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Recent Activity
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- plumbago replied to brittanyf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Lots of celiac symptoms but negative blood test? Need advice!
Just to understand the timeline here. You say you cut out the wheat, dairy, and high FODMAP foods for two weeks, but you "just" got your lab results back? So you were not eating the aforementioned foods at the time of the blood draw? It's confusing because you also say that after the negative tests you stopped eating those foods. Let's first clarify the timeline... -
- Celiac16 replied to lydialoo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
Almost in remission!!!
I second this!! I was diagnosed with POTS too and thiamine was a lifesaver along with going low carb (carbs and sugars deplete b1, and diabetics are ubiquitously deficient). It helped my vertigo, nausea, shortness of breath, and tachycardia that had me in and out of the hospital with mild acidosis. I was strict gluten and dairy free for years but continued... -
- brittanyf posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Lots of celiac symptoms but negative blood test? Need advice!
Hi all! I’m new here, but am at my wits end…I’ve been struggling with what seems like classic celiac symptoms and just got results of my blood tests which came back negative. I don’t WANT to have celiac, but feel scared/frustrated with not knowing what’s happening with my body and am worried about what else it could be? For the past year I’ve had ... -
- Celiac16 commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine4
Thiamine Deficiency Disorders
Oh my gosh I am reading my exact story… I just responded to a bunch of problems posts saying the same things… I do pretty much atkins too (under 20g carbs) which has been lifesaving in addition to thiamine. Symptoms are gradually improving, POTS isn’t as bad, and haven’t had the vertigo or nausea I had every time I ate. I think blood sugar may have be... -
- Celiac16 replied to Vicrob's topic in Related Issues & Disorders36
Mild guillaine barre syndrome
I have also benefited from thiamine for lower leg neuropathy, trouble breathing, vertigo, etc. In addition to supplementing, I do low carb (under 20g) bc carbs and sugar deplete thiamine and I feel so much better not eating them. No more nausea Or dizziness after eating and I don’t have to sit up while I sleep to breathe. I am also putting on muscle when I...
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