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Awareness


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#46 GFManiac

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Posted 20 August 2005 - 03:34 AM

I LOVE the Toyota Celiac idea!

JEN - Do you have a copy of the letter you sent to your local restaurants? Your letter to your doctor was great!
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#47 elonwy

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Posted 20 August 2005 - 09:01 AM

Sofar, I write alot of emails. And made alot of phone calls. Currently its to manufacturors, asking about produts, asking them if they can make product lists, blah, blah. It's for me trying to figure out if I can have thier stuff or not, but I figure, the more people contact them, the more they'll want to do something to help us. Maybe.
I talk to everyone I work with and come in contact with who will sit still and listen for ten seconds. Which is quite a few people sofar. A couple of my freinds/aquaintances are getting tested based on similar experience and my mom got one of the first ever blood tests for Celiac in Hilo, Hawaii. ( the doctor had to look it up, then the lab had to look it up, then someone else had to look it up, took three days just to send out the test, and still don't have the results yet, as they had to send it here somewhere).
I bought a whole bunch of Celiac awareness bracelets ( the green ones like livestrong) and have at least ten people who are gonna wear em.
On another thread it was suggested that I make a documentary about Celiac. That's now percolating in my head, but no-one get too excited, cause it takes a long time to get movies made when you've got no money, and I've got a thriller/horror narrative to get through first :).
It's kinda like recycling. If we each do our little part, it'll get better.
Oh, and I got some doctor letters to write, I'm just waiting til I'm not SOOO pissed off.
Elonwy
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Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.


"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"

#48 jenvan

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Posted 24 August 2005 - 05:15 AM

GFManiac- I have put 2 of the letters I sent out to restaurants below. One was to PF Changs for the gluten-free menu and the other was to Ted's for issues with their menu... Hope the ideas help!


To Whom It May Concern:

I am writing in regards to your restaurant and specifically your locations in Indianapolis, Indiana. I was diagnosed with Celiac disease this year, which means I can not ingest any food or ingredients derived from wheat, barley, rye or oats. My condition is serious and I have to be concerned with issues of cross contamination in even minute quantities. Needless to say, eating in a restaurant can be a stressful time for me, and I am often reluctant to do so.

Before my diagnosis, P.F. Chang’s was a favorite restaurant for my husband and I. You can imagine how thrilled I was after learning Chang’s also had a gluten-free menu. We have eaten there several times since my diagnosis and each time the service, and my food has been excellent. I especially appreciated the visit where the manager brought me my menu and assured me the kitchen staff double checks for issues of contamination during meal preparation. I do not take for granted the times when I can eat a meal and enjoy, not worry about if what I am eating is safe for me.

One in 133 people have Celiac disease, so in choosing to offer gluten-free dishes or menus, you are creating a loyal clientele. Because of my experiences, and because P.F. Chang’s takes an interest in those with restricted diets, myself and my family will continue to frequent Chang’s. I will continue to spread the word of my experience to others, but I know countless Celiacs across the country already choose your restaurant.

Thank you once more for your awareness of issues like gluten-free dining and your desire to accommodate those of us on restricted diets. We are grateful for companies and restaurants such as yours!

Sincerely,

________________
To Whom It May Concern:

I am writing to comment on my experiences dining at Ted’s, specifically the restaurant located in Carmel/Westfield, Indiana.

I was diagnosed with Celiac disease this year, which means I can not ingest any food or ingredients derived from wheat, barley, rye or oats. My condition is serious and I have to be concerned with issues of cross contamination in even minute quantities. Needless to say, eating in a restaurant can be a stressful time for me, and I am often reluctant to do so.

I was made aware by other Celiacs that Ted’s offered a gluten-free menu. I visited your website and was overjoyed to see that Ted’s was aware of those on a gluten-free diet and interested in trying to accommodate them. Your restaurant was one of the first I visited after my diagnosis. Unfortunately, I was not expecting the complete lack of awareness I received upon my arrival. My server, the server trainer and the local manager were all clueless as to the gluten-free guidelines and items I was asking about. One employee tried to convince me that everything on the menu was gluten-free. Luckily, I knew that was not possible. It is my understanding that another manager was contacted and he was able to retrieve the menu off of the website. This process took a long time and the apparent lack of education throughout the restaurant staff justifiably lowered the confidence I had previously had in the restaurant’s ability to provide a safe meal for me.

