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6 posts in this topic

HI ALL!!

I need a little help....I have had upper left abdominal pain for 2 months now...I also have left flank pain. I have loose stool often in the morning...but not diharrea. other then that I am not extreamly tired considering I have 2 kids 3 year old. No skin conditions I have really bad seasonal allergies so I have a runny nose and itchy eyes. My blood work was normal but it was just checking my blood cell count and my urine was normal. I had a ultra sound last week and an upper GI series done. The doctor said everything is normal but during the upper GI the barium drink went through my small intestine in 10 minutes rather then 2 hours. She has said that people who have there gallbladder removed experience this or people with a wheat intolerance. I have been wheat free for only 3 days and the pain is mild. I ate ice cram yesturday and I found I got the pain in my stomach and felt bloated and had ALOT of gas. I guess my question is are my symptoms typical of celiac??? Please let me know I would GREATLY appreciate it. :)

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Yes, they sound like they could be celiac. It's hard to say though because over 200 symptoms can come with celiac and some people do not get any. Have you had a full celiac panel of bloodwork done? That includes the following:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The tTG, EMA, and total serum IgA are the most important to have done.

If all testing, including biopsy, shows negative then you may just have a gluten intolerance and not full blown celiac yet. That can develop into celiac if you continue to eat it.

Or there could be another problem

Gallbladder complications are connected with celiac as well.

Also, going gluten free includes eliminating wheat,rye,barley, and oats.

There is stuff it can be hidden under as well so if you go gluten free this is a great site to get info of what you need to look for. There is a list you can print out of forbidden and safe ingredients and foods.

Also, with celiac, people at first can have a problem with dairy until damage to the intestine heals.

Good luck :D

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I guess my question is are my symptoms typical of celiac???

Some people have many symptoms and others have none at all. Your symtoms could be celiac. I also get the upper abdominal pain. I think it would be worth your time to go and get the celiac blood test panel (the ones that Kaiti mentioned), if that's is what you want of course ;) Although you may get a false negative result if you are gluten free for too long.

* I also have major issues with dairy *

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Although you may get a false negative result if you are gluten free for too long.

yea, I forgot to mention....don't go gluten free before testing...that will make the results useless

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Thanks!

I had asked my doctor it there were any testing for this problem and she said that elimination is the way to go. I have felt better being away from gluten. I would like to have the biopsy done to see for sure if it is celiac. Is there a difference between celiac and just a wheat intolerance? I have also read that the blood test could give you a false negative anyways, is that true? I also find that when I lay on my stomach or bend over I get a pain in my abdomin, is this characteristic of Celiac? Thanks for the info!

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That can be a symptom of celiac but it also may be correlated with something else.

Blood tests can give you a false negative when if you are off of gluten during testing.

You should get a full panel done. The tTG is the best test...it is the most sensitive and is probably going to take the place of biopsy in kids for diagnosis in the near futrue. The other good tests are EMA and total serum IGA. If all the good tests come back negative the liklihood of you having celiac really drops. If you want to get a biopsy as well as blood tests that's fine too :D The Anti Gliadin IgA can come back a false negative if a celiac has IgA defiency which can come in celiacs.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
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