Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I'm New
0

5 posts in this topic

Hi everyone, I'm very new here and if someone can help me through the ropes I'd appreciate it.

I've had chronic diarrhea for over a year and do NOT know what to do at this point. I've been tested for all the usual suspects. I've had the blood test for celiac and it came back fine.

Can someone bet gluten sensitive and still have a "normal" celiac test.

Help.

Tigger

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yep, you absolutely can have a problem with gluten and still have normal blood tests. Of course, the first question that comes to mind is: what blood tests did you have? (A lot of docs don't run the full panel, or require more positives than others might require for a diagnosis.)

The other thing to consider, besides the interpretation of the tests is whether or not your intestines had enough damage for the antibodies the blood tests look for to escape the intestinal tract. They may not have had that much damage - yet.

If you still want to investigate gluten intolerance AND your doc already ran the correct tests with truely negative results (not just inconclusive), then I would encourage you to try the gluten-free diet (strictly) for two months to see how you feel. Do not, however, try the diet until you are done with all diagnostic testing.

0

Share this post


Link to post
Share on other sites
I've had chronic diarrhea for over a year and do NOT know what to do at this point. I've been tested for all the usual suspects. I've had the blood test for celiac and it came back fine.
I would guess that you may have a food allergy or intolerance. If I were you I would ask for the full celiac panel, a wheat allergy test, casein and lactose intolerance test, and maybe allergy testing (like skin prick tests) to see if you are allergic to other foods like, soy, eggs, and nuts.
0

Share this post


Link to post
Share on other sites

I had the runs for 11 years so I've got you beat! :rolleyes: My Celiac blood work came back negative too. However I went on a gluten-free diet and my runs stopped in a very short time.

Since then I've had a DNA test and I do carry the main genes for Celiac and every time I'm accidently glutened I get the runs for weeks again. Some people "need" to have their doctor tell them a test was positive, I don't need that, the proof I get with my reactions to gluten is enough for me.

You might want to try a very simple diet for a few weeks, thats how I did it. I ate chicken, rice and some veggies for a week or so and bingo the runs stopped.

Susan

0

Share this post


Link to post
Share on other sites

Maybe you should ask your doctor about the possibility of collagenous colitis..... After a decade of permanent diarrhea, they finally found out that's what it was....

Good luck!

Karen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,634
    • Total Posts
      921,526
  • Topics

  • Posts

    • I've been diagnosed with celiac a few months ago I thought that I had it for a while now it runs in the family.  I found out I had it a few months back when I ate chick fi a sandwich and had to go to the ER because I couldn't stop throwing up. They didn't know what it was and it took a few more months for anyone to take me seriously and find out what's wrong   Anyways I've gone gluten free now and I still have pains whenever I eat ANYTHING. It's cramping and burning and feels like my stomach is on fire.  I also have pains...below which I'm not sure what it is.  I ate a salad today, and now i'm in pain the salad had cheese, onion on it no dressing or any breading... Maybe I should stay away from cheese, I think it may be lactose and can't eat soy.   I ate some gluten free chex the other day with rice milk and ended up in pain.. I don't know maybe it's more than just celiac. I don't know if this is normal for people just going gluten free...maybe there was some hidden gluten in those foods. I don't know.   All i know is that this pain is hurting me and I'm tired. Thanks for reading...this is my first post.
    • I found my gas issues were caused by carbs, and sugars, something about how the bacteria in my gut changed and started making me gassy and extremely bloated when they got a hold of any thing more then a tbsp of grains, beans, fruit, or starch carbs. And no amount of medicine helped. Changed to 1/4 servings of those and mostly protein, fat diet. As for vitamin supplements I found I have to take B vitamin supplements 3 times a day to not go zombie mode. I personally found Liquid Vitamins Energy & Stress and the Nero-logic from them helps along with the occasional 1/2 bottle of 5 hour. As to carbonated water I avoided it when bloated cause it made me feel worse.
    • Butterbean, do go have a read of the dermatitis herpetiformis section.  See if anyone's story sound familiar to what you're experiencing.
    • Hi all. Well, it's been around twenty days since I've been taking Gas-X like meds (with simethicone), but no relief. Maybe I should drink bigger dose... Currently, I'm taking 80 mg four times per day.
      I'm so exhausted, both mentally and physically... Anyway, I have two questions:
      First, is it good or bad to drink mineral/carbonated water if you have severe trapped gas like me?
      Second: Is it possible to regain some physical strength/relieve fatigue with vitamin supplements? Thanks in advance.
    • I have had so many issues with my teeth--I keep getting decay and I have had filling after filling.  This past week, my dentist told me I may need a crown, which is pricey. I also have two missing teeth, which was a genetic thing that runs in my family. I am sick of hygienists telling me I am not doing enough brushing, flossing rinsing.  I do all three religiously (can't even imagine how bad my mouth would be if I didn't...)  Thankfully, last time I had my teeth cleaned, the hygienist said that my mouth was the cleanest one she had seen in years. And, she said, "something happened to your teeth developmentally." I explained how I had undiagnosed celiac disease many years. I am only 31... It is really disheartening.   What do you guys do to afford all this dental care?  My insurance doesn't cover a whole lot.  Thankfully, my dentist has felt bad and gives me discounts here and there.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined