Any Advice Would Be Appreciated?
Posted 21 June 2005 - 03:40 AM
THe one test Igg was positive at 66 (I believe normal is like 20 or less). THe number that he was concerned about was the Tgg or EMA (I believe these two are the same) and are the most specific for celiac disease. So one abnormal, but least specific for celiac disease. THe one that is a few points below abnormal is most specific for celiac disease. He called the tests borderline. I really think what happened is that I was on the diet too long before the blood test. I asked him why he thought it was still possibly positive and he said that most people that don't have celiac disease, would have a zero for the EMA. Has anyone else had that problem? I am scared of eating gluten and going back to feeling cruddy. He said lets just stay on the diet for now. I just wonder if I am going to feel like I have it a year from now. I know I feel better not eating it. LIke 100% better and I don't even know what would happen if I started trying to eat it constantly for the biopsy.
Has anyone else experienced this? What do you guys think? He seemed to think I did have it, but that if I was going to be on the diet with my son, then just stay on the diet and get tested maybe even later. Then I sort of think, well why not just start eating gluten and get the biopsy. Even though I am sure I would be sick.
Ok, I am rambling. I would greatly appreciate anyone's opinions?
Posted 21 June 2005 - 04:44 AM
If your blood test was simply "borderline" after already being gluten-free (sorry, it still seemed elevated to me) that is still an indicator that gluten is not good for you. There are more GI docs coming out now saying that positive or even borderline blood tests are enough to dx celiac, and that the biopsy is no longer the gold standard. You will find a lot of info out here saying that you HAVE to have the biopsy in order to be sure you have celiac. I disagree, My dr. disagrees and like I said, listen to your body... talk to your Dr. about it of course, but remember, Dr.s are not Gods... they are people, they have egos and they make mistakes...
The gluten-free diet is actually a very healthy diet (or can be as long as you keep it balanced) so IMO it won't hurt you to be gluten-free with your son even if you aren't technically "celiac"
Posted 21 June 2005 - 05:00 AM
Thanks for your advice though. My doctor is wonderful and does feel that I have it. I think he thinks I will be faithful to do the diet because I feel so much better and I get sick when I eat it. He is happy to do whatever I want, but feels I need to be eating gluten if I am to have the biopsy.
ONe more question. What about everyone's insurance? Has anybody had problems with them dropping you or whatever?
Posted 21 June 2005 - 06:36 AM
Enjoy your gluten free, healthy life!
Posted 21 June 2005 - 07:27 AM
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