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Celiac And Reflux (Gerd)


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21 replies to this topic

#1 gifree

 
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Posted 12 October 2010 - 05:36 AM

Hello All -- So, I was diagnosed 5-months ago with Celiac disease. I immediately began a gluten free diet, with some unknowing hiccups, I'm sure. Anyhow, I was and am actually progressively getting worse in many ways on this diet: my stomach has become much more sensitive, peripheral neuropathy and greatly increased GERD...just to name a few symptoms; wondering if folks have any suggestions.

Some addt'l details that may help. Within the past few months I started to take Adderall for clear ADD symptoms. Although, interestingly, I have read that Celiac, because of the blood-brain barrier issue, can mimic AD(H)D in many ways. I discontinued the Adderall for 10-days, in the hope that the Reflux would abate, but to no avail. I then began taking Prevacid, increased the dosage and none of this has made a difference. The great changes of late have been dietary (including a food allergy panel that has indicated that I have a number of food sensitivities "1s", in addition to gluten), as well as the addition of supplements, all of which claim to be allergy free.

I've read that many have had the exact opposite response, with their reflux improving on a gluten free diet. I want to be one of those people.

Thoughts?
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#2 gfForLife

 
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Posted 12 October 2010 - 06:43 AM

I've read that many have had the exact opposite response, with their reflux improving on a gluten free diet. I want to be one of those people.

Thoughts?


Hi. I had really bad reflux for years. Cutting back on spicy,fatty, or fried foods did not help at all. When I went completely grain free with no fried foods for a while it completely cleared up. No problems even with spicy food or meat as long as there are not grains. Just being gluten free for me does significantly help but not eliminate the problem. I think all grains can be a problem so you may want to undertake an elimination diet and see if your symptoms clear and then start adding grains back in. Start w/ rice since that's least likely to cause problems. The other factor I think helps is eliminating vegetable oils like corn oil, soybean, etc. Just stick with olive oil and butter for cooking if you can. Hope this helps! Oh, and I can eat rice and sometimes corn now without problems as long as I keep them limited in my diet. I think my body just needed a break from these inflammatory, acidic foods :)
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#3 Emilushka

 
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Posted 12 October 2010 - 06:53 AM

My main symptoms were reflux and diarrhea. Both improved once I cut gluten and casein (dairy). I'm still working on healing the gastritis so I can hopefully get off my omeprazole for good.
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#4 cassP

 
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Posted 12 October 2010 - 09:41 AM

my reflux is still with me- but nothing like when i was on gluten- gluten was the WORST culprit in that- that acid would immediately start sizzling up after eating wheat & gluten....
past few days, ive noticed chocolate doing it a little, and this makes me incredibly sad :(

also- i would like to stress to you- that taking strong stuff like Prevacid, Prilosic, Aciphex, etc, etc... will in the long run CAUSE reflux because when you greatly reduce the amount of stomach acid in your stomach, and when you shut down those acid making mechanisms... your esophageal flap will probably weaken... plus you could become prone to H.Pylori and other stomach bugs that thrive in Low stomach acid conditions. unless you're in the middle of an ulcer, i would stress to never taking those drugs- because your stomach NEEDS all that stomach acid.

the trick is to changing the diet so that that esophageal flap will stay shut. if you're under a lot of distress- try to stick with just antacid tablets (gluten-free of course), pepto... and sleeping propped up. or google natural mixtures that maybe involve baking soda to counter the acid.

also, recently i read that melatonin (sleep aid) can help to strengthen that flap.

good luck with all the other stuff
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#5 Emilushka

 
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Posted 12 October 2010 - 10:02 AM

my reflux is still with me- but nothing like when i was on gluten- gluten was the WORST culprit in that- that acid would immediately start sizzling up after eating wheat & gluten....
past few days, ive noticed chocolate doing it a little, and this makes me incredibly sad :(

also- i would like to stress to you- that taking strong stuff like Prevacid, Prilosic, Aciphex, etc, etc... will in the long run CAUSE reflux because when you greatly reduce the amount of stomach acid in your stomach, and when you shut down those acid making mechanisms... your esophageal flap will probably weaken... plus you could become prone to H.Pylori and other stomach bugs that thrive in Low stomach acid conditions. unless you're in the middle of an ulcer, i would stress to never taking those drugs- because your stomach NEEDS all that stomach acid.

the trick is to changing the diet so that that esophageal flap will stay shut. if you're under a lot of distress- try to stick with just antacid tablets (gluten-free of course), pepto... and sleeping propped up. or google natural mixtures that maybe involve baking soda to counter the acid.

also, recently i read that melatonin (sleep aid) can help to strengthen that flap.

good luck with all the other stuff


Be aware that all of these possible problems depend on the source of the reflux. There actually is no flap at the top of the stomach. There's a sphincter - a muscular ring - that can relax and allow acid to splash up from the stomach to the esophagus. Depending on the reason why there is irritation (gastritis? Celiac irritation of the sphincter? Eating late at night? etc) there are various pros and cons to taking those anti-acid meds.

The antacid tablets should not be popped like candy, either. It's really a balance between needing to cut down on the acid to protect the stomach lining and needing to allow the stomach to have enough acid in it to act properly as a bacteria-killer and food-digester. H pylori are hardened criminals and produce their own acid neutralizing agents, so while reducing the acid in your stomach can help invite them in, they're perfectly good at getting there on their own. It doesn't make THAT much difference.

Propping yourself up in bed is useful, but you can't just prop your head. You need to prop up your entire torso and shoot for something like a 20-degree or even 45-degree angle. This is why sometimes people will resort to sleeping in recliners - your whole upper body is angled that way. Pillows alone tend to be insufficient support (and you can push them away once you're asleep).

It's best to use any drugs as a transition to allow your body to heal and not rely on them for the long term, but they are very helpful for protecting the stomach and allowing it to heal fully. Please don't underestimate their utility. For some of us, me included, the one thing that allows my stomach to not burn (despite being on a great diet) is the med. And I don't have an ulcer (scope was 08/30). I just have some major Celiac-induced gastritis and reflux for now.
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#6 cassP

 
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Posted 12 October 2010 - 12:05 PM

Be aware that all of these possible problems depend on the source of the reflux. There actually is no flap at the top of the stomach. There's a sphincter - a muscular ring - that can relax and allow acid to splash up from the stomach to the esophagus. Depending on the reason why there is irritation (gastritis? Celiac irritation of the sphincter? Eating late at night? etc) there are various pros and cons to taking those anti-acid meds.

The antacid tablets should not be popped like candy, either. It's really a balance between needing to cut down on the acid to protect the stomach lining and needing to allow the stomach to have enough acid in it to act properly as a bacteria-killer and food-digester. H pylori are hardened criminals and produce their own acid neutralizing agents, so while reducing the acid in your stomach can help invite them in, they're perfectly good at getting there on their own. It doesn't make THAT much difference.

Propping yourself up in bed is useful, but you can't just prop your head. You need to prop up your entire torso and shoot for something like a 20-degree or even 45-degree angle. This is why sometimes people will resort to sleeping in recliners - your whole upper body is angled that way. Pillows alone tend to be insufficient support (and you can push them away once you're asleep).

It's best to use any drugs as a transition to allow your body to heal and not rely on them for the long term, but they are very helpful for protecting the stomach and allowing it to heal fully. Please don't underestimate their utility. For some of us, me included, the one thing that allows my stomach to not burn (despite being on a great diet) is the med. And I don't have an ulcer (scope was 08/30). I just have some major Celiac-induced gastritis and reflux for now.

i took zantac every day for 4 years... ended up with Hypoclorhydia (shown in the Heidelberg capsule test).. AND H.Pylori AND digestion problems AND reflux AND Hiatal Hernia
i had to take Betaine HCI & Digestive Enzymes for ages... and much better now

i had an H.Pylori ulcer 6 months ago.. and cured it with GSE for 3 weeks. for the burning i relied on Pepto & antacid tablets... and only took the Zantac for a week at night. i will never take anything stronger than Zantac, nor for longer than a week or two again.
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#7 Emilushka

