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Funny You Don't Look Sick?


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#1 Nor_TX

 
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Posted 10 November 2010 - 06:48 AM

Met some friends for dinner at Chili's last night. Two I work with and 1 I hadn't seen in 3 years. I try to keep my medical issues low key because no one is interested in my Colitis, Remicade issues, upcoming knee surgery, GERD, and all my other stuff. So when asked how my health was, I answered, "Not great, but I am dealing with things day by day." One of the friends I work with said, "Didn't you have your chemo on Friday?" I said, "Yes I did." Then she said "Funny you don't look sick?"

No one knows or understands. When they brought the bowl of chips and salsa and I didn't take any, the three "friends" chided me for not eating them. I told them this isn't a diet that you can cheat on like a calorie counting diet, but if I eat the chips and salsa, I will get sick. Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.

Wanna hear the saddest thing? One has a husband who has Diabetes, one's husband died within a week of finding out he had cancer, and one is a nurse. All of them are well into their 50s....

So much for dining out with unsympathetic "friends".
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Gluten Intolerance, Colitis, IBS, Lactose and Casein Intolerance, Gastro-Paresis, GERD, Arthritis. Taking Remicade and Asacol, 2 Prilosec/day among other meds. Officially a senior citizen! New knee is doing well.. now about that other knee...

Food is in my dreams and in my nightmares!

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#2 kareng

 
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Posted 10 November 2010 - 06:57 AM

Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.


When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#3 Nor_TX

 
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Posted 10 November 2010 - 07:02 AM

When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)


The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?
  • 0
Gluten Intolerance, Colitis, IBS, Lactose and Casein Intolerance, Gastro-Paresis, GERD, Arthritis. Taking Remicade and Asacol, 2 Prilosec/day among other meds. Officially a senior citizen! New knee is doing well.. now about that other knee...

Food is in my dreams and in my nightmares!

#4 kareng

 
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Posted 10 November 2010 - 07:05 AM

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?


No. Actually, I live in Kansas City. My BIL/SIL live in Plano. He is starting a "healthy fast casual" restuarant in Plano. Looking into the gluten-free certification for restuarants. Should open in December. I'll let everyone know when it does.

I really like PF Changs. I feel safe eating there. One of the owners has a daughter (?) with Celiac.
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#5 ohsotired

 
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Posted 10 November 2010 - 07:33 AM

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?


Nor_TX I'm sorry your coworkers are so insensitive!

I DO live in north Dallas, so if you ever want to go grab lunch or something, just holler.
I don't participate on the boards here much anymore but I do still lurk.

Kareng - please do let us know about the new restaurant! I would frequent it for sure!
  • 0
Dx Celiac 08/22/08
Iron Deficient Anemia / Blood Clotting Disorder / Severe Vit D Deficiency / Low Cortisol / Progesterone/Testosterone Deficient

Persisting Sx: bouts of extreme fatigue, dry itchy skin, dry gritty eyes, bouts of brain fog and terrible short term memory, hair loss, hypoglycemic tendencies, low body temps, low BP, cold hands and feet

UPDATE: Began BHRT 9/22/10 and it made a world of difference, for about 2 weeks. Hair loss stopped almost completely, energy levels way up and felt 19 again! Going back for a booster this week....

#6 Nor_TX

 
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Posted 10 November 2010 - 07:38 AM

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.
  • 0
Gluten Intolerance, Colitis, IBS, Lactose and Casein Intolerance, Gastro-Paresis, GERD, Arthritis. Taking Remicade and Asacol, 2 Prilosec/day among other meds. Officially a senior citizen! New knee is doing well.. now about that other knee...

Food is in my dreams and in my nightmares!

#7 ohsotired

 
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Posted 10 November 2010 - 07:40 AM

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.


