Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Can't Control Hypoglycemia And Celiac Together? Help :o(


Melissaann829

Recommended Posts

Melissaann829 Apprentice

I was diagnosed with Celiac on 9 September 2010. I've had Hypoglycemia (as a result of Pancreatitis) about 6 years ago. I'm strictly following the Hypoglycemia/Celiac Diet yet my body is still going crazy. I can't seem to control my blood sugar at all and I dont know why?? My body is up and down, hormonal, and on a psychological rollercoaster these days for some reason. What am I doing wrong? Any diet ideas? Personal stories? Insomnia has kicked in because my sugar levels are not balanced. Melissa

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bigbird16 Apprentice

Hi, Melissa.

How are you eating now? What is your diet like? That can help us with ideas for you, too. Every body is different, but for me, dropping almost all refined carbs (with the very occasional gluten-free cookie, piece of gluten-free cake, or slice of gluten-free bread), reducing other grains and startches (rice, potatoes, tapioca, etc.), getting most of my carbs from veggies, and increasing my protein intake helped a lot with maintaining a steady blood sugar, increasing my energy, and elevating my mood. I've never been much of a fruit person (makes me feel sick) but I eat blueberries, raspberries, and blackberries for treats sometimes. Never been much of a veggie person, either, but I sure do love me a lot of broccoli and fresh brussel sprouts!

Cheers,

K

Link to comment
Share on other sites
missy'smom Collaborator

I'll second what the previous poster said. I also use a very low carb diet to manage my blood sugar. I have diabetes but don't have insulin resistance and can go both high and low. Lots of protein from meat and carbs from veg. and a certain amount of fat keep me nice and stable. Everyone's different, but I also abstain from starchy veg., all grains, and fruit, although some who follow the particular diet I do include small amounts of berries. I snack on nuts and my treat is a very dark chocolate, sometimes dipped in a nut butter or coconut oil. A paleo diet works for some. Here is a good resource for recipes Open Original Shared Link

Link to comment
Share on other sites
Melissaann829 Apprentice

Thanks guys. Well, because my stomach started off so fragile at first my dietician recommended I stick to white rice and potatoes to ease my digestive track. Umm.. not to question her advice, but white rice made me feel like a yo-yo about 2 hours after eating it. I have switched to brown rice (as of yesterday) but found it wasn't digesting that great - I wake up and drink a glass of carrot juice. Is that bad? Then I'm eating egg whites and a few apple slices for breakfast. Shakey feeling follows. I dont know if i should eat more chicken? More cheese? Something fatty and pray it digest ok? I'm constantly eating blan, boring chicken and ground turkey for dinner because I'm still inflammed from the whole process. It took 10 years to diagnose my Celiac Disease so I'm a little messed up right now. Any ides would be so much appreciated. I've read your blogs. Do you think i should cut out brown rice then too?

Link to comment
Share on other sites
Melissaann829 Apprentice

I'll second what the previous poster said. I also use a very low carb diet to manage my blood sugar. I have diabetes but don't have insulin resistance and can go both high and low. Lots of protein from meat and carbs from veg. and a certain amount of fat keep me nice and stable. Everyone's different, but I also abstain from starchy veg., all grains, and fruit, although some who follow the particular diet I do include small amounts of berries. I snack on nuts and my treat is a very dark chocolate, sometimes dipped in a nut butter or coconut oil. A paleo diet works for some. Here is a good resource for recipes Open Original Shared Link

Link to comment
Share on other sites
Melissaann829 Apprentice

"Missy's Mom" - that made me smile. I go by "missy" and My mom - Janice - we always hear people in our family saying ... "... Missy's Mom". Cute.

Link to comment
Share on other sites
cassP Contributor

Thanks guys. Well, because my stomach started off so fragile at first my dietician recommended I stick to white rice and potatoes to ease my digestive track. Umm.. not to question her advice, but white rice made me feel like a yo-yo about 2 hours after eating it. I have switched to brown rice (as of yesterday) but found it wasn't digesting that great - I wake up and drink a glass of carrot juice. Is that bad? Then I'm eating egg whites and a few apple slices for breakfast. Shakey feeling follows. I dont know if i should eat more chicken? More cheese? Something fatty and pray it digest ok? I'm constantly eating blan, boring chicken and ground turkey for dinner because I'm still inflammed from the whole process. It took 10 years to diagnose my Celiac Disease so I'm a little messed up right now. Any ides would be so much appreciated. I've read your blogs. Do you think i should cut out brown rice then too?

ya, for me- eating a paleo type diet balanced my bloodsugar. i do best with small portions of meat,fat,& veggies for every meal. even if i was to drink a glass of carrot juice- i would want to follow it with some nuts or meat or something- i rarely just do sugar by itself - even healthy stuff like carrot juice - that's just too much sugar, can send u on a roller coaster

i dont know what your body is like, and if it even does well on meat- but that is what works for me- and small portions & not over cooked. ALSO, i try not to eat a piece of meat by itself- i try to balance that with veggies & fat.

for example- a SMALL omelette of eggs & broccoli & butter will be fine in my stomach... but just 2 scrambled eggs might give me a stomach ache.

another example: i just had gluten free cereal for breakfast- and i added walnuts & pecans to give me a little fat & substance... because JUST a high carb breakfast may give me a DROP in blood sugar before lunch.

also- if you're into rice, i read that basmati has the least glycemic effect

you may want to take some digestive enzymes & bromelain with your meals containing meats & fats to help u with the digestion

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

you may want to start keeping track of what you're eating and it's carb content. white rice and potatoes are going to leave most hypoglycemics feeling like crap. balancing protein, fat, and carbs at every single meal is important. (even snacks.) while I do best with something around about 25%protein, 25%fat, 50%carbs, the ratio that works best varies for everyone.

Link to comment
Share on other sites
Takala Enthusiast

Thanks guys. Well, because my stomach started off so fragile at first my dietician recommended I stick to white rice and potatoes to ease my digestive track. Umm.. not to question her advice, but white rice made me feel like a yo-yo about 2 hours after eating it. I have switched to brown rice (as of yesterday) but found it wasn't digesting that great - I wake up and drink a glass of carrot juice. Is that bad? Then I'm eating egg whites and a few apple slices for breakfast. Shakey feeling follows. I dont know if i should eat more chicken? More cheese? Something fatty and pray it digest ok? I'm constantly eating blan, boring chicken and ground turkey for dinner because I'm still inflammed from the whole process. It took 10 years to diagnose my Celiac Disease so I'm a little messed up right now. Any ides would be so much appreciated. I've read your blogs. Do you think i should cut out brown rice then too?

_____________

Oh, for the love of ***** . :angry: "dieticians." should take the white rice and potatoes and .... nevermind.

You need to become a high fat and protein nibbler, but currently you may not be able to handle fats well for a little bit. How are you with the cheese, okay ? If not okay, that ability to eat cheese may come back later or you also may react to the dairy cow proteins, it varies. Fage yogurt is good if you can handle yogurts. Watch out for some yogurts with added milk powder which may not have had all the lactose aged out of it.

Carrot juice is very high sugar. WAY high. That will spike you. Followed by egg whites and apple slices. So that's a lot of fructose, a little protein, and no fat. No wonder you're shaky.

You have to eat small meals of proteins throughout the day, which you already know. But add in some fats. Don't be afraid to eat any thing at any time of day. Some fats that work are olive oil, nuts, peanut butter, coconut milk, coconut oil, avocado. Celiacs and gluten intolerants may be more susceptible to carbohydrate intolerance and even if we get to where we can eat lots of different gluten free foods, we may not be able to scarf down a lot of white , unrefined carbohydrates. This means we replace them with unrefined carbohydrates, vegetables, and fats. If we do eat a bit of white stuff, be sure it isn't the only thing or your blood sugar will go up fast and then fall down hard.

Watch out for those sugars! You may need to use mostly artificial ones, or stevia, or agave or honey which release sugar in to the blood stream more slowly.

If you use a gluten-free milk substitute, watch out for sweetened rice milks. That over a bowl of gluten-free cereal can practically render one comatose.

Unsweetened yogurts can be thinned with water to be used with a carbohydrate, or there are unsweetened nut milks if you look.

Vegetables. So you don't want to eat a vegetable for breakfast. You also need the fiber. Try canned mashed pumpkin heated up with some coconut milk and sweetener. Or some canned, well rinsed beans seasoned with some nice gluten free apple cider vinegar, cumin, and chipotle tabasco. Like I said, think outside the time of day and go for what your body does best on. Beans over a fried or hard boiled egg with some lettuce and cheese might be strange, but it may even you out for breakfast.

Cucumbers and snap pea pods also can make a tasty breakfast or mid morning snack vegetable.

Other breakfasts I have done are apples, nuts, and a little cheese or a hard boiled egg. Always use some coconut milk for the fat, you can use it in tea or coffee or hot cocoa even (gluten free milk substitute, coconut milk, cocoa powder, artificial sweetener - won't spike your blood sugar).

Cooked fish and leftover asparagus also works for breakfast. If you can do soy, you can mix gluten-free mayo and mustard together for a tasty sauce. You can take thin slices of fresh ginger root, and some sweetener, and season it, too. (as you can tell, I am not wedded to the idea of "cereal is breakfast" )

High protein snacks can be gluten free turkey (hormel, buddig), eggs, nuts, meat servings you've cooked in advance like chicken thighs or meatballs, jerky if you can find or make some gluten free, cheese, tuna, salmon, peanut butter.

Peanut butter is excellent if you can handle it. A big spoonful is an easy high protein and fat snack. There is also sunflower seed butter and almond butter.

Lara bars also have some flavors made with dates and peanuts.

If you eat a bit of rice, balance it with something that is high fiber and protein, like beans or lentils or tuna or meat or gluten-free yogurt.

Link to comment
Share on other sites
missy'smom Collaborator

_____________

Oh, for the love of ***** . :angry: "dieticians." should take the white rice and potatoes and .... nevermind.

You need to become a high fat and protein nibbler, but currently you may not be able to handle fats well for a little bit.

Carrot juice is very high sugar. WAY high.

You have to eat small meals of proteins throughout the day, which you already know. But add in some fats. Don't be afraid to eat any thing at any time of day. Some fats that work are olive oil, nuts, peanut butter, coconut milk, coconut oil, avocado.

Watch out for those sugars! You may need to use mostly artificial ones, or stevia...

If you use a gluten-free milk substitute, watch out for sweetened rice milks. That over a bowl of gluten-free cereal can practically render one comatose.

...there are unsweetened nut milks if you look.

Vegetables. So you don't want to eat a vegetable for breakfast. You also need the fiber. Try canned mashed pumpkin heated up with some coconut milk and sweetener.

Cooked fish and leftover asparagus also works for breakfast.

Peanut butter is excellent if you can handle it. A big spoonful is an easy high protein and fat snack. There is also sunflower seed butter and almond butter.

YUP! and I eat those things too to the above.

I have broiled salmon or leftover roasted chicken and veg. like broccoli or califlower for breakfast sometimes.

The dates in the Larabars send my BG too high, but everyone's different.

As for rices, I did some experiments with my meter and found that despite what I will share, in the end, after time, I was down to ridiculously small portions and they all were too much for my BG so out they went. That being said, generally the longer the grain and browner the rice, the less impact on BG. What you have to watch for is that the brown, wild rices and even some other grains like quinoa can cause a raise in BG at hour 3 or 4 after the meal, even if BG goes down at hr. 2. That is because they are slowly digested. So, if you really want to know how they impact your BG, it would be a good idea to test each hour after consuming them, for several hours.

It took me a good while to get up to the amount of protein and fats that I consume now. But, setting goals and consistancy over time paid off.

Many of us had celiac disease/gluten issues for 10 years before we went gluten-free so we know it takes time to heal but they do and it does get better.

Link to comment
Share on other sites
gfForLife Newbie

If you're experiencing hypoglycemia the absolute worst things you could eat are grains, white potatoes, fruit, or juice of any kind, especially without eating fat and protein at the same time to help balance it. Everyones advice here is right on. More protein, more healthy fats. Cut way back or eliminate grain and sugar carbs and eat squash, sweet potatoes, vegetables, and legumes for carbs but still always eat these with fat and protein. Digestive enzymes may be helpful if more fat and protein are hard to digest.

I don't know if anyone has told you that hypoglycemia can be a precursor to diabetes. It means you're overproducing insulin to compensate for the amount of carbs. After a while of doing this you'll become insulin resistant and you're body won't be able to keep producing so much. Both of those things will lead to diabetes. You have a chance to stop it before it happens by eating a lower carb diet though and balancing your hormones. I wish someone had told me all this when I use to experience hypoglycemia but now I'm prediabetic with other hormonal problems to go with it. I'm still working to reverse it with some success by eating low carb and exercising but i sure wish I knew sooner! Good luck!

Link to comment
Share on other sites
gfForLife Newbie

Just to add if you're still feeling inflammation of your digestive tract some of the best things you can eat for that are also low carb. Fish, especially salmon is very anti-inflammatory and I find it easier to digest than other meats. I often eat salmon for breakfast with a few olives. Spinach and other leafy greens are anti-inflammatory. RICE, white or brown is a very inflammatory food so it hurts you on that front too :angry: What was your dietician thinking!?

Link to comment
Share on other sites
cassP Contributor

Missy's mom: what is "BG" ??? & - i cant do the Lara Bars because of the fructose- they kill me

Original poster- ya, really- what is your dietician thinking?? was she understanding that your issue was Hypoglycemia??? i would prescribe someone who's nauseaus to eat those plain foods... but those complex carbs are not gonna help you with blood sugar

OY... good luck

ps- in addition to all these great suggestions above- you should always carry something with you like almonds

Link to comment
Share on other sites
missy'smom Collaborator

BG stands for blood glucose ;) aka blood sugar.

