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Sick Of Being Gluten Free


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21 replies to this topic

#1 darkblue

 
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Posted 10 October 2010 - 07:20 PM

Hi I am almost 14 and have been Gluten-Free for about a year and a half. I feel very alone. Every sunday morning at church all the kids in my youth group have donuts. I don't think I can even start to tell you how much I crave just being able to have one! I get very sick when I get glutened. I get a SEVERE stomach ache. I hate watching people eat stuff! It's not really that I crave it it is just having to watch them. Then I feel left out. I feel like I am trapped in this body that can't go to birthday parties because I feel paralyzed about getting sick. I feel so left out of things like going to the mall and getting some candy from the candy store. Just those little things I miss so much.
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#2 mushroom

 
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Posted 10 October 2010 - 08:20 PM

This is a very hard time of life to go gluten free because it is just the time of life when we need to feel like we belong, like we "fit in" and are part of the group. I am so sorry you are having to go through this at this time. It does get easier as we get older, I can assure you. Hopefully your peers will have some suggestions for you. {{{hugs}}}
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#3 lamegirl

 
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Posted 10 October 2010 - 08:41 PM

Order some from Kinnickinick foods in Canada- they are pretty decent, bring one with you and eat the donut.

No need to be feeling left out - it is something you'll have to get used to, or else be sick. I went through from about the age of 15 to last year with no diagnosis, and trust me, I'd have given all of those years of eating gluten to have my life back and to have it be productive. You are very lucky that you know what challenges you need to face!
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#4 Rowena

 
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Posted 10 October 2010 - 08:44 PM

darkblue~ I can only imagine what you are goin through. Bein 14 and gluten free is hard. My challenge when I was your age (only a few years ago for me, so try not to think of me as "old" when I say "when I was your age") was chocolate. Everyone would be eatin chocolate around me, and I'd so badly want it. But I could not eat chocolate without being sick. It drove me crazy. It was all I could do every sunday to not take one of the twix bein passed around in the basket.
But you'll pull through it. I promise. In the meantime, on those days when you are around people who are eatin such horrors that look good, you bring an alternative. (Ive found comfort in gluten free pretzels, but I dont know what you might take comfort in.) And eventually someone will take notice and even ask you what you can eat. Thats what happened to me, and eventually my teacher started bringin me starbursts, my favorite candy. Have heart. You can do it. I wish I could tell you it will get easier right away... but it won't. But I promise it will get better.
It is like when we were kids and bullies were omnipresent. Our moms and dads would tell us, "Don't worry honey. If you ignore them, they'll stop." But it didn't happen right away did it? Nope. It still took time, even though we did our part. It is the same principle. Ignore those donuts, even replace them with somethin else, and the difficulties will disappear. It will take time though, just like the bullies.
Good luck to ya. Don't give up. You have done so well thus far!

PS yer not alone. We are here for ye. ;) I know its not quite the same as someone sittin right next to ye with the same problems, but there are people who can help you

Edited by Rowena, 10 October 2010 - 08:46 PM.

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Gluten Free since Oct. 1, 2010
Fish/Seafood Free since 1997
Chocolate Free (with a few taste tests to see if I'm just crazy) since 2001.
Officially Dairy free 8/5/2013 (mostly dairy free before that, but I like my cheese and things) (dx'd officially with lactose intolerance, suspect casein too though)
Esophagitis dx'd 8/5/2013 thus doing a diet devoid of acidic foods and stuff


#5 darkblue

 
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Posted 11 October 2010 - 06:18 AM

Thanks everyone for replying! It is encouraging to have someone to talk to.
What I am really having trouble with is watching people eat. I don't crave the food, I just hate watching them eat it. And feeling paranoid about being around gluten.
How do I go to people's homes and not be afraid about being glutened? I mean, I feel trapped!
I eat really well at home, we don't have any gluten in the house and that really helps. My mom is helpful with it, but she says she understands but she really does not since she's not the one going out WITH people at church and things. She's not a teen dealing with it. It is way harder beacuse I am around it more and she is not.
How can I get over this fear?
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#6 Rowena

 
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Posted 11 October 2010 - 10:53 AM

Thanks everyone for replying! It is encouraging to have someone to talk to.
What I am really having trouble with is watching people eat. I don't crave the food, I just hate watching them eat it. And feeling paranoid about being around gluten.
How do I go to people's homes and not be afraid about being glutened? I mean, I feel trapped!
I eat really well at home, we don't have any gluten in the house and that really helps. My mom is helpful with it, but she says she understands but she really does not since she's not the one going out WITH people at church and things. She's not a teen dealing with it. It is way harder beacuse I am around it more and she is not.
How can I get over this fear?



Yeah watching people is hard, no matter what age. I look at people now, and I want to scream, "Don't eat that in front of me. Just looking at it makes me sick." I have this problem of looking at something and saying to myself, "Ewww all that gluten! Get it away."

