Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiacs In Santa Barbara


Marc1

Recommended Posts

Marc1 Rookie

Hi Everyone,

I am a student at UC Santa Barbara. I know that there are at least four other students with celiac disease living on campus and at least a dozen people in the general area with celiac disease. Out of 18,429 undergraduate and 2,981 graduate students by statistics there should be about 200 celiacs on campus. Does anyone else want to start a petition to bring more gluten free food to the dining halls or at least label the things with wheat in them? UCSB is better than most campuses when it comes to eating, but it is annoying to have to ask the cook at least once a week what is in everything. They label some things with wheat and nuts warnings, why not all?

If you are interested in this or simply want to hang out with another celiac at UCSB, reply or send me a message.

Link to comment
Share on other sites
  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marc1 Rookie

I am finding it deeply ironic that of the 234 people who looked at this post according to the counter on the page as of when I started writing, of the half dozen celiacs at UCSB who have contacted me, two of which went to the trouble of tracking me down in the dorms to meet me in person, not one person has commented on this post. I have been contact by almost every electronic means, except a reply on this forum. Is there something about UCSB that makes people here allergic to forums?

Anyway, Good Luck on Finals Everyone and Happy Holidays! Hope to see you all when school starts again in January.

Link to comment
Share on other sites
mushroom Proficient

Maybe we don't have any members from UCSB, to whom your post was addressed :unsure:

Link to comment
Share on other sites
cyberprof Enthusiast

I am finding it deeply ironic that of the 234 people who looked at this post according to the counter on the page as of when I started writing, of the half dozen celiacs at UCSB who have contacted me, two of which went to the trouble of tracking me down in the dorms to meet me in person, not one person has commented on this post. I have been contact by almost every electronic means, except a reply on this forum. Is there something about UCSB that makes people here allergic to forums?

Anyway, Good Luck on Finals Everyone and Happy Holidays! Hope to see you all when school starts again in January.

Marc, it's nice of you to help your fellow celiacs/gluten-intolerants. As the parent of a soon-to-be celiac college student I say go for it! Maybe a facebook page would help? Or some posters/electronic notices on campus? I'm not at UCSB (nor will my kids be there) but it's a great idea!

Link to comment
Share on other sites
  • 1 month later...
Marc1 Rookie

Hi everyone,

Been rather busy this quarter but we have some good news. There will be a club organized at UCSB sometime spring quarter. We are setting up a Facebook page in our free time and will post the link when we are ready. The club will be open to all people with allergies, since the pool of people with celiac disease at Santa Barbara is small. If you are interested in volunteering send me a message. We already got two co-presidents (Yay! not doing it completely alone) and are looking for people willing to help out or at least eat gluten free cookies and give moral support. We will post more when we have time.

Peace

T-Minus 4 weeks to Spring Quarter

Link to comment
Share on other sites
  • 3 weeks later...
Marc1 Rookie

The facebook page is now officially up. Gluten free Santa Barbara. still adding content, message me if you want me to add something and no I still can't get the picture the right size due to facebooks's layout change, there is no longer a resize photo button for page photos. Hopefully there will be one next update.

The club is still unofficial, we haven't picked a set meeting time yet so we are still meeting in my apartment for the minute. Anyone have a time preference? I think I can get the San Clemente activities room if we have enough notice, especially since one of the RC's in charge of it has a girlfriend with celiac disease. Since most of you prefer to send me emails or facebook messages, you know where to reach me. I am not sure why I am bothering to post this on this forum since you all look at it here, but then log on to facebook to message me, but I figure the more exposure the better.

I will post an update after finals are over.

Link to comment
Share on other sites
  • 1 year later...
mamaupupup Contributor

Hey Marc,

Hope you are well. I am a Mom with two elementary-aged kiddos all recently diagnosed with Celiac. Please let me know if I can be a resource to anyone and vice-versa. It's been a LONG time since I was in college...so I won't be much help or a good sounding board on that front...but maybe for students with kids?

Cheers!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...