Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiacs And Mental Instability
0

17 posts in this topic

I'm well aware that the strangest things can affect one's mental health, and that is why I'm posing this question, though I'm not sure it is in the right place. I hope so.

Anyone who's read my other thread will know I'm a self diagnosed celiac, and haven't been to a doctor because I have been gluten free for two weeks or so now, and I couldn't get an early enough appointment to make the tests really worth having. I've been feeling the effects of being gluten free too well to ever go back, an that is enough proof for me.

The issue I post here is a very personal one. I've had it for a very long time, and I'm wondering if it was a mostly ignored early warning sign, because I kept it quiet most of the time. Where I could anyway, as it doesn't exactly like to stay hidden.

Now, as well as long as I am aware, which is from about eleven or twelve years old by my memory, I have been very emotionally unstable. I can start the day really quite happy but the second I come into contact with someone who's down, or even just stub my toe, in extreme circumstances, my mood instantly hits rock bottom and I feel depressed for the rest of the day, even when people try to cheer me up.

A main example of this is my inability to stand confrontation. When I am attacked by someone, even in just a controlled, debate environment, my mind clouds over and I get the incredible urge to burst into tears. If the discussion is heated, such as an argument with my dad or bullies at school teasing, I cant hold these tears back, my face goes bright red and I make a complete fool of myself by crying my eyes out.

This happens is I get frustrated too: I'm stuck between hitting something or bursting into tears, and the tears usually win. My psychology tutor, who I spoke to in confidence, suggested it was a defence mechanism because of the constant confrontations I had with my brother as a child (something I don't want to expand on here), but I'm wondering if I cant break out of this cycle because of something else.

I read that celiacs can cause mood issues, including many I have felt myself. Is it possible it stemmed from this? Though I still get frustrated very easily I am now less effected by the moods of others and try to cheer them up instead, but all the others still stand.

Any ideas?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hey,

It is definitely possible for a gluten intolerance to cause neurological abnormalities. I've heard of several people having neurological symptoms, although they definitely vary.

I'm not sure how old you are, but I think you mentioned you are still in school so I'm assuming you are younger than me. I'm a 25 year old female, and I have a similar background. All throughout elementary and high school I was extremely emotionally sensitive - I would burst into tears or become enraged at the slightest things. I have had strong depression symptoms for as long as I can remember (the earliest is about 4 or 5).

I was at first diagnosed with depression, for which I took anti-depressants for a few years. After finding that my symptoms were somewhat better but not alleviated, I began to search for other causes besides simply my serotonin receptors not functioning properly (this is what causes depression).

I went to a naturalpath, who put me on the "candida diet", which for the most part is gluten free. I found that my symptoms definitely got better with this diet, however did not disappear completely.

For me, it is a combination of things which causes my depression/mood shifts - both environmental (gluten) and social (my sensitivity to social circumstances). Although going gluten-free helped, it didn't solve everything.

Humans in general have a range of emotional sensitivity, from sociopaths/psychopaths who do not feel guilt, remorse, and cannot read social emotions at all; to people like you and me who are over emotional and affected by pretty much everything.

Your gluten free diet should alleviate some of the emotional instability, but it will take a few weeks for your hormones and neurotransmitters to readjust.

I hoped this helps and good luck!

0

Share this post


Link to post
Share on other sites

ok, so first of all im not a psychaitrist or md... but i DO KNOW that gluten can have disasterous effects on your brain! whether or not gluten was the only or 1st trigger in your emotional instability is not something i have any answer or knowledge.

there are many on here who will tell you 1st hand of how gluten affected their brains... gluten has been linked to schizophrenia & autism, depression & anxiety.. gluten can actually be a neurotoxin for some

i have definitely noticed neurological and mood changes going on and off gluten... some of the worst anxiety i have ever had in my life was during my "wheat challenge" (before my blood tests).

the body is SO integrated tho- your emotions may be tied in with previous gluten consumption PLUS stressful situations/home environment & of course, learned behavior.. for example- IF gluten was what initially put u in an unbalanced state- then even if going gluten free makes you feel almost completely better, you may need to talk to a counselor, or simply change your own learned behavior/reactions.

i still have so much going on in my life that i need to find a good therapist, plus a suspected hypothyroid could be causing my fatigue & shortness of breath- BUT- being Gluten Free has MOST DEFINITELY "taken the edge off"

good luck :)

0

Share this post


Link to post
Share on other sites

Whether or not the gluten trouble started the mood instability, at this point, it might be helpful to you to seek treatment just for that since it must have had a profound impact on you after being part of your life for so long. I'm almost an MD (degree on 6/3/11! SOON!) and if I were your doc, I would recommend you see someone just because it sounds like what you're going through would make life incredibly difficult, and I don't think it has to be that difficult.

Whatever started this, you're here now. I'm glad the gluten-free thing has helped, but I don't think you should have to be dealing with this the way you are, day in and day out. There is help available out there, and I do think it would be worth it to seek out a good therapist (and potentially even a good antidepressant or mood stabilizer, but that's something to discuss with your doctor).

You deserve way better than emotional instability. Hopefully with help, you can have more than just the edge taken off. If I were your doc, I would want that for you. As a friend on the forum (or acquaintance?) I also want that for you.

0

Share this post


Link to post
Share on other sites

as many have already said, I couldn't say for sure that gluten has been causing this issue for you, but your description could pretty much be my daughter, word for word. Very easily bought down, bursting into tears at a moment's notice and unable to stop.

My son reacts with fury and anger instead of tears, but it's just as uncontrollable and just as easily induced. I don't burst into tears, but I was very easy to lay low, emotionally, and had a hard time climbing out of the pit, as it were.

We didn't realize this was gluten at first, but when the emotional trouble went away off of gluten, and came back WITH gluten, we really noticed.

I don't know if a bit more info. would be applicable to your situation, but just in case it would, I'll share something else as well.

In the year since going gluten-free, we've discovered that we're extra sensitive to gluten, too. My daughter will have gut pain now (she didn't before) when she has gluten, then more issues with bursting into tears, sadness, and trouble sleeping and feeling tired. But we finally started to notice that if she's had products that are gluten free (like gluten-free bread or cookies), she may not have the gut pain, or it will be low and something she hardly notices, but she'll have smaller bouts of tears, less sadness, minor trouble sleeping, and feel a bit tired - but it's the exact same cycle, just less.

We've been playing around with foods that have been tested for gluten (5ppm products up to 20 ppm) and have discovered that if a food has over 10ppm of gluten, she'll have her sadness issues, even though stomach pain doesn't usually hit unless she has over 20ppm. So...if you notice an improvement in your symptoms, but they don't totally go away, perhaps you might have something similar?

For me? I've reacted now to things that were 5 ppm or less. :o I've had to go super, super gluten-free. But when I do - no depression, no crying or anger issues. It's really, really an amazing feeling. I hope it is one that you get to experience too! (oh, and this DId take a little while to get to - maybe a month or two, I think, before I started to notice the full recovery, emotionally)

0

Share this post


Link to post
Share on other sites




Hey HardcoreDior,

I am younger than you, at 20, and still in education, but no longer in a school environment. Thank you for the words of encouragement. I have been gluten free for at least two weeks now, possibly longer, but my memory is terrible, but I am already feeling some differences in the way I react to things.

I posted this because of a reaction to had to a frustrating situation yesterday, which was generally off the scale and an over-reaction to the situation, but it made me so angry I was on the edge of tears for a good few hours before I could calm down.

I hope this diet can help that even more, once it has had time to kick in.

x

Hey Cassp,

Thank you for the reply. It can be a neurotoxin for some? Wow, that's got to be a pain in the behind. I'm well aware that some odd substances can be neurotoxins for people, since my brother's behaviour is majorly affected by caffeene and MSG. It makes buying things or cooking for him rather annoying, but the results mean we would never let him eat something liket hat again.

Fingers crossed I get somewhere. lol.

x

Hey Emiluska,

I have spoken to my doctor about it before, with my parents when I was younger. He basically stated I was overly sensitive and needed tougher parenting, and refused to give us any mood stabilisers. My dad took this as gospel and instantly started making the problem worse by 'trying to help me', while my mum moddycoddled it by hugging me every time I bust into tears.

Probably not the best solutions, I'm going to guess.

Congratulations on graduating soon! I hope you enjoyed your course. I only just started mine in Biology and so far it's going OK, though one of the subjects had me so frustrated I burst into tears in the middle of a practical >.< and again when I got home.

