.ehow.com/facts_5077263_symptoms-gelatin-allergies.html

http://www.medpagetoday.com/MeetingCoverage/ACAAI/16872

http://www.ehow.co.uk/about_6549275_treatments-gelatin-allergy_.html

and so on...

And here's a few gross shots of chicken feet:

http://kellythekitchenkop.com/2010/07/chicken-feet-in-my-soup-sick.html

0

Share this post


Link to post
Share on other sites




you were at a restaurant- and was your meal gluten free??? its more likely IMHO that you either ingested gluten, dairy, MSG, or some kind of starch added to a dish... than had an issue with gelatin.

for example- i was in quite a bit of abdominal stress after a gluten free meal at Pei Wei- and i narrowed it down to the Potato Starch that they coated the chicken with. i could eat a couple of fries and be fine- but this potato starch was gelatinous and processed- it was gross. i asked if they could just sautee the chicken next time

Hi cassP,

I think it was the gelatin, because I recognized the "gelatin hangover" from many, many prior episodes, which is why I called and asked Chef if there had been any gelatin in the meal, which it turned out there was. (Interesting that your potato starch was "gelatinous"! LOL)

0

Share this post


Link to post
Share on other sites

Hi cassP,

I think it was the gelatin, because I recognized the "gelatin hangover" from many, many prior episodes, which is why I called and asked Chef if there had been any gelatin in the meal, which it turned out there was. (Interesting that your potato starch was "gelatinous"! LOL)

ya it was gross. i also think there is something to this overprocessed "frankenstein" food.

i had a NIGHTMARISH episode the other day with High Maltose Corn Syrup!!! lots of debate over the internet over if it hurts celiacs or not.... but basically this one article said that the HMCS is "Relatively New" to human consumption- and that the effects on the human body may not be known yet.

great...... it's like we're part of an experiment

0

Share this post


Link to post
Share on other sites

Well, to each his or her own, but you'll never find me willingly eating CHICKEN FEET! LOL!

By the way, there are a lot of articles online about allergy or hypersensitivity to gelatin, such as:

http://www.ehow.com/facts_5077263_symptoms-gelatin-allergies.html

http://www.medpagetoday.com/MeetingCoverage/ACAAI/16872

http://www.ehow.co.uk/about_6549275_treatments-gelatin-allergy_.html

and so on...

And here's a few gross shots of chicken feet:

http://kellythekitchenkop.com/2010/07/chicken-feet-in-my-soup-sick.html

Very interesting. Every time I made a homemade pizza crust using unflavored gelatin, I always reacted. Didn't know why but stopped using the gelatin. All the other ingredients in the pizza I am fine with.

0

Share this post


Link to post
Share on other sites

Very interesting. Every time I made a homemade pizza crust using unflavored gelatin, I always reacted. Didn't know why but stopped using the gelatin. All the other ingredients in the pizza I am fine with.

Hi Kathy,

Some sites online claim that there can be MSG in some gelatins (processed kind), which might explain some folks' reaction to the gelatin in foods they consume.

What I find odd (intriguing) is that so many of the foods/substances that cause a reaction in me are the "GLUEY" kind that are used to hold foodstuffs together or provide smooth consistency, like GELATIN, WHEY, CARRAGEENAN, PECTIN. I wish I had studied chemistry or molecular biology or something that would assist me in comprehending WHY these substances cause similar "poisoned" effects in me! Remember, too, that GLUTEN contains a "gluey" substance. Maybe the operative word in all these problems foodstuffs is GLUE!! I remember as a kid using WHITE FLOUR as a PASTE SUBSTITUTE for little-kid-art-projects. I figure the "GLUE" in the gluten is "shellacking" our guts and making them nonfunctional. But do the other STICKY, GLUEY substances like WHEY, CARRAGEENAN, PECTIN, GELATIN, etc. do a similar thing to our insides? It would sure be nice if somebody would research it and let us know!

:-D

0

Share this post


Link to post
Share on other sites

ya it was gross. i also think there is something to this overprocessed "frankenstein" food.

i had a NIGHTMARISH episode the other day with High Maltose Corn Syrup!!! lots of debate over the internet over if it hurts celiacs or not.... but basically this one article said that the HMCS is "Relatively New" to human consumption- and that the effects on the human body may not be known yet.

great...... it's like we're part of an experiment

"Frankinstein food" is a good way to describe some of this stuff! Recall in the old monster movies there often was a creature/being/monster that took the form of a GELATINOUS SUBSTANCE! UGHHHH. !

0

Share this post


Link to post
Share on other sites

Hi Kathy,

Some sites online claim that there can be MSG in some gelatins (processed kind), which might explain some folks' reaction to the gelatin in foods they consume.