 
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Posted 12 October 2010 - 12:42 PM

i took zantac every day for 4 years... ended up with Hypoclorhydia (shown in the Heidelberg capsule test).. AND H.Pylori AND digestion problems AND reflux AND Hiatal Hernia
i had to take Betaine HCI & Digestive Enzymes for ages... and much better now

i had an H.Pylori ulcer 6 months ago.. and cured it with GSE for 3 weeks. for the burning i relied on Pepto & antacid tablets... and only took the Zantac for a week at night. i will never take anything stronger than Zantac, nor for longer than a week or two again.


Yeah ... Zantac every day for 4 years is not a good thing at all, although I hesitate to blame your hiatal hernia on the Zantac. But you're right - that's way too long. Zantac and other acid reducers are good for targeted healing help. They're not supposed to be taken for years and years. That sounds miserable.
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#8 gifree

 
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Posted 12 October 2010 - 05:49 PM

Yeah ... Zantac every day for 4 years is not a good thing at all, although I hesitate to blame your hiatal hernia on the Zantac. But you're right - that's way too long. Zantac and other acid reducers are good for targeted healing help. They're not supposed to be taken for years and years. That sounds miserable.


All good things to consider. Well, I'm off to a new GI Dr. in approximately 3-weeks, so hopefully he'll have some useful suggestions...in addition to educating myself on this forum.
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#9 quincy

 
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Posted 13 October 2010 - 10:39 AM

Hello All -- So, I was diagnosed 5-months ago with Celiac disease. I immediately began a gluten free diet, with some unknowing hiccups, I'm sure. Anyhow, I was and am actually progressively getting worse in many ways on this diet: my stomach has become much more sensitive, peripheral neuropathy and greatly increased GERD...just to name a few symptoms; wondering if folks have any suggestions.

Some addt'l details that may help. Within the past few months I started to take Adderall for clear ADD symptoms. Although, interestingly, I have read that Celiac, because of the blood-brain barrier issue, can mimic AD(H)D in many ways. I discontinued the Adderall for 10-days, in the hope that the Reflux would abate, but to no avail. I then began taking Prevacid, increased the dosage and none of this has made a difference. The great changes of late have been dietary (including a food allergy panel that has indicated that I have a number of food sensitivities "1s", in addition to gluten), as well as the addition of supplements, all of which claim to be allergy free.

I've read that many have had the exact opposite response, with their reflux improving on a gluten free diet. I want to be one of those people.

Thoughts?


reflux is what drove me to the doctor in the first place along with the burning sensation that never went away. turns out I had gerd, hiatal hernia, and gastritis, duodenitis and voila, Celiac. After being on omeprazole (prilosec) for several years, I am no longer taking anything for acid reflux except an occasional tums. Seems like the gluten containing foods were causing havoc with my whole digestive tract.

so yes, it is possible to be antacid reflux free after only 5 months! it will take some time though. if you have been on an antacid for a long time you have to slowly ween yourself off by slowly lowering the amount or dosage you take over time. you will get the whiplash effect if you stop suddenly, meaning your stomach will produce more acid if you go cold turkey...
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#10 Lisa

 
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Posted 13 October 2010 - 10:48 AM

reflux is what drove me to the doctor in the first place along with the burning sensation that never went away. turns out I had gerd, hiatal hernia, and gastritis, duodenitis and voila, Celiac. After being on omeprazole (prilosec) for several years, I am no longer taking anything for acid reflux except an occasional tums. Seems like the gluten containing foods were causing havoc with my whole digestive tract.

so yes, it is possible to be antacid reflux free after only 5 months! it will take some time though. if you have been on an antacid for a long time you have to slowly ween yourself off by slowly lowering the amount or dosage you take over time. you will get the whiplash effect if you stop suddenly, meaning your stomach will produce more acid if you go cold turkey...


Adding a little footnote here: All Tums are gluten free EXCEPT Tums Smoothies. B)
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#11 Emilushka

 
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Posted 13 October 2010 - 12:11 PM

All good things to consider. Well, I'm off to a new GI Dr. in approximately 3-weeks, so hopefully he'll have some useful suggestions...in addition to educating myself on this forum.


Good luck! Keep reading up on things and figuring out what works and doesn't work for you - this is a process. I hope your process is reasonably smooth ...

reflux is what drove me to the doctor in the first place along with the burning sensation that never went away. turns out I had gerd, hiatal hernia, and gastritis, duodenitis and voila, Celiac. After being on omeprazole (prilosec) for several years, I am no longer taking anything for acid reflux except an occasional tums. Seems like the gluten containing foods were causing havoc with my whole digestive tract.

so yes, it is possible to be antacid reflux free after only 5 months! it will take some time though. if you have been on an antacid for a long time you have to slowly ween yourself off by slowly lowering the amount or dosage you take over time. you will get the whiplash effect if you stop suddenly, meaning your stomach will produce more acid if you go cold turkey...


The cold turkey thing is a great point. Also, my GERD and gastritis are very much Celiac-related. I kept having breakthrough symptoms despite meds and more meds and Tums. Now, with the gluten- and casein-free diet, I have no reflux to speak of. I'm still on my omeprazole (looking to start weaning myself off that once I've settled into the diet because I want my stomach to heal) but I totally hear you. I will wean. Thanks for the reminder!

Adding a little footnote here: All Tums are gluten free EXCEPT Tums Smoothies. B)


AND THANK GOODNESS FOR THAT.
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#12 sfsassy

 
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Posted 14 October 2010 - 08:35 AM

I am in the exact same boat as you. I am newly gluten free and about 3 months in I started to get very painful GERD (more indigestion than anything). Saw my Dr and it turns out I was having issues with CC! I thought for sure i was being careful, but I was new to it all. My culprit was gluten free items made on shared equipment.

I just did not think I was THAT sensitive, but I am. I am on of these people. haha. Live and learn.
She also told me it takes months to heal overall.

But some other tips to help with the reflux are no caffeine, spicy or fried foods and eating slowly. That will help a bit too. Esp if you issue is not CC.

Good luck!
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#13 tarnalberry

 
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Posted 14 October 2010 - 10:08 AM

There are a number of foods and supplements that can contribute to reflux. What does your diet look like?
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#14 realmaverick

 
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Posted 14 October 2010 - 02:15 PM

Forgive me for not reading the responses, I'm working in the background. I may well be repeating what somebody has already said.

Celiacs often accompanies other intolerance's. Lets say for example you're lactose intolerant but don't realise it. You suddenly went gluten free, but as a result drank much more milk to substitute other drinks that you now can't drink. This in turn creates symptoms of it's own and you're left feeling worse. Obviously this is only an example but hopefully you'll see what I'm getting at.

It might be worth going on an elimination diet at this point. Figure out what you can and cannot tolerate.

Many people automatically assume they're accidentally getting small amounts of gluten but in fact it's another intolerance causing the ongoing issues.
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#15 gifree

 
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Posted 24 October 2010 - 08:43 PM

I am in the exact same boat as you. I am newly gluten free and about 3 months in I started to get very painful GERD (more indigestion than anything). Saw my Dr and it turns out I was having issues with CC! I thought for sure i was being careful, but I was new to it all. My culprit was gluten free items made on shared equipment.

I just did not think I was THAT sensitive, but I am. I am on of these people. haha. Live and learn.
She also told me it takes months to heal overall.

But some other tips to help with the reflux are no caffeine, spicy or fried foods and eating slowly. That will help a bit too. Esp if you issue is not CC.

Good luck!


Hi -- my diet is reasonably simple at the moment. I mostly eat fruits, vegetables, nuts and poultry/meat. I do take supplements and one medication, all of which claim to be allergen-free. As for the secondary sensitivities, I've gotten mixed feedback on when and if those foods can (re) introduced into my diet.
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