I have a new doctor now. I might go and book an appointment, and get some advice.

x

Dear T.H,

Wow. I'm very sorry your family have such bad reactions to gluten. I seem to be the only one in my family, though my brother is suspected but he wont give up pasta. (he lives on the stuff.) Thank you for sharing your experience and for the advice, it is much appreciated. I hope this diet does help me at least, even if it just lessens the symptoms a little.

I wish you and your family all the best.

0

Share this post


Link to post
Share on other sites

Hamster, all I can say is gluten messes with your brain big-time. Emotions, paranoia, feelings of worthlessness... I was in constant confrontation with my family as a pre-teen and a teenager, had no worthwhile relationships with anyone, and was a perennial mess, with suicidal feelings and intentions until I was 17 and got out of the family environment. It was much later that I realized what gluten was doing to me, but if you lay gluten over another problem it becomes almost insurmountable. Once free of the confrontations, gluten didn't rear its ugly head until much later in life for me (I had a gluten holiday for about 10 years, whereas before it had dominated my life). But if gluten is a problem, the earlier you address it the better. My parents dismissed it totally.

I spent my teenage years in lows, very lows, no fun at all. I was a bundle of misery - the only joy I found was climbing over a fence of a locked swimming pool and swimming in peagreen water which was stored to fight a fire in the factory it belonged to. I practiced swimming underwater for as many lengths as I could and felt a feeling of achievement (and I was all alone - no one knew) and it gave me a sense of power; I knew I could have drowned with my stomach cramps but I really didn't care. The sense of accomplishment was worth it.

The confrontations would send me crazy, but to give in to them would totally deny self, and self at that stage was all I had left. It had to be preserved at all costs. So I was a problem child and I do not apologize for it. I survived, and I am a better person for it because I can help others now, I hope.

Ride out these storms in your life and you will reach calmer waters :)

0

Share this post


Link to post
Share on other sites

Hey Emiluska,

I have spoken to my doctor about it before, with my parents when I was younger. He basically stated I was overly sensitive and needed tougher parenting, and refused to give us any mood stabilisers. My dad took this as gospel and instantly started making the problem worse by 'trying to help me', while my mum moddycoddled it by hugging me every time I bust into tears.

Probably not the best solutions, I'm going to guess.

Congratulations on graduating soon! I hope you enjoyed your course. I only just started mine in Biology and so far it's going OK, though one of the subjects had me so frustrated I burst into tears in the middle of a practical >.< and again when I got home.

I have a new doctor now. I might go and book an appointment, and get some advice.

Yeah. One stupid doctor when you were younger should not stop you from getting help you obviously do need. Doctors aren't always right, and I think in this case, your doc really was VERY wrong. Thank goodness for having a new doctor! Give this one a chance. Hopefully (s)he isn't going to be a dummy. Let us know how it goes!

0

Share this post


Link to post
Share on other sites

hamster- im not a doc, so i am adding a link that explains Excitotoxicity... i have read so much in the past 2 weeks that explains that Gluten (and possibly Wheat Germ Agglutin- which i'll have to look up, not sure)-> can be Excitotoxic. that it can fire up those neurons so much in the brain that they eventually die out.

http://www.sciencedaily.com/articles/e/excitotoxicity.htm

i'll try to look up the other links later

0

Share this post


Link to post
Share on other sites

Thank you everyone for all the advice, shared experience and suggestions. It's good to not feel so alone anymore - I always feel so awkward when my family decides to eat out and I have to ask the poor waiters and waitresses what I can and cant eat. Most places they frequent arent that good for coeliacs, though they're changing that slowly, but as a dairy free diet I always felt off asking questions like that.

I will probably go and see my doctor, though if I'm offered mood stabilisers I probably wont take them and push for some kind of therapy instead. After watching my brother taking meds for most of his life I have an incredible aversion to drug dependency, and I would like to work through these issues than mask them.

I'm on the right road - I can feel it in my gut (quite literally!). I'm less paranoid and less anxious, I have more energy than I ever remember having and I haven't felt this well in many years. Even if I can't get therapy, I'm already on the mend, and with my boyfriend by my side now it feels like nothing can really go that pear-shaped anymore.

