Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Possible Celiac?
0

8 posts in this topic

Hi all,

i'm new here and i would like some of your advice...

ALL of these symptoms (except for tongue patches) come and go and are not there at the same time, sometimes i feel really great without any problems...

abdominal pain (mostly lower left quadrant)

generalized weakness

swollen, painfull, irritating lymph nodes (cervical left, axillary right)

small red patches on tongue + a nasty white coat + bad taste (candidiasis?)

tingling in hands & feet when the bodypart in question receives too few blood

diarrhea (non-formed stools)

headaches in front head (above & beyond the eyes)

foggy, itchy eyes

warm knees

sore ribs (especially at on place left from my sternum)

little yet significant hair loss

weight gain!? about 10 kilos in 2 years

loss of appetite in morning and noon

but craving for food and sugar in the evening.

sleepless before 3 o'clock midnight

easily irritated + mood swings + having a weird sense of humor

sharp pain in anus lasting for a few seconds (very rare) (i'm a hetero-sexual btw)

feeling like being run over by a train in the morning (lasts for half an hour)

unable to concentrate

lot of transpiration when doing something intensive

itchy inner-ears (especially the left ear)

weird, foul smelling substance between legs and genitals

recurring patches on lips (don't know how you call them in english)

oversensitivity to light (vampire-like)

pale skin (can change back in a nice tan in an hour)

thin nails

nail pitting on 2 nails (psoriasis?) (gone now)

so with these symptoms having almost 2 years i finally got my courage together to see a doctor a few weeks ago. He took some blood + a stool/urine sample + barium x-ray of abdomen + normal X-ray. When visiting the doctor for the results i really thought i had severe anemia (iron, B12, ...) and elevated white blood cell count of possible inflammations.

The results came back perfect. Iron, ferritine, b12 values were perfect he said (B12 was 374... is this normal?) my iron level was even slightly above average??? and the white & red cells and all were also perfectly balanced. X-rays showed nothing remarkable except for a spina bifida occulta <_<

I really had to pursue him to let him refer me to a GI specialist. I'm seeing the GI next week.

Do you think it is possible that i have celiac disease? What should i ask the GI? A small intestine biopt?

0

Share this post


Link to post
Share on other sites


Ads by Google:

It might be, but it might not be. It's hard to say. Did that blood test include the five antibody tests for celiac? That's important. Also, the tongue thing - having been on inhaled steroids for a good length of time in the past, yeah, I'd bet you've got thrush (oral yeast infection). They suck. But there are oral yeast medications that will clear that up fairly quickly.

I would encourage you to keep up with your doctor - or a new one if you're not happy about him addressing the problem once his first round of tests didn't show anything obvious. Definitely get the antibody tests, which should happen before considering a biopsy. After you finish the celiac testing you are going to do, regardless of the results, I would still encourage you to try a strictly gluten-free diet for two months to see if you notice any changes. The true test is what makes you feel better.

0

Share this post


Link to post
Share on other sites

The symptoms do sound like those of celiac but it can be hard to tell for sure from that alone because there are over 200 symptoms with celiac and some people get none at all.

You should probably at least be tested for celiac and request the complete panel which includes the following:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The tTG, EMA, and total serum IgA are the most important tests to get done.

Do not go gluten free until after all the testing you want done is completed because it can mess with the accuracy of results.

Good luck :D

0

Share this post


Link to post
Share on other sites

You sound like the classic celiac to me. Most of that sounds celiac...the most important blood tests to get are the EMA and the tTG...the Anti-Gliadin tests are all but extinct with the much more specific and sensitive tests (in the form of the EMA and tTG). The GI can do the others...it won't hurt, but make sure the two mentioned are run. The others alone cannot diagnose.

0

Share this post


Link to post
Share on other sites

I agree with Kaiti and celiac3270. There is a good probability that you have celiac disease, but you should be tested to be sure as there are other possible causes for your symptoms. The tests all measure your reaction to gluten, so do not stop eating gluten until after the tests.

0

Share this post


Link to post
Share on other sites




There is a good probability that you have celiac disease, but you should be tested to be sure as there are other possible causes for your symptoms.

What are those other possibilities?

*Yeast overgrowth in my body? Doctor laughed at me when i mentioned that...

http://www.candidapage.com/cccomp.shtml

*CFS?

*Fibromyalgia?

*IBS?

maybe I should begin eating a sugarfree diet...

0

Share this post


Link to post
Share on other sites

You have a great probability of celiac: 1/56 with any related symptoms have celiac, and you have sooo many related symptoms, that I don't see how you COULDN'T. IBS is often used as a label when the doctor doesn't really know what's wrong, but it's something GI related.

0

Share this post


Link to post
Share on other sites
You should probably at least be tested for celiac and request the complete panel which includes the following:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The tTG, EMA, and total serum IgA are the most important tests to get done.

hi again,

well, I just came back from the Doc. My blood was tested for all the above antibodies. All are negative... Doc says Celiac is practically impossible. My bloodwork was very good actually. No deficiencies or abnormalities at all. He also did a sigmoidoscopy (for my lower left abdominal pain... he looked until ascending colon) and didn't saw any abnormalities expect a few red patches. Possibly from a previous infection.

Anyway, my official diagnosis is IBS <_<

What should I do now?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined