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I Have Celiac, But No Sickness When I Cheat... Help!
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So I am a bit confused. I was diagnosed with Celiac about 2 months ago and have been pretty strict about my diet. My doctor said that my levels were like nothing she has ever seen. However, I cheated two weeks ago and ate a meal full of gluten. I didn't get sick. Yes, I was tired for a few hours and I did develop a slightly itchy rash on my hands, but that's it.

Is this normal? I'm kind of lost as my doctor said there is nothing more she can do for me but for me to follow a diet. HELP!

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While not the norm it can happen. Levels of sensitivity vary. Please don't use this as encouragement to 'cheat' every now and then. The tiredness and rash do show that your body is reacting. Once that rash, which is likely to be DH, gets a good hold in your skin it can take up to 2 years for the antibodies to leave the skin. You could also have other organs like your liver, gallbladder, thyroid and other organs including the brain being impacted. Keep strict to the diet.

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When I had been gluten free for a whole year... I scarfed down a big hunk of the beautiful crusty loaf of bread I'd made for others... and had NO repercussions. I had this wonderful idea that I might be able to "cheat" maybe once a month and actually made plans for certain gluten foods I missed.

I never followed thru on those cheats tho, cause an accidental glutening made me so sick... I've never intentially cheated since!!

No sickness when cheating doesn't mean damage isn't being done!

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It may be that you need some positive feedback to counteract the negative aspect of such a restrictive lifestyle. Ask your Dr. to set up tests to check your antibody levels at regular intervals so you can follow your success with the diet. There are several other Celiac/gluten forums with people who will support and sympathasize with you and you will find many others who hate the limitations on diet and lifestyle. You may not realise it now but your inner self really doesn't want to develop refractory sprue, osteoporosis, gluten ataxia, neurological problems.

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While eating gluten free is a pain in the butt, especially when you don't get overwhelming relief from it, you still must kick gluten's butt to protect yourself from the rest of the harm that celiac disease does. It is not to be messed with :ph34r:

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I have actually become that person. At first I would get horrible CC or gluten reactions during the first 5-6 months of being gluten-free. Now still gluten-free, I have become asymptomatic/no reactions, etc. I ate a meal that was suposed to be gluten-free and then after eating it I found out it wasn't..I had no reaction. I started to doubt the diagnosis.

The more research you do, you will find this is mostly happening in children, which is were the.."cured/remission" theory comes in. You can't eat gluten safely..because even though there isn't a reaction now..there will be one day if you continue to eat it. Just like a tiny bit of arsenic won't hurt you today or the next, but over time it's a toxic build up in your body.

Please be careful with your body. B)

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I agree completely with what others have said already. I just wanted to add that you should remember that cheating increases not only temporary damage to your gut but also your potential risk for cancers - lymphoma isn't a joking matter and continued activation of your immune system and damage to your gut does predispose you more and more to getting it. All of the current research shows that if you keep being reactive to gluten (either you have really bad Celiac or you eat gluten) you'll have increased risk.

Please take this seriously. It's your body and your choice, as always. But please consider what you're doing to yourself when you eat gluten.

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I have a postcard with the following quote, which I remind myself of every so often: 'Look after your body... if you don't, where will you live'?

Keep well x

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I heard Dr. Fasano give a talk in which he put up a picture of an iceberg. He said that the symptomatic celiacs were like the top of the iceberg, and the asymptomatic celiacs were like the part of the iceberg which was underwater. Most of them don't get diagnosed since they are asymptomatic, but according to him are in the majority. He also said how sad that is because often the don't know that they have it until they get life threatening symptoms.

You are lucky not to have symptoms. I get bad symptoms from every little bit of cross contamination. Enjoy it.

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I heard Dr. Fasano give a talk in which he put up a picture of an iceberg. He said that the symptomatic celiacs were like the top of the iceberg, and the asymptomatic celiacs were like the part of the iceberg which was underwater. Most of them don't get diagnosed since they are asymptomatic, but according to him are in the majority. He also said how sad that is because often the don't know that they have it until they get life threatening symptoms.

You are lucky not to have symptoms. I get bad symptoms from every little bit of cross contamination. Enjoy it.

My gastroenterologist actually drew me that exact picture when she was diagnosing me. She put in a third category in the middle of people where the water is just lapping against the iceberg, causing minor, manageable symptoms

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Don't get too cocky.

The longer you stay off, the more likely you're going to notice what it feels like.

