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Glutened Followed By Massive Fatigue When Eating Anything.


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#1 CNV2855

 
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Posted 16 October 2010 - 03:46 PM

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.

Now, it seems when I get glutened that something is happening on top of the normal symptoms (i.e. bloating/diarrhea). When I eat something I'm not suppose to, for several days following whenever I eat anything whatsoever, the more complicated and harder to digest the worse it is, I lose absolutely all of my energy and it literally puts me out.

The best way to explain this is what happened to me yesterday. I ate some boudin that I strongly suspect had gluten in it wednesday, and got sick. Yesterday, woke up after sleeping for 8 hours and ate some safe Italian Pork Sausage. Within an hour, I literally fell on the couch and slept for another 5 hours. I woke up and ate some more because I was hungry. For the next 5+ hours, I was like a zombie. I literally struggled to walk or even pick up items that weighed less a couple pounds, and I'm a 24 year old male in pretty good shape. When I'm good, I can run/lift weights but here I was struggling to pick up something that was 2-3 lbs. That is the best I can illustrate how drained I was.

Today, I ate some garlic (gluten free) bread and had the same reaction. Massive sleepiness accompanied by extreme fatigue. It lasts as long as it takes for me to digest the foods, then I slowly regain some energy...

Now, I'm guessing when I get glutened it's injuring my intestines and when I eat something afterwards, it's getting into my blood stream? That or my body is coping to get the food digested through my injured intestines? I don't know.

Please tell me there's someone else out there that goes through this, or is there anything I can do for it? Any foods that are safe and won't do this to me after I get glutened?
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#2 Emilushka

 
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Posted 16 October 2010 - 05:19 PM

I get a lot of fatigue as one of my main symptoms, too. But I'm really new to this and I don't know of anything aside from time and plain rice and sips of water that will help make this better for you. When I feel bad, I don't want to eat. So I don't eat. I wait until I feel better and then I eat something I know is gluten-free and dairy-free.

But I totally hear you on the exhaustion thing. I get so tired ... it's really ridiculous. Like my mind is in a fog.
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#3 CNV2855

 
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Posted 16 October 2010 - 05:51 PM

I get a lot of fatigue as one of my main symptoms, too. But I'm really new to this and I don't know of anything aside from time and plain rice and sips of water that will help make this better for you. When I feel bad, I don't want to eat. So I don't eat. I wait until I feel better and then I eat something I know is gluten-free and dairy-free.

But I totally hear you on the exhaustion thing. I get so tired ... it's really ridiculous. Like my mind is in a fog.


I was thinking that I could have reactive hypoglycemia, because I get very hungry while I'm fatigued, but my blood glucose levels have always been in the normal range.
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#4 Kategrad7

 
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Posted 17 October 2010 - 05:55 AM

I never really made the connection until I read your post, but I have the same reaction. For me I mainly have neurological symptoms, so headache, brain fog, clumsy, etc, basically what you said about fatigue, I feel like a 24 year old grandmother! But after I have made a mistake and get glutened, I spend days feeling the effects. After reading your post I finally made the connection that I typically feel ok when I get up and the symptoms come back after I eat, even though its completely gluten-free. Sorry I'm not really offering any advice, but thank you for your post. I don't know how long it would have taken me to realize the connection.
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#5 srall

 
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Posted 17 October 2010 - 07:12 AM

I definitely have had that reaction before. And varying degrees of that reaction depending on amt of gluten I've consumed.
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#6 rustycat

 
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Posted 17 October 2010 - 03:22 PM

Thanks for this post!!

I couldn't figure out why I felt so tired after I ate lunch today. I'm pretty sure that there was no danger of cc and I didn't feel my stomach cramp (the usual sign that I've been glutened). It must have been from the accidental glutening that I had 4 days ago. My extreme C is finally gone today, but maybe it takes a few more days for my pancreas to recover. Interesting.
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Rickets (severe Vitamin D deficiency) shortly after birth
First trip to Dr with severe C, age 7
Infertility, multiple miscarriages, eventually adopted 2 boys (not related)
2010: Negative celiac blood test, but staying on gluten free diet due to vast improvement in all symptoms
2011: June - started low salicylate diet to improve rosacea - it worked really well!
2012: May - started Paleo way of eating. Emotions and blood sugar seem to have evened out. Brain fog vanished.

2013: May - after 4 month elimination diet, was able to add back dairy, but nightshades are gone for good (my arthritis is gone, too!!!)


#7 WestCoastGirl

 
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Posted 18 October 2010 - 11:38 AM

This is brilliant. Thank you SO MUCH for posting this. I get the very same reaction. It's weird...I didn't think anyone else had it. After a glutening, for about three days (usually worst on the first and second day) I am tired after any meal. Interesting.

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.(snip)


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- Determined gluten and dairy sensitivities via elimination diet
- DXd Hypothyroid December 2008 (Levothyroxine)
- Ongoing Vitamin D deficiency (rassessed every 3 months), DXd January 2010 (supplements)
- Gluten symptoms: mainly neurological, but some gastrointestinal (brain fog, depression, clumsiness, fatigue, D, bloating, DH)

~Getting my life back!~


#8 Bella001

 
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Posted 18 October 2010 - 06:28 PM

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.

Now, it seems when I get glutened that something is happening on top of the normal symptoms (i.e. bloating/diarrhea). When I eat something I'm not suppose to, for several days following whenever I eat anything whatsoever, the more complicated and harder to digest the worse it is, I lose absolutely all of my energy and it literally puts me out.

The best way to explain this is what happened to me yesterday. I ate some boudin that I strongly suspect had gluten in it wednesday, and got sick. Yesterday, woke up after sleeping for 8 hours and ate some safe Italian Pork Sausage. Within an hour, I literally fell on the couch and slept for another 5 hours. I woke up and ate some more because I was hungry. For the next 5+ hours, I was like a zombie. I literally struggled to walk or even pick up items that weighed less a couple pounds, and I'm a 24 year old male in pretty good shape. When I'm good, I can run/lift weights but here I was struggling to pick up something that was 2-3 lbs. That is the best I can illustrate how drained I was.

Today, I ate some garlic (gluten free) bread and had the same reaction. Massive sleepiness accompanied by extreme fatigue. It lasts as long as it takes for me to digest the foods, then I slowly regain some energy...

Now, I'm guessing when I get glutened it's injuring my intestines and when I eat something afterwards, it's getting into my blood stream? That or my body is coping to get the food digested through my injured intestines? I don't know.

Please tell me there's someone else out there that goes through this, or is there anything I can do for it? Any foods that are safe and won't do this to me after I get glutened?


It takes me days to get over being glutened. I have bloating and constipation for days after and my mood swings like wind chimes in a hurricane! Thought it was just in my head, but doesn't sound like it now. Thanks for making me feel normal!
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