Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Got A Little Lazy And Now I'm Paying For It
0

5 posts in this topic

Hello all,

I'm new to the Celiac family and having a rough week. I got a little lazy and allowed myself to eat small amounts of gluten last week, and the week before. I thought that since I really haven't had it bad, that my body would be ok with a corn dog here, or a small cheeseburger here. Well, the fatigue gradually began to build to the point now that I am struggling to make it through the day. Minor tummy problems, mostly C and some grumbling, though this morning I felt a bit nauseous. Big time loss of appetite and I've been losing weight now for about three weeks (about 8 pounds in three weeks).

I have been gluten free for about three days now. Fatigue seems to be the same, no real improvement. Tummy is doing OK. Appetite is still gone. How long before I start feeling better? Can it take a few weeks to get back on track? I haven't really had a major attack since 2001 when i dropped 40 pounds. That one lasted about 4 months, lots of D and stomach problems. I wasn't diagnosed then, told I had Chronic Fatigue and IBS. Since then it's been little tummy upsets here and there, lots of bloating, and little bouts of fatigue until this past July when things started going south.

Any ideas on how long it will take to get my energy back?

Thanks and much love to you all!Thanks to all for your support!

J

0

Share this post


Link to post
Share on other sites


Ads by Google:

You will never get better if you cheat. :ph34r:

If you stick close to the diet, you should feel progressively better week after week, but there will be some ups and downs, and you may discover more confounding food intolerances. Six months later, I'm feeling much better.

2

Share this post


Link to post
Share on other sites

You will never get better if you cheat. :ph34r:

If you stick close to the diet, you should feel progressively better week after week, but there will be some ups and downs, and you may discover more confounding food intolerances. Six months later, I'm feeling much better.

Thanks Marylin. I think with me, it's still sinking in how serious this can be and that cheating on my diet is not going to work.

I wonder if I'm becoming more sensitive to gluten after knocking it out for a spell?

1

Share this post


Link to post
Share on other sites

Thanks Marylin. I think with me, it's still sinking in how serious this can be and that cheating on my diet is not going to work.

I wonder if I'm becoming more sensitive to gluten after knocking it out for a spell?

yes- most of us have become more sensitive to it after going gluten free. your immune system is getting healthier & more vigilant. you cant cheat! this is not a diet- it's a genetic disease that you can CURE on your own simply by not eating it... no chemo... no steroids... just willpower- dont worry, it gets easier, promise

1

Share this post


Link to post
Share on other sites

The reaction in the body can sustain itself for two weeks after the initial gluten exposure. (Doing damage that whole time, I might add.)

It may be a few weeks before you feel better.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,568
  • Topics

  • Posts

    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,176
    • Most Online
      1,763

    Newest Member
    Red Butt in hemet
    Joined