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Recurring Shingles


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#16 Gemini

 
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Posted 29 October 2010 - 08:41 AM

:( I am new to this forum so please bear with me...I saw the other shingle post but I wondered how many people with celiac-disease have gotten shingles more than once, and at an unusual age (under 50)? I am on my third break-out at 36. My doctor was completely disinterested in the fact that I have celiac-disease and that I thought it could very well relate to my shingle out-breaks....nonetheless he threw an HIV test at me, which I am annoyed and upset about because I have been faithfully married for 15 years, besides having those tests done during my pregnancies by routine. All were negative. Nonetheless, that was his only answer for me...I am so upset, so I was wondering how many others with celiac-disease have suffered multiple recurrences of shingles...the Dr is making me feel crazy...thanks in advance...


It sounds like you have shingles and not DH as shingles will definitely be on one side only. I had one bout of shingles last year, which has not recurred. Shingles generally only happens when you become run down or the immune system is compromised...which Celiac Disease is not. However, Celiac Disease can cause you to become run down and then you could pop with shingles.

A couple of things.....my bout was caused by my thyroid going hypo again for about 6 months. I had a shift and was hyper-thyroid and then swung low, which in turn caused me to become slightly anemic. Hypo-thyroid will cause anemia. That's when I popped with shingles. It took me about 6 months to regain control of my thyroid, with a different thyroid hormone. I am no longer anemic, either.

Pregnancy will also suppress your immune system and that's why so many expectant mothers develop shingles. It is NOT unusual anymore for younger people to develop shingles. Stress, being run down....you name it, if it suppresses your immune system, shingles can occur. I was 50 years old when I had my first, and hopefully, last bout.

You may want to consider getting the vaccine for it because of the number of outbreaks. Otherwise, get tested to see if you are anemic. Having Celiac can make a person prone to anemia....just because you follow the gluten-free diet doesn't mean you
won't run into small problems now and again. That could explain the on-going outbreaks. They usually do not give the vaccine to younger people (under 62) but if you keep having the problem and no direct cause can be found, I would consider it myself.

Doctors are a pain in the butt, at times, and I limit my exposure to them. :P They are often clueless about autoimmune issues and do not generally think outside the box. I take responsibility for my health issues and do my own thing and it has never failed me. My PCP never looked into why I popped with shingles because they just don't. It took my homeopathic, thyroid physician to figure it out, along with my input on what was going on.
I am careful now about becoming anemic again and so far, so good. Hope you feel better because shingles totally blows. I wasn't in a lot of pain like some but the nerve issues were annoying to no end.
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#17 erinecox

 
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Posted 06 March 2011 - 08:44 PM

I know this post is a few months old, but I did want to jump in and second the recurrent shingles with Celiac. I was dx'd with celiac disease 3 years ago. Within the first year of my dx, I had shingles twice... on my face... on each side. It was definitely shingles and not DH. I am googling and ran across this post because I am sitting here, quite confident that I've developed shingles on my left side. My entire side is burning, searing and aching with a few bumps popping up. The pain is identical to the bumps and sensation I had on my face... just x10. I've been beyond super stressed out for several months b/c of financial problems and have not stuck to my diet like I should, therefore I'm certain my imuune system is super depressed right now. On top of all that, I don't have health insurance right now so this is going to suck really really bad. I'm pretty sure I don't have anymore neurontin or zovarx :-(

boohiss... someone needs to do a study on herpes zoster and celiac apparently.

Erin
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Erin
Mom to Kali (peanut allergy) & Isabella (egg allergy)
Wife to Danny (allergic to anything and everything in the air)
DX'd Celiac via blood test 8/08
Symtpoms: arthritis, widespread bone pain and inflammation, multiple miscarriages, iron deficiency anemia, brain fog, poor memory, neurological effects, SAD
DX'd PreDiabetic 7/11

#18 Lady Sky

 
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Posted 17 August 2011 - 04:46 PM

I know this post is an old one but I have reoccurring shingles and have had them since 1989. I have had the first doctor shame me for having "herpes" on my arm. I have been faithful to my husband so I was horrified when he misdiagnosed me with that STD on my arm no less.
Another doctor said it was "shingles" and gave me the standard medicine for it. The medicine does not work. The lotion does, not the pill. I have "shingles" now on my palms of my hands as it has traveled. The last year I was diagnosed with Celiac Disease, which for me is a very bad autoimmune disease. If I eat any...breathe any..or get any Gluten on me in me or anywhere near me, My immune system "crashes" and I get an out break of "shingles" which now I am learning are not related to the Herpes Zoster Shingles but my body sending me a signal that my small intestines have had enough and I have been accidentally contaminated.

