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Biopsy

OHtummytroubles

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OHtummytroubles Rookie
OHtummytroubles
Posted

Well I broke down and scheduled a confirmatory EGD for 11/19. Any suggestions for what I need to do as far as amount of gluten to consume daily before then? It really does make me feel terrible - sometimes unbearable, but I want confirmation. Even if the EGD is negative I will have peace of mind that nothing is wrong internally with me. They will re-draw a Celiac panel and vitamin levels that day as well, so I want to be sure that I am doing whatever prep work I need to with the challenge.

So far today I had a baked potato w/cheese and a plain grilled chicken w/no bun. Skipped breakfast and will have something for dinner. I know this is not enough or even any gluten at all, so I need to know how much I need to consume to know for sure if I react to gluten or not. Is it 1-2 gluten items a day, 3-4...etc.

I really do not know how I will do it considering it gives me such problems :( I had two "butter cookies" in a little tin yesterday and was in pain all evening. It really didn't digest. Woke up in pain today still....and had to pop some tums to feel a little better. It's going to be a long month. I am seeing a"Dr. Kirby" for the EGD who works with my doctor at the Cleveland Clinic. From what I read he is knowledgeable, so I can at least rest assured that he will be thorough. He has done many Celiac studies and what have you :)

Thanks!

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ravenwoodglass Mentor
ravenwoodglass
Posted

You need to consume 3 to 4 slices of bread a day or the equivalent in other gluten foods at a minimum. Do be aware that even with a full month back on gluten your tests can still be a false negative. If you have been gluten free and react strongly to the challenge that is pretty diagnostic in itself.

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