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The What's For Dinner Tonight Chat


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Adalaide Mentor

Be good to yourselves while recovering. No rush to "be all better". Your body needs extra time after anesthesia. Got it?  ;) good. Big hugs!

 

Dinner last night was meatball pizza. Really daring for me. So far, so good.And our table and chairs finally arrived, so we were thrilled

to be able to sit and eat....all that standing was getting old. (j/k we borrowed a neighbor's card table --and they are getting a flourless chocolate cake with ganache as a"thank you". )

 

I'll be good. I have nothing to hurry for. I figure I can be better when I'm better, and until then I'm happy to be a lump with my netflix and my books. :D

 

Do I have anything you need to borrow so I can get a cake? Um... I mean gratz on the table finally showing up! :P Did two guys personally carry it from Zimbabwe or something? Sheesh, it took long enough.

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moosemalibu Collaborator

Made another chicken stir fry. For the sauce I used Worcestershire, San-j gluten-free soy sauce, some sriracha and 1 cup of light balsalmic vinaigrette. To thicken it I used guar gum--but it didn't need much if at all.  I used 2 bags of frozen stir fry veggies and 3 lb of chicken (a bit much .. but I was not willing to leave behind 1 breast and cook that differently.. haha - just really high in protein). Pretty satisfying and it made about 6 portions (and these are good sized portions). Served it over brown rice.

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IrishHeart Veteran

 Did two guys personally carry it from Zimbabwe or something? Sheesh, it took long enough.

 

It was only coming from Georgia for pete's sake..man, J could have built the table and chairs and you could have upholstered them for me  a whole lot faster.... :D  ah well, borrowing a table from the new neighbors worked out. I have some new pals and their dogs are adorbs. And she already said "If you ever need anyone to check on your kitty...."  Good to know.

See, all things work out.

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LauraTX Rising Star

I'm up way, way too late tonight. This is what happens when a much anticipated new video game is released. I think I'll just have a little of the meatloaf I'm already going to be making before i pack it away for dinner tonight. Probably have to call in an early dinner and starve all night. <_<

HAHAHAHA my husband was up past dawn playing the new Diablo expansion.  We are big wow players, I play Diablo casually but he is a serious gamer.  Like, sometimes I think I need to take him to gaming rehab, LOL!

 

Jamie, that chicken stir fry sounds good, pretty similar to what I do.  I am all for making delicious things with leftovers, I eat them at lunchtime.

 

Irish, I am glad I put off the gallbladder surgery a couple of years, because now they can use the Da Vinci surgical robot system and remove the gallbladder with one incision through the bellybutton.  With my immunodeficiency they very much like to do fewer and smaller incisions if possible so that is nice.  I did my preop appointment yesterday, got the freezer stocked with frozen dinners and a good amount of make ahead freezer meals for me.  Lots of soup, pudding, stuff like that to eat while I'm not feeling too hot. 

 

Honestly, I am nervous.  My career is in healthcare and I am much more comfortable giving people their pills than being the patient myself.  Something about the total loss of control.  I am well aware of all the risks involved and it scares me a lot.  I know this sounds silly, but I really fear suffering and being in terrible pain, but I know me waking up at night screaming in pain and scaring the crap out of my husband is not something I like to do... so I am going to get it done, lol.  I had two hand surgeries in 2012 (carpal tunnel release on both hands) and before the first one I basically had a panic attack when they called me back to go get changed and stuff.  Hopefully I won't do that this time, I am not that nervous, am more accepting that this A-hole gallbladder is finally getting the boot.

 

But yes, tonight, it will be an early dinner for me and I too shall starve until my early morning procedure.  I get grumpy when I don't eat, haha.  So I probably won't be on here, at least coherently, for a few days.  And after I eat all my freezer meals I made and hopefully they are good, I will have to post recipes for ya'll.  Thanks for all the positive thoughts, all!  And Addy I will be thinking about you!!