When we finally did receive our meals the quality of the food was excellent, (I had a plain Bison burger with steamed vegetables and a potato) and so we decided to try Ted’s again. However, on our second visit to the restaurant we were forced to go through the process of our first visit all over again. My husband and I had assumed that after an issue over the gluten-free menu had occurred once, the managers would respond appropriately and educate their servers and staff on the menu—and its existence! However, we were mistaken, and went through a similar experience as our first visit. It took us over an hour to work through the menu with the staff and receive our entrees. Even though the food has always been excellent, it is hard for me to return, wondering if anyone will be informed of the menu plainly offered on the website or of the appropriate protocol for preparing a safe gluten-free meal in the kitchen.

One in 133 people have Celiac disease, so in choosing to offer gluten-free dishes or menus, you are creating a loyal clientele. However, if your employees are not educated, the menu becomes useless. I write to ask that you would properly educate and train your servers, managers and all other employees so that the countless Celiacs across the country can trust Ted’s for a safe, smooth and enjoyable meal. I also ask that each Ted’s location keep a printed copy of the gluten-free menu guidelines accessible to customers. If a customer is required to bring the menu with them, rather than Ted’s providing it, visiting is far less appealing and those with restrictions do not feel welcome. Individuals such as myself with restricted diets are grateful for the restaurants who try to provide a meal we can safely eat. Thank you for your attention and care in this matter.

Sincerely,
  • 0
~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#49 coeliacinfostand

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Posted 24 August 2005 - 04:07 PM

Jen

Keep us posted!

Alan



GFManiac-  I have put 2 of the letters I sent out to restaurants below.  One was to PF Changs for the gluten-free menu and the other was to Ted's for issues with their menu...  Hope the ideas help!
To Whom It May Concern:

I am writing in regards to your restaurant and specifically your locations in Indianapolis, Indiana.  I was diagnosed with Celiac disease this year, which means I can not ingest any food or ingredients derived from wheat, barley, rye or oats.  My condition is serious and I have to be concerned with issues of cross contamination in even minute quantities.  Needless to say, eating in a restaurant can be a stressful time for me, and I am often reluctant to do so.

Before my diagnosis, P.F. Chang’s was a favorite restaurant for my husband and I.  You can imagine how thrilled I was after learning Chang’s also had a gluten-free menu.  We have eaten there several times since my diagnosis and each time the service, and my food has been excellent.  I especially appreciated the visit where the manager brought me my menu and assured me the kitchen staff double checks for issues of contamination during meal preparation.  I do not take for granted the times when I can eat a meal and enjoy, not worry about if what I am eating is safe for me.

One in 133 people have Celiac disease, so in choosing to offer gluten-free dishes or menus, you are creating a loyal clientele.  Because of my experiences, and because P.F. Chang’s takes an interest in those with restricted diets, myself and my family will continue to frequent Chang’s.  I will continue to spread the word of my experience to others, but I know countless Celiacs across the country already choose your restaurant.

Thank you once more for your awareness of issues like gluten-free dining and your desire to accommodate those of us on restricted diets.  We are grateful for companies and restaurants such as yours!

Sincerely,

________________
To Whom It May Concern:

I am writing to comment on my experiences dining at Ted’s, specifically the restaurant located in Carmel/Westfield, Indiana. 

I was diagnosed with Celiac disease this year, which means I can not ingest any food or ingredients derived from wheat, barley, rye or oats.  My condition is serious and I have to be concerned with issues of cross contamination in even minute quantities.  Needless to say, eating in a restaurant can be a stressful time for me, and I am often reluctant to do so.

I was made aware by other Celiacs that Ted’s offered a gluten-free menu.  I visited your website and was overjoyed to see that Ted’s was aware of those on a gluten-free diet and interested in trying to accommodate them.  Your restaurant was one of the first I visited after my diagnosis.  Unfortunately, I was not expecting the complete lack of awareness I received upon my arrival.  My server, the server trainer and the local manager were all clueless as to the gluten-free guidelines and items I was asking about.  One employee tried to convince me that everything on the menu was gluten-free.  Luckily, I knew that was not possible.  It is my understanding that another manager was contacted and he was able to retrieve the menu off of the website.  This process took a long time and the apparent lack of education throughout the restaurant staff justifiably lowered the confidence I had previously had in the restaurant’s ability to provide a safe meal for me. 

When we finally did receive our meals the quality of the food was excellent, (I had a plain Bison burger with steamed vegetables and a potato) and so we decided to try Ted’s again.  However, on our second visit to the restaurant we were forced to go through the process of our first visit all over again.  My husband and I had assumed that after an issue over the gluten-free menu had occurred once, the managers would respond appropriately and educate their servers and staff on the menu—and its existence!  However, we were mistaken, and went through a similar experience as our first visit.  It took us over an hour to work through the menu with the staff and receive our entrees.  Even though the food has always been excellent, it is hard for me to return, wondering if anyone will be informed of the menu plainly offered on the website or of the appropriate protocol for preparing a safe gluten-free meal in the kitchen.

