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Pregnant With Cd, How To Feed Baby?
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I just found out yesterday that I'm pregnant, about 4 weeks. I have celiac disease, my husband does not. Of course I know that I cannot eat any gluten (I wouldn't whether pregnant or not), but my question is what to do after the baby is born.

Do you treat them like they also have celiac disease and just avoid giving him/her formulas, foods, etc that may cause gluten? or do you give mainstream products and just keep an eye out for the symptoms (now that we're all pretty confident & familiar with what they are?). I know there's a chance it can be carried on to the child, but how do you know for sure if it is? do you act as if it is and go gluten-free or do you give mainstream until otherwise indicated?

Thanks very much!!!!!!!!!!!!

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Standard advice now is to just allow gluten whenever you normally would (6 to 8 months, I think). In fact, some evidence indicates that withholding gluten could help trigger celiac if the child has the genes. Personally, I don't see the sense in forcing a child to be gluten-free unless necessary.

richard

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Is breastfeeding out of the question? From all indications, breastfeeding prevents or at least lessens the chances your child will develop a variety of health issues in the future. I'm not a militant breastfeeding type. Don't take this post that way.

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Breastfeeding is the best thing for the child. Breastfeeding is known to be a preventative for celiac disease in children.

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Kaiti, is Graves disease associated with Celiac disease?

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Graves disease is a form of hyperthyroidism...and yes thyroid problems are highly linked with celiac. I'm not even being treated for it at this point because the levels are low enough its not enough for meds yet because its in beginning stages. They monitor it every 3 months.

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Does Graves follow a steady progression of worsening? Or does a gluten free diet stop the progression? I can't even wrap my mind around all the women I know who have been treated for hypothyroidism! When a person says they have hypothyroidism, are they really saying they have Graves Disease? I just thought of my cousin who has been treated for this for the past ten years.

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The gluten free diet may or may not control it. Each time I have had blood tests it has been ALOT worse. Since going gluten free though each time I have had my test it has been worse but not by much. Hopefully it will not get worse but we'll see.

Hypothyroid is different from Graves...Graves is a form of hyperthyroid.

Either can be associated with celiac.

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If you are gluten-free then obviously if you breastfeed your baby will be gluten-free in the short-term. At about four months when solids are introduced you will have to decide what to do, so you do have at least a year to decide. Don't worry about it now since that could harm you and/or the baby. I am not saying don't think about it, just don't stress about it. Anyway, I would never subject a person to the gluten-free diet unless he had a clear diagnosis of celiac disease. If your baby is a celiac and is eating gluten-free then the test results can come back false negative so I advise feeding your child a regular diet. If you want a blood test after birth, that can be done quite easily although there is some controversy about testing young children. I am for it, but others are against it, thinking the results are not accurate. Even doctors do not agree, so you have to decide for yourself. Thankfully, you have a long time to gather info about these issues so you can make a choice and be confident in it.

Congratulations on your pregnancy!!

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There have been several recent articles about this very question. The advice that seemed to be generally agreed upon in all of them was that the baby should be breast fed ONLY until at least four months, preferably a little longer with grains being introduced in very small amounts (beginning with a teaspoon a day was the suggestion) at 4 - 6 months. Apparently giving the grains earlier than 4 months caused a significant increase in problems and waiting until after the six month mark had a smaller increase in problems. The suggestion was to gradually increase the grains after the initial couple of months and not to change that unless the child became symptomatic.

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I am EXCLUSIVELY breastfeeding until 5.5 to 6 months. Then I will introduce rice cereal with some fruits and veggies.

I did not breast feed my son who has diabetes and celiac. I was told by my endocronologist that breastfeed will DEFINATELY increase my newborns chances of NOT getting celiac or diabetes.

I myself eat gluten. So I think my newborn is. I don't know what the body does to gluten before it is turned to breastmilk. I too have heard that withholding it too long can be just as bad as introducing it too early.

Do what you feel. There is advice from everyone out there. This is my advice, I STRONGLY believe in breastfeeding. I tried with my eldest son and daughter and gave up because it seemed too hard. My youngest is now 4 months old and I am still breastfeeding. I am SOOO proud of myself. I wanted to give up so many times, then I thought of how hard it is to see my 2 year old suffer with diabetes and celiac (the celiac is alot harder), and I kept going.

TRY IT.... Give it at least 4-6 weeks, You will be soo glad you did.

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I seem to remember something about not introducing potential allergen type foods until at least 1 year. Does that include gluten? Weird to me since the ped.s office had things like samples of Cheerios to give out to moms of babies at like 6 months... I wasn't on a gluten-free diet when my dd was born, she was breastfed, and then started on cereals and pureed fruits and veggies... And she still has Celiac... hmmm I don't know. Ask your Dr.s and get their opinion.

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    • You are right, the tests could be invalid.   All the celiac tests require you to be on a gluten-containing diet.  It is up to you to decide if you want to go gluten free.  You can do it.  Believe me, I know.  Hubby is not officially diagnosed.  He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP.  It worked though.  But he would be the first to tell you that I have had way more support in terms of family and medical.    We think he has it.  Both of our families are riddled with autoimmine disorders.  I am the first to be diagnosed.   My Aunt went gluten free per the advice of her Chiropractor.  Her other doctors never suspected celiac disease.  The diet obviously worked for her.  Her daughter (my cousin) is a nurse.  She had an endoscopy but they did not check for celiac disease.  She chose to go gluten-free too since it worked for her mom.  Both will not do a gluten challenge.  However, my diagnosis has helped them get proper medical treatment.  My Aunt is very active in a celiac support group.    Now everyone in my family knows about celiac disease.  My own niece was just diagnosed with Crohn's, but her GI did test and will continue to test her for celiac disease.  You can develop additional autoimmune disorders at any time.   So far, a few other members have been tested.  No one else had had a celiac disease diagnosis yet.  Time will tell.  If I can save someone from the misery of struggling to get a diagnosis, then I can feel good.   Now, an official diagnosis will help you adhere to the diet .  You can get follow-up care.  Get checked for other things like SIBO, H. Pylori and cancer.  But ultimately, it is up to you.   Whatever you decided to do, please consider a family health history chart.  You might someday help a grandchild.   The stool tests?  In all my research, leading celiac experts do not recommend them.  http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/  
    • The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there is a good chance your blood work may be negative. In your case you may want to continue eating gluten after the biopsy at least until you get your blood results. If they are negative consider going a bit longer and getting them redone.
    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
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