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Does This Sound Like Celiac?

veggiebite

By veggiebite
in Coping with Celiac Disease

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veggiebite Newbie
veggiebite
Posted

Okay so I have not been officially diagnosed with celiac (no insurance). I'm 18 years old, vegan, and according to blood work and other tests, I am a very healthy, normal weight person (minus asthma)

So tell me if ANY of these events have happened to you, and some advice you may have please :(

Before I considered a gluten allergy, I was getting heart palpitations, this tearing feeling in my stomach, and muscle spasms everywhere. Not to mention being bloated to the point where I looked pregnant. It was so painful and uncomfortable. It felt as if someone was tearing my stomach in half like a piece of paper. At one point I tested positive for blood in urine but had no UTI. Doctor said it may have been from inflammation? Idk. That never really got cleared up.

So once I thought I may be a celiac, I stopped eating gluten. Which started a week ago. Miraculously, these symptoms are GONE!! I couldn't believe it!

However, I noticed my urine is very cloudy. And I am getting these (my apologies for how gross this sounds) white pieces in my stool and mucus. Also, inside the stool there are light colored chunks of something, idk what it is. I read somewhere that these could be wheat proteins leaving my body.

It has me pretty freaked out but I can't go to a doctor until Jan 1st (when my mom gets insurance)

So, has any of these symptoms happened to you? What were they? What helped?

I would love to hear some personal stories.

feel free to email me at veggiebite@aim.com, too

thanks :)

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FooGirlsMom Rookie
FooGirlsMom
Posted

Hi,

I'm 42 and have been gluten-free for about a month now. The symptoms you described are exactly what I had. As my symptoms worsened I started to have heart palpitations also. (They are gone, by the way :) I had cloudy urine right after starting the diet too and when I googled it a bunch of times it said something about milk causing it (I was still not off dairy yet)

Yes, the - ahem - elimination. I didn't have all that much trouble with it until going Gluten Free. Idk if I'm purging out a bunch of stuff from my intestinal track or what...but it's been odd. Same stuff you mentioned plus times of having undigested food (which is generally not normal for me).

I never had the pain you described unless I had indigestion (used to have it baaad in my 20s and 30s - sometimes so much belching & burping I'd throw up).

The biggest "tell" that you have gluten issues is that by going off the gluten, you recover. Like you I always had a bloated stomach if I ate. Once I was off gluten, it took about a week and no more bloat anywhere. I used to even get it in my ankles & face at various times.

One of my worst symptoms was joint & muscle pain (still not completely gone). The last symptom to develop before going gluten-free were leg spasms when I was at rest. Just sitting and watching TV with my legs up on the couch, they would ache & then start spasming.

I honestly think some of these symptoms are inflammation related -- but also vitamin/mineral related. I became aware last year that I wasn't absorbing vitamins properly. I started to have symptoms of vitamin deficiency.

So when you go to the doc in January, even if you aren't tested for Celiac/gluten, have your vitamin levels etc checked and make sure you aren't anemic etc

Good luck :) This is going to be a journey for both of us.

FooGirlsMom

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serenajane Apprentice
serenajane
Posted

Okay so I have not been officially diagnosed with celiac (no insurance). I'm 18 years old, vegan, and according to blood work and other tests, I am a very healthy, normal weight person (minus asthma)

So tell me if ANY of these events have happened to you, and some advice you may have please :(

Before I considered a gluten allergy, I was getting heart palpitations, this tearing feeling in my stomach, and muscle spasms everywhere. Not to mention being bloated to the point where I looked pregnant. It was so painful and uncomfortable. It felt as if someone was tearing my stomach in half like a piece of paper. At one point I tested positive for blood in urine but had no UTI. Doctor said it may have been from inflammation? Idk. That never really got cleared up.

So once I thought I may be a celiac, I stopped eating gluten. Which started a week ago. Miraculously, these symptoms are GONE!! I couldn't believe it!

However, I noticed my urine is very cloudy. And I am getting these (my apologies for how gross this sounds) white pieces in my stool and mucus. Also, inside the stool there are light colored chunks of something, idk what it is. I read somewhere that these could be wheat proteins leaving my body.

It has me pretty freaked out but I can't go to a doctor until Jan 1st (when my mom gets insurance)

So, has any of these symptoms happened to you? What were they? What helped?

I would love to hear some personal stories.

feel free to email me at veggiebite@aim.com, too

thanks :)

Well I had the cloudy urine with no uti too I also tested positive for blood in urine prior to being diagnosed the cloudy urine I have experienced before and after diagnosis.

After being on gluten free diet 4 months or so ( NO CHEATING) I didn't even eat out anywhere during this time I was just trying to wrap my head around the label reading and the phone calls and email to manufacturers with yes or no gluten questions........

I was working out with a friend at the gym pretty regularly for a few weeks normally I drink lots of water at the gym this one night we went after work and I didn't drink as much I only had 1?2 bottle 10 oz or so that night I did notice cloudy urine. I woke @ 4:00 the morning after with bladder spasm and when I went to bathroom my urine was a rusty red color and my bladder continued to spasm I kept laying down and returning to bathroom feeling a strong urge to pee signs of uti.. went to ER and they diagnosed me with uti then mt urine test came back with blood no uti stop meds and off to uroligist had a bladder scope in the days to follow and everything was ok my bladder wasn't emptying all the way so he advised me to slow down when visiting the rest room to stand after peeing tilt forward and then sit back sown to try and finish emptying. I was also put on 2 cranberry pills a day and he wants to see me in a year

prior to being diagnosed with celiac I was spilling proteins into my urine. This was detected at my routine physical ???????

anyone else have anything to add from there experience????

sorry for long winded response

don't ignore your symptoms we are all very different some hospitals or clinics have a sliding fee for uninsured people don't let something that doesn't feel right go unchecked.

Hope things work out well for you:0)

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