Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Does Anyone Have This Problem?


Rowena

Recommended Posts

Rowena Rising Star

I am so very tired of checking everything online or having people check online for me. It frustrates me to no end that many products are unlabeled. I look in the the ingredients and there are no tell tale signs of gluten. (Or any allergy info for that matter). But they don't say gluten free. They don't tell you processed on what equipment its been produced. I am utterly frustrated, because apparently I am one of those people who are insanely sensitive to cc! WILL SOMEONE PLEASE PLEASE make the food safe again?

Sorry for the rant but I just got frustrated after I spent an hour trying to determine if tomato pastes and green chilis were safe last night, and reached a new boiling point when not even the staff could help me. "It's just tomatoes!" Gah! No it ain't. Ever heard of cross contamination?

PS anyone ever had a problem with Hatch green chilis or Pomi tomatoes? (I got the chopped ones)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Christi1996 Newbie

I do know that Hatch makes an enchilada sauce (I *think* it is the green sauce but it could be red) that has wheat listed in the ingredients. I don't know if they share equipment or not though.

You could make your own roasted green chilies. Buy some anaheim chilies and blacken the skin on the grill or stove top, then remove the blackened skin. You can also freeze them with the blackened skin on and then slip the peel off right before using.

Link to comment
Share on other sites
Gemini Experienced

I am so very tired of checking everything online or having people check online for me. It frustrates me to no end that many products are unlabeled. I look in the the ingredients and there are no tell tale signs of gluten. (Or any allergy info for that matter). But they don't say gluten free. They don't tell you processed on what equipment its been produced. I am utterly frustrated, because apparently I am one of those people who are insanely sensitive to cc! WILL SOMEONE PLEASE PLEASE make the food safe again?

Sorry for the rant but I just got frustrated after I spent an hour trying to determine if tomato pastes and green chilis were safe last night, and reached a new boiling point when not even the staff could help me. "It's just tomatoes!" Gah! No it ain't. Ever heard of cross contamination?

PS anyone ever had a problem with Hatch green chilis or Pomi tomatoes? (I got the chopped ones)

I am also insanely sensitive, along with many Celiacs, and there are products that I just don't worry about and have never had a problem with. I have also been doing this for almost 6 years so have a pretty good understanding of what you need to be careful with and what you don't. Food, for the most part, is safe, except for anything that would naturally contain wheat which a company is trying to make gluten-free or is manufactured in a shared facility. Canned veggies, tomato paste, canned tomatoes to make a sauce with, etc., I have never found to contain anything remotely containing gluten. Never had an issue with cc before either...only in shared facilities and that usually involves food which absolutely contains wheat as opposed to a gluten-free line that they may try to do. If you read the ingredient listings and the product says tomatoes, then it will contain tomatoes only and unless it's a bread company that is also making tomato sauce, I don't understand the worry. It might just be an issue with being new at this and learning the ropes but you can eat many things non-Celiacs do and it shouldn't cause a problem unless you have multiple food intolerances. It can be frustrating at first but you will soon learn that most of what people worry about are non-issues. I do not eat many foods from shared lines because I have had problems with those but

as far as figuring out what contains gluten and what doesn't from the label, you get the hang of it over time.

The problem with expecting things to say gluten-free in large letters is that manufacturers will not go that far unless they have a completely gluten-free facility....as it should be. Even if the baked beans are gluten free, by putting that on the label, they open themselves up to liability from sue happy America. I just returned from a trip to the UK and Starbuck's has many more gluten-free options than we do here. Gluten-free salads and desserts you will not see here because of the difference in liability laws. Yet, I ate those things and had zero issues so I know they were safe. The salads were really good too...... :(

Link to comment
Share on other sites
GlutenFreeManna Rising Star

I have yet to have a problem with canned foods that have single ingredients such as tomatoes or just chilies. I figure the more ingredients in the product the more likely cc could have occured. I avoid most things with long ingredient lists. It does get easier the longer you do this. You learn what brands you can trust. The problem is that "Gluten free" on the label does not guarentee no cross contmination. I get sick from Bob's Red Mill products and they are made in a dedicated gluten free facility. Other people here have expressed they have problems with Udi's. And even if the government mandated tommorrow that ALL food had to test for gltuen and declare a gluten status on the label, the tests cannot detect zero gluten. I think the most sensitive test detects 5 PPM and in some countries the standard is 20 PPM. Those levels may be safe for most celiacs, but there will always be super sesnitive individuals that can react. Bottom line is you just have to read the labels, cook as much from scratch as you can (using as many whole food ingredients instead of canned as possible) and trust your body's reactions to be the final judge on whether you should keep eating certain products.

Link to comment
Share on other sites
Rowena Rising Star

The problem with expecting things to say gluten-free in large letters is that manufacturers will not go that far unless they have a completely gluten-free facility....as it should be.