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moosemalibu Collaborator

HAHAHAHA my husband was up past dawn playing the new Diablo expansion.  We are big wow players, I play Diablo casually but he is a serious gamer.  Like, sometimes I think I need to take him to gaming rehab, LOL!

 

Jamie, that chicken stir fry sounds good, pretty similar to what I do.  I am all for making delicious things with leftovers, I eat them at lunchtime.

 

Irish, I am glad I put off the gallbladder surgery a couple of years, because now they can use the Da Vinci surgical robot system and remove the gallbladder with one incision through the bellybutton.  With my immunodeficiency they very much like to do fewer and smaller incisions if possible so that is nice.  I did my preop appointment yesterday, got the freezer stocked with frozen dinners and a good amount of make ahead freezer meals for me.  Lots of soup, pudding, stuff like that to eat while I'm not feeling too hot. 

 

Honestly, I am nervous.  My career is in healthcare and I am much more comfortable giving people their pills than being the patient myself.  Something about the total loss of control.  I am well aware of all the risks involved and it scares me a lot.  I know this sounds silly, but I really fear suffering and being in terrible pain, but I know me waking up at night screaming in pain and scaring the crap out of my husband is not something I like to do... so I am going to get it done, lol.  I had two hand surgeries in 2012 (carpal tunnel release on both hands) and before the first one I basically had a panic attack when they called me back to go get changed and stuff.  Hopefully I won't do that this time, I am not that nervous, am more accepting that this A-hole gallbladder is finally getting the boot.

 

But yes, tonight, it will be an early dinner for me and I too shall starve until my early morning procedure.  I get grumpy when I don't eat, haha.  So I probably won't be on here, at least coherently, for a few days.  And after I eat all my freezer meals I made and hopefully they are good, I will have to post recipes for ya'll.  Thanks for all the positive thoughts, all!  And Addy I will be thinking about you!!

 

I know what you mean about working in the health care field and having procedures done... My first sugery (fractured radius/ulna- horse riding trauma) I had a terrible recovery... it made me nervous for each and every surgical procedure I have had since. Thankfully my 3 knee surgery recoveries were smoother.. I was very twitchy with my anesthesiologist. I basically said I take way too long to recover and I will wake up vomiting so hit me with your strongest antinausea. It works. ;) I am sure things will be fine. Just breathe breathe breathe. Don't let all the 'what if' possibilities drive you crazy. What is going to happen will happen regardless if you worry or not! Easier said than done.. ((Hugs))

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Adalaide Mentor

We're Diablo people too, and very seriously. We used to be WoW players but gave it up. I've spent half of my day today while I'm supposed to be getting ready playing the new Diablo expansion instead of getting ready. But we beat it, so hah! B) But I can't eat dead, corrupted angels so I better get back to getting ready. :lol:

 

I got 4 little scars from my gallbladder, nothing cool like being operated on by a robot! I'm kind of jealous that you're getting something so super high tech and awesome. You're so organized getting ready before today. My biggest fear is I'll doze off and find some moron with a pressure cuff on my left arm and I'll strangle them. Or it'll end up a fight over me eating my food, even though they said it won't. I'm just scared of being able to manage my CRPS and celiac while I'm there for 23 hours, once I'm home I know I'll be in good hands with my husband.

 

Good luck!!! And feel better fast. ^_^

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GottaSki Mentor

I know what you mean about working in the health care field and having procedures done... My first sugery (fractured radius/ulna- horse riding trauma) I had a terrible recovery... it made me nervous for each and every surgical procedure I have had since. Thankfully my 3 knee surgery recoveries were smoother.. I was very twitchy with my anesthesiologist. I basically said I take way too long to recover and I will wake up vomiting so hit me with your strongest antinausea. It works. ;) I am sure things will be fine. Just breathe breathe breathe. Don't let all the 'what if' possibilities drive you crazy. What is going to happen will happen regardless if you worry or not! Easier said than done.. ((Hugs))

 

I was a post-op barfer too -- really didn't work out great for the inner ear surgery...but I did learn to ask for the best antinausea meds too -- haven't had trouble since - well with vomit.  All morphine derivatives make me itch terribly -- love when i was doped up after hysterectomy and my family thought it was funny that i couldn't explain how bad I was itching -- grrrr.  Other than that I just feel like crap for about a week after anesthesia.  I agree with Jamie ask for the good anti-nausea meds -- I really should find out what those are -- so far I've been ok with "really good, rolls royce of anti-nausea" description.

