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Onset Of Neurological Symptoms After Being Glutened


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13 replies to this topic

#1 HardcoreDior

 
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Posted 28 October 2010 - 08:14 AM

Hey,

I have a question for those of you who have associated neurological symptoms with gluten intolerance.

What is the time frame in which you experience neurological symptoms after consuming gluten?

I have been gluten free for about 2 months, and recently discovered a tapioca intolerance as well. I was accidentally glutened yesterday, and today I'm feeling a lot of disordered thinking - depression and anxiety. Since going gluten free, I have noticed some improvements in my neurological symptoms, and it seems like every time I get glutened, they return full force.

Is it possible that gluten can cause an increase in neurological symptoms within hours?

(Alternatively, I acknowledge I could simply be frustrated at feeling so crappy again, which could also be causing the return of anxiety and depression)

Any advice or similar experiences would be greatly appreciated!
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#2 kwylee

 
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Posted 28 October 2010 - 08:55 AM

90% of my symptoms are neurological, and not sure if this is typical of all who are gluten intolerant. If I ingest just a bite of either gluten, casein or soy, I feel dizzy within 10 minutes. For me, the response duration is commensurate with the amount ingested. Just a taste of something can leave me feeling "weird" for an hour. Since I am now accustomed to tasting and waiting, it's been a few months since I've had any reaction last longer than an hour.
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Gluten Intolerant, Positive test, June 2010
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Reactive to soy, most processed foods & preservatives, June 2010

#3 Traveller

 
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Posted 28 October 2010 - 09:38 AM

Is it possible that gluten can cause an increase in neurological symptoms within hours?


Yes, it's possible. My first symbol appears within an hour (severe headache), rapidly followed by fatigue, foggy brain, and a motion disorder. The duration and severity seems to correlate with the amount of gluten ingested.
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#4 ravenwoodglass

 
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Posted 28 October 2010 - 09:46 AM

My neuro symptoms hit within a couple of hours at most and last for a couple of weeks. My GI issues (other than stomach growling which hits within an hour) don't appear until 3 days later.
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celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 curiousgirl

 
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Posted 28 October 2010 - 10:25 AM

Yes, it's possible. My first symbol appears within an hour (severe headache), rapidly followed by fatigue, foggy brain, and a motion disorder. The duration and severity seems to correlate with the amount of gluten ingested.


what kind of motion disorder?



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#6 Pac

 
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Posted 28 October 2010 - 12:46 PM

In my case the onset of symptoms is 1/2 to several hours after glutening, duration depends on how much gluten I ingested (or breathed in) - several weeks to several months. In july I accidentaly ate a bag of gluten cookies (the gluten-free package looks exactly the same, same name color... just the ingredients list differs) and I only started getting better last two weeks. I don't get any GI symptoms any more, just yeast infections (finger nails and throat) and a long list of neuro symptoms.
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#7 HardcoreDior

 
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Posted 28 October 2010 - 01:04 PM

This is GREAT feedback. Thank you so much, all of you.

I am VERY greatful for this forum - I would be very lost without it!
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#8 MelindaLee

 
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Posted 28 October 2010 - 06:56 PM

I ate gluten for lunch (accidentally) and by 4pm I was having dizziness and vision disortion. It lasted into the next day, though my GI symptoms take about 3 days to clear.
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#9 bluebonnet

 
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Posted 29 October 2010 - 04:06 AM

yes for me it hits in a matter of hours and lasts around 2 to 3 days.
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#10 sillyken

 
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Posted 29 October 2010 - 05:13 PM

I have been researching this for some time as I have been having seizures for about four years. I believe that there is a direct connection between my seizures and gluten ingestion. I ws accidently glutened at a restaunt about a month ago and my siezures got worse the next week.

Ken
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#11 precious831

 
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Posted 29 October 2010 - 07:09 PM

Hey,

I have a question for those of you who have associated neurological symptoms with gluten intolerance.

What is the time frame in which you experience neurological symptoms after consuming gluten?

I have been gluten free for about 2 months, and recently discovered a tapioca intolerance as well. I was accidentally glutened yesterday, and today I'm feeling a lot of disordered thinking - depression and anxiety. Since going gluten free, I have noticed some improvements in my neurological symptoms, and it seems like every time I get glutened, they return full force.

Is it possible that gluten can cause an increase in neurological symptoms within hours?

(Alternatively, I acknowledge I could simply be frustrated at feeling so crappy again, which could also be causing the return of anxiety and depression)

Any advice or similar experiences would be greatly appreciated!


Mine happens in a few hours. The GI symptoms begin though about 20-30 minutes after I ingest gluten. That familiar bloating, cramping, nausea, then diarrhea follows after that. Then the neurological symptoms and I would usually feel ill for almost a week. My joints swell up, everything hurts.
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#12 anabananakins

 
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Posted 31 October 2010 - 05:56 PM

I found it took repeated glutenings in a short time to get the symptoms back again. Usually I get stomach pains and D about 2 hours after getting glutened, but by the end of that night I am ok. At home I have very good control over what I eat, so it's usually accidently contamination eating out.

However, on my recent trip I found that while the first glutening resulted in those usual symptoms, I got glutened again and again over the next week or so with barely any recovery time (all cc). Not only did my GI symptoms go back to what they'd been in the years before I self diagnosed (C instead of D), my neurological problems returned. They are mostly dizzyness, very unsteady balance. I have trouble walking through groups of people walking towards me because I tip and stumble, I have trouble judging the spacing. It took about a week to feel better and ironically it was when I stopped bothering trying to eat proper meals and risk contamination and just lived on things I knew were safe even if not particularly nutritious (I ate an awful lot of sugar) that I felt better. I'm not officially diagnosed and that was really good proof that gluten is poison to me.

So I think I'm lucky in that I'm ok if I only get glutened once and have time to recover, the neuro symptoms don't come back.
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#13 sandsurfgirl

 
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Posted 05 November 2010 - 01:10 AM

My neuro symptoms- dizziness, foggy head and anxiety attacks- happen within about half an hour or less. It's my first symptom and how I know I'm glutened. I hate it!
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#14 MelindaLee

 
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Posted 05 November 2010 - 06:12 PM

I ate gluten for lunch (accidentally) and by 4pm I was having dizziness and vision disortion. It lasted into the next day, though my GI symptoms take about 3 days to clear.


I just realized one week after this glutening...I had a migrain (mine are not typical. First I have visual distortion, then left arm, lips and nose numbness) This was my first migrain post gluten-free, so I followed up with the neurologist. He accused me of cheating! (that ticked me off! :angry: )until we got talking more and he realized how much I know this has helped. So there is a definate correlation between the accidental glutening and the migrain! :blink:
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