It ain't so much the problem of them stating "gluten-free" but more of the fact that not everyone has a label stating "May contain traces of" or "Processed in a facility that...." The thing is, I am new to this gluten-free diet, yes. I am also not familiar with a lot of the brands at Whole Foods, as I have never shopped organic.

But also, I was asking in particular about the chilis because Walmart's do contain a warning on them. It was the last thing I expected, but I tossed them anyway (Or I gave them away, I don't remember). Turns out I didn't have a problem with the tomatoes or chilis though. And my chili was amazing!

(And yes, I do normally use fresh foods as opposed to canned but when I asked, I had started making chili, and I needed ingredients FAST! After all I don't get home in time to cook extravagant meals. I did make my own beans though. It was fun... Had my hubby prepare/soak them while I worked so it could be ready on time.)

Link to comment
Share on other sites
psawyer Proficient

Rowena, I am assuming that you do not have any gluten-containing products in your house, because if you do then it would be a shared facility.

I am also assuming that you never, ever eat or drink anything at a restaurant, since every single restaurant I have ever been in is a shared facility with shared equipment.

We had gluten products in our kitchen for years after my diagnosis, but washed thoroughly (as do restaurants and manufacturing facilities).

For the most part, I treat those voluntary shared disclosures as CYA statements.

Contamination in tomato paste is more likely to be from the crop coming into the factory than from within the factory itself.

I am in my eleventh year on the diet, and have had very few problems in that time.

Link to comment
Share on other sites
Takala Enthusiast

I have seen Contadina brand canned tomato paste, with added flavors with gluten. Right on the label, is wheat. :angry:

Never assume. That is what gets you in trouble.

Most canned single ingredient items are going to be okay. Some are not.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Most canned single ingredient items are going to be okay. Some are not.

It isn't "single ingredient" if it also has anything else.

Link to comment
Share on other sites
Rowena Rising Star

Rowena, I am assuming that you do not have any gluten-containing products in your house, because if you do then it would be a shared facility.

I am also assuming that you never, ever eat or drink anything at a restaurant, since every single restaurant I have ever been in is a shared facility with shared equipment.

We had gluten products in our kitchen for years after my diagnosis, but washed thoroughly (as do restaurants and manufacturing facilities).

For the most part, I treat those voluntary shared disclosures as CYA statements.

Contamination in tomato paste is more likely to be from the crop coming into the factory than from withing the factory itself.

I am in my eleventh year on the diet, and have had very few problems in that time.

No offense psawyer, but that was a bit on the rude side. I am just starting out this diet. Its been a month since I last ate gluten. So yes I may be a little over cautious. But about as long as you have been on the diet I've had skin problems that I just attributed to bein dry skinned and sensitive. Never crossed my mind that I could be allergic/intolerant to somethin like gluten, and that it would be in such products. And for at least 4 years now I have been dealin with GI problems, and nothin helped. The past year and a half I could barely get out of bed I was so sick. I somehow managed to gain a lot of weight that I have never been over 120 lbs in my life. My girl time rarely happened, I've been infertile. I didnt have any energy. Life just stopped. And finally I am feelin better. So if I seem over cautious forgive me. I for the first time in a long time feel human. And I aint about to take unnecessary risks, when I am finally feelin better. So if I am annoyed at unclear labellin, or some other newbie thing, Id appreciate it if you didnt insult my intelligence. And that is what I feel like you have done

Sorry if that was harsh, I don't ever mean to be harsh. I usually have a hard time sayin how I feel, so it often comes out harsher than I mean it. But like I said, it was a little bit rude. I am sure you didnt mean it to be that way. But sometimes we need to be careful how we write online because there is no tone to tell us how it is really meant. I admit I sometimes need a reminder of that too (actually no I should say frequently, because I feel things very deeply), but hey. We're only human right?

Link to comment
Share on other sites
psawyer Proficient

Rowena, I did not intend to be rude, although in rereading my post it was more blunt than I usually am.

What I did intend to do was put shared manufacturing facilities in perspective. Most of us visit restaurants at least occasionally, and many of us live with people who eat gluten in the house.

Cross contamination is possible in ANY product, and not just at the final production point. But it is not really that common.

If you consistently experience problems after eating a product, discontinue its use. But the fact that there is wheat in the building is not, for most of us, enough reason to boycott the company.

Link to comment
Share on other sites
gf-soph Apprentice

Rowena, I did not intend to be rude, although in rereading my post it was more blunt than I usually am.

What I did intend to do was put shared manufacturing facilities in perspective. Most of us visit restaurants at least occasionally, and many of us live with people who eat gluten in the house.

Cross contamination is possible in ANY product, and not just at the final production point. But it is not really that common.

If you consistently experience problems after eating a product, discontinue its use. But the fact that there is wheat in the building is not, for most of us, enough reason to boycott the company.

For my part I do see a bit of a difference in comparing the shared facilities warning with a shared household. I think the biggest difference is the transparency - I know every procedure in my house that keeps the gluten out of the kitchen, I can monitor it directly and set in place procedures that I am comfortable with. It also involves trusting just 3 people that are well informed about my condition and want me to be well. I can ban flour and keep the bread in a different room. I KNOW that it is safe.