0

Share this post


Link to post
Share on other sites

Hi,

There is a strong link between gluten and brain affects. If you try searching for depression, pschizophrenia, bi-polar, ataxia etc and gluten you will find plenty of info on it. Lots of studies out there that show gluten affects the brain and causes various problems. There are also threads on this forum about people's symptoms getting better after going gluten-free.

Some people think there is a link to autism also and some parents put their autistic children on a Gluten-free Casein-free diet.

In celiac the gliaden protein fragments can sometimes penetrate the intestinal lining and enter the bloodstream. That's is known as leaky-gut. They can also penetrate the blood-brain barrier and affect the brain. They say the gliaden can act somewhat like an opiate on the brain as it can bind with the same receptors.

Dr. A. Fassano did a study of gliaden penetration where he found that a chemical known as zonulin was involved in the gliaden penetration in leaky gut.

Anyhow, there is no doubt it can affect the thinker-things negatively, IMHO.

1

Share this post


Link to post
Share on other sites

Thank you everyone for all the advice, shared experience and suggestions. It's good to not feel so alone anymore - I always feel so awkward when my family decides to eat out and I have to ask the poor waiters and waitresses what I can and cant eat. Most places they frequent arent that good for coeliacs, though they're changing that slowly, but as a dairy free diet I always felt off asking questions like that.

I will probably go and see my doctor, though if I'm offered mood stabilisers I probably wont take them and push for some kind of therapy instead. After watching my brother taking meds for most of his life I have an incredible aversion to drug dependency, and I would like to work through these issues than mask them.

I'm on the right road - I can feel it in my gut (quite literally!). I'm less paranoid and less anxious, I have more energy than I ever remember having and I haven't felt this well in many years. Even if I can't get therapy, I'm already on the mend, and with my boyfriend by my side now it feels like nothing can really go that pear-shaped anymore.

studies show that cognitive therapy can be just as effective as antidepressants or more.... i will say that when i took Paxil 12 years ago- it was exactly what i needed at that time in my life- it was a temporary crutch i used for a year that i am glad i took. about 5 years ago i went on Paxil again- but this time it just turned me into a zombie. the bottom line- is - its good for a quick fix - sometimes... but i do believe a good therapist could do better :)

0

Share this post


Link to post
Share on other sites

studies show that cognitive therapy can be just as effective as antidepressants or more.... i will say that when i took Paxil 12 years ago- it was exactly what i needed at that time in my life- it was a temporary crutch i used for a year that i am glad i took. about 5 years ago i went on Paxil again- but this time it just turned me into a zombie. the bottom line- is - its good for a quick fix - sometimes... but i do believe a good therapist could do better :)

Antidepressants and mood-stabilizers are very person-specific. I think they're doing genetic testing to try to see if there's a way to tell BEFORE giving someone the drug whether or not it'll work on them. But you're right that the same drug doesn't always work the same way on the same person at a different time in their life, and you're also right that therapy either helps or works completely for a lot of people, too.

I've been in therapy before, but never on an antidepressant. With therapy, it's important to remember that you have to audition your doc - you need someone who will challenge you to grow, but whom you can respect and work well with. That's all interpersonal stuff, so not every therapist works for every person.

0

Share this post


Link to post
Share on other sites

Hi, i know nothing about gluten and mental stuff but i just wanted to send you a virtual hug. I have suffered with depression (officially diagnosed) for 10yrs and had a very sad childhood (in my head). It's awful. I've been hospitalised, suicidal, self harming and anorexia. I've just gone gluten free (due to GI symptoms) and am hoping,as a bonus, with time my depressive symptoms will improve.

Medication for my has literally saved my life but i've had lots of therapy too. Definitely 'audition' your therapist and change if it doesn't work out. If you don't 'click' its a waste of time.

Just sharing the pain. Good luck.

P.S anyone heard of a link with gluten and anorexia?

0

Share this post


Link to post
Share on other sites

Have a glance at my profile. Gluten can definitely cause mental issues!

0

Share this post


Link to post
Share on other sites

P.S anyone heard of a link with gluten and anorexia?

i was anorexic for a short while.. I dont think there's a specific link. However- if it causes &/or aggravates depression and anxiety in many of us- then it could contribute to making us more prone to extreme behavioral conditions. Also, i think that a phase of anorexia could definitely be a trigger to turn the celiac "on"

0

Share this post


Link to post
Share on other sites

I realised that foods could really effect people's behaviour, but I didnt expect gluten to be one of them. Guess because it wasn't as drastic as my brother's allergy I didnt really notice it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,640
    • Total Posts
      921,544
  • Topics

  • Posts

    • I get these crazy cravings for some things I can not eat anymore. Not only am I diagnosed with celiac but I also have a allergy to corn, olives, sesame, peanuts, and intolerance to yeast, soy, dairy, and a very low tolerance for carbs/sugars, Top it off with I can not digest meats or egg yolks, they just give me the burps and come up later.
        To deal with these I find myself turning to Republic of Teas (They have a great desert tea line up all certified gluten-free) and sweetening them with monk fruit extract, or stevia. And I find myself making Puddings bases that I use for shakes, dips, and ice-cream for meals. The puddings are normally a blend of cashew, or almond milk with a thickening agent like agar agar, pectin, or knoxx gelatin, blended with a sweetener like xylitol, swerve, stevia, monk fruit or a combination. And flavored with Lor Ann Oils (all gluten-free certified and you can find the kosher ones listed as such) super strength flavors or fountain syrups to match something I can not eat normally a combination of two flavors (Strawberry Cheesecake, Banana and Carmel, Cookies & Cream, etc) Then I add a fat that matches best, like almond butter, cashew butter, hemp butter, ground flax seed, coconut flour, chocolate, Pumpkin seed butter or a combination) These bases are normally blended up and consumed with 1-2 scoops of protein powder and eaten with steamed vegges as a side dip or loaded into a ice cream maker for a desert after my meals.      Also found myself making desert soups....like a pumpkin soup that taste like pumpkin pie. I am sure we all have our little quirks but this is one of mine for getting that sweet craving taken care of. Most premade items are off my list due to the allergies and it seems most companies use the oils, starches I am allergic to as non stick or thickening agents, Even the semi safe ones tend to put way to much sugars in them and I find myself only being able to nibble . There is also my little binge issues with almonds, pumpkin seeds, and, cocoa but that was explained to me as normal And on my most craving for peanuts I have found sancha inchi powder to work great, The Powder itself taste like the girl scout peanut butter cookie sandwich from my childhood, And is great mixed with a bit of almond milk into a butter or used in baking and smoothies. Before this I have been making Artisan blends of almond butter for years and even made a market selling them to pay  for my own consumption. Baked goods wise I have a bunch of recipes I make for others and sell at markets and this allows me to nibble on a sample to check it, as most contain a bean or gluten-free Harvest Oats/Flour in them and the carbs from that and the coconut sugars bother me. Still helps with cravings there, I only have 2 recipes that sell good and are safe for me to eat full servings of but are so expensive as they use almond and coconut flours, low sugars/xylitol and are paleo that I only can afford to make them once a month. Posting to hear about some odd and out there ways others deal with substitutions and cravings. Please do not bash mine as odd as they might be as they keep me from going crazy. (Yes I know DROP THE OATS, fact is I only get them when tasting stuff and they are gluten-free Harvest, the only ones I have never gotten glutend with)  
    • After suffering pretty much all year with one illness after another I've finally managed to get a diagnosis and it turns out to be celiac. After my doctors consistently failing to even consider the possibility it might be that (as opposed to "IBS" or "stress") I kept pushing for the Iga TTg test and it was off the charts with a score of >128... may as well fail it in style I guess. So here I am at the start of what feels like the end of my life as I know it. Been doing nothing but reading for the past week and frankly it's terrifying. Here's a few things that are going round in my head and I'd really appreciate your thoughts with. Apologies if it's a bit of an essay  Diagnosis I'm still furious at my doctors for not even entertaining the thought that celiac could be the root cause of all my ills. Given the blood test is so simple it feels almost negligent that they don't run this right at the start to rule it out. Instead I got subjected to poisons like Omeprazole which made me even more ill, whilst being told the physical symptoms were all in my head. Just as well I knew better and kept hitting up Google until my self-diagnosis was proved correct... to think these people get paid highly to be so incompetent makes my blood boil. Does feel good having outwitted the so-called professionals though. Seems 9 months is comparatively quick from symptoms to diagnosis compared to some others that have gone years with the problems so could be worse I guess. Food and diet I'm male vegetarian (non-negotiable) which makes this even harder as so many of my protein sources are now ruled out. Seems many with celiac were having trouble losing weight whereas I'm in the opposite situation. Already lost best part of a stone in the past few weeks and it's becoming noticeable now. The MyFitnessPal app reckons I need 2600 calories a day to maintain \ gain weight - no idea where that's going to come from. On top of that I read sites like Gluten Dude where even the Gluten Free foods are seen as poisons and going on extreme diets like Paleo \ SCD are the only real way forward. Again being veggie makes that practically impossible and if I'm unlucky enough to end up with the dairy issues as well I'm well and truly stuffed. Right now I'm trying the gluten-free Quorn products to see how I go, as well as more eggs etc. Porridge has been my go-to breakfast in the mornings for a while after I cut out bread whilst self-diagnosing but depending on where you read even that's a potential problem (currently using gluten-free porridge oats and seeing how it goes) Seems many gluten-free people have to go right back to basics and cook everything from scratch. That's a problem for me as I'm utterly hopeless on that front and time doesn't permit waiting hours just to prepare one meal. Seems nigh-on impossible to do day-in, day-out. Health Rightly or wrongly right now I see this diagnosis as a death sentence long-term. Looks like it brings other associated illnesses with it and this particular article really scares me: http://scdlifestyle.com/2012/03/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ I've only really had noticeable symptoms for the past year or so but wonder how long this has been going on for and what damage has already been done. All seems to have started from when I turned 30 (knew I was dreading that age for a reason) and right now I wonder how long I'm going to last before the really bad stuff starts. One of the other illnesses I'd considered as a possibility before getting diagnosed was Hashimoto's Thyroiditis; now it seems that's closely linked with Celiac so may not be out of the woods with that yet either. Just seems to be one big list of illness all triggered from the same point One positive change I've noticed thus far since cutting out gluten is that bloating seems to have gone down and bowel movements are better. Still getting headaches and muscle twitching, which could be as much a withdrawal symptom from gluten as anything else.  Some sites were suggesting stopping exercise whilst withdrawing but I can't face that as it's the only thing keeping me going at present. Again will keep going as-was and see what happens. Then to top it off it sounds like the next step is the biopsy - I'm scared of being put out for the procedure as a member of family went into hospital a few years back for something supposedly routine and never came back out. From what I've been told it's important to have done though as it shows just how broken the villi are so another thing to worry about in the meantime. I've just read on another thread that you have to be on gluten to have the test, that's another kicker after having started to cut it out the diet. With such a high blood test Iga-TTg score isn't it almost certain that celiac is the cause and the endoscopy in this case is just confirming levels of damage? OK means I can have a final blow-out eating all the "bad" foods but no doubt with all the side effects that come with it... Social life Seems like despite there being some gluten free options in certain restaurants (granted better now than years ago) I'm going to be hugely limited in food options. Either sitting on the side looking on or just plain not able to go out much anymore. Already had the first hitting-home moment watching colleagues eating pastries that were brought in while I just have to look on... then it dawns that this is never going to get better... urghhh Family life I'm really struggling to accept this lifelong illness and loss of health and it's taking a toll on the people around me at the moment. They won't be going gluten-free so will have to take my chances with the mixed kitchen environment; already gone with split toasters etc. so can't do much more than that. Dating Basically seems game over on that front, unlike many who are diagnosed with understanding partners \ spouses I'm still in the dating game, which is judgemental enough as it is without all the complications that the gluten issues bring. I'm reading even kissing someone with lipstick \ make-up is apparently a big no-no... once any date hears that they won't be coming back... forever alone status confirmed is how it looks right now. Overall feelings I still can't quite figure out if this illness was in me all along and just hasn't flared up enough to notice until now or whether the extreme stress I've been under for the past year or so has triggered it. If the second scenario is correct I can't stop thinking about the events that all led up to this almost year-long bout of ill health and life-changing diagnosis. Can celiac be brought on by stress alone or realistically was I always a ticking timebomb just waiting to be set off? For every person I see that's had a positive change after cutting out gluten (and getting by with reasonably achievable adjustments) there seems to be 10 others with horrible side-effects and long-term complications. Right now the future feels rather bleak - like all hope just been taken away. Help???