Actually, I have never been to a PF Chang's either! LOL Been dying to try it, but the hubby isn't fond of the place, so I've never been.
We should go!
  • 0
Dx Celiac 08/22/08
Iron Deficient Anemia / Blood Clotting Disorder / Severe Vit D Deficiency / Low Cortisol / Progesterone/Testosterone Deficient

Persisting Sx: bouts of extreme fatigue, dry itchy skin, dry gritty eyes, bouts of brain fog and terrible short term memory, hair loss, hypoglycemic tendencies, low body temps, low BP, cold hands and feet

UPDATE: Began BHRT 9/22/10 and it made a world of difference, for about 2 weeks. Hair loss stopped almost completely, energy levels way up and felt 19 again! Going back for a booster this week....

#8 Katie B

 
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Posted 10 November 2010 - 07:42 AM

Time to get new friends! That reaction is appalling.
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Diagnosed with eczema 1999, IBS 2004, Horner's syndrome 2004, severe anemia (B12) 2006, reactive hypoglycemia 2007, hypopituitarism due to autoimmune attack 2009 (diabetes insipidus - lack of vasopressin, lack of cortisol), potential Celiac Disease - difficulty getting 100% diagnosis but have gone gluten-free and am feeling better.

#9 cassP

 
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Posted 10 November 2010 - 07:43 AM

im sorry you're having to do chemo :( i hope u feel & get better SOON.

ya, look for PF changs- they've got a fairly sized gluten free menu :)
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#10 kareng

 
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Posted 10 November 2010 - 07:53 AM

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.
They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.
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santa-dance.gif

 

Once again, we come to the Holiday Season, a deeply religious time that each of us observes, in his own way, by going to the mall of his choice. - Dave Barry
 
“The main reason Santa is so jolly is because he knows where all the bad girls live.”  - George Carlin
 
“One can never have enough socks," said Dumbledore. "Another Christmas has come and gone and I didn't get a single pair. People will insist on giving me books.”  - J.K. Rowling, Harry Potter and The Sorcerer's Stone
 
 
 
 
 

 


#11 kayo

 
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Posted 10 November 2010 - 07:55 AM

If I lived in Texas I'd meet you for lunch too! No chiding, teasing or guilt trips!

We have a lot in common, I have arthritis and colitis too. I was on methotrexate (chemo) for years and the side effects were awful. So glad they came out with new meds. How do you like the Remicade?
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40 year old former foodie on a quest to feel better!

-IgE to oats and rye
-Diagnosed with Colitis via endoscopy/colonoscopy Oct '10
-Following FODMAP diet since June '10, Positve SIBO test, July '10
-Diagnosed non-celiac gluten intolerant June '10 (celiac in March '10, endocsocopy in Oct '10 shows no signs of celiac)
-Osteopenia June '10
-Gluten free since July '09 & Soy free since December '09
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-IBS & Sjogren's diagnosed '05
-RA diagnosed as a toddler


#12 ohsotired

 
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Posted 10 November 2010 - 07:55 AM

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.
They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.


I hope not too! Please let them know that if they need any help, I would be willing - whether it be just ideas or actual labor in getting the place set up!
  • 0
Dx Celiac 08/22/08
Iron Deficient Anemia / Blood Clotting Disorder / Severe Vit D Deficiency / Low Cortisol / Progesterone/Testosterone Deficient

Persisting Sx: bouts of extreme fatigue, dry itchy skin, dry gritty eyes, bouts of brain fog and terrible short term memory, hair loss, hypoglycemic tendencies, low body temps, low BP, cold hands and feet

UPDATE: Began BHRT 9/22/10 and it made a world of difference, for about 2 weeks. Hair loss stopped almost completely, energy levels way up and felt 19 again! Going back for a booster this week....

#13 Nor_TX

 
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Posted 10 November 2010 - 08:44 AM

Me too... my husband is pretty handy. Mmmmmm gluten free pizza restaurant... is it too early to put in my order?
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Gluten Intolerance, Colitis, IBS, Lactose and Casein Intolerance, Gastro-Paresis, GERD, Arthritis. Taking Remicade and Asacol, 2 Prilosec/day among other meds. Officially a senior citizen! New knee is doing well.. now about that other knee...

Food is in my dreams and in my nightmares!




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