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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Support Groups In Or Near Mid-missouri - Celiac.com Celiac Disease & Gluten-Free Diet Forum

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#1 User is offline   Claudette 

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Posted 06 March 2004 - 05:58 PM

Hi,
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way.

Does anyone know of contact people or support groups elsewhere in mid Missouri. I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this. My adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief. So we have each other to bounce ideas off of, but another person or two would be nice.

Claudette
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#2 User is offline   gf4life 

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Posted 06 March 2004 - 06:09 PM

Hi Claudette,

I got this list from Enabling.org . I don't know if it is still current, but their is a group in Columbia, at least there was a few years ago. I would assume that means there are other Celiacs there in your area. I hope you are able to get together with some others. It sure can feel like we are alone in this sometimes.

God bless,
Mariann :)

Missouri Contacts

Group: Branson
City: Branson

Contacts:
Barbara Hicks
417-739-2703
Internet:
Barbara Hicks honedu@mchsi.com
Updated: 15 Mar 2003

Resource Unit
City: Cape Girardeau

Contacts:
Jeanette Kraleman
Rt 4, Box 111U
Jackson, MO 63755
314-243-6884
Updated: 1 Jan 1995

Resource Unit
City: Columbia

Contacts:
Karen Smith
573-446-1395
Internet:
Karen Smith, ksmith01@mail.coin.missouri.edu
Updated: 6 Jul 1998

Resource Unit
City: Farmington

Contacts:
Helen Hauschild
700 E. College St., #9-B
Farmington, MO 63640
573-756-4438
Updated: 10 Mar 2001

Resource Unit
City: Kansas City

Contacts:
Elanor R. Aadams
135 N. Missouri
Liberty, MO 64068
816-781-6514
Updated: 1 Jan 1995

Resource Unit
City: Kansas City

Contacts:
Renee C. Hewitt
629 West 61st Terrace
Kansas City, MO 64113
Internet:
Renee C. Hewitt, RCHEWITT1@aol.com
Updated: 22 Feb 1998

Resource Unit
City: Lebanon

Contacts:
Dan Wooley
32550 Highway O
Falcon, MO 65470
417-926-3473
427-668-5550
Internet:
Dan Wooley, dwooley@windo.missouri.org
Updated: 16 Apr 1998

Group: St. Louis Celiacs
City: St. Louis

Contacts:
Sharon Biondo
1323 Remington Oaks Terrace
Fenton, MO 63026
636-225-3947
Ray Hutchison
528 Blazedwood
Ballwin, MO 63021
314-227-6479
Barbara Ferrenbach
100 Orchard Ave.
Webster Groves, MO 63119
314-962-7440
Barb Berger
1777 Heffington
Chesterfield, MO 63017
314-532-3075
Internet:
Steve Zenisek, Z1950@aol.com
Bill Vellios Sr., billvell@SWBELL.NET
Linda Ritter, n.l.ritter@WORLDNET.ATT.NET
Updated: 1 Apr 2003
~West Coast-Central California~

Mariann, gluten intolerant and mother of 3 gluten intolerant children
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#3 User is offline   capawa 

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Posted 25 April 2004 - 05:40 PM

I didn't know there was a support group in St. Louis. Would you refer me to the web site or address please. :D OOPS! Never mind, I just saw the address for the one in Fenton, Mo. Thanks anyway.
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#4 User is offline   lkirchho 

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Posted 26 September 2005 - 08:43 AM

Claudette, on Mar 6 2004, 11:28 PM, said:

Hi,
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way. 

Does anyone know of contact people or support groups elsewhere in mid Missouri.  I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this.  My  adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief.  So we have each other to bounce ideas off of, but another person or two would be nice.

Claudette
<{POST_SNAPBACK}>

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#5 User is offline   Beth Jacobs 

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Posted 12 February 2007 - 10:36 AM

View PostClaudette, on Mar 6 2004, 09:58 PM, said:

Hi,
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way.

Does anyone know of contact people or support groups elsewhere in mid Missouri. I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this. My adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief. So we have each other to bounce ideas off of, but another person or two would be nice.

Claudette

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#6 User is offline   Beth Jacobs 

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Posted 12 February 2007 - 10:52 AM

There is a relatively new group formed in COLUMBIA, MO. Contact Beth at vejacobs@centurytel.net

Our next meeting is February 24, 2007.
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#7 User is offline   Angels~Exist 

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Posted 15 July 2009 - 08:14 AM

I live in mid-west mo. (Carl Junction) I don't know anyone else around here with celiacs so there probably wouldn't be a support group that isn't hours away. :rolleyes:
JoJo
Diagnosed May 26, 2009
Live Love Laugh
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