Hope this helps you....

Sky :)
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#19 dropwiser

 
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Posted 30 November 2011 - 01:30 PM

My Wife has Celiac and has been on a strict diet for years now. She has had skin problems and shingles at least twice (confirmed by culture both times we are sure about). Dr called her a picker and gave her antidepressants. Finally went to a dermatologist that specializes partly in DH and celiac, and he did several tests, confirmed she DID NOT have DH, and that her skin issue was actually foliculitus. She went back last week and tested positive for shingles for the 2nd time. So don't let these people make you believe it's just DH, and ignore you because you have Celiac. More to come. I'm sure my wife will have a field day when she finds that I registered at this site. I just had the same question as the person that started this post, and was fairly frustrated by the answers which my wife has proven to be incorrect with her. Just our 2 cents.
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#20 Gemini

 
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Posted 01 December 2011 - 01:35 PM

My Wife has Celiac and has been on a strict diet for years now. She has had skin problems and shingles at least twice (confirmed by culture both times we are sure about). Dr called her a picker and gave her antidepressants. Finally went to a dermatologist that specializes partly in DH and celiac, and he did several tests, confirmed she DID NOT have DH, and that her skin issue was actually foliculitus. She went back last week and tested positive for shingles for the 2nd time. So don't let these people make you believe it's just DH, and ignore you because you have Celiac. More to come. I'm sure my wife will have a field day when she finds that I registered at this site. I just had the same question as the person that started this post, and was fairly frustrated by the answers which my wife has proven to be incorrect with her. Just our 2 cents.


I am sorry to hear about your wife's suffering...shingles is no fun. I would highly recommend taking the antiviral Acyclovir for it as it helps cut way down on the length of time the outbreak occurs. However, you have to begin the antiviral within 72 hours of first break-out or it doesn't work that well. Also, use the straight up Acyclovir as it is an older anti-viral and much cheaper than the newer ones like Valtrex..... the newer ones are extremely expensive. You have to take Acyclovir 5 times per day but for the difference in cost, it was worth the effort.

You do not need a culture for shingles....any first year med student can diagnose shingles as it only ever appears on one side of your body. I knew what I had immediately and it was my first outbreak. The doctor took one look at the rash I had and confirmed MY diagnosis! She was a great doctor. I took the anti-viral immediately and it made the outbreak MUCH less painful and shorter in duration. I hope she doesn't have another outbreak!
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#21 Maria Russell

 
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Posted 31 March 2012 - 12:09 PM

Please bear with me, I started having this big painful rash in my back. My sister at that time had been diagnose with shingles in 1993. She was working in Chicago with a Dr.that studied shingles. I did not go to the dr. right away, so when I went the dr. said it wasn't shingles. It was so pain and it seem like little needles were sticking in my skin. Thru out the years, I have seen so many dr. with other ailments but the rash by then had spread to my scalp and my neck and the my ears. Then POW! it hit my back and then my waist and stomach. Wierd, I keep telling myself, all this rash is in my left side only. In 2010 I was diagnose with having the celiac anitibody and RA. Then my rash really went haywire. My quality of life when to -O-. I did go gluten free, and I notice that the rash did went to mild. I have genital herpes since 1978,wonder if thathad something to do with that. The Dr. said NO!,I had a prolapse colon and incontince repair in 2010, the first work for the incontinece. SO, I opt for the PC, nerve stumilation for my bladder. Then, after three weeks of that procudure, I have gone from worse to, I NEED HELP!!! I have been prescribe Presidone for RA, so that helps. I know there is nothing to take care of my problems with shingles, but maybe this might help other people with the same problem.I have read your blogs and there is nobody with a problem like mine. Thanks,
Maria
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