One more thing to think about with the rice is that if you are getting a rise at say, hour 4, but you eat someting at hr 3, then you may be doubling up your BG at hour 4 because you are still getting that rise from the rice/whole grain plus the peak rise from what you just ate an hour ago. Make sense? It helps to know these things in order to plan meal portions and spacing. The best way to figure out if that is a problem for you is to test.

Link to comment
Share on other sites
Melissaann829 Apprentice

Wow. I am so glad I found this site and have such great people to talk to about this. I can't thank you all enough. Last night I had baked chicken with parsley, a few bites of potatoes and a lot of green beans and broccoli and I was able to actually sleep a full night for once. I didn't feel mentally "shakey" and crazy like previous nights since following my dietician's recommendations. She told me i should be eating a "CUP" of rice with each main meal because I needed the carbs.. but i looked at the back of the box and thats a TON OF CARBS to woof down at once. I'd hit a high and feel energetic and then start crashing hard and feeling anxiety, the shakes, inability to think, etc. Its been a terrible rollercoaster and I paid $100 for that visit. This morning i had a half a gluten-free raisin/pecan bread with peanut butter and walnuts. So far, I feel ok. Thank you all. I love the snack ideas. How about apple slices with peanut butter? I assume that would be alright too?

Link to comment
Share on other sites
cassP Contributor

ya, as long as apples dont bother u... or celery with almond butter... or apples & cheese... keep combining the fats & proteins with your snacks :)

Link to comment
Share on other sites
missy'smom Collaborator

Yay for better sleep! Good for you for being so active in taking care of your health!

If you try the apples and PB and they don't seem to work as well as you'd like, try adding some meat or hard boiled egg and see if that makes a differerence. Both meat and fat slow digestion and slow the release of glucose into your system. Maybe some deli meat but check the labels for carb and sugars. I go for 0 or <1g. carb or sugar per serving and stick with one serving. At some point, 0+0=1 ;)

Link to comment
Share on other sites
gfForLife Newbie

How about apple slices with peanut butter? I assume that would be alright too?

It really depends on you. I know I can only eat about half an apple with cheese or nut butter because if I eat a whole one it messes with my blood sugars. You have to try some different snacks and food combinations and just pay attention to how you feel after, if you get a crash after apples and PB that may be too much sugar for you(apples have quite a bit of sugar, a medium apple has about 20g sugar plus PB..it's a lot.) Do you like avocados? I find those easy to digest and they are so healthy.Avocado, hard boiled eggs, carrot sticks with hummus, cheese, and beef jerky all make good snacks.

Also for me I really need to have a low carb breakfast. If I eat gluten free bread or fruit for breakfast it sets me up for a roller coaster of blood sugars all day. I generally keep it low carb for breakfast and lunch and then having a sweet snack before or after dinner doesn't mess with me since my blood sugars are more stable later in the day. I also eat most of my veggie carbs like squash or potatoes with dinner. Experiment with eating carbs at different times of the day and see what works for you!

Link to comment
Share on other sites
missy'smom Collaborator

Also for me I really need to have a low carb breakfast. If I eat gluten free bread or fruit for breakfast it sets me up for a roller coaster of blood sugars all day. I generally keep it low carb for breakfast and lunch and then having a sweet snack before or after dinner doesn't mess with me since my blood sugars are more stable later in the day. I also eat most of my veggie carbs like squash or potatoes with dinner. Experiment with eating carbs at different times of the day and see what works for you!

Yes, Dr. Bernstein recommends half the carbs(low-carb carbs;) at breakfast as are allowed for L and D. It's proven that we are more sensitive in the a.m.

Link to comment
Share on other sites
cassP Contributor

be careful too, if you ever go for a massage! u may already know that- but massage will drop your blood sugar... so eat protein & fat before, and bring a snack & water for after.

i sometimes have LBP & LBS, but dont have regular Hypoglycemia... but OMG, one day, i remember, i didnt eat too much all day- and i mostly had gluten-free carbs.... no meat or veggies... and then in the afternoon i went for a massage.. felt fine... stopped at a vegan bakery on the way home & got some gluten-free baked goods... by the time i got home (evening) to cook dinner- i almost PASSED out from dizzyness & the shakes!!! it was scary- cause i dont have attacks like that ever- and i knew the combo of my carbs & massage just pushed me over the edge

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Larzipan's topic in Related Issues & Disorders
      16

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Julie Riordan replied to Julie Riordan's topic in Traveling with Celiac Disease
      3

      Any ideas for travelling

    3. - Nedast replied to Larzipan's topic in Related Issues & Disorders
      16

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    5. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,495
    • Most Online (within 30 mins)
      7,748

    Zofosho
    Newest Member
    Zofosho
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
×
×
  • Create New...