One in 133 people have Celiac disease, so in choosing to offer gluten-free dishes or menus, you are creating a loyal clientele.  However, if your employees are not educated, the menu becomes useless.  I write to ask that you would properly educate and train your servers, managers and all other employees so that the countless Celiacs across the country can trust Ted’s for a safe, smooth and enjoyable meal.  I also ask that each Ted’s location keep a printed copy of the gluten-free menu guidelines accessible to customers.  If a customer is required to bring the menu with them, rather than Ted’s providing it, visiting is far less appealing and those with restrictions do not feel welcome.  Individuals such as myself with restricted diets are grateful for the restaurants who try to provide a meal we can safely eat.  Thank you for your attention and care in this matter.

Sincerely,

<{POST_SNAPBACK}>


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#50 jenvan

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    Lynne took this picture! :)

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Posted 25 August 2005 - 04:48 AM

More good news, I am mtg with my contact at Marsh Supermarkets again next week--so far on tap we have: gluten-free resources to give out in store, monthly gluten-free food basket give-a-way, month of october gluten-free food tasting in store, hopefully a newspaper/tv spot. I made another contact with a fellow celiac who is a nurse/dietician who said she will get our info out to the drs/practices in the area, and that is also working on a tv spot herself. We are going to combine our efforst on the publicity. I think we have a great chance of getting a story done. We'll see! :D
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~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#51 elonwy

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Posted 31 August 2005 - 09:00 AM

I got my Celiac bracelets! They're green and pretty cool. I'm going to start passing them out today at school. Only giving em to people that'll wear them, but I already got about 6 people that say they will. :)
ELonwy
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Positive Bloodwork 7/8/05
Inconclusive Biopsy 7/20/05
gluten-free since 7/23/05
Never felt better.


"So here's us, on the raggedy edge, come a day when there won't be room for naughty men like us to slip about at all. - Malcolm Reynolds"

#52 jenvan

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    Lynne took this picture! :)

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Posted 31 August 2005 - 09:46 AM

cool elonwy!
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~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#53 Jnkmnky

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Posted 03 September 2005 - 07:29 AM

http://www.csaceliacs.org/month.php

I didn't know they have a celiac disease awareness month! Well, there's our excuse to be chatty about it without feeling pushy.
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I believe in God.

#54 DuckyDiva

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Posted 03 September 2005 - 08:51 PM

Not sure how many of you use AIM .. but here is a cute celiac icon!
http://img.photobuck...liz/celiacs.gif
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#55 celiac3270

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Posted 04 September 2005 - 06:48 AM

That's awesome, lol :lol:
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#56 mouse

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Posted 04 September 2005 - 06:54 AM

Does anyone know where we can buy the celiac disease bracelets? Armetta B)
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"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004
Allergies - corn, soy, casein, egg whites and wheat
Morphia Scleroderma
Osteoarthritis
Hypothyroid and Hperthyroid
Essential Tremors
Asthma
Migraines
Fibromyalgia - diag. in 1978 when they called it Fibrositis
PAD Peripheral Artery Disease
Angina and Atrial Fibrillation
Gluten Ataxia
Vitiligo
Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.
Ocular Myastenia Gravis

#57 jenvan

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    Lynne took this picture! :)

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Posted 04 September 2005 - 07:08 AM

Armetta-
You can buy them here: http://www.celiaccen...rg/bracelet.asp
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~~~~~~~
Jen
Indianapolis, IN

gluten-free since Feb 2005
dairy-free

#58 celiac3270

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Posted 04 September 2005 - 07:11 AM

These are the most popular:

http://celiaccenter.org/bracelet.asp

You can also buy them from the University of Chicago or from Melonie (head of the yahoo group, Silly Yaks, that puts out the gluten-free restaurant list).

Most people seem to get them from the first one, though I've seen a few with the Chicago ones. The difference... Maryland ones are: Making Tracks for Celiacs and then on the other side it says CFCR (meaning center for celiac research). The chicago ones say Gluten-Free, or something to the point like that, as do Melonie's.
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#59 mouse

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Posted 04 September 2005 - 08:19 AM

Thank you everyone for the info. I just emailed them. Have a nice Holiday.

Armetta B)
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"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004
Allergies - corn, soy, casein, egg whites and wheat
Morphia Scleroderma
Osteoarthritis
Hypothyroid and Hperthyroid
Essential Tremors
Asthma
Migraines
Fibromyalgia - diag. in 1978 when they called it Fibrositis
PAD Peripheral Artery Disease
Angina and Atrial Fibrillation
Gluten Ataxia
Vitiligo
Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.
Ocular Myastenia Gravis


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