Even restaurants - I can speak directly to the people involved in preparing my food, and ask about their procedures. It's not as safe as home, but I only ever trusted about 4 places for that reason.

A shared facility is different as I have no idea how big it is, what else they make there, their procedures for reducing cross contamination - I don't have the information to judge what sort of a risk I am taking. I am not sure about my exact position on these warnings as they are not on any of the food I eat, but I know I would treat that information seriously when deciding whether to eat them. I understand that it isn't high risk, but I am pretty risk averse with my gluten free diet and I imagine that a lot of people who are still adjusting to the diet and recovering their health would be too.

Just another perspective on the issue!

Link to comment
Share on other sites
Rowena Rising Star

psawyer-happy.gif all is dandy. Just wanted to point that out. Because hey, I am sure I would have taken it a different way were I sitting next to you in person. But that's the problem, we ain't next to each other in person. I did grasp your meaning though.

gf_soph- I am of your opinion on the matter. Shared facilities you never know what REALLY goes on behind the scenes. At least at home you can put up preventive measures to make sure your food stays safe from the gluteny stuff that may or may not be in your home. (I can count on one hand the unsafe foods that are in my home. Because thankfully my husband eats for the most part what I eat. The only times he doesn't is when he realizes we're low on something and we have an alternative for it. He always says "I don't want eat the rest of the only food you can eat when I have something else to replace it.)

We also sanitize our dishes as they get washed (with bleach then soap it off) so I am always certain that my dishes are safe. (The bleach also helps get some of the worst grit off.. *grin*)

As for restaurants, I always pick ones that have distinct gluten free menus, and then call ahead and make sure they really are gluten free. I've found that a number of gluten free menus at restaurants were not really gluten free. Beyond the incessant calling and probably annoying people with my questions, I mostly stick to restaurants that have high ratings from other gluten-free eaters.

But the food in stores that we buy, I always question, unless it is product line that is entirely gluten free, or fresh foods. (Which are usually the only two ways I buy things.) But when you are in a hurry and need something fast, the lack of labeling is rather frustrating. And that's why I started this thread. And since I am new to this diet, I haven't yet gained a knowledge of what foods that aren't clearly labeled are safe. I rely on your guy's advice for that right now.

Link to comment
Share on other sites
kareng Grand Master

We also sanitize our dishes as they get washed (with bleach then soap it off) so I am always certain that my dishes are safe. (The bleach also helps get some of the worst grit off.. *grin*)

Just FYI: Bleach doesn't "kill" gluten. Its a very large, strong protein. I have found that plain white vinegar dissolves wheat flour well from when I used to use wheat flour. Also, dissolve alot of other things. :unsure:

Link to comment
Share on other sites
Rowena Rising Star

Do you mix that with your soap? Or how do you use it?

(As for the bleach tip thanks. I am not to worried since my stuff is all new pretty much but good to know! I use bleach for other purposes when washing my dishes... but that's good to know)

Link to comment
Share on other sites
Gemini Experienced

Never assume. That is what gets you in trouble.

I never, ever assume anything. To this date, I always read every label of anything which goes into my mouth. However, for the above mentioned items,

it's fairly easy to come to a conclusion on whether it contains wheat, barley or rye. I really understand how difficult being a new Celiac can be, especially for those who aren't used to cooking or knowing what is in the food they eat but if you worry about cc in everything you buy or eat, life is going to become very difficult when it needn't be.

My husband is not gluten-free and we have a shared facility household and in almost 6 years, it has never, ever been a problem. Common sense and thinking things through will work for most people, plus a forum of seasoned Celiacs (no pun intended!)to help out. This is not rocket science.

Link to comment
Share on other sites
kareng Grand Master

Do you mix that with your soap? Or how do you use it?

(As for the bleach tip thanks. I am not to worried since my stuff is all new pretty much but good to know! I use bleach for other purposes when washing my dishes... but that's good to know)

I usually use half water half vinegar in a little spray bottle. Spray all over my Kitchenaid mixer and in the little cracks after it used for wheat cookies. Also good for slow drains and toliets. Boil water and pour down drain. Pour full strength and let sit. Pour more boiling water.

Link to comment
Share on other sites
Rowena Rising Star

I usually use half water half vinegar in a little spray bottle. Spray all over my Kitchenaid mixer and in the little cracks after it used for wheat cookies. Also good for slow drains and toliets. Boil water and pour down drain. Pour full strength and let sit. Pour more boiling water.

Sweet, thanks! (And yeah for drains and toilets it is EXCELLENT! Though I usually mix it with baking powder.)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    2. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    4. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders
      9

      Joint swelling when ill even on gluten-free diet


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,066
    • Most Online (within 30 mins)
      7,748

    Danyelhack
    Newest Member
    Danyelhack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
×
×
  • Create New...