As for going to people's houses, and other places, this is actually a question I myself posed in the Coping With forum. I've gotten a lot of answers. I suggest you look there for more details on it, but I can say just bring your own food, and maybe even in a large enough quantity to share. (Salad is always a good bet. *sage nod*) Just make sure to take your food first, and/or have a couple servings set aside for ye.

Your mom, she is trying her hardest obviously to help you and understand what you are going through. But you are right, she aint a teen goin' through it. But perhaps you should talk to her about how you are feeling, and she can better understand it. She's there to help you on your journey through life, and she can't help you if don't talk to her. She may even have some input on what you can do as well. And sure she aint a teen, and she aint with ye in your classes or at your friends parties, (thank heavens for that right?) or whereever you may be. But if you talk to her now and then, it will make ye both feel better.

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Gluten Free since Oct. 1, 2010
Fish/Seafood Free since 1997
Chocolate Free (with a few taste tests to see if I'm just crazy) since 2001.
Officially Dairy free 8/5/2013 (mostly dairy free before that, but I like my cheese and things) (dx'd officially with lactose intolerance, suspect casein too though)
Esophagitis dx'd 8/5/2013 thus doing a diet devoid of acidic foods and stuff


#7 pirateswin

 
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Posted 11 October 2010 - 11:31 AM

When I was 14 (I am 22 now), I didn't know I was supposed to be on a restricted diet. I was tiny, malnourished and always sick. I would go to the parties and go out with my friends, eating whatever they ate, and then afterward would come the stomach pains, moaning and general crappy feelings, as my friends watched me, awkwardly and helplessly.
Trust me, having to put your friends through all that is a lot worse than refraining from enjoying those foods. Now I politely decline (but it is still REALLY hard. I mean, I'm in college and all we do is drink beer, which has huge amounts of gluten...), and after dinner, I am still ready to have fun and communicate. Much better that way. Your friends will understand, and nobody should think you're weird. These days, everyone has lifestyle restrictions- it is very common. Stick it out, and you will be happy you did.
Also, don't be paranoid. Just be hyper-aware of what goes in your mouth. You have control, no matter what the situation is. And remember that it could always be worse. You are totally awesome for hanging in there. ;)
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#8 DpBelle

 
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Posted 12 October 2010 - 02:30 PM

I'm 16 and a junior in high school. I have had celiacs for a year.

All of my friends are completely understanding. Being around gluten probably won't effect you. (There are some severe cases though, so it could, it depends.) It annoys me too, I promise. I watch them all eat their sandwiches at lunch while I eat my peeled apple. They still eat infront of me, you can't prevent that, but a lot of times I will bring my own food over their houses or keep some there if we are close friends. Many times their mothers will accomadate my needs for dinner. They are always understanding when I explain it.

I have breakdowns where I cry because I feel sorry for myself about my diet. I want to eat all of the junk a normal teenager eats, but I can't, and that's that. You really should look into gluten free foods in your supermarket. You will find some really fantastic ones.
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#9 polarbearscooby

 
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Posted 23 October 2010 - 10:13 AM

Hi I am almost 14 and have been Gluten-Free for about a year and a half. I feel very alone. Every sunday morning at church all the kids in my youth group have donuts. I don't think I can even start to tell you how much I crave just being able to have one! I get very sick when I get glutened. I get a SEVERE stomach ache. I hate watching people eat stuff! It's not really that I crave it it is just having to watch them. Then I feel left out. I feel like I am trapped in this body that can't go to birthday parties because I feel paralyzed about getting sick. I feel so left out of things like going to the mall and getting some candy from the candy store. Just those little things I miss so much.


I know how you feel...every morning at our church everyone eats cinnamon rolls, and even though I didn't like them before I was diagnosed I feel left out because now I can't eat them even if I wanted too...

I'm super super sensitive and I've been diagnosed for a year (I'm 20), and somedays I still feel like crying when my friends have pizza, or there is a fellowship dinner.
But I've found a lot of amazing food I can still have! (there are a ton of candies I can still eat)
And I decided that I was tired of mourning the loss of food that just made me sick....
I don't know if that helps any, but I hope it does...
And if you need anyone to talk to you can always PM me :)
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#10 sb2178

 
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Posted 23 October 2010 - 10:24 AM

Yeah, i was just at a wedding shower where I could eat precisely two things and three people offered me giant slices of cake in about two minutes. Fortunately, I had something to do with my hands, or else it would have been more frustrating to watch people eat. Taking your own is always helpful-- if I had more food in the house, I would have done so. Eating beforehand helps too (which I did). I am older than you though, so the peer pressure is lighter, surprise!

Do you draw, or knit, or carve, or make jewelry or something like that? Depending on the atmosphere, it may not be appropriate but certainly in some cases that would help. People would ask you about what you're doing and probably be both distracted and impressed.
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2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

#11 Hamster101

 
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Posted 23 October 2010 - 11:26 AM

I'm new to the wheat free diet, and it's horrible to have to watch people eat food that I cant eat right in front of me. I understand it is one of the hardest things in the world. While I was trying to figure out what was wrong with me I went lactose free, and it was incredibly hard to watch my parents put cheese on their pasta and have cheese on toast.