 

hmmm...all this surgery talk reminds me I need a new protocol for my silly mast cells -- hopefully we won't need to use it any time soon.

 

Best of luck tomorrow -- Addie and Laura -- we'll all be waiting to hear you are on the mend :)

 

Dinner Tonight:

 

Orange Chicken

http://www.primalyum.co.uk/#!orange-chicken/c22kp -- Mark's Daily Apple posted today

Rice for men, Zu-Rice for me

Broccoli

Tapioca Pudding -- I am so excited to have a little dairy back -- and tapioca too : )

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IrishHeart Veteran

I can't do most drugs (codeine makes my heart  thud out of my chest and causes nausea and the whirlies, sedatives make me hyper and anxious(I live in opposite world, apparently), anesthesia?--barf-o-rama later... and you should see me if you give the control button on the morphine drip. It's not pretty.  :blink: I hit that thing so many times I had a migraine for a week. Don't do that! lol

 

Our celiac bodies are not designed to do drugs, methinks....

 

Listen to me, both of you!! It will be over before you realize it and you are going to be fine. Getting yourselves worked up over it beforehand is not a good idea. Just makes all those muscles extra ouchy and tense. Just think this way: I am going to be better off when all is said and done.

 

I'm down about 6 organs at this point and apparently, I don't need them.  lol

 

okay, pretend this is me cheering you both on tomorrow!!

 

cheering-clapping-smiley-emoticon.gifgo addy go laura woot woot supergirls.

 

and if I were having surgery tomorrow, I'd be stockpiling the gelato....just sayin. 

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GottaSki Mentor

Irish made me snort  :lol:  -- it wasn't pretty :P -- was shacking on baby cucs with cilantro garlic (heavy garlic) sauce -- ouch!!!

 


"I'm down about 6 organs at this point and apparently, I don't need them.  lol"

 

:D

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IrishHeart Veteran

Irish made me snort  :lol:  -- it wasn't pretty :P -- was shacking on baby cucs with cilantro garlic (heavy garlic) sauce -- ouch!!!

 

"I'm down about 6 organs at this point and apparently, I don't need them.  lol"

 

:D

 

lmao...now I am laughing ....but sorry about the uptake snort..ouch lmao

oooh baby cukes with cilantro garlic...gimme some!! gimme some!! lol

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Adalaide Mentor

It's almost 6 in the morning. I slept like hell. The morphine makes me itch like hell but the percocet isn't quite enough alone yet so we added benadryl. I've been outta bed a few times and am surprised at how much easier it is to get around than I thought it would be. No issues at all with my CRPS protocol or food. We have a simple ask before you touch policy and the nurses have been awesome. They've heated my broth for me, and my lavender heating pad. I was even allowed regular food last night so my husband brought me meatloaf and mac & cheese. I'm even feeling good enough the if I talk to someone from the kitchen maybe they can feed me chex for breakfast. Applesauce is awesome, but just not cutting it. I'm STARVING!

Anyway. I guess my point is I'm doing awesome. Sometime today I'll get to go home and can chill with non-stupid tv, classic Dr. Who and my collection of new movies I picked up at pawn shops for $1-2 each.

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Adalaide Mentor

Has anybody heard from Laura? Laura..... hulloooooooo........????????

