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Swollen Lip?


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6 replies to this topic

#1 jessicalw28

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Posted 25 October 2010 - 01:24 PM

This morning I woke up with a swollen upper lip and puffy eyes. I am not diagnosed celiac and I am still eating gluten. I have had a lot of GI issues and have suffered with hives the past few months and many other celiac related symptoms my whole life. I am in the process of attempting to get diagnosed. I have not started the diet yet because the doc wants to do intestinal biopsies. GI doc told me to cut out dairy and gave me an antibiotic (xifaxan). The antibiotic is to rule out small bowel bacterial overgrowth. It is a 14 day treatment and I'm on day 11. I do not think it would have taken this long to have an allergic reation to the medication. My hives are not much better, but my GI problems are about 50% better. I am thinking cutting out most dairy (mainly lactose) has helped. I have never had a reaction like this before. My hives are usually just red patches or bumps on the surface of the skin. I am not allergic to anything that I know of. Lactose intolerant, but not dairy allergic. I did have a pretty good amount of gluten yesterday (muffin at breakfast, birthday party involving beer and cake, chicken pot pie for dinner), but like I said, I'm not for sure diagnosed yet. Has anyone ever had this kind of reaction to gluten or dairy? I took benadryl and most of the swelling has gone down but I'm scared I may wake up tomorrow with my throat swollen!
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Jessica

"One person can make a difference, and everyone should try."- JFK

Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood

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#2 tarnalberry

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Posted 25 October 2010 - 02:16 PM

What you describe is an allergic reaction, NOT a celiac reaction. Please call your doc - you guys need to find out what you're allergic to ASAP.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#3 Dixiebell

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Posted 25 October 2010 - 02:20 PM

Xifaxan

What side effects may I notice from receiving this medicine?

Side effects that you should report to your doctor or health care professional as soon as possible:
•allergic reactions like skin rash, itching or hives, swelling of the face, lips, or tongue
•blood in the urine
•bloody or watery diarrhea
•fever

http://www.bing.com/...axan#sideffects
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#4 jessicalw28

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Posted 25 October 2010 - 02:25 PM

What you describe is an allergic reaction, NOT a celiac reaction. Please call your doc - you guys need to find out what you're allergic to ASAP.


I've had hives constanly since June. I've been tested for allergies (food and environmental), nothing came back positive. I've seen an allergist and an immunologist. Their diagnosis was chronic idopathic urticaria. It is an apparently an autoimmune reaction and so is celiac. The benadryl is helping right now. If the swelling is still there in the AM I am calling my GI doc and immunologist. I have many other symptoms that point to celiac and I'm trying to find out if I have it. I also have GERD, anxiety, eczema, keratosis pilaris, diarrhea and constipation, fatigue, irregular periods, lactose intolerance, etc.
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Jessica

"One person can make a difference, and everyone should try."- JFK

Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood

#5 jessicalw28

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Posted 25 October 2010 - 02:31 PM

Xifaxan

What side effects may I notice from receiving this medicine?

Side effects that you should report to your doctor or health care professional as soon as possible:
•allergic reactions like skin rash, itching or hives, swelling of the face, lips, or tongue
•blood in the urine
•bloody or watery diarrhea
•fever

http://www.bing.com/...axan#sideffects


Yes, I am aware of these side effects, but I have been taking it for 11 days. I wouldn't think it would take that long to react. I have never reacted to a medication before. My hives are diagnosed as chronic idiopathic urticaria. I am taking antihistamines, but they don't help completely. Angioedema (swelling of the tissue in the face, hands and feet) is related to chronic urticaria. Trying to find out if the chronic hives are possibly coming from celiac or gluten intolerance. Tested negative for food and environmental allergies. I'm supposed to call GI doc once I finish the antibiotic (3 more days). I don't think it is helping. I think going mostly dairy free is what helped my GI symptoms. Taking benadryl right now to keep swelling down. I'm going to call the GI doc and my immunologist if it's not gone tomorrow.
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Jessica

"One person can make a difference, and everyone should try."- JFK

Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood

#6 tarnalberry

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Posted 25 October 2010 - 03:45 PM

Reactions to medications can occur at any time - and often do take a number of days to develop.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#7 jessicalw28

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Posted 26 October 2010 - 07:46 AM

No swelling this morning. I took benadryl all day yesterday and before bed last night. For now I guess I will keep taking the antibiotic. I just have to take it today and tomorrow. Once I am off of it for a couple of days, I will be calling the doc to schedule biopsies. I don't think it helped much.
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Jessica

"One person can make a difference, and everyone should try."- JFK

Self diagnosed gluten intolerant- December 2010
Lactose intolerant- since childhood


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