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Are You A Celiac?


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26 replies to this topic

#1 Lisa

 
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Posted 28 October 2010 - 02:22 PM

After many years on this forum, I have seen many personal references. What do you call yourself?

For example:

"I am Celiac"
"I have Celiac"
"I am a person who has Celiac Disease"
"I am a Celiac"

...just curious :D
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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#2 Jestgar

 
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Posted 28 October 2010 - 02:28 PM

I don't use labels. I say "gluten makes me very sick". I wouldn't say "I am a psoriatic", although I might say "I have psoriatic arthritis", but more commonly I say "corn makes my skin blotchy and my joints hurt".
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#3 ravenwoodglass

 
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Posted 28 October 2010 - 02:30 PM

I usually say 'I have Celiac'.
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celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
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Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 Lisa

 
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Posted 28 October 2010 - 02:45 PM

I don't use labels. I say "gluten makes me very sick".


I get that and I use that when dining out, too. I throw in "very sick" as good insurance, or assurance. :P

But chatting on the forum here, or interviews in magazines or TV interviews...I've heard it all. Just curious how people refer to themselves.
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#5 Skylark

 
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Posted 28 October 2010 - 02:55 PM

Either "I'm celiac" or "I have celiac disease". And for what it's worth, people saying "Celiac's" drive me batty. It's not a name, it's an ancient Greek word. :ph34r: Sorry, had to get that off my chest. :P
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#6 Salax

 
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Posted 28 October 2010 - 03:09 PM

Either "I'm celiac" or "I have celiac disease". And for what it's worth, people saying "Celiac's" drive me batty. It's not a name, it's an ancient Greek word. :ph34r: Sorry, had to get that off my chest. :P


Hehe, I hear ya...people who say I have celiacs drives me nuts...it's not celiacs, it's celiac. There is no plural, unless your saying "a group of celiacs", otherwise it's singular. As: I am a celiac or I have celiac disease. It's not, I have celiacs. :blink:

Unless you are collecting a group of celiac people....then I guess I have celiacs would work..

Gets off soap box.

:D
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Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

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#7 Emilushka

 
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Posted 28 October 2010 - 03:42 PM

Hi, my name is Emily, I am Celiac, and I have a confession: I USED TO SAY "CELIAC'S" BECAUSE I DIDN'T KNOW BETTER.

I stand so very, very corrected.

I usually say "I am Celiac" or "I have food allergies" (people understand that better) or "I can't eat wheat or dairy" or "I don't eat like normal people" (for the people who really don't honestly care and are just a little confused).
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#8 hawkgirl98

 
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Posted 28 October 2010 - 03:49 PM

I usually say I have a gluten allergy - as Emily said, I think people just understand the idea of a food allergy better.

I personally don't like saying Celiac because it usually requires additional explanation (most people I meet don't know what it is so when I was originally diagnosed I'd end up spending 10 minutes explaining it all). And I don't like using the word "disease" - I feel like that makes it sound scarier than it is, like I have a contagious disease or something.
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#9 Lisa

 
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Posted 28 October 2010 - 04:35 PM

And I agree...there was no Doctor Called Celiac, who discovered the disease. AND I don't like the label as as "disease", either. <_<

I rather prefer, that I am a person with Celiac Disease.
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#10 RideAllWays

 
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Posted 28 October 2010 - 04:38 PM

I say I have Celiac Disease.
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#11 cassP

 
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Posted 28 October 2010 - 06:11 PM

im so glad you girls mentioned "Celiac's" & "Celiacs"... so i didnt have to initiate ... i didnt want to be rude, but it does annoy me
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#12 Mari

 
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Posted 31 October 2010 - 04:50 PM

I often say "I can't eat gluten". Sometimes I add "it can make me very sick"

I think that 'Celiacs' is rather cute - younger people using their own terms to both convey that this is a limiting problem and that their generation is dealing with it in their own way.
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#13 GlutenFreeManna

 
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Posted 31 October 2010 - 05:55 PM

After many years on this forum, I have seen many personal references. What do you call yourself?

For example:

"I am Celiac"
"I have Celiac"
"I am a person who has Celiac Disease"
"I am a Celiac"

...just curious :D


I say "I have celiac" although I don't really tell very many people that since I'm self-diagnosed. Mostly I start out by saying I have food allergies (which is true, I'm allergic to shellfish, pork and mushrooms) and only explain further if I need to or they ask. I don't like to add the word disease on at the end and I think if I were talking about several "people with celiac" I would be tempted to say "celiacs" as in more than one person with celiac disease. I know that's probably bad, since several of you said it was annoying and impromper, but I see this as a cute short-cut to describe a group. What do you call a group of people with celiac disease when discusing celiac? It sounds very cumbersome to always have to say "individuals that have celiac disease".
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#14 anabananakins

 
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Posted 31 October 2010 - 06:12 PM

I say, I don't eat gluten because it makes me sick. Then people either (a) ask me if I have celiac and I say the tests say no but since I have to be strictly gluten free, it doesn't matter much either way or (B) they say what is gluten? and I say that it's in wheat, barley and rye and give them a brief run down on what it does to me. I find a lot of people take the opportunity confess that they didn't really know what gluten free meant and since I didn't really either before it's nice to be able to explain so they don't feel stupid next time.

Wheat is my country's biggest crop and it still feels a bit odd that I'll never eat it again. Wheat as an ingredient I'm used to thinking of as evil nastiness, but those fields of waving grain are supposed = wholesome goodness!
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#15 lynnelise

 
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Posted 01 November 2010 - 10:49 AM

It really depends on who I'm speaking with. I usually say I have food allergies or that I cannot digest gluten. If the person has some type of medical background I will go ahead and say I suffer from celiac disease. It was not diagnosed by biopsy but it is just easier because somehow medical people don't take you seriously unless you name a diagnoses.
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