Please Help Me Understand What Food Intolerances I Actually Have?
Posted 23 October 2010 - 05:51 AM
Previous and Current blood tests say that I am not allergic to Gluten, but do claim me as allergic to some other things:
May 31, 2009
Corn Class 2
Soy Class 1
Egg White Class 0
Milk Class 0
Wheat Class 0
Peanut Class 2
Sesame Seed Class 2
Walnut Class 1
October 18, 2010
Corn Class 1
Soy Class 0
Egg White Class 0
Milk Class 0
Wheat Class 0
Peanut Class 1
Sesame Seed Class 1
Walnut Class 1
What does it mean that my corn and nuts numbers were class 2 and are now class 1? Is it just different ways to calculate the same facts? If Enterolab (October 2010) had me at 36 units (Fecal Anti-gliadin IgA), when the normal is less than 10 units, and that makes for a clear intolerance to gluten, then why does it not show up at all on blood IgE tests?
I was perfectly ready to start my gluten-free diet, but both of my blood tests say I'm allergic to corn, and the older one said I'm allergic to soy. These were to be my main wheat replacements. What should I do?
Supposedly, I'm not allergic to milk, but I planned on letting go of it also. My fecal anti-casein IgA came out to 10 units, and the normal is supposedly under 10.
In conclusion, I will do the gluten-free, but should I abstain from corn, soy, and nuts as well? Why do these tests check for these foods, and not others? If they checked for peanuts, sesame (which was 1 of my main replacement foods in hummus), and walnuts, then why didn't they check for pecans, almonds, hazelnuts, etc.?
What do you guys make of this?
Posted 23 October 2010 - 07:49 AM
I too am allergic to corn and soy. I have used a combination of rice flour, potato starch, and tapioca flour to replace my wheat flour (proportions can be found on the King Arthur Flour web site, it is located at the bottom of their gluten free recipes). It helps if you can make as much homemade food as you can. Bob's Red Mill has a gluten free flour that is good for baking cakes, it doesn't have the grittiness that rice flour can have.
We use rice milk to replace dairy. Rice Dream claims to be gluten free although I did see a post that said it truely wasn't. Guess it depends on how sensitive you are to gluten.
When my son was tested for food allergies, he was positive for milk and two kinds of cheeses, but negative for two other kind of cheeses. The doctor said that the protien structure was slightly different in each cheese. Makes me wonder if the protien structure is slightly different in each kind of nut as well.
Posted 23 October 2010 - 09:31 AM
2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life
2009 – Low T3 thyroid hormone, muscle twitching and adrenal fatigue
2006- Elevated Speckled ANA. GI suggested Celiac. Started gluten-free diet, but sloppily
2005 - Thought I had wheat "allergy." Stopped eating bread, oats problem too
College years - Still vegan -sickest point in life. Every classic celiac symptom
Teenage years - Stomach pain prompted veganism -> BIG mistake!
Child - Awful gas, D, C. Chronic infections, appendix and tonsils removed
Posted 23 October 2010 - 12:50 PM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 23 October 2010 - 12:53 PM
First off celiac does not show up on allergy testing. You should eliminate the stuff that you are reacting to for a bit. You may find after you have been gluten free for a bit that your other intolerances will improve. Leave them out till you are fully healed on the gluten free diet and then add the others back in one at a time to see if you are tolerating them.
Thanks for this. I will do. And, as far as I know though, I am not reacting to any corn, soy, or nuts.
Posted 23 October 2010 - 01:18 PM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 23 October 2010 - 02:50 PM
there's a moderator on here who says those allergy tests are not conclusive... my theory and own allergic experiences: is that they body may not always be releasing the same amount of histamines ???? i read somewhere that when you are stressed- your body makes MORE histamines which would elevate your allergic responses-
i have definitely experienced different levels of allergic responses
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx
Posted 24 October 2010 - 04:40 AM
Posted 24 October 2010 - 05:53 AM
The anti-gliandin test from Enterolab (which I also completed) is an IgG reaction. This is a delayed reaction (not immediate like IgE). It is more likely to show you food intolerances and symptoms could include many things like fluid retention, joint pain, fatigue, GI upset, etc.
There is a Celiac panel, which is a blood test, that you can have completed from your Primary Care Physician. If you haven't gone on a gluten-free diet yet, you could give this blood test a try.
I was positive on enterolab for anti-gliandin, then had the blood test done only recently and it was also positive. My IgE blood test was negative. I hope this helps!
Posted 26 October 2010 - 02:31 PM
The usual thing with RAST is to eliminate all the foods that came up positive. Then you introduce them one at a time to see if you have a reaction from eating the food. They are not conclusive because your body is not a test tube. The test is simplified by necessity, and lots of things happen to foods between your mouth and your bloodstream.
The doctor who ordered the tests will generally help with setting up the diet and challenge schedule. Food allergies come and go, as you see with your shifting test results, so if you have a food that's only a mild reaction, it's reasonable to test it again in a few years.
As far as corn and soy, it looks like your wheat replacements will have to be rice and potatoes.
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