They were my favourite things! I wanted to (and a couple of times, did) cry.

The best option here is you need to stop thinking about it a 'difference' about you and make it become part of your identity. Admittedly children of 14 or young adolescent age may not be as accepting as adult, but if they are your friends they will probably sympathise and it will become a part of the person they hang with.

Another note is you need to not be hung up on what you cant eat. There are tonnes of things you can eat, including wheat free alternatives to a lot of foods on the market. Wander around a store and find things that are wheat free that you like - a surprising number of things aren't made with wheat when you stop and read the labels. Stock up on something tasty and take that with you to eat after, and mingle with the doughnut eaters when you feel less jealous.

it's a hard time. I hope you find something for you. =)
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"When life gives you lemons, but you wanted lemonade, don't give up. Your dream is still possible, and it will be so much sweeter made with your own hands."

#12 Duje

 
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Posted 11 November 2010 - 12:47 PM

Hi I am almost 14 and have been Gluten-Free for about a year and a half. I feel very alone. Every sunday morning at church all the kids in my youth group have donuts. I don't think I can even start to tell you how much I crave just being able to have one! I get very sick when I get glutened. I get a SEVERE stomach ache. I hate watching people eat stuff! It's not really that I crave it it is just having to watch them. Then I feel left out. I feel like I am trapped in this body that can't go to birthday parties because I feel paralyzed about getting sick. I feel so left out of things like going to the mall and getting some candy from the candy store. Just those little things I miss so much.


Dear Darkblue i perfectly understand how u feel. Think this way - U dont need donuts ! They are unhealthy , eat fruit instead or something else. When i was in high school my friends whold eat fast food, pizza, hamburger, all kind os sweets, u know what i ate ?

Bannanas , apples and orange juice, along with my turkey / bread sandwich. U dont nned to feel paralyzed , there are many alternatives u can get. When im hungry i eat bunch of almonds, eggs, lean meat, honey, cheese and Gluten free/lactose free sweets from Organic store.
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#13 GFinDC

 
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Posted 11 November 2010 - 01:32 PM

Hi Darkblue,

I wonder if you took some Larabars with you if that would be better? They come in a lot of different flavors, and they are small so you could carry a couple around with you all the time. You could also look up recipes for other snacks that could be taken with you. Like microwave peanut brittle, or pumpkin bars, or hard boiled eggs, or other things like that. Maybe your mom could help you make some snacks at home to have ready for when you go out. It's a good idea to always have some gluten-free food or snacks with you when you go out, as you never know when you might get stuck somewhere longer than planned, and have to find something to eat. It helps to be prepared.

Another thing that might help is to wash your hands before eating. That's a simple way to avoid cross-contamination if you are in someone else's home and don't know if there is gluten floating around. Not hard or complicated and only takes a minute too. Maybe a small pack or something would be handy to carry snacks in.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#14 freeoglutevil

 
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Posted 18 November 2010 - 10:23 PM

Thanks everyone for replying! It is encouraging to have someone to talk to.
What I am really having trouble with is watching people eat. I don't crave the food, I just hate watching them eat it. And feeling paranoid about being around gluten.
How do I go to people's homes and not be afraid about being glutened? I mean, I feel trapped!
I eat really well at home, we don't have any gluten in the house and that really helps. My mom is helpful with it, but she says she understands but she really does not since she's not the one going out WITH people at church and things. She's not a teen dealing with it. It is way harder beacuse I am around it more and she is not.
How can I get over this fear?


I know what you mean... I practically hold my breath when I'm in the same car with someone eating like a burger.. and that may be kinda silly... but then if someone is baking, there could be flour in the air, so I try to be really careful. You have to really get the point across about how serious celiac is... most people will really try to help you. But I seriously get disgusted watching people eat gluteny things... I'm 19, and I've been mostly wheat free since I was 8... but I would go to friends houses and "cheat" on my diet.. but I've been totally gluten free and dairy free since I was 14.. so I know how it goes.. at school lunches when everyone has it easy buying lunch.. I mean we know our food is healthier but still.. lol. I like your word glutened, I haven't noticed that before :) haha
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1999 Wheat free, age 8
2005 Peanut free, age 14
2005 Gluten free, age 14
2005 Dairy free, age 14
2010 Healthy, age 19
And I will keep on feeling better!

#15 killernj13

 
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Posted 19 November 2010 - 02:49 PM

Most of the gluten-free donuts I have seen are frozen. Couldn't you or your parents explain your situation to the church group. Maybe there is a freezer or fridge available in which you could store your gluten-free donuts and then bring them out prior to mass or nuke them so they would be avaiable for you to eat with your friends.
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