    • It sounds like you're doing great. That's amazing that your anxiety has decreased like that. You're obviously doing something really good for your health. With the other things I'm sure they will get better in time. After I gave up gluten I had a bad year but overall it got better. Things like anxiety and insomnia massively improved over time with being gluten free. However, going Paleo (which you are on your way to with the no dairy too) really helped my anxiety, as did running and self-taught acupressure. In particular I found processed gluten free foods were awful for my mood. I know you have to find your own way but I really want to encourage you to see how you feel without that if you haven't already. I also can't afford therapy but when I did have it, that helped too but just being well, gives you the chance to sort your own thoughts and feelings out even without a therapist. Good luck
    • Thank you so much guys. Reading that last response and those from forum members who seemed to be mind-bogglingly sensitive to gluten at times helps me feel like less of a freak  Perhaps worse than the symptoms themselves was my fear that I'm the only person on earth who has gone through this and that if it continues, I will end up with all of my friends and family washing their hands of me because it would look to them like I'm the only one with this and so I must be crazy. It's really good to hear that the sensitivity can go down too. I've been holding onto this idea through the tough times, reminding myself that I also had really bad hayfever for a few years, and asthma at a different time and they both got better.  It has been a whole month since I had a bad reaction to gluten. It has also been two weeks since I even had a small reaction and I'm feeling SO much better. I'm still going to take every precaution I can but this feels worlds away from how it was. At my most risk averse, I had a day on holiday where I only ate bananas and avocados because I could eat them without them having been touched by human hands, even my own! (This was straight after getting sicker and sicker and hunting down what it was that made me ill. I found the refill bottles of soap in the house where I was staying and read that they had wheat in them - not an airborne reaction I imagine but when I washed my hands to prepare food it was probably contaminating my food. Plus because I didn't speak the language, I couldn't be sure the new soap I bought was gluten free.) Now, I am still avoiding environments with lots of gluten and staying clear of grains, but I have reintroduced rice using the food challenge method as directed by my dietician (since I understand that rice is, according to Dr Fasano, the lowest risk of gluten contamination of all the grains) and I am building my weight back up. My Paleo+Fasano diet has been assessed by a registered dietician to include every nutrient and micronutrient that I need so I guess having a really good diet is helping too. My husband has been able to see also that the last time he cooked gluten in the house was the last time I got ill. So it is reassuring for him to see that the sacrifice he is making is making such a difference to me. I also took the advice about new cooking utensils - thanks! I have my fingers crossed for me. I want this better health to continue but right now I'm happy to know that there is a break in the clouds and to know that I can feel like me again. A lot of the steps I have taken to avoid gluten would be seen by some as over the top but I can say that for me, when I introduced these steps, that's when I stopped getting reactions and it's all worth it. Good luck to everyone, sensitive or not, who gets into a bad place with managing their reactions. Hang on in there!        
    • Hello all  I have been living gluten free now for 6 months, as directed by my family doctor after a 6 week elimination diet revealed that I may be celiac or gluten sensitive. I was tested by blood work,  which showed nothing, and am awaiting a specialist to get a biopsy done. I am no where close to getting into see her as it is cased as a non emergency. I have been constantly having bowel problems, rashes all over my body, low iron, weight fluctuations, no energy, depression  and anxiety now for 6 years. Have been a huge nuisance(imo) to my doctor requiring constant antibiotics for this,  creams for this "mystery rash" and either laxatives for constipation that would sometimes go on for over a week to diarrhea that would keep my home- no in between . It hasn't been easy, especially whenever doctors are so quick to blame all symptoms as mental illness. Even though I have continuously told them I feel my issues are something simple...  not a mental illness. Anyways long story short, after going gluten free I have had somewhat Nnormal bowel functions, less rashes around my stomach, been able to cut back drastically on my depression medications and anxiety meds, and energy has taken a huge improvement  which all is great! But .... I am constantly HUngry have gained 20 lbs and can no longer fit into most of my clothes. This is really bothering me because I am afraid I am approaching a weight problem.  At only 5'5" weighing 165lbs is large to begin with. Especially whenever I have two children and have only EVER weighed this much while being pregnant with them. I am 26 years old and just tired of not being myself. I am physically healthy and just would like my body to act it. Any help would be greatly appreciated, as I said I am only 6 months into my journey and have definitely re exposed myself to gluten (accidently) many times in between. Much love. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,643
    • Most Online
      3,093

    Newest Member
    moojoo
    Joined