 

I'm home and feeling about as awesome as can be expected. Which is generally like I got my guts ripped out. Hahaha. I was up taking 10 minute walks at the hospital often enough to have made a deal with them to get those stoopid things off my legs. I'm getting my short walks now out front of the house and the change of scenery and fresh air is great. Of course, I didn't tell all the neighbors I was having surgery so they probably all think I'm a crazy person shambling like a zombie out front every few hours in my jammies. :lol: I'm down 3 organs now and I have to say that I'm pretty happy without them. B) (I should have told them to take my appendix for the lols just in case it ever decides to betray me.)

 

It's been 2 days and I can't take another bite of meatloaf or casserole or any other such thing. So I'm making my husband cook me a frozen pizza tonight. He can find my rainbow carrots in the bottom of the freezer for me also and get a few bags out to easy reach for me so I can just steam the in the microwave tomorrow while I'm home alone.

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GottaSki Mentor

Has anybody heard from Laura? Laura..... hulloooooooo........????????

 

I'm home and feeling about as awesome as can be expected. Which is generally like I got my guts ripped out. Hahaha. I was up taking 10 minute walks at the hospital often enough to have made a deal with them to get those stoopid things off my legs. I'm getting my short walks now out front of the house and the change of scenery and fresh air is great. Of course, I didn't tell all the neighbors I was having surgery so they probably all think I'm a crazy person shambling like a zombie out front every few hours in my jammies. :lol: I'm down 3 organs now and I have to say that I'm pretty happy without them. B) (I should have told them to take my appendix for the lols just in case it ever decides to betray me.)

 

It's been 2 days and I can't take another bite of meatloaf or casserole or any other such thing. So I'm making my husband cook me a frozen pizza tonight. He can find my rainbow carrots in the bottom of the freezer for me also and get a few bags out to easy reach for me so I can just steam the in the microwave tomorrow while I'm home alone.

 

This is fantastic news Addie .... keep up the walks!  I am so very happy it went well.

 

I'm not worried about Laura...I am certain she is fine...but likely having a bit harder time in the hospital than you.  She'll be back online very soon -- right, Laura?

 

Love and hugs to you both : )

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Adalaide Mentor

This is fantastic news Addie .... keep up the walks!  I am so very happy it went well.

 

I'm not worried about Laura...I am certain she is fine...but likely having a bit harder time in the hospital than you.  She'll be back online very soon -- right, Laura?

 

Love and hugs to you both : )

 

I know she has her own challenges that make things difficult. I'm sure she is fine too. I just wanted to hear how her cool robot surgery went and hopefully see her pop her head in and just say hi, and that she generally feels like hell, or whatever, because I'm sure we both do, and she can go back to whatever. At least if she reads this she knows we're thinking of her. :wub:

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LauraTX Rising Star

Im alive!!!!! One of the worst experiences of my adult life, they ended up keeping me over night to control my pain as I had a hard time and was basically a 10/10 pain level in delirium all Thursday. They were able to feed me half decently but I hadn't prepared for that so I was all like... Ugh. Lol. Went home the next day, much more comfortable at home with hubby taking care of me, setting alarms so i don't miss a pain med dose but am already getting a teeny bit better.

There was some gluten-free bread they fed me in the hospital called like celebration bakery or something I made my husband write it down, SO GOOD OMG! Will need to hunt that down. Hopefully tomorrow I'll be able to sit at the computer and not have to use the internet on my phone. So I will hop on next when I can do that. Just thought I better post on here before they think i died lol. Thanks for the kind thoughts guys!!!!! :)

-loopy hydrocodoned laura

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Adalaide Mentor

Awww, I'm so sorry it didn't go well for you. But at least you got awesome bread out of it! I hope it wasn't just awesome because you were drugged. LOL! :lol: Feel better soon!