I've gotten really sick a few times from cross contamination where I never did find out for sure exactly what it was, other than I had eaten something out of the ordinary that day, that had the possibility. One of the things that really aggravates me to no end is to eat something where the new container is marked "gluten free," and it's a very good chance that it was the item that got me. I have twice reacted to seasoned "gluten free" snack chips that were purchased as a special treat. Lately I am suspicious of 2 other items, I'm waiting for days where it doesn't matter if I've got to function, and I'll try it one more time... 1 more reaction and I'll write it up as a warning. :angry: But I need to try them on different days.

Other times (not often, but under extraordinary circumstances) I risked getting cross contaminated and .... nothing.

There is so much other non gluten food that's good I'm not tempted to cheat. I had so many other things go wrong on a regular diet it's just not worth it, I'm self diagnosed, btw, off of tests others misinterpreted and an elimination diet.

Not worth the arthritis flares, neuropathy, kidney problems, heartburn, gallbladder symptoms of not being able to eat fats, bad obgyn problems, bone loss, dizziness, lack of coordination, visual problems.... the list goes on.

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I had absolutely NO symptoms before diagnosis, and very few now. I only have symptoms if I eat food with gluten (as opposed to CC). I never cheat - the glutening happens when I'm told something is gluten-free but it isn't. I'm quite sure I've been glutened more often than I realize. I find this really scary. I actually wish I was one of those people that immediately started vomiting or got bad diarrhea. Then I'd know for sure.

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    • Thanks, I'll check that out. I may have to apply for my own Medicare card in order to get any kind of coeliac-testing done beyond the screen (see above post.)  No, nobody has even mentioned it. I'm unsure if my doctor knows that I do not need to use my hands to vomit, or if she knows about the involuntary vomiting.  I have a part time job at McDonald's and make around $150 per week, which is how I afford to smoke. Mostly, I spend my money on (generally gluten-containing) binge food and cigarettes. I did attempt to start saving money, but then my shifts were cut at work - which meant I had more time to study, but no money, which was kind of pointless. It's complicated. Here in Australia, cigarettes are $25 per pack. These aren't fancy cigarettes either, just your run-of-the-mill Marlboro 20s. Thanks for caring. I am trying to stop I've had the vomiting thing all my life, way before I started smoking. And no, I'm not sure. I know he had an endoscopy and the flattened villi, but I'm not sure if he got a blood test - I assume he would have done, don;t know if it was the full panel. Supposedly he has this FODMAP thing, which I'll admit that I know next to nothing about. Interestingly, people who have to follow low-FODMAP or no-FODMAP diets can't eat gluten either, so there's that. 
    • Would a coeliac screen be the same as a test for antibodies, then? I have no idea why it was even included in my list of tests. It could be my brother, or my symptoms, or both - regardless, I can't say I know too much about the testing.  It's possible that my brother has coeliac disease, I really do worry about it sometimes. He was told to follow a strict low-FODMAP diet by his doctor, and eventually my parents stopped caring. Occasionally they will remind him not to eat things like pasta, greasy foods, etc. because of his condition, but by and large they don't care. He basically just eats whatever he wants. I'm not sure if it affects him or not. However, he isn't shorter than other family members - my dad is 183cm, and my brother is 178cm at the age of 14. Our mother is 173cm.  I do think I have bad digestion, yes. I get gassy and very bloated often, as well as constipated phases (and then following that, diarrhea phases.)  I have tried to ask my mum to call the doctor to get the tests done, but I'm hesitant to mention anything to do with gluten as I know they won't believe me, solely because a good friend of mine has celiac disease. I know they'll think I'm doing it for attention, or to be trendy, when in actual fact I'm just tired of being sick and having no explanation for it other than diet. I'm positive it's not dairy, as I was vegan for a couple of months at one stage. When I went back to eating animal products, I had no issues whatsoever. 
    • He had the IgG ELISA done as well as other blood panels, fecal and saliva tests. He is on an elimination diet right now where foods that score above 0.2 are eliminated for 2-6 months depending on the score, then added back slowly after the detox period.  I am aware that there is a lot of controversy over the IgG, and I'm not here to go into that issue, but I can say with certainty that eliminating the additional foods he reacted to has seen a huge reduction in the symptoms that persisted after cutting gluten and dairy. We will be attempting to add rice back in around October, and see how he does but until then I still need a solution for a baking mix.  I tried to wing it a bit with pumpkin bread today and my attempt was okay but not great. The loaf sank a bit and was overly chewy.  So, to my original question....recipes?
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