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Is This Celiac Book Good?
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7 posts in this topic

Hi,

I've been hearing about a book written by an RN who has celiac disease, and the book is meant to help patients and doctors to know how to recognize celiac disease and its symptoms. I can't find much info on the book except that it is available on various book websites. There's no date on the book listing though, so I'm not sure when it was published. Before I order the book, I thought I'd ask if anyone else has seen it, read it, heard of it, and if it is helpful.

Recognizing Celiac Disease, by Cleo J. Libonati

thanks!

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Did you see this site about the book? http://www.recognizingceliacdisease.com/7.html

It has pdf pages you can review. It was written in 2007.

I haven't heard of the book. Perhaps you can request your local library to get it then you wouldn't have to buy it. I do that alot. (I homeschool my two girls and use our library ALOT!)

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I checked out the website and it looks good...I'm just wondering if the book is useful to justify the cost (I moved to Croatia and getting books delivered here is $$$$$$$...cost of book + delivery+duty+extra taxes= about $100 for a $30 book). The library here definitely won't have the book, well, if they have it, it won't be in English ;)

I'll write to the author and see if maybe there is an electronic version coming out anytime soon, and then I'll wait and order that one. (e-book = no shipping, no duty, no taxes).

thanks for your help!

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This may or may not be helpful, but nowadays the libraries of the world are all linked up and on the web. I know that I can log into my local library here in the US, search for a book, and if it's not in our library system, I can find which library nearby or anywhere in the world has it. I was looking for a book about something to do with Washington, DC, and a library nearby had one, but so did a library in Madrid.

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I'm in Croatia, so trying to access libraries outside of the country doesn't work because those sites usually block access. It is the same reason I also can't watch any US tv shows, or access things like videos on lots of newspapers and websites. But thanks for the idea. I'm also waiting to hear back from the publisher if they will have a digital version of the book coming out. I'll post their answer when I get it.

Thanks!

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Have you considered asking for an e-reader (Kindle, Nook, iPad, etc.) for Christmas? Sounds like you could quickly recover the costs by being able to download books so much cheaper than buying! At $100 a book the Nook looks cheap!

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Santa has been notified!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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