Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Need To Vent About Family


glutenfreemamax2

Recommended Posts

glutenfreemamax2 Enthusiast

Uggghhhh!! We went camping last weekend. I packed all my food to take with me. My husband keeps complaining how expensive it is. I ran to the grocery store while we were there, and I came accross gluten-free Bisquick. I can't find it near where I live, so I got it to take home. He looked at the reciept, and in front of everyone said " I'll tell you what, if your tests are negitive, I want you to reimburst me for all this gluten free crap". I was in tears. How could someone that is suposed to support me through thick and thin say something that mean?!? My in laws made dinner ever night. I would say "what's in that? Did you put flour?" Well just a little would be the answer.

I also get "You've been find for the last 10 years, why now are you deciding that you have a gluten allergy?" I'm NOT deciding. This is how it is, and I have to deal with it. No, it's not fun to always have your stomach hurt. My husband said yesterday "IS it really making you feel that much better? Because your still complaining about your stomach" I was so upset. I felt like saying "Well if you would take this seriously and not gluten me without thinking, then MAYBE just MAYBE I would feel better. He just dosen't get it.

Of course my labs came back negitive. So now he really thinks i'm making this whole thing up. A year ago the tested me for everything under the sun. I was showing signs of thyroid, then I was told fibromyalgia, then I was told IBS, then I was told I was just fat, then I was told it was the lactose. It just went on and on. Now i find something that is making me feel better, and all i get is "how long are you going to eat like this?" Yes, it's expensive. There is no doubt in my mind. But I'm starting to finally feel "normal" and I'm starting to sleep.

Do you know what it's like to wake up 3-5 times a night?!!? IT STINKS! I'm FINALLY starting to sleep. But my family dosen't understand that because they are sleeping at night when I'm up.

Uggghh. I wish there was a class to put them in so they could understand...

Ok, thank for listening.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Sounds like you need to wake your husband up everytime you are sick. :P Seriously though, you can do this without spending so much extra money. Canned or frozen veggies are not expensive at all. Fresh meats are still the same price as they were before you changed your diet. In the begining I found myself trying all the new food stuff, yes all the pre-packaged foods are a little more, and now we just have a few staples that I will buy.

If you need ideas for meals this would be the place to ask.

I am sorry that your husband hurt your feelings.

Link to comment
Share on other sites
ravenwoodglass Mentor

Actually you should wake your husband up when you are sick at night. A little extra bouncing on the bed, a few large groans, an elbow in the ribs etc. I'm only half kidding on that. Being awakened by cramps and D is a classic celiac symptom and also make sure your doctor know that is happening as it is NOT a symptom of IBS. The previous poster had a good point about going with whole unprocessed foods. It is cheaper and will help cut down on the CC risk. I am sorry your with someone who is so unsupportive. It sounds like he needs some education about celiac and a bit of it on caring also. I hope you feeling better and dancing circles around that guy soon. Hang in there.

Link to comment
Share on other sites
Cypressmyst Explorer

Oh...we'd be talking about the big D...and I'm not talking about Diaria. <_<

I would have started WW3 if my husband was ever that rude. This is your health, it isn't in your head, Doctors know next to nothing about true health. Make him do a little research on it or tell him to get the hell out of your life. You don't need this kind of aggravation. Especially not while you are trying to heal.

The bottom line is you are telling him you feel better gluten-free and he is not hearing you. That is a relationship problem that has nothing to do with gluten per se.

Contrast that with my husband who went gluten-free to be supportive of me and found out his heartburn of 20 years went away. You don't need to have an unsupportive jerk in your life, there are good men out there.

Time for your husband to shape up or ship out. B)

*Hugs for you*

Link to comment
Share on other sites
shopgirl Contributor

That's awful but it sounds like this runs a lot deeper than whether or not you're eating gluten-free. Counseling, maybe? Because the way he's treating you? Not cool.

I was nervous that some of the special foods I need to eat

Link to comment
Share on other sites
LDJofDenver Apprentice

Just curious, were you eating gluten free prior to being tested? That could result in a negative.

And I empathize with you on that "just a little" -- I mean, if someone had a person over for dinner that had a peanut allergy they wouldn't even dream of putting "just a little peanut butter" in what they're cooking. Why is this (gluten) hard to perceive? We had a luncheon at work where the sales staff prepared dishes - Mexican food theme - and one of the guys came into my office and told me it was safe for me to eat his dish because he probably only used 1/4 cup flour in it. !!!!! Only! I'm sure I just looked at him like he was nuts.

Link to comment
Share on other sites
glutenfreemamax2 Enthusiast

I am in counseling. I'm wondering if it's how I preceve what he says, or what he actually says. He thinks I take stuff out of contex, that he is just jokeing. If anyone saw my episode of Dr. Phil, Dr.Phil made it really clear to him that I laugh at the time, but it really hurts my feelings.

Uggghh...life, marraige and kids. No one ever said it was easy. I had a bad childhood and i'm trying to deal with that. I think I was gluten intolerant from birth...

I was only gluten-free for 1 week before I got tested. I heard that it took 2-3 weeks to get out of your system?

Thanks for all the replies!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Hamster101 Rookie

I think even just a week can make a huge difference, depending on how badly damaged you were before that and how strongly you went gluten free. If you cut it out, as well as lactose, right from the start you would probably heal faster than someone still eating lactose, because it is notoriously hard to digest.

