Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Onset Of Neurological Symptoms After Being Glutened
0

14 posts in this topic

Hey,

I have a question for those of you who have associated neurological symptoms with gluten intolerance.

What is the time frame in which you experience neurological symptoms after consuming gluten?

I have been gluten free for about 2 months, and recently discovered a tapioca intolerance as well. I was accidentally glutened yesterday, and today I'm feeling a lot of disordered thinking - depression and anxiety. Since going gluten free, I have noticed some improvements in my neurological symptoms, and it seems like every time I get glutened, they return full force.

Is it possible that gluten can cause an increase in neurological symptoms within hours?

(Alternatively, I acknowledge I could simply be frustrated at feeling so crappy again, which could also be causing the return of anxiety and depression)

Any advice or similar experiences would be greatly appreciated!

0

Share this post


Link to post
Share on other sites


Ads by Google:

90% of my symptoms are neurological, and not sure if this is typical of all who are gluten intolerant. If I ingest just a bite of either gluten, casein or soy, I feel dizzy within 10 minutes. For me, the response duration is commensurate with the amount ingested. Just a taste of something can leave me feeling "weird" for an hour. Since I am now accustomed to tasting and waiting, it's been a few months since I've had any reaction last longer than an hour.

0

Share this post


Link to post
Share on other sites

Is it possible that gluten can cause an increase in neurological symptoms within hours?

Yes, it's possible. My first symbol appears within an hour (severe headache), rapidly followed by fatigue, foggy brain, and a motion disorder. The duration and severity seems to correlate with the amount of gluten ingested.

0

Share this post


Link to post
Share on other sites

My neuro symptoms hit within a couple of hours at most and last for a couple of weeks. My GI issues (other than stomach growling which hits within an hour) don't appear until 3 days later.

0

Share this post


Link to post
Share on other sites

Yes, it's possible. My first symbol appears within an hour (severe headache), rapidly followed by fatigue, foggy brain, and a motion disorder. The duration and severity seems to correlate with the amount of gluten ingested.

what kind of motion disorder?

0

Share this post


Link to post
Share on other sites




In my case the onset of symptoms is 1/2 to several hours after glutening, duration depends on how much gluten I ingested (or breathed in) - several weeks to several months. In july I accidentaly ate a bag of gluten cookies (the gluten-free package looks exactly the same, same name color... just the ingredients list differs) and I only started getting better last two weeks. I don't get any GI symptoms any more, just yeast infections (finger nails and throat) and a long list of neuro symptoms.

0

Share this post


Link to post
Share on other sites

This is GREAT feedback. Thank you so much, all of you.

I am VERY greatful for this forum - I would be very lost without it!

0

Share this post


Link to post
Share on other sites

I ate gluten for lunch (accidentally) and by 4pm I was having dizziness and vision disortion. It lasted into the next day, though my GI symptoms take about 3 days to clear.

0

Share this post


Link to post
Share on other sites

yes for me it hits in a matter of hours and lasts around 2 to 3 days.

0

Share this post


Link to post
Share on other sites

I have been researching this for some time as I have been having seizures for about four years. I believe that there is a direct connection between my seizures and gluten ingestion. I ws accidently glutened at a restaunt about a month ago and my siezures got worse the next week.

Ken

0

Share this post


Link to post
Share on other sites

Hey,

I have a question for those of you who have associated neurological symptoms with gluten intolerance.

What is the time frame in which you experience neurological symptoms after consuming gluten?

I have been gluten free for about 2 months, and recently discovered a tapioca intolerance as well. I was accidentally glutened yesterday, and today I'm feeling a lot of disordered thinking - depression and anxiety. Since going gluten free, I have noticed some improvements in my neurological symptoms, and it seems like every time I get glutened, they return full force.

Is it possible that gluten can cause an increase in neurological symptoms within hours?

(Alternatively, I acknowledge I could simply be frustrated at feeling so crappy again, which could also be causing the return of anxiety and depression)

Any advice or similar experiences would be greatly appreciated!

Mine happens in a few hours. The GI symptoms begin though about 20-30 minutes after I ingest gluten. That familiar bloating, cramping, nausea, then diarrhea follows after that. Then the neurological symptoms and I would usually feel ill for almost a week. My joints swell up, everything hurts.

0

Share this post


Link to post
Share on other sites

I found it took repeated glutenings in a short time to get the symptoms back again. Usually I get stomach pains and D about 2 hours after getting glutened, but by the end of that night I am ok. At home I have very good control over what I eat, so it's usually accidently contamination eating out.

However, on my recent trip I found that while the first glutening resulted in those usual symptoms, I got glutened again and again over the next week or so with barely any recovery time (all cc). Not only did my GI symptoms go back to what they'd been in the years before I self diagnosed (C instead of D), my neurological problems returned. They are mostly dizzyness, very unsteady balance. I have trouble walking through groups of people walking towards me because I tip and stumble, I have trouble judging the spacing. It took about a week to feel better and ironically it was when I stopped bothering trying to eat proper meals and risk contamination and just lived on things I knew were safe even if not particularly nutritious (I ate an awful lot of sugar) that I felt better. I'm not officially diagnosed and that was really good proof that gluten is poison to me.

So I think I'm lucky in that I'm ok if I only get glutened once and have time to recover, the neuro symptoms don't come back.

0

Share this post


Link to post
Share on other sites

My neuro symptoms- dizziness, foggy head and anxiety attacks- happen within about half an hour or less. It's my first symptom and how I know I'm glutened. I hate it!

0

Share this post


Link to post
Share on other sites

I ate gluten for lunch (accidentally) and by 4pm I was having dizziness and vision disortion. It lasted into the next day, though my GI symptoms take about 3 days to clear.

I just realized one week after this glutening...I had a migrain (mine are not typical. First I have visual distortion, then left arm, lips and nose numbness) This was my first migrain post gluten-free, so I followed up with the neurologist. He accused me of cheating! (that ticked me off! :angry: )until we got talking more and he realized how much I know this has helped. So there is a definate correlation between the accidental glutening and the migrain! :blink:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,644
    • Total Posts
      921,579
  • Topics

  • Posts

    • Three years ago I lost about 40kgs (Aussie lol) by better diet & exercise. All was going great til I stopped losing. I upped my exercise but bizarrely started gaining weight. One night a week of not being able to sleep soon became two, then virtually every night with either 1-2hrs tops or none at all. These weird symptoms started about two years ago, becoming worse in say, the last 9mnths. Then I started to get diarrhea. Occasionally then weirdly 2-3 days with multiple occurences then a day or two with nothing, then back to loose & offensive. My GP ran tests, including the TTga (hope that's  right) antibody blood test. Negative so he tells me that's not it. After 9mnths of this he shrugs and says, "I don't know what it is I've run out of ideas what ideas do you have?" Finally refers me to a gastrointerogist.  Private, of course and can't really afford it but we (my fiance and I) go. Stools and blood samples are ordered, basically bye, see you in a month. I have looked my symptoms up and they seem to point to Celiac. Today we went back. I have been having bloated stomach, sore back and limbs,  lovely burps, constant urination and crushing anxiety attacks folowed by depression (which I have never had before in my life). Admitted over the last weekend I didn't sleep for two and a half days and found myself hallucinating and crying to just be able to sleep. Mr fancy pants gastrointerogist says," Hey great news, the stools samples rule out parasites and Crohns!" I tell him how excrutiating the last month has been to which he replies, "It's not Celiac disease, (points at negative blood test results). Celiac doesnt present with diarrhea, anxiety and frquent urination all together." I also had a fecal occult blood test which showed positive & notes say are maybe due to a lower gi bleed, and a ct scan that says shows some damage which, in their words, could be due to a condition such as Celiac disease. He has booked me for a double scope as the next step, has a few ideas what it could be (won't tell me because he doesn't want me to be 'anxious'). Told me to consider that all these symptoms could be me just worrying and being anxious. Told him when this started I was not worried about anything, shrugged and said, It could stil have happened, hey, sometimes we never find out what causes it and your just stuck with diarrhea forever." Then as I was leaving he slapped me on the back and said, "Don't worry so much, see you soon." I need to have the scopes done but is it me or are the things I was told today not true?  I would honestly love it not to be Celiac disease but could he be wrong?
    • Sigh. I totally do love the packs of stretch pants at Costco though...
    • hey, i'm vegetarian and gluten free as well
      have you tried making any recipes with cashew nuts like cashew cheese or pasta sauce? they're really good, easy to make and an excellent way to get more protein/iron
      i can send you some of the easy recipes if you like  
    • Right, fistulas or fissures are usually associated with Crohns, but not celiac.  It is not impossible to have both conditions though.
    • Bravo for being strong enough to bring this topic up.  Depression, anxiety, and other mental or neurological issues are common in celiacs and those with NCGI.  Science is finally catching up to what many of us have already known to be true.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ I have suffered from anxiety and still have some neuropathies.  At first I blamed menopause (that alone can make you crazy), but my symptoms tend kick in after a Gluten exposure and improve as I heal.   You are not crazy!  Gluten can cause so many problems.  What other disease requires that the patient be in charge of "medicating" and caring for themselves?  Most of us after a diagnosis get a "Well, just avoid gluten.  Lucky you that there are so many restaurants that offer a gluten free menu!", speech from our doctors.  We never get time off from thinking about food, our next meal and will it be safe?  Our relationship with food changes dramatically and it can be exhausting.   We do need more resources and support from medical, but for now, at least this forum is helpful!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,651
    • Most Online
      3,093

    Newest Member
    Kricket73
    Joined