Hi,
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way.
Does anyone know of contact people or support groups elsewhere in mid Missouri. I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this. My adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief. So we have each other to bounce ideas off of, but another person or two would be nice.
Claudette
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Support Groups In Or Near Mid-missouri
#2
Posted 06 March 2004 - 06:09 PM
Hi Claudette,
I got this list from Enabling.org . I don't know if it is still current, but their is a group in Columbia, at least there was a few years ago. I would assume that means there are other Celiacs there in your area. I hope you are able to get together with some others. It sure can feel like we are alone in this sometimes.
God bless,
Mariann
Missouri Contacts
Group: Branson
City: Branson
Contacts:
Barbara Hicks
417-739-2703
Internet:
Barbara Hicks honedu@mchsi.com
Updated: 15 Mar 2003
Resource Unit
City: Cape Girardeau
Contacts:
Jeanette Kraleman
Rt 4, Box 111U
Jackson, MO 63755
314-243-6884
Updated: 1 Jan 1995
Resource Unit
City: Columbia
Contacts:
Karen Smith
573-446-1395
Internet:
Karen Smith, ksmith01@mail.coin.missouri.edu
Updated: 6 Jul 1998
Resource Unit
City: Farmington
Contacts:
Helen Hauschild
700 E. College St., #9-B
Farmington, MO 63640
573-756-4438
Updated: 10 Mar 2001
Resource Unit
City: Kansas City
Contacts:
Elanor R. Aadams
135 N. Missouri
Liberty, MO 64068
816-781-6514
Updated: 1 Jan 1995
Resource Unit
City: Kansas City
Contacts:
Renee C. Hewitt
629 West 61st Terrace
Kansas City, MO 64113
Internet:
Renee C. Hewitt, RCHEWITT1@aol.com
Updated: 22 Feb 1998
Resource Unit
City: Lebanon
Contacts:
Dan Wooley
32550 Highway O
Falcon, MO 65470
417-926-3473
427-668-5550
Internet:
Dan Wooley, dwooley@windo.missouri.org
Updated: 16 Apr 1998
Group: St. Louis Celiacs
City: St. Louis
Contacts:
Sharon Biondo
1323 Remington Oaks Terrace
Fenton, MO 63026
636-225-3947
Ray Hutchison
528 Blazedwood
Ballwin, MO 63021
314-227-6479
Barbara Ferrenbach
100 Orchard Ave.
Webster Groves, MO 63119
314-962-7440
Barb Berger
1777 Heffington
Chesterfield, MO 63017
314-532-3075
Internet:
Steve Zenisek, Z1950@aol.com
Bill Vellios Sr., billvell@SWBELL.NET
Linda Ritter, n.l.ritter@WORLDNET.ATT.NET
Updated: 1 Apr 2003
I got this list from Enabling.org . I don't know if it is still current, but their is a group in Columbia, at least there was a few years ago. I would assume that means there are other Celiacs there in your area. I hope you are able to get together with some others. It sure can feel like we are alone in this sometimes.
God bless,
Mariann
Missouri Contacts
Group: Branson
City: Branson
Contacts:
Barbara Hicks
417-739-2703
Internet:
Barbara Hicks honedu@mchsi.com
Updated: 15 Mar 2003
Resource Unit
City: Cape Girardeau
Contacts:
Jeanette Kraleman
Rt 4, Box 111U
Jackson, MO 63755
314-243-6884
Updated: 1 Jan 1995
Resource Unit
City: Columbia
Contacts:
Karen Smith
573-446-1395
Internet:
Karen Smith, ksmith01@mail.coin.missouri.edu
Updated: 6 Jul 1998
Resource Unit
City: Farmington
Contacts:
Helen Hauschild
700 E. College St., #9-B
Farmington, MO 63640
573-756-4438
Updated: 10 Mar 2001
Resource Unit
City: Kansas City
Contacts:
Elanor R. Aadams
135 N. Missouri
Liberty, MO 64068
816-781-6514
Updated: 1 Jan 1995
Resource Unit
City: Kansas City
Contacts:
Renee C. Hewitt
629 West 61st Terrace
Kansas City, MO 64113
Internet:
Renee C. Hewitt, RCHEWITT1@aol.com
Updated: 22 Feb 1998
Resource Unit
City: Lebanon
Contacts:
Dan Wooley
32550 Highway O
Falcon, MO 65470
417-926-3473
427-668-5550
Internet:
Dan Wooley, dwooley@windo.missouri.org
Updated: 16 Apr 1998
Group: St. Louis Celiacs
City: St. Louis
Contacts:
Sharon Biondo
1323 Remington Oaks Terrace
Fenton, MO 63026
636-225-3947
Ray Hutchison
528 Blazedwood
Ballwin, MO 63021
314-227-6479
Barbara Ferrenbach
100 Orchard Ave.
Webster Groves, MO 63119
314-962-7440
Barb Berger
1777 Heffington
Chesterfield, MO 63017
314-532-3075
Internet:
Steve Zenisek, Z1950@aol.com
Bill Vellios Sr., billvell@SWBELL.NET
Linda Ritter, n.l.ritter@WORLDNET.ATT.NET
Updated: 1 Apr 2003
~West Coast-Central California~
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Mariann, gluten intolerant and mother of 3 gluten intolerant children
#3
Posted 25 April 2004 - 05:40 PM
I didn't know there was a support group in St. Louis. Would you refer me to the web site or address please.
OOPS! Never mind, I just saw the address for the one in Fenton, Mo. Thanks anyway.
#4
Posted 26 September 2005 - 08:43 AM
Claudette, on Mar 6 2004, 11:28 PM, said:
Hi,
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way.
Does anyone know of contact people or support groups elsewhere in mid Missouri. I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this. My adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief. So we have each other to bounce ideas off of, but another person or two would be nice.
Claudette
<{POST_SNAPBACK}>
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way.
Does anyone know of contact people or support groups elsewhere in mid Missouri. I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this. My adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief. So we have each other to bounce ideas off of, but another person or two would be nice.
Claudette
<{POST_SNAPBACK}>
#5
Posted 12 February 2007 - 10:36 AM
Claudette, on Mar 6 2004, 09:58 PM, said:
Hi,
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way.
Does anyone know of contact people or support groups elsewhere in mid Missouri. I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this. My adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief. So we have each other to bounce ideas off of, but another person or two would be nice.
Claudette
I know there are a couple of support groups in St. Louis and Kansas City, MO, but living in Columbia we are half-way between both of them and it is a two hour drive either way.
Does anyone know of contact people or support groups elsewhere in mid Missouri. I was diagnosed in December of 1997 and can't help but be so grateful for all the advances I have seen taking place in the six years I have been dealing with this. My adult daughter self diagnosed after several months of noticing similarities of her symptoms with what I had gone through, but our family dr. insisted celiac disease was so rare that she wouldn't test until my daughter in frustration just put herself on gluten-free food and found so much relief. So we have each other to bounce ideas off of, but another person or two would be nice.
Claudette
#6
Posted 12 February 2007 - 10:52 AM
There is a relatively new group formed in COLUMBIA, MO. Contact Beth at vejacobs@centurytel.net
Our next meeting is February 24, 2007.
Our next meeting is February 24, 2007.
#7
Posted 15 July 2009 - 08:14 AM
I live in mid-west mo. (Carl Junction) I don't know anyone else around here with celiacs so there probably wouldn't be a support group that isn't hours away.
JoJo
Diagnosed May 26, 2009
Live Love Laugh
Diagnosed May 26, 2009
Live Love Laugh
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