Though my parents were very supportive, one of my grandparents took it upon herself to make my first few weeks of my lactose fee diet hell. I had to stay at her house for a week, the reason why escapes me now, but that meant she was feeding me three meals virtually every day.

I guarantee almost every one had lactose in.

Since then we found out about the wheat intolerance, but the dairy seems to be an aggravator - if I've got glutened, lactose makes it a hell of a lot worse. I ended up being rather rude to my nan, when she would insist on making food I was allergic to, and refused to eat round their house for a few weeks (they do dinner on saturdays). Mine have finally seen the light, because they say the difference it made to me as a person.

Your husband there needs an attitude adjustment. I understand starting off can be majorly expensive - When I first went gluten free only a few weeks ago I was trying everything under the sun that was packaged as 'gluten free'. it really does add up and though my mum still buys them for me, I tell her not to because of the cost. I'd rather she bought a selection of salad items I know I can eat than one packet of chilli that costs four times that of a can I can also eat safely.

I hope they see the light soon. If they don't, get tough. This is your health and you shouldnt have to take that while you're trying to heal. I've been there, and it's bad enough without the aggravation.

*e-hugs*

Link to comment
Share on other sites
laurelfla Enthusiast

Just wanted to say hang in there! And I am so glad that you are feeling better after all you have been through. And remember, just because tests come back negative does not mean your system isn't better off without gluten.

As far as the gluten-free packaged stuff, I think there is a place for that. When you have to cut out so many things you are used to, I think it's okay to pamper yourself and have some fun products to try now and then! And as far as the cost, is he counting pennies? I'm sure there's a way to accommodate buying some new stuff by trimming back in other areas, and as someone else above said, it's your health -- the $$ is secondary!

I am in counseling. I'm wondering if it's how I preceve what he says, or what he actually says. He thinks I take stuff out of contex, that he is just jokeing. If anyone saw my episode of Dr. Phil, Dr.Phil made it really clear to him that I laugh at the time, but it really hurts my feelings.

Uggghh...life, marraige and kids. No one ever said it was easy. I had a bad childhood and i'm trying to deal with that. I think I was gluten intolerant from birth...

I was only gluten-free for 1 week before I got tested. I heard that it took 2-3 weeks to get out of your system?

Thanks for all the replies!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,088
    • Most Online (within 30 mins)
      7,748

    Aventine
    Newest Member
    Aventine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
    • trents
      Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The onset of celiac disease can happen at any stage of life and the size of the score is not necessarily an indicator of the progress of the disease. It is likely that you you experienced onset well before you became aware of symptoms. It often takes 10 years or more to get a diagnosis of celiac disease after the first appearance of symptoms. In my case, the first indicator was mildly elevated liver enzymes that resulted in a rejection of my blood donation by the Red Cross at age 37. There was no GI discomfort at that point, at least none that I noticed. Over time, other lab values began to get out of norm, including decreased iron levels. My PCP was at a complete loss to explain any of this. I finally scheduled an appointment with a GI doc because the liver enzymes concerned me and he tested me right away for celiac disease. I was positive and within three months of gluten free eating my liver enzymes were back to normal. That took 13 years since the rejection of my blood donation by the Red Cross. And my story is typical. Toward the end of that period I had developed some occasional diarrhea and oily stool but no major GI distress. Many celiacs do not have classic GI symptoms and are "silent" celiacs. There are around 200 symptoms that have been associated with celiac disease and many or most of them do not involve conscious GI distress. Via an autoimmune process, gluten ingestion triggers inflammation in the villous lining of the small bowel which damages it over time and inhibits the ability of this organ to absorb the vitamins and minerals in the food we ingest. So, that explains why those with celiac disease often suffer iron deficiency anemia, osteoporosis and a host of other vitamin and mineral deficiency related medical issues. The villous lining of the small bowel is where essentially all of our nutrition is absorbed. So, yes, anemia is one of the classic symptoms of celiac disease. One very important thing you need to be aware of is that your PCP may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining to confirm the results of the blood antibody testing. So, you must not begin gluten free eating until that is done or at least you know they are going to diagnose you with celiac disease without it. If you start gluten free eating now there will be healing in the villous lining that will begin to take place which may compromise the results of the biopsy.
    • Anmol
      Hello all- my wife was recently diagnosed with Celiac below are her blood results. We are still absorbing this.  I wanted to seek clarity on few things:  1. Her symptoms aren't extreme. She was asked to go on gluten free diet a couple years ago but she did not completely cut off gluten. Partly because she wasn't seeing extreme symptoms. Only bloating and mild diarrhea after a meal full of gluten.  Does this mean that she is asymptomatic but enormous harm is done with every gram of gluten.? in other words is amount gluten directly correlated with harm on the intestines? or few mg of gluten can be really harmful to the villi  2. Why is she asymptomatic?  3. Is Gliadin X safe to take and effective for Cross -contamination or while going out to eat?  4. Since she is asymptomatic, can we sometimes indulge in a gluten diet? ----------------------------------------------------------------------------------------------- Deamidated Gliadin, IgG - 64 (0-19) units tTG IgA -  >100 (0-3) U/ml tTG IgG - 4   (0-5) Why is this in normal range? Endomysial Antibody - Positive  Immunoglobulin A - 352 (87-352) ------------------------------------------------------------------------------------------------ Thanks for help in advance, really appreciate! 
    • Tanner L
      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
×
×
  • Create New...