 

I'm sure my MIL who is always worried about appearances is thrilled with this, but I've been getting short walks out front all day yesterday. Today I should be good to walk to the other corner about a block away. In my jammies. Oh yeah, bringin sexy back! B)

 

You're so brave letting the hospital feed you at all. I was too scared for that. Other than milk from a carton, and at some point I ate a popsicle that came in it's package (I was pretty drugged, but I did read the ingredients) I was way to afraid they were morons who would poison me out of incompetence. Also, three cheers for awesome husbands who take care of us when we're all sorts of messed up.

cheerleader.gif

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GottaSki Mentor

Im alive!!!!! One of the worst experiences of my adult life, they ended up keeping me over night to control my pain as I had a hard time and was basically a 10/10 pain level in delirium all Thursday. They were able to feed me half decently but I hadn't prepared for that so I was all like... Ugh. Lol. Went home the next day, much more comfortable at home with hubby taking care of me, setting alarms so i don't miss a pain med dose but am already getting a teeny bit better.

There was some gluten-free bread they fed me in the hospital called like celebration bakery or something I made my husband write it down, SO GOOD OMG! Will need to hunt that down. Hopefully tomorrow I'll be able to sit at the computer and not have to use the internet on my phone. So I will hop on next when I can do that. Just thought I better post on here before they think i died lol. Thanks for the kind thoughts guys!!!!! :)

-loopy hydrocodoned laura

 

Yay!  Call off the search ;) 

 

Glad you were able to check in Laura :)

 

Sorry it was a rough procedure :(

 

Rest up  :wub:

 

 

. Also, three cheers for awesome husbands who take care of us when we're all sorts of messed up.

cheerleader.gif

 

 

Absolutely!!!!

 

cheerleader.gif

cheerleader.gif

cheerleader.gif

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IrishHeart Veteran

cheerleader.gif well, I am all about thanking supportive husbands, so cheerleader.gif

 

wait, this girl is not the same cheerleader we used to use.This girl is too freakin bouncy.  She's making me nauseous...lol

 

anyhoo....

 

I am glad you are both okay and I trust you will both do what you are supposed to do to get back on your feet and back in the ballgame.

Not taking away from your experiences one single bit, and I know how icky it all is, but the procedures are a whole different than they used to be in the "olden days" and recovery took weeks and weeks.Incisions into deep muscle and tissues = not so good. Just take it easy and hydrate and get those drugs out of your systems as soon as you can. (okay, enough mother hen stuff)

 

Dinner tonight is  meatloaf, whipped potatoes and English peas. Just feel like an old school dinner. lol

Tomorrow may be grilled game hens with risotto and asparagus. This is very exciting to me because we have not been able to grill all this time (we left ours for the new home owners) ...and we are getting a new one Tuesday.  whoohoo.

 

What can I say ? I am easily amused and delighted by small things. 

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GottaSki Mentor

:lol: Is it possible our new cheerleader crashed the site?  :lol:

 

She is awfully peppy ;)

 

Dinner tonight:

 

Baked Chicken Thighs with Honey Lemon Sauce

Pad Thai Noodles with Honey Lemon Chili Sauce

Broccoli

 

Encore Strawberry Pie for the Men -- Hey...guess who finally made an awesome flaky, rolled out pie crust -- yep, that's right -- never had issue with gluten-free cake baking, but previous regular pie crust left a lot to be desired.

 

For me and only me --- I found these little dark belgian choc cups that I used to make Almond Butter Cups -- OH MY GOODNESS how I missed Resee's (for the peanuts, soy and other crap, I know they are gluten-free).

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LauraTX Rising Star

I'm sitting at my computer desk right now for the first time :D  Harder to move arms and type and stuff will mostly browse but yay for entertainment not on a cell phone! I think I should be able to start cutting down on the pain med tomorrow.  My hubby is going back to work so he will leave mid afternoon and have me set up with things in easy to reach places, and my stepmom (who is like my mom) will stop by after she is off work to heat up something for me and get me settled again for my lunch.  Then my hubby gets home after midnight, of course we are usually up pretty late with that schedule so ill eat something again for dinner when he gets home. I am going to have my stepmom put on one of the freezer crockpot meals I made to be ready when hubby gets home, and I am glad I did make them up because I am tired of frozen dinners I just want real food, haha.  I will post more about the experience in maybe a few days, specifically trying to ask the nutrition lady gluten-free eating questions after I had had every drug under the sun... haha, she was so patient!  At least I now have a hospital I can say I want to go to if I have to go to a hospital again.

 

Lisa do you have a recipe/directions for those Baked Chicken Thighs with Honey Lemon Sauce? sounds good:) I like chicken thighs and leg quarters

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gilligan Enthusiast

Has anybody heard from Laura? Laura..... hulloooooooo........????????

 

I'm home and feeling about as awesome as can be expected. Which is generally like I got my guts ripped out. Hahaha. I was up taking 10 minute walks at the hospital often enough to have made a deal with them to get those stoopid things off my legs. I'm getting my short walks now out front of the house and the change of scenery and fresh air is great. Of course, I didn't tell all the neighbors I was having surgery so they probably all think I'm a crazy person shambling like a zombie out front every few hours in my jammies. :lol: I'm down 3 organs now and I have to say that I'm pretty happy without them. B) (I should have told them to take my appendix for the lols just in case it ever decides to betray me.)

 

It's been 2 days and I can't take another bite of meatloaf or casserole or any other such thing. So I'm making my husband cook me a frozen pizza tonight. He can find my rainbow carrots in the bottom of the freezer for me also and get a few bags out to easy reach for me so I can just steam the in the microwave tomorrow while I'm home alone.

I'm glad you're doing well.  I have to ask - what are rainbow carrots???

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Adalaide Mentor

Rainbow carrots are carrots that aren't orange. They're purple, red, yellow and white. Every color tastes a little different, but they all still taste like carrots. I got a huge bag of them really cheap a while ago and blanched and froze them. Now I have a freezer full of beautiful carrots. :D

 

I think tomorrow I'll probably start to have time that I'm actually off of my drugs, which means I may be able to start to cook again. Which is nice because this frozen food thing is old. It's been less than a week and I can't stand my "leftover" cooking. I want fresh cooked meals.

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LauraTX Rising Star

I want rainbow carrots!!!   I, too am sick of frozen dinners... its funny how much you spoil yourself when you home cook most everything.  Had my stepmom put on a freezer crock pot meal... honey garlic chicken.  Will have that tonight so hopefully it is good. Was a recipe I made untested off the internet.  I think by tomorrow I will be pretty much independent, able to cut down on loopy laura pain meds today, but will wait to do things like shower until my hubby is home. Lunch today is a annies gluten-free mac and cheese cup and a big dollop of fat free refried beans to keep things moving.  Haha.  

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GottaSki Mentor

:blink: Loopy Laura  :blink:

 

Glad you are improving!

 

:angry: Angry girl here today :angry:

 

 -- too much time dealing with insurance companies, doctors and more for my Mom -- good thing a wonderful friend sent me the new America's Test Kitchen Cookbook  :wub:  and I received a free ticket from Living Without for their San Diego gluten-free Fair in May -- the mail carrier may have saved someone in my family from my wrath ;)

 

Son without job on Spring Break has been instructed to cook tonight -- steak, baked mac and cheese along with peas is his go-to menu.  I'll throw a paleo pizza in the oven for me :)

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Adalaide Mentor

Apparently it has been decided that I'm allowed to use the oven. So I'm baking some chicken tonight. Yay!!! Not frozen meals. Carrots and maybe rice or something with it.

 

Insurance companies and everything about them are designed to just piss people off. I had to spend hours on the phone between my PT and insurance, then spend a weekend waiting for a callback, just to find out my PT is out of network but that I can get an exception. <_< Tomorrow I get to try to make sure it's all sorted out and make an appointment. Joy.

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    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
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