What I find odd (intriguing) is that so many of the foods/substances that cause a reaction in me are the "GLUEY" kind that are used to hold foodstuffs together or provide smooth consistency, like GELATIN, WHEY, CARRAGEENAN, PECTIN. I wish I had studied chemistry or molecular biology or something that would assist me in comprehending WHY these substances cause similar "poisoned" effects in me! Remember, too, that GLUTEN contains a "gluey" substance. Maybe the operative word in all these problems foodstuffs is GLUE!! I remember as a kid using WHITE FLOUR as a PASTE SUBSTITUTE for little-kid-art-projects. I figure the "GLUE" in the gluten is "shellacking" our guts and making them nonfunctional. But do the other STICKY, GLUEY substances like WHEY, CARRAGEENAN, PECTIN, GELATIN, etc. do a similar thing to our insides? It would sure be nice if somebody would research it and let us know!

:-D

You are right it is intriguing. I also have fructose malabsorption and pectin is a big no for me. Actually anything prebiotic (oligosaccharides and Fructo-oligosaccharides)tends to set a lot of us off such as chickory root, inulin, ect. Probiotics bother some of us as well so we don't use these as supplements or eat yogurt such as Fiber One, since it will make us worse. Anything too fermented such as sauerkraut also will do numbers on our g.i. Its part of the low fodmap diet that many with FM follow.

I've also heard that Gelatin is a natural source for sulphites and some that react to sulphites will react to Gelatin. I only know that red wine will make me look like rudolph and I blame the higher sulphites in red wine for that. Also cheap wines no matter what the varietal, will get me glowing :)

0

Share this post


Link to post
Share on other sites

Life is too short to drink bad wine. Stick with the good stuff. It isn't all expensive. Check out the reccommended ones in Wine Spectator magazine (I read it free at the library) Some of the highly rated ones are under $20 a bottle.

0

Share this post


Link to post
Share on other sites

I use agar agar in place of gelatin. Works quite well.

As for supplements, Country Life and NOW Foods make many which use vegetarian capsules made from plant cellulose, not gelatin.

Chicken feet...yuck! I don't even want to contemplate all the disgusting things those chickens walk on in those chicken coops.

0

Share this post


Link to post
Share on other sites

Chicken feet...yuck! I don't even want to contemplate all the disgusting things those chickens walk on in those chicken coops.

EXACTLY!!! LOL!

By the way, when they say vegetarian cellulose, you don't suppose there's a chance they could be talking about a gluten-containing grain (is grain a vegetable?), do you? Have noticed a lot of products specify plant cellulose, but not sure what exactly their source is. ??

0

Share this post


Link to post
Share on other sites

Life is too short to drink bad wine. Stick with the good stuff. It isn't all expensive. Check out the reccommended ones in Wine Spectator magazine (I read it free at the library) Some of the highly rated ones are under $20 a bottle.

I know what you mean. I should have been more clear in my original post. The fine dining restaurant that my hubby and I own has been awarded the Wine Spectator award for 5 years in a row now. It happens when we have to go to awful political events ect and they serve us nasty wine :(

You are correct about finding decent wine for less.

0

Share this post


Link to post
Share on other sites

You are right it is intriguing. I also have fructose malabsorption and pectin is a big no for me. Actually anything prebiotic (oligosaccharides and Fructo-oligosaccharides)tends to set a lot of us off such as chickory root, inulin, ect. Probiotics bother some of us as well so we don't use these as supplements or eat yogurt such as Fiber One, since it will make us worse. Anything too fermented such as sauerkraut also will do numbers on our g.i. Its part of the low fodmap diet that many with FM follow.

I've also heard that Gelatin is a natural source for sulphites and some that react to sulphites will react to Gelatin. I only know that red wine will make me look like rudolph and I blame the higher sulphites in red wine for that. Also cheap wines no matter what the varietal, will get me glowing :)

This stuff about sulphites is very interesting. Had not really considered sulphites as a problem, but when I look at the list on the following link, I do see several foods/substances that are known to provoke a reaction in my system:

http://www.hc-sc.gc.ca/fn-an/securit/allerg/fa-aa/allergen_sulphites-sulfites-eng.php

Substances like gelatin, pectin, chocolate (sometimes)... Not sure if it's the sulphites themselves that cause me problems or something else. What's interesting is that for several months earlier this year, I was taking a couple eyedrops for glaucoma that contained sulphites... I had a LOT of systemic problems during those months... Maybe a connection...

http://www.naturalhealthtechniques.com/diet_nutrition/sulfites.htm

It is also interesting that adrenaline/epinephrine (which causes heart palpitations and irregular heartbeat when I have it) is one of the things used to counteract a severe sulfite reaction! (Maybe the old "hair of the dog" remedy at play?)

0

Share this post


Link to post
Share on other sites

I have the same problem! You are not alone!

I notice that if I eat jell-o or even vitamins/meds that contain gelatin I don't feel well. Same reaction with the headache, joint pain, puffy eyes, and sleeping problems. Also, my lymph nodes seem swollen my underarms heart and groin...People keep telling me I'm crazy and its "impossible" nope...anything's possible. You're not alone trust me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined