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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Glutened Followed By Massive Fatigue When Eating Anything.
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8 posts in this topic

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.

Now, it seems when I get glutened that something is happening on top of the normal symptoms (i.e. bloating/diarrhea). When I eat something I'm not suppose to, for several days following whenever I eat anything whatsoever, the more complicated and harder to digest the worse it is, I lose absolutely all of my energy and it literally puts me out.

The best way to explain this is what happened to me yesterday. I ate some boudin that I strongly suspect had gluten in it wednesday, and got sick. Yesterday, woke up after sleeping for 8 hours and ate some safe Italian Pork Sausage. Within an hour, I literally fell on the couch and slept for another 5 hours. I woke up and ate some more because I was hungry. For the next 5+ hours, I was like a zombie. I literally struggled to walk or even pick up items that weighed less a couple pounds, and I'm a 24 year old male in pretty good shape. When I'm good, I can run/lift weights but here I was struggling to pick up something that was 2-3 lbs. That is the best I can illustrate how drained I was.

Today, I ate some garlic (gluten free) bread and had the same reaction. Massive sleepiness accompanied by extreme fatigue. It lasts as long as it takes for me to digest the foods, then I slowly regain some energy...

Now, I'm guessing when I get glutened it's injuring my intestines and when I eat something afterwards, it's getting into my blood stream? That or my body is coping to get the food digested through my injured intestines? I don't know.

Please tell me there's someone else out there that goes through this, or is there anything I can do for it? Any foods that are safe and won't do this to me after I get glutened?

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I get a lot of fatigue as one of my main symptoms, too. But I'm really new to this and I don't know of anything aside from time and plain rice and sips of water that will help make this better for you. When I feel bad, I don't want to eat. So I don't eat. I wait until I feel better and then I eat something I know is gluten-free and dairy-free.

But I totally hear you on the exhaustion thing. I get so tired ... it's really ridiculous. Like my mind is in a fog.

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I get a lot of fatigue as one of my main symptoms, too. But I'm really new to this and I don't know of anything aside from time and plain rice and sips of water that will help make this better for you. When I feel bad, I don't want to eat. So I don't eat. I wait until I feel better and then I eat something I know is gluten-free and dairy-free.

But I totally hear you on the exhaustion thing. I get so tired ... it's really ridiculous. Like my mind is in a fog.

I was thinking that I could have reactive hypoglycemia, because I get very hungry while I'm fatigued, but my blood glucose levels have always been in the normal range.

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I never really made the connection until I read your post, but I have the same reaction. For me I mainly have neurological symptoms, so headache, brain fog, clumsy, etc, basically what you said about fatigue, I feel like a 24 year old grandmother! But after I have made a mistake and get glutened, I spend days feeling the effects. After reading your post I finally made the connection that I typically feel ok when I get up and the symptoms come back after I eat, even though its completely gluten-free. Sorry I'm not really offering any advice, but thank you for your post. I don't know how long it would have taken me to realize the connection.

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I definitely have had that reaction before. And varying degrees of that reaction depending on amt of gluten I've consumed.

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Thanks for this post!!

I couldn't figure out why I felt so tired after I ate lunch today. I'm pretty sure that there was no danger of cc and I didn't feel my stomach cramp (the usual sign that I've been glutened). It must have been from the accidental glutening that I had 4 days ago. My extreme C is finally gone today, but maybe it takes a few more days for my pancreas to recover. Interesting.

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This is brilliant. Thank you SO MUCH for posting this. I get the very same reaction. It's weird...I didn't think anyone else had it. After a glutening, for about three days (usually worst on the first and second day) I am tired after any meal. Interesting.

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.(snip)

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I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.

Now, it seems when I get glutened that something is happening on top of the normal symptoms (i.e. bloating/diarrhea). When I eat something I'm not suppose to, for several days following whenever I eat anything whatsoever, the more complicated and harder to digest the worse it is, I lose absolutely all of my energy and it literally puts me out.

The best way to explain this is what happened to me yesterday. I ate some boudin that I strongly suspect had gluten in it wednesday, and got sick. Yesterday, woke up after sleeping for 8 hours and ate some safe Italian Pork Sausage. Within an hour, I literally fell on the couch and slept for another 5 hours. I woke up and ate some more because I was hungry. For the next 5+ hours, I was like a zombie. I literally struggled to walk or even pick up items that weighed less a couple pounds, and I'm a 24 year old male in pretty good shape. When I'm good, I can run/lift weights but here I was struggling to pick up something that was 2-3 lbs. That is the best I can illustrate how drained I was.

Today, I ate some garlic (gluten free) bread and had the same reaction. Massive sleepiness accompanied by extreme fatigue. It lasts as long as it takes for me to digest the foods, then I slowly regain some energy...

Now, I'm guessing when I get glutened it's injuring my intestines and when I eat something afterwards, it's getting into my blood stream? That or my body is coping to get the food digested through my injured intestines? I don't know.

Please tell me there's someone else out there that goes through this, or is there anything I can do for it? Any foods that are safe and won't do this to me after I get glutened?

It takes me days to get over being glutened. I have bloating and constipation for days after and my mood swings like wind chimes in a hurricane! Thought it was just in my head, but doesn't sound like it now. Thanks for making me feel normal!

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