Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Long Did It Take To Start Feeling Better
0

15 posts in this topic

I have been on a gluten free diet for a week and I still have a constant pain in my lower stomach. The diarrhea has stoped through. I still get alot of gas to.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

1

Share this post


Link to post
Share on other sites

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

Hi Dennis, welcome to the forum.

I was dx'd in April. I felt worse for the first few months after going gluten free. It's like your system is screwed up and it takes time to peak before the auto immune response starts to settle down. So just hang in. One week is only the beginning unfortunately... but i am doing SO much better but it took until the 5th month mark.

1

Share this post


Link to post
Share on other sites

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

My Docter did some blood test last Wednesday and called me on Friday. He wanted me to try a gluten free diet for two weeks and gave me information on Celiac Disease. So I'm not 100% sure that it is celiac. I do have alot of the sysptoms though.

0

Share this post


Link to post
Share on other sites

My Docter did some blood test last Wednesday and called me on Friday. He wanted me to try a gluten free diet for two weeks and gave me information on Celiac Disease. So I'm not 100% sure that it is celiac. I do have alot of the sysptoms though.

If it is celiac or gluten intolerance, healing will take a while. It is not like just flipping a switch off. It took a while to get where you are and it will take a while to recover.

0

Share this post


Link to post
Share on other sites




Does any one knwo what the doc may after the two weeks are? Or what I should ask him.

Thank you.

0

Share this post


Link to post
Share on other sites

Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

if you avoid dairy and soy what do you eat for breakfast? i love cheese and use soy milk for cereal.

0

Share this post


Link to post
Share on other sites

Well you can always have scrambled eggs, or a fruit salad, or, if your like me and your not picky, I'll make a tuna salad-yes, for breakfast-I just don't really care if I have lunch/dinner food for breakfast. Maybe even google some breakfast ideas :) Personally, i love having a mix of fresh fruit for breakfast

0

Share this post


Link to post
Share on other sites

Dairy and soy are common offenders, that is why they are suggested to be removed.

Almond milk, coconut milk, rice milk and hemp milk. There might be more.

0

Share this post


Link to post
Share on other sites

Don't hate me: It was a full 6 months before i had one completely symptom free day. But... I did see improvements. A few things improved right away like my anxiety attacks. But other stuff took awhile. i went through many weird phases too. Like there were a couple of weeks where I could not eat anything without feeling sick. Then it passed.

Give it time and read about withdrawals on this board so you know it's "normal."

0

Share this post


Link to post
Share on other sites

I pretty sure dairy products cause a problem now I had a bowl of rice check's with milk and it caused gas and DH I also had broccoli and cheese yesterday and it caused the same problem so I'm pretty sure I will have to lay off dairy for a while.

0

Share this post


Link to post
Share on other sites

I could tell a difference within three days (but that's not always the case, as many have noted), but it was almost a year before I felt the full benefits of the diet.

There were so many benefits that I didn't know enough to hope for. I just thought I was getting older (even though I was plenty young).

It was just a slow gradual improvement, until one day I realized "Hey, I don't get canker sores anymore" or "Wow, I feel good in the mornings" or "My joints aren't hurting like they used to" -- and one day it was "I feel better than I've felt in 10 years."

0

Share this post


Link to post
Share on other sites

It was a full 6 months before I had ONE completely symptom free day. I did get small increments of healing and relief over time. I'm 11 months gluten free and a completely new person!

Celiac is an autoimmune disease which means your intestines look like a war zone in Iraq right now. It takes time to heal all that damage and destruction. You will go through phases and your body is working overtime to heal that mess.

Give it what it needs to succeed. Eat a clean healthy diet and get every speck of gluten out of your diet and out of your soaps and things. Soap and lotion get into your mouth somehow some way. You will get better but it takes time. Be patient and it WILL pay off! I promise.

0

Share this post


Link to post
Share on other sites

The panic attacks/anxiety/depression stopped almost immediately :) It took a few months for the d and nausea to go away, because I kept accidentally getting gluten from seemingly "gluten-free" items, or at restaurants from ignorance/miscommunication. But even then, it was a lot better, usually something like 3 days feeling great, then "oops I got glutened again :(" and feeling sick for a few days until I recovered.

It took a while for some other random food intolerances to go away.

I still get very sick when I eat soy, but dairy is not a problem for me.

If you're keen, you can do a mini elimination diet - take out dairy and soy for a week, and then re-introduce only one of those for a week, and see if it makes a difference. If you're sensitive to soy, it should be *very* obvious ;)

0

Share this post


Link to post
Share on other sites

I'm the exact opposite as Marz. My nausea and D pretty much went away in a week but all the mental symptoms took more like a year. I had no idea the gluten was even causing them until I realized I was getting anxiety attacks when I got glutened.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,133
    • Total Posts
      919,526
  • Topics

  • Posts

    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Is coffee glutem free or not ?  Always wondered about this ............. got to have my coffee... I am new to this  , very new .........
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    georgemathews
    Joined